0:00:04.560,0:00:09.960
♪I won't lie I was terrified[br]when the doctor said those words♪

0:00:09.960,0:00:16.169
♪My feet went from beneath me[br]could not believe what I just heard♪

0:00:16.169,0:00:22.005
♪If I judged my condition[br]from what I saw on television♪

0:00:22.005,0:00:25.560
♪I'd give up♪

0:00:28.345,0:00:35.908
S1 944 ,000 people are estimated to be[br]currently living with dementia in the UK

0:00:35.908,0:00:40.959
[Music]

0:00:41.699,0:00:48.040
Dementia killed almost double[br]the number of women than men in 2020

0:00:48.040,0:00:53.385
[Music]

0:00:53.385,0:00:59.762
Dementia has been the leading cause of death[br]in women since 2011

0:00:59.790,0:01:04.640
[Music]

0:01:04.640,0:01:09.370
9% of people over 65 have dementia.

0:01:09.370,0:01:18.099
[Music]

0:01:18.449,0:01:21.579
Dementia will impact 50% of us

0:01:22.079,0:01:27.173
either through a personal diagnosis or[br]by caring for someone who has it.

0:01:27.173,0:01:35.480
[Music]

0:01:35.600,0:01:42.705
1.6 million people will be living[br]with dementia in the UK by 2040

0:01:43.074,0:01:48.513
[Music]

0:01:48.513,0:01:56.290
Dementia is the most feared[br]health condition by 60% of people over 65.

0:01:56.434,0:02:04.449
[Music]

0:02:05.880,0:02:12.805
Dementia care costs in Northern Ireland[br]are projected to increase 192%

0:02:12.805,0:02:19.994
from 800 million in 2019[br]to 2.4 billion in 2040.

0:02:30.390,0:02:35.329
Wayfinding in unfamiliar places[br]can be more challenging

0:02:35.329,0:02:38.091
for people living with dementia.

0:02:40.910,0:02:46.483
Environment may affect people living[br]with dementia more than most.

0:02:49.128,0:02:54.640
Noisy and chaotic spaces can feel[br]disorientating and overwhelming,

0:02:54.640,0:02:59.405
may increase anxiety or frustration,[br]causing changes in behaviour.

0:03:02.110,0:03:08.360
Everyday life for people living[br]with dementia can be exhausting

0:03:09.126,0:03:11.040
though it may not be obvious to you.

0:03:11.702,0:03:18.074
It takes longer for people living[br]with dementia to process information.

0:03:18.074,0:03:24.469
Our brains have to work harder[br]to filter out external stimuli

0:03:24.911,0:03:30.791
often leaving us feeling depleted,[br]exhausted and spent.

0:03:31.400,0:03:35.359
This makes our symptoms of dementia[br]more evident.

0:03:36.290,0:03:51.778
[Music]

0:03:51.778,0:04:01.381
74,000 800 people are estimated[br]to be living with young onset dementia

0:04:01.547,0:04:04.281
in the UK and Ireland

0:04:04.530,0:04:11.663
[Music]

0:04:11.663,0:04:19.503
Young onset dementia is when symptoms[br]of dementia start before the age of 65

0:04:19.740,0:05:05.059
[Music]

0:05:06.880,0:05:13.969
Dementia NI members formed a working group[br]in 2022

0:05:14.749,0:05:20.391
that included eight individuals[br]living with dementia like me,

0:05:21.132,0:05:26.791
supported by four staff members[br]working collaboratively together:

0:05:27.556,0:05:29.562
one from dementia NI

0:05:30.257,0:05:37.150
and three from the Southern and Southeast[br]Health and Social Care Trusts.

0:05:38.778,0:05:44.770
The members of dementia NI are always[br]looking for opportunities to engage

0:05:44.770,0:05:50.117
with hospital and social care staff[br]to describe what it's like

0:05:50.117,0:05:57.125
to live with dementia and to share[br]with them our challenges as well as ways

0:05:57.125,0:06:03.790
we can best be supported in both[br]clinical and hospital environments.

0:06:04.240,0:06:12.232
However, speaking to every trust member[br]in person is an impossible task.

0:06:12.914,0:06:18.114
So we decided to create a documentary[br]to help us interact

0:06:18.611,0:06:25.240
with members of the Health and Social Care[br]services to help bridge this gap.

0:06:26.747,0:06:33.227
Over the course of 22 months we met [br]regularly to decide the content

0:06:33.426,0:06:40.194
of this film, sharing our own personal[br]experiences across the spectrum,

0:06:41.180,0:06:45.348
both positive and challenging experiences.

0:06:46.499,0:06:52.215
We thought it would be beneficial[br]to provide staff with 10 top tips

0:06:52.743,0:06:57.303
for supporting people like us[br]living with dementia.

0:06:58.004,0:07:03.546
We believe these these practices[br]can be easily implemented

0:07:04.120,0:07:08.440
without adding an extra burden to staff

0:07:08.440,0:07:12.829
and will lead to an improved[br]staff-patient interaction

0:07:13.626,0:07:19.667
and in the long run will save time;[br]Many people have commented:

0:07:20.143,0:07:25.149
"What is good for people living[br]with dementia is good for everyone."

0:07:25.857,0:07:33.079
And we the members of dementia NI[br]are sure you will find this to be so too.

0:07:36.759,0:07:41.809
We know you will find the following[br]individual experiences engaging

0:07:42.279,0:07:45.188
even if somewhat emotional at times,

0:07:45.511,0:07:51.512
and that you will be able to put some[br]of the practical tips into action

0:07:51.646,0:07:55.486
[Introducing members of Dementia NI --[br]the producers of this training resource --

0:07:55.486,0:07:58.523
and their experiences within health and[br]social care settings]

0:07:58.900,0:08:01.749
S2 I'm Davie Michael McElhinney[br]from County Fermanagh

0:08:01.749,0:08:06.622
I was diagnosed with[br]frontal temporal dementia 7 years ago

0:08:07.152,0:08:09.280
I was aged 54.

0:08:09.885,0:08:13.440
S3 My name is Martin Murtagh

0:08:14.288,0:08:17.137
My dementia is Alzheimer's dementia

0:08:17.427,0:08:21.240
S4 So my name is Peter Alexander[br]I was born in England, Twickenham,

0:08:21.240,0:08:24.912
so the good old rugby place.

0:08:24.912,0:08:30.980
S5 My name is Gerard Doran, I was[br]diagnosed with dementia when I was 61.

0:08:31.120,0:08:33.549
S6 Yes, I'm Christopher Higgins

0:08:33.549,0:08:37.951
and my dementia was discovered[br]just two years ago.

0:08:37.951,0:08:43.013
S7 Yes, my name's Allison,[br]Allison Bachelor, I live in Dundonald

0:08:43.013,0:08:49.091
and was diagnosed with Alzheimer's[br]in April 2017

0:08:49.240,0:08:53.399
S8 I'm a newly diagnosed person[br]with dementia.

0:08:54.280,0:08:59.868
My past knowledge of dementia was[br]that I was a social worker in hospital

0:09:00.200,0:09:05.409
S9 Hi, my name is Tom, Tom Heatly,[br]and

0:09:06.819,0:09:13.240
I have dementia, I've been diagnosed

0:09:13.240,0:09:17.519
with dementia with Lewy bodies

0:09:19.259,0:09:26.188
that was back about just over a year now.

0:09:26.640,0:09:30.146
Treat us with common courtesy.

0:09:30.146,0:09:35.549
S8 Treat us with respect,[br]as valued, capable adults

0:09:36.005,0:09:41.433
Be aware of your facial expression,[br]tone of voice

0:09:41.433,0:09:45.472
and your non-verbal communication

0:09:45.839,0:09:52.989
And when the students came, they said:[br]"Oh I see here this person has dementia,

0:09:53.443,0:09:56.263
I don't know how to speak to dementia."

0:09:56.994,0:09:59.040
And I think that is the problem.

0:09:59.040,0:10:01.560
They think they're speaking[br]to the dementia.

0:10:02.297,0:10:07.754
But I always said to them: "So what[br]if they have dementia?

0:10:07.754,0:10:09.854
speak to the person first.

0:10:10.120,0:10:18.320
You will hear a little bit when they reply[br]about de the way they are affected,

0:10:18.793,0:10:23.665
but just keep speaking to the person[br]behind the dementia

0:10:23.861,0:10:27.936
because it's the person[br]you want to talk to.

0:10:29.440,0:10:34.680
S9 Basically you talk about[br]valuing an individual.

0:10:35.809,0:10:43.817
In all those years that I have been[br]a trainer in the trust,

0:10:46.672,0:11:00.944
basic values are the primary[br]important factor

0:11:01.659,0:11:04.440
S4 What I would say, yes:

0:11:05.183,0:11:11.501
if I was to write a book from a person[br]who has dementia,

0:11:13.344,0:11:17.632
it would be to say I'm hurting inside too.

0:11:18.494,0:11:21.675
I might not be able to express it,

0:11:22.600,0:11:26.139
but I'm still the same person as I was[br]when I was younger.

0:11:27.606,0:11:29.519
I am still that today,

0:11:30.399,0:11:35.032
it's just that the person I am is getting[br]locked away more and more inside me.

0:11:35.813,0:11:37.983
So don't treat me any differently.

0:11:38.720,0:11:40.624
I'm still the same person as I was

0:11:42.543,0:11:45.839
even though you might have [br]some preconceived ideas

0:11:46.517,0:11:51.549
that because I got dementia,[br]I'm an incontinent old person.

0:11:51.880,0:11:55.882
but I'm not: I was diagnosed[br]at the age of 49

0:11:55.882,0:12:00.320
and at that time I was told that[br]I shouldn't work anymore

0:12:00.734,0:12:05.696
and that I shouldn't drive anymore[br]because of my judgment being impaired.

0:12:07.658,0:12:09.000
S8 Give us time

0:12:09.985,0:12:13.359
We need more time to process than you.

0:12:13.764,0:12:18.199
Allow us to respond before you move on.

0:12:18.901,0:12:21.674
Don't bombard us with questions.

0:12:21.972,0:12:28.381
S? We're just normal human beings with [br]a good mind

0:12:28.381,0:12:30.120
and just normal people.

0:12:30.935,0:12:40.933
The dementia does bring up[br]different problems,

0:12:41.416,0:12:47.148
you know, such a speech: now my speech,[br]while I'm sitting here talking to you,

0:12:47.755,0:12:52.750
there's -- words just disappear[br]out of my vocabulary

0:12:53.445,0:12:57.183
and that's why you could see me[br]struggling there a couple of wee bits

0:12:57.760,0:13:01.000
that's because a normal[br]conversational word

0:13:01.926,0:13:07.953
whenever it disappears I have to fish[br]for another word that will fit

0:13:07.953,0:13:09.440
in the slot in this place,

0:13:10.298,0:13:13.019
but your mind's going around like[br]a washing machine

0:13:13.019,0:13:16.467
and it can't pick the words out sometimes.

0:13:17.051,0:13:21.279
S? Yeah it still sticks with me that[br]that day I felt very rushed

0:13:21.279,0:13:24.959
and uh it was very blunt.

0:13:24.959,0:13:30.209
There's no easy way to deliver bad news[br]but it was very very blunt I thought

0:13:30.639,0:13:34.800
and we left with no information at all[br]that Friday afternoon.

0:13:34.800,0:13:38.944
We went out for the weekend[br]and with absolutely nothing.

0:13:38.944,0:13:42.076
I thought, I thought with only weeks[br]to live after that, you know.

0:13:42.988,0:13:45.255
So I did and I think more time[br]would have helped

0:13:45.255,0:13:49.176
and maybe a bit more compassion[br]with the, from the consultant.

0:13:50.549,0:13:53.524
S8 Don't make assumptions about us.

0:13:54.083,0:13:58.466
Don't presume you know what we want,[br]feel or need

0:13:58.914,0:14:03.341
or what we might be able to understand[br]or decide.

0:14:03.926,0:14:06.625
Discuss us with us directly.

0:14:07.834,0:14:13.909
Give our loved ones the "This is me"[br]person-centered document

0:14:13.909,0:14:17.134
to help you care for me effectively.

0:14:18.657,0:14:22.191
S? Yeah I had gone to a local[br]ANE (?) Department.

0:14:22.926,0:14:25.011
This would be a few years ago now.

0:14:25.011,0:14:30.920
And I had said to the nurse who had after[br]gone through from triage, you know,

0:14:30.920,0:14:33.680
been called into the back area, you know,

0:14:33.680,0:14:36.264
to be waiting to be seen by a doctor[br]and to have

0:14:36.264,0:14:38.547
some sort of bloods or whatever done,

0:14:38.547,0:14:42.480
and I had said to her that I had[br]dementia diagnosis

0:14:42.830,0:14:49.323
and she instantly dismissed it and told me[br]"Just tell the doctor" and walked away.

0:14:50.024,0:14:53.160
And I have to say that put me[br]into a bit of a panic mode

0:14:53.160,0:14:55.816
because I sort of thought,[br]I didn't feel safe then,

0:14:56.059,0:14:59.081
I sort of thought that she should[br]have taken a wee bit of time,

0:14:59.081,0:15:03.260
even just by saying:[br]"Okay we've taken note of that

0:15:03.260,0:15:07.266
but if you need us to go to the toilet or[br]if you need any help with anything,

0:15:07.266,0:15:09.176
you know, just give one of us a shout."

0:15:09.176,0:15:12.199
But I sort of felt it wasn't taken,

0:15:12.199,0:15:15.199
seriously that it and I thought it was

0:15:15.199,0:15:17.160
something that she did need to know you

0:15:17.160,0:15:18.800
know I thought it was something that she

0:15:18.800,0:15:21.920
needed to take note of and to be aware

0:15:21.920,0:15:23.600
of

0:15:23.600,0:15:26.320
and you know as I say I just sort of

0:15:26.320,0:15:29.240
felt a bit more unsafe than if had have

0:15:29.240,0:15:30.959
been given a way bit of time cuz I sort

0:15:30.959,0:15:32.800
of thought if I need to go to the toilet

0:15:32.800,0:15:35.279
or I need you know who do I say to I

0:15:35.279,0:15:36.880
didn't feel after that I could say to

0:15:36.880,0:15:39.319
any other nurse who came into to me by

0:15:39.319,0:15:41.800
the way I have a dementia diagnosis

0:15:41.800,0:15:45.120
because of the way she had treated

0:15:45.120,0:15:49.839
me I learned more about

0:15:50.560,0:15:54.720
dementia I worked with

0:15:54.800,0:15:58.800
people who

0:15:59.519,0:16:03.079
were true

0:16:03.920,0:16:08.920
professionals who were truly

0:16:08.920,0:16:12.560
impressive in their

0:16:13.800,0:16:17.160
approaches and

0:16:17.519,0:16:20.000
who helped

0:16:20.000,0:16:23.399
me so

0:16:23.560,0:16:26.839
much to

0:16:27.440,0:16:32.319
identify what I could do as opposed to

0:16:32.319,0:16:38.120
all the all these things that I couldn't

0:16:39.040,0:16:42.399
do notes help us to

0:16:42.399,0:16:45.680
remember provide written information

0:16:45.680,0:16:49.240
using jarg andfree language to help us

0:16:49.240,0:16:50.600
to

0:16:50.600,0:16:54.079
understand help us to keep notes so that

0:16:54.079,0:16:57.560
we can keep track of what is happening

0:16:57.560,0:17:00.680
for example when I attend Ed a hospital

0:17:00.680,0:17:03.679
I needed to meet an individual staff

0:17:03.679,0:17:08.880
member who was fairly aware of dementia

0:17:08.880,0:17:10.400
and helped me

0:17:10.400,0:17:14.359
support on a regular basis throughout my

0:17:14.359,0:17:16.839
stay especially with regards to

0:17:16.839,0:17:19.880
explaining and noting the key aspects of

0:17:19.880,0:17:23.760
my appointment and how to cope well in

0:17:23.760,0:17:27.240
the ward itself

0:17:29.000,0:17:33.160
so if you have someone

0:17:33.160,0:17:36.559
who has

0:17:38.559,0:17:42.360
dementia ensure

0:17:42.360,0:17:48.600
that you are making clear to the

0:17:48.600,0:17:53.440
individual what is being

0:17:53.440,0:17:56.520
discussed what is

0:17:56.520,0:18:00.520
being agreed

0:18:00.520,0:18:04.919
and that there is someone with

0:18:04.919,0:18:08.080
them that

0:18:08.080,0:18:09.760
can

0:18:09.760,0:18:13.960
either take notes for

0:18:13.960,0:18:19.600
them if they do not have the

0:18:20.720,0:18:24.559
ability to make

0:18:27.520,0:18:33.120
clear and any decisions that are

0:18:33.919,0:18:38.919
taken to make clear

0:18:38.919,0:18:42.559
anything that has

0:18:44.919,0:18:48.799
been that has been

0:18:49.320,0:18:53.600
discussed environment may affect us more

0:18:53.600,0:18:54.880
than

0:18:54.880,0:18:59.280
you the environment we are in

0:18:59.280,0:19:03.159
affects us more than you provide a

0:19:03.159,0:19:06.960
calming environment and opportunities to

0:19:06.960,0:19:10.120
engage in activities that mean something

0:19:10.120,0:19:11.960
to

0:19:11.960,0:19:16.679
us use person centered tools like this

0:19:16.679,0:19:20.880
is me to find out more about me to

0:19:20.880,0:19:25.520
tailor activities to meet my needs

0:19:25.520,0:19:28.440
specifically designed quiet places and

0:19:28.440,0:19:30.720
mus girls can

0:19:30.720,0:19:33.360
help there are also important issues

0:19:33.360,0:19:36.760
regarding how the building itself looks

0:19:36.760,0:19:41.159
unfamiliar surroundings noises and busy

0:19:41.159,0:19:44.320
unclear spaces can be challenging and

0:19:44.320,0:19:46.600
lead the agitation and

0:19:46.600,0:19:49.280
confusion it's important for a dimension

0:19:49.280,0:19:52.039
person to have an individual space away

0:19:52.039,0:19:55.760
from others I think navigation and we

0:19:55.760,0:19:58.880
finding is also important and it is help

0:19:58.880,0:20:02.520
to have appropriate signs ideally they

0:20:02.520,0:20:05.720
should be slightly large with clear

0:20:05.720,0:20:09.799
words placed at face level and not too

0:20:09.799,0:20:13.440
high merals and painting can also be

0:20:13.440,0:20:16.720
helpful ideally colors that aren't too

0:20:16.720,0:20:20.320
dark such as red and green I recently

0:20:20.320,0:20:25.440
found it difficult to find uh tight uh

0:20:25.440,0:20:28.799
toilet near my bed until the Staff

0:20:28.799,0:20:31.840
member helped me find it as it didn't

0:20:31.840,0:20:34.960
have a sign but the biggest thing would

0:20:34.960,0:20:37.000
be

0:20:37.000,0:20:40.320
disorientation and confusion uh you know

0:20:40.320,0:20:41.960
of coming out of a room and knowing

0:20:41.960,0:20:44.360
which way to turn and what way to go and

0:20:44.360,0:20:46.799
that's why for me sign AG is vital you

0:20:46.799,0:20:48.919
know in all situations and if there's

0:20:48.919,0:20:51.400
good sign AG I'm much more confident and

0:20:51.400,0:20:53.320
and can live much more

0:20:53.320,0:20:55.440
independently I would describe my head

0:20:55.440,0:20:57.280
as like a washing machine you know of so

0:20:57.280,0:20:59.320
much G through and try

0:20:59.320,0:21:03.400
to process things you know that would be

0:21:03.400,0:21:04.760
the biggest

0:21:04.760,0:21:07.600
challenge it's it's even more confusing

0:21:07.600,0:21:09.280
cuz you're already not well you know

0:21:09.280,0:21:10.880
you're already worried about what's

0:21:10.880,0:21:13.679
going on why you're there uh and the

0:21:13.679,0:21:16.679
noise and you know yourself anybody is

0:21:16.679,0:21:18.640
sort of in an particularly in an NA

0:21:18.640,0:21:20.360
Department there's so much banging and

0:21:20.360,0:21:23.200
cluttering and there's noise going on

0:21:23.200,0:21:24.799
either side of you in front of you

0:21:24.799,0:21:26.600
behind you you know there's so many

0:21:26.600,0:21:29.840
conversations going on uh you know quite

0:21:29.840,0:21:32.000
often you're planted quite close to the

0:21:32.000,0:21:34.080
nursery station because there's no

0:21:34.080,0:21:36.600
cubicles um you know and there's all the

0:21:36.600,0:21:38.320
noise and all the movements sort going

0:21:38.320,0:21:41.240
on that and it it can become very very

0:21:41.240,0:21:44.880
confusing and uh you know it's a hard

0:21:44.880,0:21:46.919
thing to process any information and

0:21:46.919,0:21:49.840
then when they come to speak to you you

0:21:49.840,0:21:51.559
know there's so much noise going on

0:21:51.559,0:21:54.159
there's so much backgr noise

0:21:54.159,0:21:56.760
and conversations going on around you

0:21:56.760,0:21:59.000
that is hard to process what actually

0:21:59.000,0:22:01.840
been said to you whereas again a very

0:22:01.840,0:22:04.000
simple thing would be to have somewhere

0:22:04.000,0:22:07.080
that once they know you have a dementia

0:22:07.080,0:22:09.679
diagnosis and to ask the person you know

0:22:09.679,0:22:12.360
what can we do to help and I think most

0:22:12.360,0:22:14.120
people would say if I could have a quiet

0:22:14.120,0:22:16.200
room to have whenever the doctor's

0:22:16.200,0:22:20.559
talking to me I think that would make a

0:22:20.559,0:22:22.240
big difference you know you would sort

0:22:22.240,0:22:24.480
of know that during that important time

0:22:24.480,0:22:25.960
when you're meant to be able to take

0:22:25.960,0:22:29.080
information in you know that they would

0:22:29.080,0:22:31.120
take you somewhere that that could

0:22:31.120,0:22:35.520
happen easier than it does in the busy

0:22:35.520,0:22:36.720
any

0:22:36.720,0:22:39.520
Department it was again with I mention

0:22:39.520,0:22:42.400
in hospitals it was a new hospital

0:22:42.400,0:22:43.960
absolutely

0:22:43.960,0:22:46.440
beautiful like an into a very Swanky

0:22:46.440,0:22:48.400
hotel but you go in there you're not

0:22:48.400,0:22:51.320
coming back out there is no signage

0:22:51.320,0:22:54.960
anywhere and the every Corridor looks

0:22:54.960,0:22:57.760
exactly the same and you sort of have to

0:22:57.760,0:22:59.960
go up in the left and go long a bit then

0:22:59.960,0:23:01.880
go down and a left and go long a bit and

0:23:01.880,0:23:05.320
then come back up again you know um

0:23:05.320,0:23:08.360
because of the waya they intertwined and

0:23:08.360,0:23:09.960
as I say you can out have a lift but

0:23:09.960,0:23:11.840
there's no signage to tell you to turn

0:23:11.840,0:23:14.760
left turn right or what way to go you

0:23:14.760,0:23:18.600
know and that was a horrible

0:23:18.600,0:23:21.279
experience well I have had the

0:23:21.279,0:23:26.320
experience of um going into Hospital

0:23:26.320,0:23:28.840
under an am with an ambulance J in the

0:23:28.840,0:23:30.080
times of

0:23:30.080,0:23:32.520
covid

0:23:32.520,0:23:36.200
and the ambulance team were fantastic

0:23:36.200,0:23:39.039
cuz they were aware of my challenges

0:23:39.039,0:23:43.600
they thought I had a triple A um but it

0:23:43.600,0:23:46.240
actually turned out to be kidney stones

0:23:46.240,0:23:49.120
but when they took me into the hospital

0:23:49.120,0:23:51.480
rather than just sitting

0:23:51.480,0:23:55.120
there in the general area they

0:23:55.120,0:23:58.000
accelerated my Passage through to being

0:23:58.000,0:24:01.159
on a a bed in one of the cubicles

0:24:01.159,0:24:02.880
because they knew that with my

0:24:02.880,0:24:07.039
behavioral variant of of of of of the

0:24:07.039,0:24:09.880
dementia of the the FTD the frontal

0:24:09.880,0:24:13.520
temporal dementia that my filters had

0:24:13.520,0:24:16.919
disappeared I would say things as I felt

0:24:16.919,0:24:20.840
about them I would swear which I

0:24:20.840,0:24:23.559
wouldn't have done in the past but

0:24:23.559,0:24:26.320
frustration the feeling of not being

0:24:26.320,0:24:29.480
able to express yourself as as I once

0:24:29.480,0:24:33.080
did these things lead to just filterless

0:24:33.080,0:24:35.799
behaviors and it's not that you're being

0:24:35.799,0:24:39.080
unkind or nasty to the staff it's just

0:24:39.080,0:24:41.880
how things come across so it's important

0:24:41.880,0:24:44.480
that the staff in that environment build

0:24:44.480,0:24:48.240
a rapport with the patient build the

0:24:48.240,0:24:51.360
trust and the confidence where they can

0:24:51.360,0:24:53.600
exchange freely and

0:24:53.600,0:24:57.320
happily and the second time I um

0:24:57.320,0:25:00.360
developed culat my eye and I went to the

0:25:00.360,0:25:01.960
ation first of all it was late on in the

0:25:01.960,0:25:05.120
evening and uh he he rang the casualty

0:25:05.120,0:25:07.919
to say expect me so they were expecting

0:25:07.919,0:25:09.279
it and again they knew at that time I

0:25:09.279,0:25:11.919
was living with the Mana so the uh

0:25:11.919,0:25:14.360
consultant actually saw me and the the

0:25:14.360,0:25:16.360
emergency department was very busy so

0:25:16.360,0:25:18.000
she actually took me to a very quiet

0:25:18.000,0:25:20.440
place away from the the emergency

0:25:20.440,0:25:23.399
department and they did all all the had

0:25:23.399,0:25:25.000
to do at that time

0:25:25.000,0:25:27.559
and her care and even the nursing care

0:25:27.559,0:25:30.720
was was was was first class at that time

0:25:30.720,0:25:33.440
with really noise and and a lot of

0:25:33.440,0:25:36.000
people yeah I find people's faces just

0:25:36.000,0:25:39.120
blur and the noise just it really

0:25:39.120,0:25:41.320
scrambles my brain I can't think or

0:25:41.320,0:25:43.520
focus on anything with with noise a

0:25:43.520,0:25:46.240
quiet place would be ideal yeah

0:25:46.240,0:25:50.919
yeah assume we have capacity don't make

0:25:50.919,0:25:54.240
assumptions about our level of capacity

0:25:54.240,0:25:57.799
or ability to engage in our care

0:25:57.799,0:26:00.159
planning and decision

0:26:00.159,0:26:03.559
making I may not have capacity to make

0:26:03.559,0:26:06.640
every decision but there will be some

0:26:06.640,0:26:11.960
decisions I can still make and want to

0:26:11.960,0:26:16.399
make don't speak to our family members

0:26:16.399,0:26:21.200
and ignore us speak directly to us first

0:26:21.200,0:26:24.399
and allow us to defer to our support

0:26:24.399,0:26:28.760
person if we need to

0:26:28.760,0:26:31.880
ask me what you

0:26:31.880,0:26:36.640
need what sorry I would want them to ask

0:26:36.640,0:26:38.520
me what I needed or wanted not to

0:26:38.520,0:26:40.440
presume they know because they might

0:26:40.440,0:26:43.480
have had somebody in earlier that day or

0:26:43.480,0:26:45.399
the day before or the week before with

0:26:45.399,0:26:47.080
the dementia diagnosis he needs

0:26:47.080,0:26:49.679
something different to what I would need

0:26:49.679,0:26:52.000
you know so I would always say you

0:26:52.000,0:26:55.360
know treat that person as an individual

0:26:55.360,0:26:57.840
and find out what you can do that will

0:26:57.840,0:27:01.279
make them them more comfortable feel

0:27:01.279,0:27:05.200
safer and and in the turn that will ease

0:27:05.200,0:27:07.640
your workload because if the person with

0:27:07.640,0:27:10.120
the dementia diagnosis feels relaxed and

0:27:10.120,0:27:14.640
feels at ease they're less likely to be

0:27:14.640,0:27:18.520
given hustle or be kicking off about

0:27:18.520,0:27:21.320
something I'm a sitting in the outside

0:27:21.320,0:27:24.200
wetting room when she asked me could it

0:27:24.200,0:27:26.080
come into the room and I SP to you if

0:27:26.080,0:27:28.000
you want your son to come in you can

0:27:28.000,0:27:29.559
come and I says no I'll just going

0:27:29.559,0:27:32.120
myself and when I went into the room she

0:27:32.120,0:27:34.320
was going shook my hand and says to me

0:27:34.320,0:27:36.760
Martin I'm sorry to tell you I'm not

0:27:36.760,0:27:38.760
sure the exact words but you have

0:27:38.760,0:27:40.039
Alzheimer's

0:27:40.039,0:27:42.720
dementia well you're you're taken back

0:27:42.720,0:27:45.480
you're just shock she says you want me

0:27:45.480,0:27:49.120
to get your son bring him in and I I

0:27:49.120,0:27:52.000
says no not definitely not to my son I

0:27:52.000,0:27:53.840
get my sons together when to go home and

0:27:53.840,0:27:55.559
I'll tell them when to go home I got

0:27:55.559,0:27:57.679
them settled down and things I says look

0:27:57.679,0:28:00.240
I feel gr I still feel the same thing

0:28:00.240,0:28:01.960
I'm still your daddy I'm still the thing

0:28:01.960,0:28:04.720
and I'm still get carrying on and two of

0:28:04.720,0:28:06.360
my sons are two

0:28:06.360,0:28:10.080
M Twins and there there we go oh God not

0:28:10.080,0:28:11.799
be able to tell him anything now not

0:28:11.799,0:28:14.279
keep a secret he can't keep anything but

0:28:14.279,0:28:16.919
it was it was good the experience was

0:28:16.919,0:28:21.000
good be aware of our details don't make

0:28:21.000,0:28:25.159
us repeat our story multiple times it

0:28:25.159,0:28:29.080
makes us feel like we are being tested

0:28:29.080,0:28:32.640
Ed read your colleagues assessments

0:28:32.640,0:28:36.000
repeating information is

0:28:36.000,0:28:40.080
exhausting for us yeah again I think

0:28:40.080,0:28:41.640
that's it you know the nurse comes in

0:28:41.640,0:28:43.360
you see the nurse and Tre eyes you tell

0:28:43.360,0:28:46.120
them the story you then see whoever you

0:28:46.120,0:28:48.600
move to into the cubicles or into the

0:28:48.600,0:28:51.080
back bit of the any you tell them your

0:28:51.080,0:28:53.679
story the doctor then comes in or a

0:28:53.679,0:28:56.480
doctor comes in and you tell them it but

0:28:56.480,0:28:58.519
there may be not the particular doctor

0:28:58.519,0:29:00.039
you need to see if it's something

0:29:00.039,0:29:01.840
specific you're there for you know if it

0:29:01.840,0:29:04.600
was for example something to do with

0:29:04.600,0:29:06.600
your heart you know you would get a

0:29:06.600,0:29:08.399
general doctor come in talk oh you need

0:29:08.399,0:29:10.000
to you know we need to get something

0:29:10.000,0:29:12.159
done from Cardiology or whatever they

0:29:12.159,0:29:13.919
can die and you have to repeat the whole

0:29:13.919,0:29:17.200
thing again uh and that can become quite

0:29:17.200,0:29:18.880
frustrating and you sort of think you

0:29:18.880,0:29:21.279
know can you not read you know can you

0:29:21.279,0:29:23.000
not actually look at the notes that have

0:29:23.000,0:29:26.559
been taken um 10 times beforehand uh and

0:29:26.559,0:29:28.120
you s of are they're trying to trick you

0:29:28.120,0:29:29.880
right here you know trying to get you to

0:29:29.880,0:29:32.120
say something different to what you had

0:29:32.120,0:29:35.320
said before I think it is I think it's a

0:29:35.320,0:29:38.960
challenge you know because as I say by

0:29:38.960,0:29:40.440
you're that stage you're already in a

0:29:40.440,0:29:43.600
real state of confusion and panic

0:29:43.600,0:29:47.880
and um a bit more unsettled you know so

0:29:47.880,0:29:50.559
to be asked the same story over again

0:29:50.559,0:29:52.399
can become very frustrating and I think

0:29:52.399,0:29:54.480
at times in I think you can become a bit

0:29:54.480,0:29:56.320
sharper than maybe that what you would

0:29:56.320,0:29:59.600
normally be but it's because you sort of

0:29:59.600,0:30:01.120
you're fed up with the length of time

0:30:01.120,0:30:02.720
you sort of have sitting there probably

0:30:02.720,0:30:04.080
waiting anyway and you haven't seen

0:30:04.080,0:30:05.640
anybody and then the next person come

0:30:05.640,0:30:07.240
say ask the exactly the same question

0:30:07.240,0:30:10.200
again you s think like this has moved on

0:30:10.200,0:30:12.399
nowhere you know you

0:30:12.399,0:30:14.440
haven't you know you're asking me what

0:30:14.440,0:30:16.880
the person asked me two hours ago but

0:30:16.880,0:30:19.159
you're doing nothing different but yes I

0:30:19.159,0:30:21.360
think it is a challenge you know with I

0:30:21.360,0:30:23.440
think it's a challenge for anybody but I

0:30:23.440,0:30:24.760
think for somebody with a dementia

0:30:24.760,0:30:26.720
diagnosis yesterday is more of a

0:30:26.720,0:30:29.519
challenge you use Clear

0:30:29.519,0:30:33.799
language if you are going to perform an

0:30:33.799,0:30:36.399
intervention talk to us

0:30:36.399,0:30:40.440
beforehand and explain each step in

0:30:40.440,0:30:44.559
clear words or with gestures if our

0:30:44.559,0:30:46.720
understanding is very

0:30:46.720,0:30:48.880
limited give us

0:30:48.880,0:30:52.799
time explaining the procedure will help

0:30:52.799,0:30:54.960
us to

0:30:54.960,0:30:58.320
participate if I need reassurance

0:30:58.320,0:31:01.600
reassure me I'm not saying you have to

0:31:01.600,0:31:04.600
have dementia to understand it what I'm

0:31:04.600,0:31:08.679
saying is what I said to students is

0:31:08.679,0:31:12.320
take it easy at the beginning don't

0:31:12.320,0:31:16.200
bombard them with a rapid release of

0:31:16.200,0:31:20.480
questions and don't L link questions

0:31:20.480,0:31:23.480
together make the subject if it is

0:31:23.480,0:31:25.760
driving something like

0:31:25.760,0:31:29.120
that say are you driving your

0:31:29.120,0:31:32.639
car wait for the answer and then if they

0:31:32.639,0:31:36.200
say no I'm not then you can discuss it

0:31:36.200,0:31:39.440
with them but I think if you go into

0:31:39.440,0:31:43.639
something you know it only makes them I

0:31:43.639,0:31:46.840
can't interrupt this but I don't agree

0:31:46.840,0:31:50.360
with her so very gently say l thank you

0:31:50.360,0:31:54.720
very much for coming to talk to me and I

0:31:54.720,0:31:58.559
know very little uh about how you're

0:31:58.559,0:32:02.320
feeling at the moment so can you tell me

0:32:02.320,0:32:06.080
how you felt when you got your diagnosis

0:32:06.080,0:32:09.760
what went before did you think you had

0:32:09.760,0:32:12.639
dementia and how you felt when you

0:32:12.639,0:32:17.320
actually were told you have

0:32:17.320,0:32:20.440
dementia makes a

0:32:20.440,0:32:25.000
difference Health and Social Care

0:32:25.000,0:32:30.320
staff working with any form of

0:32:30.519,0:32:33.519
dementia

0:32:33.960,0:32:36.720
need to

0:32:36.720,0:32:39.399
communicate

0:32:39.399,0:32:42.760
clearly with any

0:32:42.760,0:32:47.159
individual with any form of

0:32:47.159,0:32:49.639
dementia they

0:32:49.639,0:32:55.080
need to give clear

0:32:56.000,0:32:58.919
instructions their need

0:32:58.919,0:33:00.159
to

0:33:00.159,0:33:02.080
ensure that

0:33:02.080,0:33:05.760
people with whom they are

0:33:05.760,0:33:07.960
working

0:33:07.960,0:33:12.360
have a clear

0:33:12.360,0:33:14.639
understanding of

0:33:14.639,0:33:18.360
what is being

0:33:19.600,0:33:25.039
discussed and that they

0:33:25.039,0:33:29.159
have made clear

0:33:29.159,0:33:31.279
here

0:33:31.279,0:33:36.519
exactly what is being

0:33:36.799,0:33:41.240
shared what is being

0:33:41.960,0:33:46.519
said maintain our confidentiality and

0:33:46.519,0:33:51.120
dignity share information with us

0:33:51.120,0:33:53.919
sensitively and take into

0:33:53.919,0:33:58.639
consideration our confidentiality

0:33:58.720,0:34:02.080
privacy and dignity are

0:34:02.080,0:34:05.559
important we may not want other patients

0:34:05.559,0:34:08.918
visitors to know we have

0:34:08.918,0:34:13.838
dementia yeah within the hold of

0:34:13.960,0:34:17.639
dementia I find myself falling apart I

0:34:17.639,0:34:19.879
find

0:34:19.879,0:34:22.879
myself

0:34:23.960,0:34:29.560
unable to be the person I was

0:34:29.560,0:34:31.919
to

0:34:33.079,0:34:36.000
communicate the

0:34:36.000,0:34:40.399
way I should be able to

0:34:43.239,0:34:45.918
communicate I

0:34:45.918,0:34:49.158
lost my

0:34:49.639,0:34:52.719
skills I lost a lot

0:34:52.719,0:34:56.999
of what was

0:34:59.960,0:35:02.880
what being

0:35:03.119,0:35:05.280
me as a

0:35:05.280,0:35:08.280
person

0:35:14.200,0:35:17.320
was I

0:35:17.320,0:35:20.720
was I was

0:35:22.760,0:35:27.160
lost well for for myself or anybody of

0:35:27.160,0:35:30.119
the just P his like hard if I come in as

0:35:30.119,0:35:30.920
a

0:35:30.920,0:35:32.960
patient they don't know why I've got the

0:35:32.960,0:35:36.680
Mana unless I tell them I've got the

0:35:36.960,0:35:40.480
Mana don't don't have me

0:35:40.480,0:35:43.000
to have to say that I've got the Manion

0:35:43.000,0:35:46.200
just treat me where courtesy of of think

0:35:46.200,0:35:49.319
most most sitting rooms in the hospital

0:35:49.319,0:35:51.920
you know are like they're Havoc if it

0:35:51.920,0:35:54.800
comes to a thing many of places been in

0:35:54.800,0:35:56.640
I've turned around and says look I'm in

0:35:56.640,0:35:58.680
the early stages of the Mana could you

0:35:58.680,0:36:00.480
give me a we bit of time

0:36:00.480,0:36:04.680
here and just things get mixed up for I

0:36:04.680,0:36:07.079
think could just if my name would come

0:36:07.079,0:36:08.720
up in that

0:36:08.720,0:36:12.599
computer without me having to say and

0:36:12.599,0:36:14.480
200 people or 100 people behind me

0:36:14.480,0:36:19.720
listening he's got the Mana list he's

0:36:19.720,0:36:22.240
different it's different just just come

0:36:22.240,0:36:24.240
up on the computer they made away they

0:36:24.240,0:36:25.839
know they I've got the Mana where we're

0:36:25.839,0:36:27.240
just talking about a blue heart or

0:36:27.240,0:36:30.560
purple or something like that and see

0:36:30.560,0:36:32.000
what were the attitude changes that

0:36:32.000,0:36:35.720
those change have used are have used our

0:36:35.720,0:36:38.319
we th card or we IDE I've used to be

0:36:38.319,0:36:42.520
smart card not the smart card uh JN card

0:36:42.520,0:36:45.319
I've used the JN card the difference

0:36:45.319,0:36:47.760
those things make and change people's

0:36:47.760,0:36:50.920
attitude it's wonderful wonderful

0:36:50.920,0:36:53.319
provide a support

0:36:53.319,0:36:56.640
person having a designated support

0:36:56.640,0:37:01.160
person can help to keep us calm and

0:37:01.160,0:37:04.960
reassured one key person who supports us

0:37:04.960,0:37:09.079
through our stay makes a huge difference

0:37:09.079,0:37:12.359
to our Hospital experience I had to go

0:37:12.359,0:37:14.880
and get an operation to take out a tumor

0:37:14.880,0:37:16.920
on my

0:37:16.920,0:37:19.680
leg and uh it was quite difficult

0:37:19.680,0:37:21.599
because the specialist even though she

0:37:21.599,0:37:26.160
was uh taking the the tumor out she was

0:37:26.160,0:37:29.000
quite um a lot of words that she was

0:37:29.000,0:37:31.079
using was very difficult for me to

0:37:31.079,0:37:33.000
understand because they were quite

0:37:33.000,0:37:36.920
Technical and she then got a a a young

0:37:36.920,0:37:40.920
nurse to come in and help me because she

0:37:40.920,0:37:44.079
also knocked me out for six hours she

0:37:44.079,0:37:47.040
put me asleep for 6 hours where she was

0:37:47.040,0:37:49.640
on a lot of things she was help the the

0:37:49.640,0:37:52.680
the other lady was helping me she met me

0:37:52.680,0:37:56.560
I was there for about um a full full day

0:37:56.560,0:37:57.960
overnight

0:37:57.960,0:38:01.079
and that young lady was a major help to

0:38:01.079,0:38:03.560
me in the hospital because she helped me

0:38:03.560,0:38:07.319
even write down my words she helped me

0:38:07.319,0:38:11.599
even find places and she also said uh

0:38:11.599,0:38:14.359
even tomorrow when you go home now that

0:38:14.359,0:38:17.119
you've been operated this is what you do

0:38:17.119,0:38:20.440
so even though the specialist operated

0:38:20.440,0:38:24.040
me well that lady was a massive helper

0:38:24.040,0:38:27.160
she made the difference and I I because

0:38:27.160,0:38:29.480
I spoke to the specialist and you even

0:38:29.480,0:38:32.319
use my card and said I know you're going

0:38:32.319,0:38:35.800
to help me but I've got Alzheimer's and

0:38:35.800,0:38:38.480
I need someone to talk to me that give

0:38:38.480,0:38:41.319
me advice and um because some of the

0:38:41.319,0:38:43.280
things you've said you're going to do I

0:38:43.280,0:38:46.599
haven't really understood fully what's

0:38:46.599,0:38:48.319
going to happen or even how I help

0:38:48.319,0:38:51.240
myself so and when that other lady came

0:38:51.240,0:38:53.680
in she was massively helpful to me

0:38:53.680,0:38:55.280
possibly like other people with Dem

0:38:55.280,0:38:57.640
Mantia I find that sometimes the

0:38:57.640,0:38:59.760
difficult to understand if I haven't

0:38:59.760,0:39:03.760
heard about things for a while so that

0:39:03.760,0:39:07.440
other lady was a bit more explaining and

0:39:07.440,0:39:11.240
also helped me make notes to write down

0:39:11.240,0:39:13.280
a great understanding of what was going

0:39:13.280,0:39:15.119
to happen to me and particularly how I

0:39:15.119,0:39:17.200
dealt with myself the next few days when

0:39:17.200,0:39:19.839
I got home having that interface between

0:39:19.839,0:39:20.680
the

0:39:20.680,0:39:24.880
consultant and also uh uh uh uh the

0:39:24.880,0:39:29.640
patient with that specialist nurse was

0:39:29.640,0:39:33.400
invaluable and that I think is something

0:39:33.400,0:39:36.680
which can be really helpful to other

0:39:36.680,0:39:39.840
people one thing that I would insist

0:39:39.840,0:39:41.319
[Music]

0:39:41.319,0:39:44.880
on would be

0:39:44.880,0:39:48.720
that I

0:39:49.040,0:39:52.240
had someone with

0:39:52.240,0:39:56.680
me that I trust

0:39:58.480,0:40:01.920
someone with me

0:40:03.359,0:40:06.359
that

0:40:06.560,0:40:09.200
could be

0:40:09.200,0:40:12.200
there

0:40:13.800,0:40:17.160
to like say I would either be taking my

0:40:17.160,0:40:19.319
own

0:40:19.319,0:40:23.839
notes that's another thing I'd lost my

0:40:23.839,0:40:28.400
writing skills i' had lost I mean

0:40:28.400,0:40:32.680
as well as losing my

0:40:32.680,0:40:35.960
verbosity I had

0:40:35.960,0:40:40.000
lost my ability to

0:40:40.040,0:40:44.640
write and I have been practicing

0:40:45.400,0:40:49.560
writing just to get myself back off to

0:40:49.560,0:40:53.040
speed to be able

0:40:53.040,0:40:58.160
to communicate effectively

0:40:59.480,0:41:01.000
I've also been

0:41:01.000,0:41:04.200
reading a

0:41:05.960,0:41:10.079
lot to try

0:41:10.160,0:41:15.880
and ensure that my communication

0:41:15.960,0:41:19.319
is as it should

0:41:19.319,0:41:24.920
be as I consider it should

0:41:25.839,0:41:30.079
be cuz I'm a hard

0:41:32.359,0:41:35.680
Taskmaster the following scene is based

0:41:35.680,0:41:37.839
on our real life

0:41:37.839,0:41:41.599
experiences of poor health care

0:41:41.599,0:41:42.830
interactions

0:41:42.830,0:42:01.659
[Music]

0:42:02.760,0:42:04.800
without a clear

0:42:04.800,0:42:08.119
introduction we may feel rushed or

0:42:08.119,0:42:11.040
panicked unsure of what is

0:42:11.040,0:42:13.800
happening which may unnecessarily

0:42:13.800,0:42:15.640
increase our

0:42:15.640,0:42:19.650
anxiety and generate unexpected

0:42:19.650,0:42:20.839
[Music]

0:42:20.839,0:42:24.559
reactions insufficient support with wayf

0:42:24.559,0:42:27.760
finding could leave us disoriented ated

0:42:27.760,0:42:28.920
and

0:42:28.920,0:42:32.359
Confused ultimately reducing our powers

0:42:32.359,0:42:33.440
of

0:42:33.440,0:42:35.830
concentration for the following

0:42:35.830,0:42:37.160
[Music]

0:42:37.160,0:42:40.599
appointment disorganized and chaotic

0:42:40.599,0:42:44.760
clinical space may be distracting or

0:42:44.760,0:42:48.800
overwhelming for us reducing ability to

0:42:48.800,0:42:51.839
focus and

0:42:51.839,0:42:55.480
communicate not explaining procedures or

0:42:55.480,0:42:58.359
interventions clearly in advance can

0:42:58.359,0:43:00.920
cause us upset or

0:43:00.920,0:43:05.880
distress especially as our dementia

0:43:05.960,0:43:09.640
advances not explaining next steps in

0:43:09.640,0:43:12.400
advance increases our

0:43:12.400,0:43:15.880
anxiety and

0:43:17.200,0:43:20.300
[Music]

0:43:20.760,0:43:23.440
confusion uh Hazel and baby is that

0:43:23.440,0:43:25.240
right yeah I'm

0:43:25.240,0:43:27.960
Dr tonight

0:43:27.960,0:43:30.720
without a clear and full

0:43:30.720,0:43:33.760
introduction we may not realize the

0:43:33.760,0:43:35.480
purpose of the

0:43:35.480,0:43:38.440
appointment

0:43:38.440,0:43:41.240
um no I'm not I'm not really seeing

0:43:41.240,0:43:43.640
anything there there's no results back

0:43:43.640,0:43:47.839
just yet poor positioning can hinder

0:43:47.839,0:43:51.520
effective communication with

0:43:51.520,0:43:54.520
us not to

0:43:54.520,0:43:59.319
good we'll maybe asking as repetitive

0:43:59.319,0:44:01.640
questions without

0:44:01.640,0:44:05.559
context can make us feel like we are

0:44:05.559,0:44:08.040
being

0:44:08.319,0:44:12.240
tested speaking to a carer instead of

0:44:12.240,0:44:16.720
directly to us shows a presumption about

0:44:16.720,0:44:18.079
our

0:44:18.079,0:44:21.640
capacity the following scene is based on

0:44:21.640,0:44:25.599
our real life experiences of positive

0:44:25.599,0:44:29.040
healthc care interaction

0:44:30.370,0:44:33.240
[Music]

0:44:33.240,0:44:36.480
thank you

0:44:39.900,0:45:03.800
[Music]

0:45:03.800,0:45:05.440
the consultant comes okay and I'll F

0:45:05.440,0:45:09.680
this across the H yeah all

0:45:12.040,0:45:15.359
right there we go like the wait the

0:45:15.359,0:45:16.960
consultant will be right in through the

0:45:16.960,0:45:21.079
door thank you

0:45:28.040,0:45:30.400
how are you I'm Dr sville I'm one of the

0:45:30.400,0:45:33.119
Consultants it's nice to meet you it's

0:45:33.119,0:45:35.240
Davey is that right Dave yeah Davey I I

0:45:35.240,0:45:37.440
haven't met you before um I understand

0:45:37.440,0:45:39.040
that you're you're here to talk about

0:45:39.040,0:45:40.640
some results that's right is that

0:45:40.640,0:45:43.599
correct be okay yeah sure I I haven't

0:45:43.599,0:45:46.160
been to doing too bad been keeping busy

0:45:46.160,0:45:47.559
and very

0:45:47.559,0:45:52.079
active so I do and uh yeah just keep

0:45:52.079,0:45:54.359
keep busy okay okay how have you been

0:45:54.359,0:45:57.119
sleeping recently sleep's been a bit on

0:45:57.119,0:46:01.200
off um but uh I always get caught up

0:46:01.200,0:46:03.160
sometimes away quite early right but uh

0:46:03.160,0:46:05.760
I can get caught up the next night okay

0:46:05.760,0:46:07.800
and what time would you go to bed at

0:46:07.800,0:46:11.440
roughly normally try half time 11:00 um

0:46:11.440,0:46:13.839
probably a bit overeen of anything right

0:46:13.839,0:46:16.240
I started sweet stuff I Can't Get Enough

0:46:16.240,0:46:19.200
at the whatever's uh going on you know

0:46:19.200,0:46:21.960
right okay and then just about some of

0:46:21.960,0:46:24.760
your medications um has anything changed

0:46:24.760,0:46:27.440
recently at all no they've kept it

0:46:27.440,0:46:30.280
they kept the medication as it is right

0:46:30.280,0:46:32.000
we can maybe spend a bit more time

0:46:32.000,0:46:34.240
looking at well really not not too bad

0:46:34.240,0:46:36.599
just how how how do you see things

0:46:36.599,0:46:40.200
progressing for for myself okay okay so

0:46:40.200,0:46:42.680
if you've got that Rapport it makes a

0:46:42.680,0:46:45.920
real difference and show appreciation

0:46:45.920,0:46:49.760
cuz the staff do an amazing thing and in

0:46:49.760,0:46:52.520
very difficult environment and I have to

0:46:52.520,0:46:55.760
say thank you to the nursing staff and

0:46:55.760,0:46:58.440
to the medics who do take such good care

0:46:58.440,0:46:59.319
of

0:46:59.319,0:47:02.400
us thank you for staying with us

0:47:02.400,0:47:04.200
throughout this

0:47:04.200,0:47:07.079
documentary we hope it has provided you

0:47:07.079,0:47:10.119
with a deeper understanding of what it

0:47:10.119,0:47:13.559
is like to live with dementia and has

0:47:13.559,0:47:17.160
offered practical tips that you can now

0:47:17.160,0:47:18.680
put into

0:47:18.680,0:47:22.720
practice finally a big thank you from

0:47:22.720,0:47:25.880
all the members at dementa ni for the

0:47:25.880,0:47:27.559
work that you do

0:47:27.559,0:47:30.880
that has a positive impact on the daily

0:47:30.880,0:47:33.880
lives of real people like

0:47:33.880,0:47:37.160
us matter have to assume we have

0:47:37.160,0:47:40.480
capacity mhm is that the size of my

0:47:40.480,0:47:44.359
bladder the size of my

0:47:50.160,0:47:54.200
nose those words my feet went from

0:47:54.200,0:47:58.839
beneath me could not believe what I

0:47:59.180,0:48:00.800
[Music]

0:48:00.800,0:48:03.359
I I

0:48:03.359,0:48:06.720
saw I

0:48:09.559,0:48:15.400
give it's a slippy R but I keep my feet

0:48:15.400,0:48:19.359
bled I have the strength to hold the C

0:48:19.359,0:48:21.559
I've been

0:48:21.559,0:48:25.800
handed If I Stumble if my feet fall or

0:48:25.800,0:48:27.680
if I need

0:48:27.680,0:48:31.880
assistance I know the journey is long

0:48:31.880,0:48:36.040
but it's so wor

0:48:36.040,0:48:39.880
that my voice is mind I don't need

0:48:39.880,0:48:43.800
someone to say what's on my mind though

0:48:43.800,0:48:47.480
the love I have to help me is the best

0:48:47.480,0:48:51.400
that you could find and I worry for my

0:48:51.400,0:48:55.559
loved ones cuz the future is so wonder I

0:48:55.559,0:48:58.720
stay strong

0:49:01.520,0:49:02.200
it's

0:49:02.200,0:49:06.240
ay but I keep

0:49:06.400,0:49:10.359
my I have the strength to hold the C

0:49:10.359,0:49:12.559
I've been

0:49:12.559,0:49:17.400
handed If I Stumble my feet fall or if I

0:49:17.400,0:49:21.480
need some assistance I know the journey

0:49:21.480,0:49:23.040
long

0:49:23.040,0:49:28.000
but it's the wor that distance

0:49:28.000,0:49:33.079
[Music]

0:49:35.880,0:49:39.559
[Music]

0:49:39.559,0:49:41.200
I found my

0:49:41.200,0:49:44.240
place surrounded by

0:49:44.240,0:49:49.400
faces who understand

0:49:50.040,0:49:53.200
me our worries and

0:49:53.200,0:49:58.640
fears so disappear after

0:49:59.140,0:50:02.079
[Music]

0:50:02.079,0:50:07.559
Aver and a warm cup of tea