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♪I won't lie I was terrified
when the doctor said those words♪

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♪My feet went from beneath me
could not believe what I just heard♪

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♪If I judged my condition
from what I saw on television♪

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♪I'd give up♪

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S1 944 ,000 people are estimated to be
currently living with dementia in the UK

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[Music]

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Dementia killed almost double
the number of women than men in 2020

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[Music]

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Dementia has been the leading cause of death
in women since 2011

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[Music]

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9% of people over 65 have dementia.

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[Music]

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Dementia will impact 50% of us

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either through a personal diagnosis or
by caring for someone who has it.

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[Music]

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1.6 million people will be living
with dementia in the UK by 2040

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[Music]

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Dementia is the most feared
health condition by 60% of people over 65.

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[Music]

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Dementia care costs in Northern Ireland
are projected to increase 192%

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from 800 million in 2019
to 2.4 billion in 2040.

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Wayfinding in unfamiliar places
can be more challenging

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for people living with dementia.

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Environment may affect people living
with dementia more than most.

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Noisy and chaotic spaces can feel
disorientating and overwhelming,

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may increase anxiety or frustration,
causing changes in behaviour.

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Everyday life for people living
with dementia can be exhausting

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though it may not be obvious to you.

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It takes longer for people living
with dementia to process information.

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Our brains have to work harder
to filter out external stimuli

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often leaving us feeling depleted,
exhausted and spent.

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This makes our symptoms of dementia
more evident.

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[Music]

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74,000 800 people are estimated
to be living with young onset dementia

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in the UK and Ireland

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[Music]

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Young onset dementia is when symptoms
of dementia start before the age of 65

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[Music]

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Dementia NI members formed a working group
in 2022

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that included eight individuals
living with dementia like me,

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supported by four staff members
working collaboratively together:

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one from dementia NI

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and three from the Southern and Southeast
Health and Social Care Trusts.

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The members of dementia NI are always
looking for opportunities to engage

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with hospital and social care staff
to describe what it's like

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to live with dementia and to share
with them our challenges as well as ways

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we can best be supported in both
clinical and hospital environments.

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however speaking to every

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trust member in person is an impossible

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task so we decided to create a

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documentary to help us interact with

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members of the Health and Social care

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services to help bridge this

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Gap over the course of 22 months we met

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regularly to decide the content of this

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film sharing our own personal

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experiences across the

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Spectrum both

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positive and challenging

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experiences we thought it would be

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beneficial to provide staff with 10 top

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tips for supporting people like us

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living with

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dementia we believe these these

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practices can be easily implemented

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without adding an extra burden to staff

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and will lead to an improved staff

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patient

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interaction and in the long run will

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save

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time many people have commented what is

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good for people living with dementia is

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good for everyone and we the members of

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dementia ni are sure you will find this

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to be so

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too we know you will find the following

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individual experiences

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engaging even if somewhat emotional at

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times and that you will be able to put

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some of the Practical tips into

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action I'm uh debie Michael Henny from

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County formana I was diagnosed with

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frontal temporal dementia 7 years ago uh

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I was aged

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54 I my name is Martin

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Mar my D is Alzheimer's dementia so my

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name is Peter Alexander I was born in

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England Twickenham so the good old rugby

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place my name is jar Dorne um I was

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diagnosed with the man out when I was

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61 yes I'm Christopher Higgins and my

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dementia was discovered just two years

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ago yeah my name's Allison Allison

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Bachelor uh I live in Dundonald and was

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diagnosed with Alzheimer's in April 2017

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I'm a newly diagnosed person with

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dementia my past knowledge of dementia

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was that I was a social worker in

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hospital

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hi my name is Tom Tom

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hitle and

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um I

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have uh dementia I've been diagnosed

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with uh dementia with Louis

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bodies uh that was back

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about just over a year

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now treat us with common C

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Coury treat us with respect as valued

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capable

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adults be aware of your facial

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expression tune of voice and your

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nonverbal

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communication um and when the students

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came they said oh I see here this person

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has dementia I don't know how to speak

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to

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dementia and I think that is the problem

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the think they're speaking to the

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dementia but I always said to them so

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what if they have dementia speak to the

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person

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first you will hear a little bit when

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they reply about de the way they are

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affected but just keep speaking to the

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person behind the dementia because it's

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the person you want to talk to

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basically you talk about valuing an

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individual in all those years that I

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have

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been a

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trainer in the

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trust basic

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values are the

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primary and important

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factor what I would say

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yes if I was to write a

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book from a person who has

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dementia it would be to

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say I'm hurting inside

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too I might not be able to express it

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but I'm still the same person as I was

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when I was

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younger I am still that today

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it's just that the person I am is

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getting locked away more and more inside

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me so don't treat me any differently I'm

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still the same person as I

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was even though you might have some

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preconceived

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ideas that because I got

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dementia I'm an incontinent old person

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but I'm not I was diagnosed at the age

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of

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49 and at that time I was told that I

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shouldn't work anymore and that I

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shouldn't drive anymore because of my

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judgment being

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impaired give us

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time we need more time to process than

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you allow us to respond before you move

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on don't bombard us with questions we're

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just normal human beings with um a good

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mind and just normal

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people um the Demag it do um bring up

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different

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uh

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problems you know such as such a speech

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now my speech um while I'm sitting here

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talking to you there's words just

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disappear out of my

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vocabulary and that's why you could see

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me struggling there a couple of we bits

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that's because a normal conversational

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word and whenever it disappears I have

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to fish for another word that will fit

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in slot on this

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place but your mind's going around like

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a washing machine and it it can't pick

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the words out sometimes yeah it still

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sticks with me that that day um I felt

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very rushed and uh it was very blunt um

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there's no easy way to deliver bad news

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but I I it was very very blunt I thought

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and we left with no uh no information at

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all that that Friday afternoon we went

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out for the weekend

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and with absolutely nothing I thought I

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thought it only weeks to live after that

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you know so I did and I think more time

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would have helped and maybe a bit more

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compassion with the from the

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consultant don't make assumptions about

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us don't presume you know what we want

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feel or need or what we might be able to

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understand or decide discuss it with us

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directly give our loved ones the this is

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me person centered document to help you

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care for me

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effectively yeah I had gone to a local

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an

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Department this would be a few years ago

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now and I had said to the nurse who had

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after gone through from triage you know

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been called into the back area you know

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to be waiting to be seen by a doctor and

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to have some sort of Bloods or whatever

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done and I had said to her that I had a

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dementia diagnosis and she instantly

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dismissed it and told me just tell the

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doctor and walked away and I have to say

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that put me into a bit of a panic mode

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because I sort of thought I didn't feel

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safe then uh I sort of thought I should

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have taken a way better of time time

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even just by saying okay we've taken

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note of that but if you need us to go to

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the toilet or if you need any help with

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anything you know just give one of us a

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shout but I sort of felt it wasn't taken

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seriously that it and I thought it was

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something that she did need to know you

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know I thought it was something that she

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needed to take note of and to be aware

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of

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and you know as I say I just sort of

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felt a bit more unsafe than if had have

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been given a way bit of time cuz I sort

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of thought if I need to go to the toilet

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or I need you know who do I say to I

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didn't feel after that I could say to

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any other nurse who came into to me by

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the way I have a dementia diagnosis

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because of the way she had treated

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me I learned more about

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dementia I worked with

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people who

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were true

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professionals who were truly

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impressive in their

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approaches and

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who helped

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me so

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much to

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identify what I could do as opposed to

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all the all these things that I couldn't

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do notes help us to

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remember provide written information

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using jarg andfree language to help us

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to

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understand help us to keep notes so that

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we can keep track of what is happening

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for example when I attend Ed a hospital

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I needed to meet an individual staff

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member who was fairly aware of dementia

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and helped me

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support on a regular basis throughout my

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stay especially with regards to

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explaining and noting the key aspects of

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my appointment and how to cope well in

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the ward itself

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so if you have someone

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who has

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dementia ensure

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that you are making clear to the

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individual what is being

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discussed what is

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being agreed

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and that there is someone with

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them that

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can

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either take notes for

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them if they do not have the

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ability to make

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clear and any decisions that are

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taken to make clear

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anything that has

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been that has been

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discussed environment may affect us more

279
00:18:53,600 --> 00:18:54,880
than

280
00:18:54,880 --> 00:18:59,280
you the environment we are in

281
00:18:59,280 --> 00:19:03,159
affects us more than you provide a

282
00:19:03,159 --> 00:19:06,960
calming environment and opportunities to

283
00:19:06,960 --> 00:19:10,120
engage in activities that mean something

284
00:19:10,120 --> 00:19:11,960
to

285
00:19:11,960 --> 00:19:16,679
us use person centered tools like this

286
00:19:16,679 --> 00:19:20,880
is me to find out more about me to

287
00:19:20,880 --> 00:19:25,520
tailor activities to meet my needs

288
00:19:25,520 --> 00:19:28,440
specifically designed quiet places and

289
00:19:28,440 --> 00:19:30,720
mus girls can

290
00:19:30,720 --> 00:19:33,360
help there are also important issues

291
00:19:33,360 --> 00:19:36,760
regarding how the building itself looks

292
00:19:36,760 --> 00:19:41,159
unfamiliar surroundings noises and busy

293
00:19:41,159 --> 00:19:44,320
unclear spaces can be challenging and

294
00:19:44,320 --> 00:19:46,600
lead the agitation and

295
00:19:46,600 --> 00:19:49,280
confusion it's important for a dimension

296
00:19:49,280 --> 00:19:52,039
person to have an individual space away

297
00:19:52,039 --> 00:19:55,760
from others I think navigation and we

298
00:19:55,760 --> 00:19:58,880
finding is also important and it is help

299
00:19:58,880 --> 00:20:02,520
to have appropriate signs ideally they

300
00:20:02,520 --> 00:20:05,720
should be slightly large with clear

301
00:20:05,720 --> 00:20:09,799
words placed at face level and not too

302
00:20:09,799 --> 00:20:13,440
high merals and painting can also be

303
00:20:13,440 --> 00:20:16,720
helpful ideally colors that aren't too

304
00:20:16,720 --> 00:20:20,320
dark such as red and green I recently

305
00:20:20,320 --> 00:20:25,440
found it difficult to find uh tight uh

306
00:20:25,440 --> 00:20:28,799
toilet near my bed until the Staff

307
00:20:28,799 --> 00:20:31,840
member helped me find it as it didn't

308
00:20:31,840 --> 00:20:34,960
have a sign but the biggest thing would

309
00:20:34,960 --> 00:20:37,000
be

310
00:20:37,000 --> 00:20:40,320
disorientation and confusion uh you know

311
00:20:40,320 --> 00:20:41,960
of coming out of a room and knowing

312
00:20:41,960 --> 00:20:44,360
which way to turn and what way to go and

313
00:20:44,360 --> 00:20:46,799
that's why for me sign AG is vital you

314
00:20:46,799 --> 00:20:48,919
know in all situations and if there's

315
00:20:48,919 --> 00:20:51,400
good sign AG I'm much more confident and

316
00:20:51,400 --> 00:20:53,320
and can live much more

317
00:20:53,320 --> 00:20:55,440
independently I would describe my head

318
00:20:55,440 --> 00:20:57,280
as like a washing machine you know of so

319
00:20:57,280 --> 00:20:59,320
much G through and try

320
00:20:59,320 --> 00:21:03,400
to process things you know that would be

321
00:21:03,400 --> 00:21:04,760
the biggest

322
00:21:04,760 --> 00:21:07,600
challenge it's it's even more confusing

323
00:21:07,600 --> 00:21:09,280
cuz you're already not well you know

324
00:21:09,280 --> 00:21:10,880
you're already worried about what's

325
00:21:10,880 --> 00:21:13,679
going on why you're there uh and the

326
00:21:13,679 --> 00:21:16,679
noise and you know yourself anybody is

327
00:21:16,679 --> 00:21:18,640
sort of in an particularly in an NA

328
00:21:18,640 --> 00:21:20,360
Department there's so much banging and

329
00:21:20,360 --> 00:21:23,200
cluttering and there's noise going on

330
00:21:23,200 --> 00:21:24,799
either side of you in front of you

331
00:21:24,799 --> 00:21:26,600
behind you you know there's so many

332
00:21:26,600 --> 00:21:29,840
conversations going on uh you know quite

333
00:21:29,840 --> 00:21:32,000
often you're planted quite close to the

334
00:21:32,000 --> 00:21:34,080
nursery station because there's no

335
00:21:34,080 --> 00:21:36,600
cubicles um you know and there's all the

336
00:21:36,600 --> 00:21:38,320
noise and all the movements sort going

337
00:21:38,320 --> 00:21:41,240
on that and it it can become very very

338
00:21:41,240 --> 00:21:44,880
confusing and uh you know it's a hard

339
00:21:44,880 --> 00:21:46,919
thing to process any information and

340
00:21:46,919 --> 00:21:49,840
then when they come to speak to you you

341
00:21:49,840 --> 00:21:51,559
know there's so much noise going on

342
00:21:51,559 --> 00:21:54,159
there's so much backgr noise

343
00:21:54,159 --> 00:21:56,760
and conversations going on around you

344
00:21:56,760 --> 00:21:59,000
that is hard to process what actually

345
00:21:59,000 --> 00:22:01,840
been said to you whereas again a very

346
00:22:01,840 --> 00:22:04,000
simple thing would be to have somewhere

347
00:22:04,000 --> 00:22:07,080
that once they know you have a dementia

348
00:22:07,080 --> 00:22:09,679
diagnosis and to ask the person you know

349
00:22:09,679 --> 00:22:12,360
what can we do to help and I think most

350
00:22:12,360 --> 00:22:14,120
people would say if I could have a quiet

351
00:22:14,120 --> 00:22:16,200
room to have whenever the doctor's

352
00:22:16,200 --> 00:22:20,559
talking to me I think that would make a

353
00:22:20,559 --> 00:22:22,240
big difference you know you would sort

354
00:22:22,240 --> 00:22:24,480
of know that during that important time

355
00:22:24,480 --> 00:22:25,960
when you're meant to be able to take

356
00:22:25,960 --> 00:22:29,080
information in you know that they would

357
00:22:29,080 --> 00:22:31,120
take you somewhere that that could

358
00:22:31,120 --> 00:22:35,520
happen easier than it does in the busy

359
00:22:35,520 --> 00:22:36,720
any

360
00:22:36,720 --> 00:22:39,520
Department it was again with I mention

361
00:22:39,520 --> 00:22:42,400
in hospitals it was a new hospital

362
00:22:42,400 --> 00:22:43,960
absolutely

363
00:22:43,960 --> 00:22:46,440
beautiful like an into a very Swanky

364
00:22:46,440 --> 00:22:48,400
hotel but you go in there you're not

365
00:22:48,400 --> 00:22:51,320
coming back out there is no signage

366
00:22:51,320 --> 00:22:54,960
anywhere and the every Corridor looks

367
00:22:54,960 --> 00:22:57,760
exactly the same and you sort of have to

368
00:22:57,760 --> 00:22:59,960
go up in the left and go long a bit then

369
00:22:59,960 --> 00:23:01,880
go down and a left and go long a bit and

370
00:23:01,880 --> 00:23:05,320
then come back up again you know um

371
00:23:05,320 --> 00:23:08,360
because of the waya they intertwined and

372
00:23:08,360 --> 00:23:09,960
as I say you can out have a lift but

373
00:23:09,960 --> 00:23:11,840
there's no signage to tell you to turn

374
00:23:11,840 --> 00:23:14,760
left turn right or what way to go you

375
00:23:14,760 --> 00:23:18,600
know and that was a horrible

376
00:23:18,600 --> 00:23:21,279
experience well I have had the

377
00:23:21,279 --> 00:23:26,320
experience of um going into Hospital

378
00:23:26,320 --> 00:23:28,840
under an am with an ambulance J in the

379
00:23:28,840 --> 00:23:30,080
times of

380
00:23:30,080 --> 00:23:32,520
covid

381
00:23:32,520 --> 00:23:36,200
and the ambulance team were fantastic

382
00:23:36,200 --> 00:23:39,039
cuz they were aware of my challenges

383
00:23:39,039 --> 00:23:43,600
they thought I had a triple A um but it

384
00:23:43,600 --> 00:23:46,240
actually turned out to be kidney stones

385
00:23:46,240 --> 00:23:49,120
but when they took me into the hospital

386
00:23:49,120 --> 00:23:51,480
rather than just sitting

387
00:23:51,480 --> 00:23:55,120
there in the general area they

388
00:23:55,120 --> 00:23:58,000
accelerated my Passage through to being

389
00:23:58,000 --> 00:24:01,159
on a a bed in one of the cubicles

390
00:24:01,159 --> 00:24:02,880
because they knew that with my

391
00:24:02,880 --> 00:24:07,039
behavioral variant of of of of of the

392
00:24:07,039 --> 00:24:09,880
dementia of the the FTD the frontal

393
00:24:09,880 --> 00:24:13,520
temporal dementia that my filters had

394
00:24:13,520 --> 00:24:16,919
disappeared I would say things as I felt

395
00:24:16,919 --> 00:24:20,840
about them I would swear which I

396
00:24:20,840 --> 00:24:23,559
wouldn't have done in the past but

397
00:24:23,559 --> 00:24:26,320
frustration the feeling of not being

398
00:24:26,320 --> 00:24:29,480
able to express yourself as as I once

399
00:24:29,480 --> 00:24:33,080
did these things lead to just filterless

400
00:24:33,080 --> 00:24:35,799
behaviors and it's not that you're being

401
00:24:35,799 --> 00:24:39,080
unkind or nasty to the staff it's just

402
00:24:39,080 --> 00:24:41,880
how things come across so it's important

403
00:24:41,880 --> 00:24:44,480
that the staff in that environment build

404
00:24:44,480 --> 00:24:48,240
a rapport with the patient build the

405
00:24:48,240 --> 00:24:51,360
trust and the confidence where they can

406
00:24:51,360 --> 00:24:53,600
exchange freely and

407
00:24:53,600 --> 00:24:57,320
happily and the second time I um

408
00:24:57,320 --> 00:25:00,360
developed culat my eye and I went to the

409
00:25:00,360 --> 00:25:01,960
ation first of all it was late on in the

410
00:25:01,960 --> 00:25:05,120
evening and uh he he rang the casualty

411
00:25:05,120 --> 00:25:07,919
to say expect me so they were expecting

412
00:25:07,919 --> 00:25:09,279
it and again they knew at that time I

413
00:25:09,279 --> 00:25:11,919
was living with the Mana so the uh

414
00:25:11,919 --> 00:25:14,360
consultant actually saw me and the the

415
00:25:14,360 --> 00:25:16,360
emergency department was very busy so

416
00:25:16,360 --> 00:25:18,000
she actually took me to a very quiet

417
00:25:18,000 --> 00:25:20,440
place away from the the emergency

418
00:25:20,440 --> 00:25:23,399
department and they did all all the had

419
00:25:23,399 --> 00:25:25,000
to do at that time

420
00:25:25,000 --> 00:25:27,559
and her care and even the nursing care

421
00:25:27,559 --> 00:25:30,720
was was was was first class at that time

422
00:25:30,720 --> 00:25:33,440
with really noise and and a lot of

423
00:25:33,440 --> 00:25:36,000
people yeah I find people's faces just

424
00:25:36,000 --> 00:25:39,120
blur and the noise just it really

425
00:25:39,120 --> 00:25:41,320
scrambles my brain I can't think or

426
00:25:41,320 --> 00:25:43,520
focus on anything with with noise a

427
00:25:43,520 --> 00:25:46,240
quiet place would be ideal yeah

428
00:25:46,240 --> 00:25:50,919
yeah assume we have capacity don't make

429
00:25:50,919 --> 00:25:54,240
assumptions about our level of capacity

430
00:25:54,240 --> 00:25:57,799
or ability to engage in our care

431
00:25:57,799 --> 00:26:00,159
planning and decision

432
00:26:00,159 --> 00:26:03,559
making I may not have capacity to make

433
00:26:03,559 --> 00:26:06,640
every decision but there will be some

434
00:26:06,640 --> 00:26:11,960
decisions I can still make and want to

435
00:26:11,960 --> 00:26:16,399
make don't speak to our family members

436
00:26:16,399 --> 00:26:21,200
and ignore us speak directly to us first

437
00:26:21,200 --> 00:26:24,399
and allow us to defer to our support

438
00:26:24,399 --> 00:26:28,760
person if we need to

439
00:26:28,760 --> 00:26:31,880
ask me what you

440
00:26:31,880 --> 00:26:36,640
need what sorry I would want them to ask

441
00:26:36,640 --> 00:26:38,520
me what I needed or wanted not to

442
00:26:38,520 --> 00:26:40,440
presume they know because they might

443
00:26:40,440 --> 00:26:43,480
have had somebody in earlier that day or

444
00:26:43,480 --> 00:26:45,399
the day before or the week before with

445
00:26:45,399 --> 00:26:47,080
the dementia diagnosis he needs

446
00:26:47,080 --> 00:26:49,679
something different to what I would need

447
00:26:49,679 --> 00:26:52,000
you know so I would always say you

448
00:26:52,000 --> 00:26:55,360
know treat that person as an individual

449
00:26:55,360 --> 00:26:57,840
and find out what you can do that will

450
00:26:57,840 --> 00:27:01,279
make them them more comfortable feel

451
00:27:01,279 --> 00:27:05,200
safer and and in the turn that will ease

452
00:27:05,200 --> 00:27:07,640
your workload because if the person with

453
00:27:07,640 --> 00:27:10,120
the dementia diagnosis feels relaxed and

454
00:27:10,120 --> 00:27:14,640
feels at ease they're less likely to be

455
00:27:14,640 --> 00:27:18,520
given hustle or be kicking off about

456
00:27:18,520 --> 00:27:21,320
something I'm a sitting in the outside

457
00:27:21,320 --> 00:27:24,200
wetting room when she asked me could it

458
00:27:24,200 --> 00:27:26,080
come into the room and I SP to you if

459
00:27:26,080 --> 00:27:28,000
you want your son to come in you can

460
00:27:28,000 --> 00:27:29,559
come and I says no I'll just going

461
00:27:29,559 --> 00:27:32,120
myself and when I went into the room she

462
00:27:32,120 --> 00:27:34,320
was going shook my hand and says to me

463
00:27:34,320 --> 00:27:36,760
Martin I'm sorry to tell you I'm not

464
00:27:36,760 --> 00:27:38,760
sure the exact words but you have

465
00:27:38,760 --> 00:27:40,039
Alzheimer's

466
00:27:40,039 --> 00:27:42,720
dementia well you're you're taken back

467
00:27:42,720 --> 00:27:45,480
you're just shock she says you want me

468
00:27:45,480 --> 00:27:49,120
to get your son bring him in and I I

469
00:27:49,120 --> 00:27:52,000
says no not definitely not to my son I

470
00:27:52,000 --> 00:27:53,840
get my sons together when to go home and

471
00:27:53,840 --> 00:27:55,559
I'll tell them when to go home I got

472
00:27:55,559 --> 00:27:57,679
them settled down and things I says look

473
00:27:57,679 --> 00:28:00,240
I feel gr I still feel the same thing

474
00:28:00,240 --> 00:28:01,960
I'm still your daddy I'm still the thing

475
00:28:01,960 --> 00:28:04,720
and I'm still get carrying on and two of

476
00:28:04,720 --> 00:28:06,360
my sons are two

477
00:28:06,360 --> 00:28:10,080
M Twins and there there we go oh God not

478
00:28:10,080 --> 00:28:11,799
be able to tell him anything now not

479
00:28:11,799 --> 00:28:14,279
keep a secret he can't keep anything but

480
00:28:14,279 --> 00:28:16,919
it was it was good the experience was

481
00:28:16,919 --> 00:28:21,000
good be aware of our details don't make

482
00:28:21,000 --> 00:28:25,159
us repeat our story multiple times it

483
00:28:25,159 --> 00:28:29,080
makes us feel like we are being tested

484
00:28:29,080 --> 00:28:32,640
Ed read your colleagues assessments

485
00:28:32,640 --> 00:28:36,000
repeating information is

486
00:28:36,000 --> 00:28:40,080
exhausting for us yeah again I think

487
00:28:40,080 --> 00:28:41,640
that's it you know the nurse comes in

488
00:28:41,640 --> 00:28:43,360
you see the nurse and Tre eyes you tell

489
00:28:43,360 --> 00:28:46,120
them the story you then see whoever you

490
00:28:46,120 --> 00:28:48,600
move to into the cubicles or into the

491
00:28:48,600 --> 00:28:51,080
back bit of the any you tell them your

492
00:28:51,080 --> 00:28:53,679
story the doctor then comes in or a

493
00:28:53,679 --> 00:28:56,480
doctor comes in and you tell them it but

494
00:28:56,480 --> 00:28:58,519
there may be not the particular doctor

495
00:28:58,519 --> 00:29:00,039
you need to see if it's something

496
00:29:00,039 --> 00:29:01,840
specific you're there for you know if it

497
00:29:01,840 --> 00:29:04,600
was for example something to do with

498
00:29:04,600 --> 00:29:06,600
your heart you know you would get a

499
00:29:06,600 --> 00:29:08,399
general doctor come in talk oh you need

500
00:29:08,399 --> 00:29:10,000
to you know we need to get something

501
00:29:10,000 --> 00:29:12,159
done from Cardiology or whatever they

502
00:29:12,159 --> 00:29:13,919
can die and you have to repeat the whole

503
00:29:13,919 --> 00:29:17,200
thing again uh and that can become quite

504
00:29:17,200 --> 00:29:18,880
frustrating and you sort of think you

505
00:29:18,880 --> 00:29:21,279
know can you not read you know can you

506
00:29:21,279 --> 00:29:23,000
not actually look at the notes that have

507
00:29:23,000 --> 00:29:26,559
been taken um 10 times beforehand uh and

508
00:29:26,559 --> 00:29:28,120
you s of are they're trying to trick you

509
00:29:28,120 --> 00:29:29,880
right here you know trying to get you to

510
00:29:29,880 --> 00:29:32,120
say something different to what you had

511
00:29:32,120 --> 00:29:35,320
said before I think it is I think it's a

512
00:29:35,320 --> 00:29:38,960
challenge you know because as I say by

513
00:29:38,960 --> 00:29:40,440
you're that stage you're already in a

514
00:29:40,440 --> 00:29:43,600
real state of confusion and panic

515
00:29:43,600 --> 00:29:47,880
and um a bit more unsettled you know so

516
00:29:47,880 --> 00:29:50,559
to be asked the same story over again

517
00:29:50,559 --> 00:29:52,399
can become very frustrating and I think

518
00:29:52,399 --> 00:29:54,480
at times in I think you can become a bit

519
00:29:54,480 --> 00:29:56,320
sharper than maybe that what you would

520
00:29:56,320 --> 00:29:59,600
normally be but it's because you sort of

521
00:29:59,600 --> 00:30:01,120
you're fed up with the length of time

522
00:30:01,120 --> 00:30:02,720
you sort of have sitting there probably

523
00:30:02,720 --> 00:30:04,080
waiting anyway and you haven't seen

524
00:30:04,080 --> 00:30:05,640
anybody and then the next person come

525
00:30:05,640 --> 00:30:07,240
say ask the exactly the same question

526
00:30:07,240 --> 00:30:10,200
again you s think like this has moved on

527
00:30:10,200 --> 00:30:12,399
nowhere you know you

528
00:30:12,399 --> 00:30:14,440
haven't you know you're asking me what

529
00:30:14,440 --> 00:30:16,880
the person asked me two hours ago but

530
00:30:16,880 --> 00:30:19,159
you're doing nothing different but yes I

531
00:30:19,159 --> 00:30:21,360
think it is a challenge you know with I

532
00:30:21,360 --> 00:30:23,440
think it's a challenge for anybody but I

533
00:30:23,440 --> 00:30:24,760
think for somebody with a dementia

534
00:30:24,760 --> 00:30:26,720
diagnosis yesterday is more of a

535
00:30:26,720 --> 00:30:29,519
challenge you use Clear

536
00:30:29,519 --> 00:30:33,799
language if you are going to perform an

537
00:30:33,799 --> 00:30:36,399
intervention talk to us

538
00:30:36,399 --> 00:30:40,440
beforehand and explain each step in

539
00:30:40,440 --> 00:30:44,559
clear words or with gestures if our

540
00:30:44,559 --> 00:30:46,720
understanding is very

541
00:30:46,720 --> 00:30:48,880
limited give us

542
00:30:48,880 --> 00:30:52,799
time explaining the procedure will help

543
00:30:52,799 --> 00:30:54,960
us to

544
00:30:54,960 --> 00:30:58,320
participate if I need reassurance

545
00:30:58,320 --> 00:31:01,600
reassure me I'm not saying you have to

546
00:31:01,600 --> 00:31:04,600
have dementia to understand it what I'm

547
00:31:04,600 --> 00:31:08,679
saying is what I said to students is

548
00:31:08,679 --> 00:31:12,320
take it easy at the beginning don't

549
00:31:12,320 --> 00:31:16,200
bombard them with a rapid release of

550
00:31:16,200 --> 00:31:20,480
questions and don't L link questions

551
00:31:20,480 --> 00:31:23,480
together make the subject if it is

552
00:31:23,480 --> 00:31:25,760
driving something like

553
00:31:25,760 --> 00:31:29,120
that say are you driving your

554
00:31:29,120 --> 00:31:32,639
car wait for the answer and then if they

555
00:31:32,639 --> 00:31:36,200
say no I'm not then you can discuss it

556
00:31:36,200 --> 00:31:39,440
with them but I think if you go into

557
00:31:39,440 --> 00:31:43,639
something you know it only makes them I

558
00:31:43,639 --> 00:31:46,840
can't interrupt this but I don't agree

559
00:31:46,840 --> 00:31:50,360
with her so very gently say l thank you

560
00:31:50,360 --> 00:31:54,720
very much for coming to talk to me and I

561
00:31:54,720 --> 00:31:58,559
know very little uh about how you're

562
00:31:58,559 --> 00:32:02,320
feeling at the moment so can you tell me

563
00:32:02,320 --> 00:32:06,080
how you felt when you got your diagnosis

564
00:32:06,080 --> 00:32:09,760
what went before did you think you had

565
00:32:09,760 --> 00:32:12,639
dementia and how you felt when you

566
00:32:12,639 --> 00:32:17,320
actually were told you have

567
00:32:17,320 --> 00:32:20,440
dementia makes a

568
00:32:20,440 --> 00:32:25,000
difference Health and Social Care

569
00:32:25,000 --> 00:32:30,320
staff working with any form of

570
00:32:30,519 --> 00:32:33,519
dementia

571
00:32:33,960 --> 00:32:36,720
need to

572
00:32:36,720 --> 00:32:39,399
communicate

573
00:32:39,399 --> 00:32:42,760
clearly with any

574
00:32:42,760 --> 00:32:47,159
individual with any form of

575
00:32:47,159 --> 00:32:49,639
dementia they

576
00:32:49,639 --> 00:32:55,080
need to give clear

577
00:32:56,000 --> 00:32:58,919
instructions their need

578
00:32:58,919 --> 00:33:00,159
to

579
00:33:00,159 --> 00:33:02,080
ensure that

580
00:33:02,080 --> 00:33:05,760
people with whom they are

581
00:33:05,760 --> 00:33:07,960
working

582
00:33:07,960 --> 00:33:12,360
have a clear

583
00:33:12,360 --> 00:33:14,639
understanding of

584
00:33:14,639 --> 00:33:18,360
what is being

585
00:33:19,600 --> 00:33:25,039
discussed and that they

586
00:33:25,039 --> 00:33:29,159
have made clear

587
00:33:29,159 --> 00:33:31,279
here

588
00:33:31,279 --> 00:33:36,519
exactly what is being

589
00:33:36,799 --> 00:33:41,240
shared what is being

590
00:33:41,960 --> 00:33:46,519
said maintain our confidentiality and

591
00:33:46,519 --> 00:33:51,120
dignity share information with us

592
00:33:51,120 --> 00:33:53,919
sensitively and take into

593
00:33:53,919 --> 00:33:58,639
consideration our confidentiality

594
00:33:58,720 --> 00:34:02,080
privacy and dignity are

595
00:34:02,080 --> 00:34:05,559
important we may not want other patients

596
00:34:05,559 --> 00:34:08,918
visitors to know we have

597
00:34:08,918 --> 00:34:13,838
dementia yeah within the hold of

598
00:34:13,960 --> 00:34:17,639
dementia I find myself falling apart I

599
00:34:17,639 --> 00:34:19,879
find

600
00:34:19,879 --> 00:34:22,879
myself

601
00:34:23,960 --> 00:34:29,560
unable to be the person I was

602
00:34:29,560 --> 00:34:31,919
to

603
00:34:33,079 --> 00:34:36,000
communicate the

604
00:34:36,000 --> 00:34:40,399
way I should be able to

605
00:34:43,239 --> 00:34:45,918
communicate I

606
00:34:45,918 --> 00:34:49,158
lost my

607
00:34:49,639 --> 00:34:52,719
skills I lost a lot

608
00:34:52,719 --> 00:34:56,999
of what was

609
00:34:59,960 --> 00:35:02,880
what being

610
00:35:03,119 --> 00:35:05,280
me as a

611
00:35:05,280 --> 00:35:08,280
person

612
00:35:14,200 --> 00:35:17,320
was I

613
00:35:17,320 --> 00:35:20,720
was I was

614
00:35:22,760 --> 00:35:27,160
lost well for for myself or anybody of

615
00:35:27,160 --> 00:35:30,119
the just P his like hard if I come in as

616
00:35:30,119 --> 00:35:30,920
a

617
00:35:30,920 --> 00:35:32,960
patient they don't know why I've got the

618
00:35:32,960 --> 00:35:36,680
Mana unless I tell them I've got the

619
00:35:36,960 --> 00:35:40,480
Mana don't don't have me

620
00:35:40,480 --> 00:35:43,000
to have to say that I've got the Manion

621
00:35:43,000 --> 00:35:46,200
just treat me where courtesy of of think

622
00:35:46,200 --> 00:35:49,319
most most sitting rooms in the hospital

623
00:35:49,319 --> 00:35:51,920
you know are like they're Havoc if it

624
00:35:51,920 --> 00:35:54,800
comes to a thing many of places been in

625
00:35:54,800 --> 00:35:56,640
I've turned around and says look I'm in

626
00:35:56,640 --> 00:35:58,680
the early stages of the Mana could you

627
00:35:58,680 --> 00:36:00,480
give me a we bit of time

628
00:36:00,480 --> 00:36:04,680
here and just things get mixed up for I

629
00:36:04,680 --> 00:36:07,079
think could just if my name would come

630
00:36:07,079 --> 00:36:08,720
up in that

631
00:36:08,720 --> 00:36:12,599
computer without me having to say and

632
00:36:12,599 --> 00:36:14,480
200 people or 100 people behind me

633
00:36:14,480 --> 00:36:19,720
listening he's got the Mana list he's

634
00:36:19,720 --> 00:36:22,240
different it's different just just come

635
00:36:22,240 --> 00:36:24,240
up on the computer they made away they

636
00:36:24,240 --> 00:36:25,839
know they I've got the Mana where we're

637
00:36:25,839 --> 00:36:27,240
just talking about a blue heart or

638
00:36:27,240 --> 00:36:30,560
purple or something like that and see

639
00:36:30,560 --> 00:36:32,000
what were the attitude changes that

640
00:36:32,000 --> 00:36:35,720
those change have used are have used our

641
00:36:35,720 --> 00:36:38,319
we th card or we IDE I've used to be

642
00:36:38,319 --> 00:36:42,520
smart card not the smart card uh JN card

643
00:36:42,520 --> 00:36:45,319
I've used the JN card the difference

644
00:36:45,319 --> 00:36:47,760
those things make and change people's

645
00:36:47,760 --> 00:36:50,920
attitude it's wonderful wonderful

646
00:36:50,920 --> 00:36:53,319
provide a support

647
00:36:53,319 --> 00:36:56,640
person having a designated support

648
00:36:56,640 --> 00:37:01,160
person can help to keep us calm and

649
00:37:01,160 --> 00:37:04,960
reassured one key person who supports us

650
00:37:04,960 --> 00:37:09,079
through our stay makes a huge difference

651
00:37:09,079 --> 00:37:12,359
to our Hospital experience I had to go

652
00:37:12,359 --> 00:37:14,880
and get an operation to take out a tumor

653
00:37:14,880 --> 00:37:16,920
on my

654
00:37:16,920 --> 00:37:19,680
leg and uh it was quite difficult

655
00:37:19,680 --> 00:37:21,599
because the specialist even though she

656
00:37:21,599 --> 00:37:26,160
was uh taking the the tumor out she was

657
00:37:26,160 --> 00:37:29,000
quite um a lot of words that she was

658
00:37:29,000 --> 00:37:31,079
using was very difficult for me to

659
00:37:31,079 --> 00:37:33,000
understand because they were quite

660
00:37:33,000 --> 00:37:36,920
Technical and she then got a a a young

661
00:37:36,920 --> 00:37:40,920
nurse to come in and help me because she

662
00:37:40,920 --> 00:37:44,079
also knocked me out for six hours she

663
00:37:44,079 --> 00:37:47,040
put me asleep for 6 hours where she was

664
00:37:47,040 --> 00:37:49,640
on a lot of things she was help the the

665
00:37:49,640 --> 00:37:52,680
the other lady was helping me she met me

666
00:37:52,680 --> 00:37:56,560
I was there for about um a full full day

667
00:37:56,560 --> 00:37:57,960
overnight

668
00:37:57,960 --> 00:38:01,079
and that young lady was a major help to

669
00:38:01,079 --> 00:38:03,560
me in the hospital because she helped me

670
00:38:03,560 --> 00:38:07,319
even write down my words she helped me

671
00:38:07,319 --> 00:38:11,599
even find places and she also said uh

672
00:38:11,599 --> 00:38:14,359
even tomorrow when you go home now that

673
00:38:14,359 --> 00:38:17,119
you've been operated this is what you do

674
00:38:17,119 --> 00:38:20,440
so even though the specialist operated

675
00:38:20,440 --> 00:38:24,040
me well that lady was a massive helper

676
00:38:24,040 --> 00:38:27,160
she made the difference and I I because

677
00:38:27,160 --> 00:38:29,480
I spoke to the specialist and you even

678
00:38:29,480 --> 00:38:32,319
use my card and said I know you're going

679
00:38:32,319 --> 00:38:35,800
to help me but I've got Alzheimer's and

680
00:38:35,800 --> 00:38:38,480
I need someone to talk to me that give

681
00:38:38,480 --> 00:38:41,319
me advice and um because some of the

682
00:38:41,319 --> 00:38:43,280
things you've said you're going to do I

683
00:38:43,280 --> 00:38:46,599
haven't really understood fully what's

684
00:38:46,599 --> 00:38:48,319
going to happen or even how I help

685
00:38:48,319 --> 00:38:51,240
myself so and when that other lady came

686
00:38:51,240 --> 00:38:53,680
in she was massively helpful to me

687
00:38:53,680 --> 00:38:55,280
possibly like other people with Dem

688
00:38:55,280 --> 00:38:57,640
Mantia I find that sometimes the

689
00:38:57,640 --> 00:38:59,760
difficult to understand if I haven't

690
00:38:59,760 --> 00:39:03,760
heard about things for a while so that

691
00:39:03,760 --> 00:39:07,440
other lady was a bit more explaining and

692
00:39:07,440 --> 00:39:11,240
also helped me make notes to write down

693
00:39:11,240 --> 00:39:13,280
a great understanding of what was going

694
00:39:13,280 --> 00:39:15,119
to happen to me and particularly how I

695
00:39:15,119 --> 00:39:17,200
dealt with myself the next few days when

696
00:39:17,200 --> 00:39:19,839
I got home having that interface between

697
00:39:19,839 --> 00:39:20,680
the

698
00:39:20,680 --> 00:39:24,880
consultant and also uh uh uh uh the

699
00:39:24,880 --> 00:39:29,640
patient with that specialist nurse was

700
00:39:29,640 --> 00:39:33,400
invaluable and that I think is something

701
00:39:33,400 --> 00:39:36,680
which can be really helpful to other

702
00:39:36,680 --> 00:39:39,840
people one thing that I would insist

703
00:39:39,840 --> 00:39:41,319
[Music]

704
00:39:41,319 --> 00:39:44,880
on would be

705
00:39:44,880 --> 00:39:48,720
that I

706
00:39:49,040 --> 00:39:52,240
had someone with

707
00:39:52,240 --> 00:39:56,680
me that I trust

708
00:39:58,480 --> 00:40:01,920
someone with me

709
00:40:03,359 --> 00:40:06,359
that

710
00:40:06,560 --> 00:40:09,200
could be

711
00:40:09,200 --> 00:40:12,200
there

712
00:40:13,800 --> 00:40:17,160
to like say I would either be taking my

713
00:40:17,160 --> 00:40:19,319
own

714
00:40:19,319 --> 00:40:23,839
notes that's another thing I'd lost my

715
00:40:23,839 --> 00:40:28,400
writing skills i' had lost I mean

716
00:40:28,400 --> 00:40:32,680
as well as losing my

717
00:40:32,680 --> 00:40:35,960
verbosity I had

718
00:40:35,960 --> 00:40:40,000
lost my ability to

719
00:40:40,040 --> 00:40:44,640
write and I have been practicing

720
00:40:45,400 --> 00:40:49,560
writing just to get myself back off to

721
00:40:49,560 --> 00:40:53,040
speed to be able

722
00:40:53,040 --> 00:40:58,160
to communicate effectively

723
00:40:59,480 --> 00:41:01,000
I've also been

724
00:41:01,000 --> 00:41:04,200
reading a

725
00:41:05,960 --> 00:41:10,079
lot to try

726
00:41:10,160 --> 00:41:15,880
and ensure that my communication

727
00:41:15,960 --> 00:41:19,319
is as it should

728
00:41:19,319 --> 00:41:24,920
be as I consider it should

729
00:41:25,839 --> 00:41:30,079
be cuz I'm a hard

730
00:41:32,359 --> 00:41:35,680
Taskmaster the following scene is based

731
00:41:35,680 --> 00:41:37,839
on our real life

732
00:41:37,839 --> 00:41:41,599
experiences of poor health care

733
00:41:41,599 --> 00:41:42,830
interactions

734
00:41:42,830 --> 00:42:01,659
[Music]

735
00:42:02,760 --> 00:42:04,800
without a clear

736
00:42:04,800 --> 00:42:08,119
introduction we may feel rushed or

737
00:42:08,119 --> 00:42:11,040
panicked unsure of what is

738
00:42:11,040 --> 00:42:13,800
happening which may unnecessarily

739
00:42:13,800 --> 00:42:15,640
increase our

740
00:42:15,640 --> 00:42:19,650
anxiety and generate unexpected

741
00:42:19,650 --> 00:42:20,839
[Music]

742
00:42:20,839 --> 00:42:24,559
reactions insufficient support with wayf

743
00:42:24,559 --> 00:42:27,760
finding could leave us disoriented ated

744
00:42:27,760 --> 00:42:28,920
and

745
00:42:28,920 --> 00:42:32,359
Confused ultimately reducing our powers

746
00:42:32,359 --> 00:42:33,440
of

747
00:42:33,440 --> 00:42:35,830
concentration for the following

748
00:42:35,830 --> 00:42:37,160
[Music]

749
00:42:37,160 --> 00:42:40,599
appointment disorganized and chaotic

750
00:42:40,599 --> 00:42:44,760
clinical space may be distracting or

751
00:42:44,760 --> 00:42:48,800
overwhelming for us reducing ability to

752
00:42:48,800 --> 00:42:51,839
focus and

753
00:42:51,839 --> 00:42:55,480
communicate not explaining procedures or

754
00:42:55,480 --> 00:42:58,359
interventions clearly in advance can

755
00:42:58,359 --> 00:43:00,920
cause us upset or

756
00:43:00,920 --> 00:43:05,880
distress especially as our dementia

757
00:43:05,960 --> 00:43:09,640
advances not explaining next steps in

758
00:43:09,640 --> 00:43:12,400
advance increases our

759
00:43:12,400 --> 00:43:15,880
anxiety and

760
00:43:17,200 --> 00:43:20,300
[Music]

761
00:43:20,760 --> 00:43:23,440
confusion uh Hazel and baby is that

762
00:43:23,440 --> 00:43:25,240
right yeah I'm

763
00:43:25,240 --> 00:43:27,960
Dr tonight

764
00:43:27,960 --> 00:43:30,720
without a clear and full

765
00:43:30,720 --> 00:43:33,760
introduction we may not realize the

766
00:43:33,760 --> 00:43:35,480
purpose of the

767
00:43:35,480 --> 00:43:38,440
appointment

768
00:43:38,440 --> 00:43:41,240
um no I'm not I'm not really seeing

769
00:43:41,240 --> 00:43:43,640
anything there there's no results back

770
00:43:43,640 --> 00:43:47,839
just yet poor positioning can hinder

771
00:43:47,839 --> 00:43:51,520
effective communication with

772
00:43:51,520 --> 00:43:54,520
us not to

773
00:43:54,520 --> 00:43:59,319
good we'll maybe asking as repetitive

774
00:43:59,319 --> 00:44:01,640
questions without

775
00:44:01,640 --> 00:44:05,559
context can make us feel like we are

776
00:44:05,559 --> 00:44:08,040
being

777
00:44:08,319 --> 00:44:12,240
tested speaking to a carer instead of

778
00:44:12,240 --> 00:44:16,720
directly to us shows a presumption about

779
00:44:16,720 --> 00:44:18,079
our

780
00:44:18,079 --> 00:44:21,640
capacity the following scene is based on

781
00:44:21,640 --> 00:44:25,599
our real life experiences of positive

782
00:44:25,599 --> 00:44:29,040
healthc care interaction

783
00:44:30,370 --> 00:44:33,240
[Music]

784
00:44:33,240 --> 00:44:36,480
thank you

785
00:44:39,900 --> 00:45:03,800
[Music]

786
00:45:03,800 --> 00:45:05,440
the consultant comes okay and I'll F

787
00:45:05,440 --> 00:45:09,680
this across the H yeah all

788
00:45:12,040 --> 00:45:15,359
right there we go like the wait the

789
00:45:15,359 --> 00:45:16,960
consultant will be right in through the

790
00:45:16,960 --> 00:45:21,079
door thank you

791
00:45:28,040 --> 00:45:30,400
how are you I'm Dr sville I'm one of the

792
00:45:30,400 --> 00:45:33,119
Consultants it's nice to meet you it's

793
00:45:33,119 --> 00:45:35,240
Davey is that right Dave yeah Davey I I

794
00:45:35,240 --> 00:45:37,440
haven't met you before um I understand

795
00:45:37,440 --> 00:45:39,040
that you're you're here to talk about

796
00:45:39,040 --> 00:45:40,640
some results that's right is that

797
00:45:40,640 --> 00:45:43,599
correct be okay yeah sure I I haven't

798
00:45:43,599 --> 00:45:46,160
been to doing too bad been keeping busy

799
00:45:46,160 --> 00:45:47,559
and very

800
00:45:47,559 --> 00:45:52,079
active so I do and uh yeah just keep

801
00:45:52,079 --> 00:45:54,359
keep busy okay okay how have you been

802
00:45:54,359 --> 00:45:57,119
sleeping recently sleep's been a bit on

803
00:45:57,119 --> 00:46:01,200
off um but uh I always get caught up

804
00:46:01,200 --> 00:46:03,160
sometimes away quite early right but uh

805
00:46:03,160 --> 00:46:05,760
I can get caught up the next night okay

806
00:46:05,760 --> 00:46:07,800
and what time would you go to bed at

807
00:46:07,800 --> 00:46:11,440
roughly normally try half time 11:00 um

808
00:46:11,440 --> 00:46:13,839
probably a bit overeen of anything right

809
00:46:13,839 --> 00:46:16,240
I started sweet stuff I Can't Get Enough

810
00:46:16,240 --> 00:46:19,200
at the whatever's uh going on you know

811
00:46:19,200 --> 00:46:21,960
right okay and then just about some of

812
00:46:21,960 --> 00:46:24,760
your medications um has anything changed

813
00:46:24,760 --> 00:46:27,440
recently at all no they've kept it

814
00:46:27,440 --> 00:46:30,280
they kept the medication as it is right

815
00:46:30,280 --> 00:46:32,000
we can maybe spend a bit more time

816
00:46:32,000 --> 00:46:34,240
looking at well really not not too bad

817
00:46:34,240 --> 00:46:36,599
just how how how do you see things

818
00:46:36,599 --> 00:46:40,200
progressing for for myself okay okay so

819
00:46:40,200 --> 00:46:42,680
if you've got that Rapport it makes a

820
00:46:42,680 --> 00:46:45,920
real difference and show appreciation

821
00:46:45,920 --> 00:46:49,760
cuz the staff do an amazing thing and in

822
00:46:49,760 --> 00:46:52,520
very difficult environment and I have to

823
00:46:52,520 --> 00:46:55,760
say thank you to the nursing staff and

824
00:46:55,760 --> 00:46:58,440
to the medics who do take such good care

825
00:46:58,440 --> 00:46:59,319
of

826
00:46:59,319 --> 00:47:02,400
us thank you for staying with us

827
00:47:02,400 --> 00:47:04,200
throughout this

828
00:47:04,200 --> 00:47:07,079
documentary we hope it has provided you

829
00:47:07,079 --> 00:47:10,119
with a deeper understanding of what it

830
00:47:10,119 --> 00:47:13,559
is like to live with dementia and has

831
00:47:13,559 --> 00:47:17,160
offered practical tips that you can now

832
00:47:17,160 --> 00:47:18,680
put into

833
00:47:18,680 --> 00:47:22,720
practice finally a big thank you from

834
00:47:22,720 --> 00:47:25,880
all the members at dementa ni for the

835
00:47:25,880 --> 00:47:27,559
work that you do

836
00:47:27,559 --> 00:47:30,880
that has a positive impact on the daily

837
00:47:30,880 --> 00:47:33,880
lives of real people like

838
00:47:33,880 --> 00:47:37,160
us matter have to assume we have

839
00:47:37,160 --> 00:47:40,480
capacity mhm is that the size of my

840
00:47:40,480 --> 00:47:44,359
bladder the size of my

841
00:47:50,160 --> 00:47:54,200
nose those words my feet went from

842
00:47:54,200 --> 00:47:58,839
beneath me could not believe what I

843
00:47:59,180 --> 00:48:00,800
[Music]

844
00:48:00,800 --> 00:48:03,359
I I

845
00:48:03,359 --> 00:48:06,720
saw I

846
00:48:09,559 --> 00:48:15,400
give it's a slippy R but I keep my feet

847
00:48:15,400 --> 00:48:19,359
bled I have the strength to hold the C

848
00:48:19,359 --> 00:48:21,559
I've been

849
00:48:21,559 --> 00:48:25,800
handed If I Stumble if my feet fall or

850
00:48:25,800 --> 00:48:27,680
if I need

851
00:48:27,680 --> 00:48:31,880
assistance I know the journey is long

852
00:48:31,880 --> 00:48:36,040
but it's so wor

853
00:48:36,040 --> 00:48:39,880
that my voice is mind I don't need

854
00:48:39,880 --> 00:48:43,800
someone to say what's on my mind though

855
00:48:43,800 --> 00:48:47,480
the love I have to help me is the best

856
00:48:47,480 --> 00:48:51,400
that you could find and I worry for my

857
00:48:51,400 --> 00:48:55,559
loved ones cuz the future is so wonder I

858
00:48:55,559 --> 00:48:58,720
stay strong

859
00:49:01,520 --> 00:49:02,200
it's

860
00:49:02,200 --> 00:49:06,240
ay but I keep

861
00:49:06,400 --> 00:49:10,359
my I have the strength to hold the C

862
00:49:10,359 --> 00:49:12,559
I've been

863
00:49:12,559 --> 00:49:17,400
handed If I Stumble my feet fall or if I

864
00:49:17,400 --> 00:49:21,480
need some assistance I know the journey

865
00:49:21,480 --> 00:49:23,040
long

866
00:49:23,040 --> 00:49:28,000
but it's the wor that distance

867
00:49:28,000 --> 00:49:33,079
[Music]

868
00:49:35,880 --> 00:49:39,559
[Music]

869
00:49:39,559 --> 00:49:41,200
I found my

870
00:49:41,200 --> 00:49:44,240
place surrounded by

871
00:49:44,240 --> 00:49:49,400
faces who understand

872
00:49:50,040 --> 00:49:53,200
me our worries and

873
00:49:53,200 --> 00:49:58,640
fears so disappear after

874
00:49:59,140 --> 00:50:02,079
[Music]

875
00:50:02,079 --> 00:50:07,559
Aver and a warm cup of tea