[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:04.56,0:00:09.96,Default,,0000,0000,0000,,♪I won't lie I was terrified\Nwhen the doctor said those words♪
Dialogue: 0,0:00:09.96,0:00:16.17,Default,,0000,0000,0000,,♪My feet went from beneath me\Ncould not believe what I just heard♪
Dialogue: 0,0:00:16.17,0:00:22.00,Default,,0000,0000,0000,,♪If I judged my condition\Nfrom what I saw on television♪
Dialogue: 0,0:00:22.00,0:00:25.56,Default,,0000,0000,0000,,♪I'd give up♪
Dialogue: 0,0:00:28.34,0:00:35.91,Default,,0000,0000,0000,,S1 944 ,000 people are estimated to be\Ncurrently living with dementia in the UK
Dialogue: 0,0:00:35.91,0:00:40.96,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:00:41.70,0:00:48.04,Default,,0000,0000,0000,,Dementia killed almost double\Nthe number of women than men in 2020
Dialogue: 0,0:00:48.04,0:00:53.38,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:00:53.38,0:00:59.76,Default,,0000,0000,0000,,Dementia has been the leading cause of death\Nin women since 2011
Dialogue: 0,0:00:59.79,0:01:04.64,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:04.64,0:01:09.37,Default,,0000,0000,0000,,9% of people over 65 have dementia.
Dialogue: 0,0:01:09.37,0:01:18.10,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:18.45,0:01:21.58,Default,,0000,0000,0000,,Dementia will impact 50% of us
Dialogue: 0,0:01:22.08,0:01:27.17,Default,,0000,0000,0000,,either through a personal diagnosis or\Nby caring for someone who has it.
Dialogue: 0,0:01:27.17,0:01:35.48,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:35.60,0:01:42.70,Default,,0000,0000,0000,,1.6 million people will be living\Nwith dementia in the UK by 2040
Dialogue: 0,0:01:43.07,0:01:48.51,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:48.51,0:01:56.29,Default,,0000,0000,0000,,Dementia is the most feared\Nhealth condition by 60% of people over 65.
Dialogue: 0,0:01:56.43,0:02:04.45,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:02:05.88,0:02:12.80,Default,,0000,0000,0000,,Dementia care costs in Northern Ireland\Nare projected to increase 192%
Dialogue: 0,0:02:12.80,0:02:19.99,Default,,0000,0000,0000,,from 800 million in 2019\Nto 2.4 billion in 2040.
Dialogue: 0,0:02:30.39,0:02:35.33,Default,,0000,0000,0000,,Wayfinding in unfamiliar places\Ncan be more challenging
Dialogue: 0,0:02:35.33,0:02:38.09,Default,,0000,0000,0000,,for people living with dementia.
Dialogue: 0,0:02:40.91,0:02:46.48,Default,,0000,0000,0000,,Environment may affect people living\Nwith dementia more than most.
Dialogue: 0,0:02:49.13,0:02:54.64,Default,,0000,0000,0000,,Noisy and chaotic spaces can feel\Ndisorientating and overwhelming,
Dialogue: 0,0:02:54.64,0:02:59.40,Default,,0000,0000,0000,,may increase anxiety or frustration,\Ncausing changes in behaviour.
Dialogue: 0,0:03:02.11,0:03:08.36,Default,,0000,0000,0000,,Everyday life for people living\Nwith dementia can be exhausting
Dialogue: 0,0:03:09.13,0:03:11.04,Default,,0000,0000,0000,,though it may not be obvious to you.
Dialogue: 0,0:03:11.70,0:03:18.07,Default,,0000,0000,0000,,It takes longer for people living\Nwith dementia to process information.
Dialogue: 0,0:03:18.07,0:03:24.47,Default,,0000,0000,0000,,Our brains have to work harder\Nto filter out external stimuli
Dialogue: 0,0:03:24.91,0:03:30.79,Default,,0000,0000,0000,,often leaving us feeling depleted,\Nexhausted and spent.
Dialogue: 0,0:03:31.40,0:03:35.36,Default,,0000,0000,0000,,This makes our symptoms of dementia\Nmore evident.
Dialogue: 0,0:03:36.29,0:03:51.78,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:03:51.78,0:04:01.38,Default,,0000,0000,0000,,74,000 800 people are estimated\Nto be living with young onset dementia
Dialogue: 0,0:04:01.55,0:04:04.28,Default,,0000,0000,0000,,in the UK and Ireland
Dialogue: 0,0:04:04.53,0:04:11.66,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:04:11.66,0:04:19.50,Default,,0000,0000,0000,,Young onset dementia is when symptoms\Nof dementia start before the age of 65
Dialogue: 0,0:04:19.74,0:05:05.06,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:05:06.88,0:05:13.97,Default,,0000,0000,0000,,Dementia NI members formed a working group\Nin 2022
Dialogue: 0,0:05:14.75,0:05:20.39,Default,,0000,0000,0000,,that included eight individuals\Nliving with dementia like me,
Dialogue: 0,0:05:21.13,0:05:26.79,Default,,0000,0000,0000,,supported by four staff members\Nworking collaboratively together:
Dialogue: 0,0:05:27.56,0:05:29.56,Default,,0000,0000,0000,,one from dementia NI
Dialogue: 0,0:05:30.26,0:05:37.15,Default,,0000,0000,0000,,and three from the Southern and Southeast\NHealth and Social Care Trusts.
Dialogue: 0,0:05:38.78,0:05:44.77,Default,,0000,0000,0000,,The members of dementia NI are always\Nlooking for opportunities to engage
Dialogue: 0,0:05:44.77,0:05:50.12,Default,,0000,0000,0000,,with hospital and social care staff\Nto describe what it's like
Dialogue: 0,0:05:50.12,0:05:57.12,Default,,0000,0000,0000,,to live with dementia and to share\Nwith them our challenges as well as ways
Dialogue: 0,0:05:57.12,0:06:03.79,Default,,0000,0000,0000,,we can best be supported in both\Nclinical and hospital environments.
Dialogue: 0,0:06:04.24,0:06:12.23,Default,,0000,0000,0000,,However, speaking to every trust member\Nin person is an impossible task.
Dialogue: 0,0:06:12.91,0:06:18.11,Default,,0000,0000,0000,,So we decided to create a documentary\Nto help us interact
Dialogue: 0,0:06:18.61,0:06:25.24,Default,,0000,0000,0000,,with members of the Health and Social Care\Nservices to help bridge this gap.
Dialogue: 0,0:06:26.75,0:06:33.23,Default,,0000,0000,0000,,Over the course of 22 months we met \Nregularly to decide the content
Dialogue: 0,0:06:33.43,0:06:40.19,Default,,0000,0000,0000,,of this film, sharing our own personal\Nexperiences across the spectrum,
Dialogue: 0,0:06:41.18,0:06:45.35,Default,,0000,0000,0000,,both positive and challenging experiences.
Dialogue: 0,0:06:46.50,0:06:52.22,Default,,0000,0000,0000,,We thought it would be beneficial\Nto provide staff with 10 top tips
Dialogue: 0,0:06:52.74,0:06:57.30,Default,,0000,0000,0000,,for supporting people like us\Nliving with dementia.
Dialogue: 0,0:06:58.00,0:07:03.55,Default,,0000,0000,0000,,We believe these these practices\Ncan be easily implemented
Dialogue: 0,0:07:04.12,0:07:08.44,Default,,0000,0000,0000,,without adding an extra burden to staff
Dialogue: 0,0:07:08.44,0:07:12.83,Default,,0000,0000,0000,,and will lead to an improved\Nstaff-patient interaction
Dialogue: 0,0:07:13.63,0:07:19.67,Default,,0000,0000,0000,,and in the long run will save time;\NMany people have commented:
Dialogue: 0,0:07:20.14,0:07:25.15,Default,,0000,0000,0000,,"What is good for people living\Nwith dementia is good for everyone."
Dialogue: 0,0:07:25.86,0:07:33.08,Default,,0000,0000,0000,,And we the members of dementia NI\Nare sure you will find this to be so too.
Dialogue: 0,0:07:36.76,0:07:41.81,Default,,0000,0000,0000,,We know you will find the following\Nindividual experiences engaging
Dialogue: 0,0:07:42.28,0:07:45.19,Default,,0000,0000,0000,,even if somewhat emotional at times,
Dialogue: 0,0:07:45.51,0:07:51.51,Default,,0000,0000,0000,,and that you will be able to put some\Nof the practical tips into action
Dialogue: 0,0:07:51.65,0:07:55.49,Default,,0000,0000,0000,,[Introducing members of Dementia NI --\Nthe producers of this training resource --
Dialogue: 0,0:07:55.49,0:07:58.52,Default,,0000,0000,0000,,and their experiences within health and\Nsocial care settings]
Dialogue: 0,0:07:58.90,0:08:01.75,Default,,0000,0000,0000,,S2 I'm Davie Michael McElhinney\Nfrom County Fermanagh
Dialogue: 0,0:08:01.75,0:08:06.62,Default,,0000,0000,0000,,I was diagnosed with\Nfrontal temporal dementia 7 years ago
Dialogue: 0,0:08:07.15,0:08:09.28,Default,,0000,0000,0000,,I was aged 54.
Dialogue: 0,0:08:09.88,0:08:13.44,Default,,0000,0000,0000,,S3 My name is Martin Murtagh
Dialogue: 0,0:08:14.29,0:08:17.14,Default,,0000,0000,0000,,My dementia is Alzheimer's dementia
Dialogue: 0,0:08:17.43,0:08:21.24,Default,,0000,0000,0000,,S4 So my name is Peter Alexander\NI was born in England, Twickenham,
Dialogue: 0,0:08:21.24,0:08:24.91,Default,,0000,0000,0000,,so the good old rugby place.
Dialogue: 0,0:08:24.91,0:08:30.98,Default,,0000,0000,0000,,S5 My name is Gerard Doran, I was\Ndiagnosed with dementia when I was 61.
Dialogue: 0,0:08:31.12,0:08:33.55,Default,,0000,0000,0000,,S6 Yes, I'm Christopher Higgins
Dialogue: 0,0:08:33.55,0:08:37.95,Default,,0000,0000,0000,,and my dementia was discovered\Njust two years ago.
Dialogue: 0,0:08:37.95,0:08:43.01,Default,,0000,0000,0000,,S7 Yes, my name's Allison,\NAllison Bachelor, I live in Dundonald
Dialogue: 0,0:08:43.01,0:08:49.09,Default,,0000,0000,0000,,and was diagnosed with Alzheimer's\Nin April 2017
Dialogue: 0,0:08:49.24,0:08:53.40,Default,,0000,0000,0000,,S8 I'm a newly diagnosed person\Nwith dementia.
Dialogue: 0,0:08:54.28,0:08:59.87,Default,,0000,0000,0000,,My past knowledge of dementia was\Nthat I was a social worker in hospital
Dialogue: 0,0:09:00.20,0:09:05.41,Default,,0000,0000,0000,,S9 Hi, my name is Tom, Tom Heatly,\Nand
Dialogue: 0,0:09:06.82,0:09:13.24,Default,,0000,0000,0000,,I have dementia, I've been diagnosed
Dialogue: 0,0:09:13.24,0:09:17.52,Default,,0000,0000,0000,,with dementia with Lewy bodies
Dialogue: 0,0:09:19.26,0:09:26.19,Default,,0000,0000,0000,,that was back about just over a year now.
Dialogue: 0,0:09:26.64,0:09:30.15,Default,,0000,0000,0000,,Treat us with common courtesy.
Dialogue: 0,0:09:30.15,0:09:35.55,Default,,0000,0000,0000,,S8 Treat us with respect,\Nas valued, capable adults
Dialogue: 0,0:09:36.00,0:09:41.43,Default,,0000,0000,0000,,Be aware of your facial expression,\Ntone of voice
Dialogue: 0,0:09:41.43,0:09:45.47,Default,,0000,0000,0000,,and your non-verbal communication
Dialogue: 0,0:09:45.84,0:09:52.99,Default,,0000,0000,0000,,And when the students came, they said:\N"Oh I see here this person has dementia,
Dialogue: 0,0:09:53.44,0:09:56.26,Default,,0000,0000,0000,,I don't know how to speak to dementia."
Dialogue: 0,0:09:56.99,0:09:59.04,Default,,0000,0000,0000,,And I think that is the problem.
Dialogue: 0,0:09:59.04,0:10:01.56,Default,,0000,0000,0000,,They think they're speaking\Nto the dementia.
Dialogue: 0,0:10:02.30,0:10:07.75,Default,,0000,0000,0000,,But I always said to them: "So what\Nif they have dementia?
Dialogue: 0,0:10:07.75,0:10:09.85,Default,,0000,0000,0000,,speak to the person first.
Dialogue: 0,0:10:10.12,0:10:18.32,Default,,0000,0000,0000,,You will hear a little bit when they reply\Nabout de the way they are affected,
Dialogue: 0,0:10:18.79,0:10:23.66,Default,,0000,0000,0000,,but just keep speaking to the person\Nbehind the dementia
Dialogue: 0,0:10:23.86,0:10:27.94,Default,,0000,0000,0000,,because it's the person\Nyou want to talk to.
Dialogue: 0,0:10:29.44,0:10:34.68,Default,,0000,0000,0000,,S9 Basically you talk about\Nvaluing an individual.
Dialogue: 0,0:10:35.81,0:10:43.82,Default,,0000,0000,0000,,In all those years that I have been\Na trainer in the trust,
Dialogue: 0,0:10:46.67,0:11:00.94,Default,,0000,0000,0000,,basic values are the primary\Nimportant factor
Dialogue: 0,0:11:01.66,0:11:04.44,Default,,0000,0000,0000,,S4 What I would say, yes:
Dialogue: 0,0:11:05.18,0:11:11.50,Default,,0000,0000,0000,,if I was to write a book from a person\Nwho has dementia,
Dialogue: 0,0:11:13.34,0:11:17.63,Default,,0000,0000,0000,,it would be to say I'm hurting inside too.
Dialogue: 0,0:11:18.49,0:11:21.68,Default,,0000,0000,0000,,I might not be able to express it,
Dialogue: 0,0:11:22.60,0:11:26.14,Default,,0000,0000,0000,,but I'm still the same person as I was\Nwhen I was younger.
Dialogue: 0,0:11:27.61,0:11:29.52,Default,,0000,0000,0000,,I am still that today,
Dialogue: 0,0:11:30.40,0:11:35.03,Default,,0000,0000,0000,,it's just that the person I am is getting\Nlocked away more and more inside me.
Dialogue: 0,0:11:35.81,0:11:37.98,Default,,0000,0000,0000,,So don't treat me any differently.
Dialogue: 0,0:11:38.72,0:11:40.62,Default,,0000,0000,0000,,I'm still the same person as I was
Dialogue: 0,0:11:42.54,0:11:45.84,Default,,0000,0000,0000,,even though you might have \Nsome preconceived ideas
Dialogue: 0,0:11:46.52,0:11:51.55,Default,,0000,0000,0000,,that because I got dementia,\NI'm an incontinent old person.
Dialogue: 0,0:11:51.88,0:11:55.88,Default,,0000,0000,0000,,but I'm not: I was diagnosed\Nat the age of 49
Dialogue: 0,0:11:55.88,0:12:00.32,Default,,0000,0000,0000,,and at that time I was told that\NI shouldn't work anymore
Dialogue: 0,0:12:00.73,0:12:05.70,Default,,0000,0000,0000,,and that I shouldn't drive anymore\Nbecause of my judgment being impaired.
Dialogue: 0,0:12:07.66,0:12:09.00,Default,,0000,0000,0000,,S8 Give us time
Dialogue: 0,0:12:09.98,0:12:13.36,Default,,0000,0000,0000,,We need more time to process than you.
Dialogue: 0,0:12:13.76,0:12:18.20,Default,,0000,0000,0000,,Allow us to respond before you move on.
Dialogue: 0,0:12:18.90,0:12:21.67,Default,,0000,0000,0000,,Don't bombard us with questions.
Dialogue: 0,0:12:21.97,0:12:28.38,Default,,0000,0000,0000,,S? We're just normal human beings with \Na good mind
Dialogue: 0,0:12:28.38,0:12:30.12,Default,,0000,0000,0000,,and just normal people.
Dialogue: 0,0:12:30.94,0:12:40.93,Default,,0000,0000,0000,,The dementia does bring up\Ndifferent problems,
Dialogue: 0,0:12:41.42,0:12:47.15,Default,,0000,0000,0000,,you know, such a speech: now my speech,\Nwhile I'm sitting here talking to you,
Dialogue: 0,0:12:47.76,0:12:52.75,Default,,0000,0000,0000,,there's -- words just disappear\Nout of my vocabulary
Dialogue: 0,0:12:53.44,0:12:57.18,Default,,0000,0000,0000,,and that's why you could see me\Nstruggling there a couple of wee bits
Dialogue: 0,0:12:57.76,0:13:01.00,Default,,0000,0000,0000,,that's because a normal\Nconversational word
Dialogue: 0,0:13:01.93,0:13:07.95,Default,,0000,0000,0000,,whenever it disappears I have to fish\Nfor another word that will fit
Dialogue: 0,0:13:07.95,0:13:09.44,Default,,0000,0000,0000,,in the slot in this place,
Dialogue: 0,0:13:10.30,0:13:13.02,Default,,0000,0000,0000,,but your mind's going around like\Na washing machine
Dialogue: 0,0:13:13.02,0:13:16.47,Default,,0000,0000,0000,,and it can't pick the words out sometimes.
Dialogue: 0,0:13:17.05,0:13:21.28,Default,,0000,0000,0000,,S? Yeah it still sticks with me that\Nthat day I felt very rushed
Dialogue: 0,0:13:21.28,0:13:24.96,Default,,0000,0000,0000,,and uh it was very blunt.
Dialogue: 0,0:13:24.96,0:13:30.21,Default,,0000,0000,0000,,There's no easy way to deliver bad news\Nbut it was very very blunt I thought
Dialogue: 0,0:13:30.64,0:13:34.80,Default,,0000,0000,0000,,and we left with no information at all\Nthat Friday afternoon.
Dialogue: 0,0:13:34.80,0:13:38.94,Default,,0000,0000,0000,,We went out for the weekend\Nand with absolutely nothing.
Dialogue: 0,0:13:38.94,0:13:42.08,Default,,0000,0000,0000,,I thought, I thought with only weeks\Nto live after that, you know.
Dialogue: 0,0:13:42.99,0:13:45.26,Default,,0000,0000,0000,,So I did and I think more time\Nwould have helped
Dialogue: 0,0:13:45.26,0:13:49.18,Default,,0000,0000,0000,,and maybe a bit more compassion\Nwith the, from the consultant.
Dialogue: 0,0:13:50.55,0:13:53.52,Default,,0000,0000,0000,,S8 Don't make assumptions about us.
Dialogue: 0,0:13:54.08,0:13:58.47,Default,,0000,0000,0000,,Don't presume you know what we want,\Nfeel or need
Dialogue: 0,0:13:58.91,0:14:03.34,Default,,0000,0000,0000,,or what we might be able to understand\Nor decide.
Dialogue: 0,0:14:03.93,0:14:06.62,Default,,0000,0000,0000,,Discuss us with us directly.
Dialogue: 0,0:14:07.83,0:14:13.91,Default,,0000,0000,0000,,Give our loved ones the "This is me"\Nperson-centered document
Dialogue: 0,0:14:13.91,0:14:17.13,Default,,0000,0000,0000,,to help you care for me effectively.
Dialogue: 0,0:14:18.66,0:14:22.19,Default,,0000,0000,0000,,S? Yeah I had gone to a local\NANE (?) Department.
Dialogue: 0,0:14:22.93,0:14:25.01,Default,,0000,0000,0000,,This would be a few years ago now.
Dialogue: 0,0:14:25.01,0:14:30.92,Default,,0000,0000,0000,,And I had said to the nurse who had after\Ngone through from triage, you know,
Dialogue: 0,0:14:30.92,0:14:33.68,Default,,0000,0000,0000,,been called into the back area, you know,
Dialogue: 0,0:14:33.68,0:14:36.26,Default,,0000,0000,0000,,to be waiting to be seen by a doctor\Nand to have
Dialogue: 0,0:14:36.26,0:14:38.55,Default,,0000,0000,0000,,some sort of bloods or whatever done,
Dialogue: 0,0:14:38.55,0:14:42.48,Default,,0000,0000,0000,,and I had said to her that I had\Ndementia diagnosis
Dialogue: 0,0:14:42.83,0:14:49.32,Default,,0000,0000,0000,,and she instantly dismissed it and told me\N"Just tell the doctor" and walked away.
Dialogue: 0,0:14:50.02,0:14:53.16,Default,,0000,0000,0000,,And I have to say that put me\Ninto a bit of a panic mode
Dialogue: 0,0:14:53.16,0:14:55.82,Default,,0000,0000,0000,,because I sort of thought,\NI didn't feel safe then,
Dialogue: 0,0:14:56.06,0:14:59.08,Default,,0000,0000,0000,,I sort of thought that she should\Nhave taken a wee bit of time,
Dialogue: 0,0:14:59.08,0:15:03.26,Default,,0000,0000,0000,,even just by saying:\N"Okay we've taken note of that
Dialogue: 0,0:15:03.26,0:15:07.27,Default,,0000,0000,0000,,but if you need us to go to the toilet or\Nif you need any help with anything,
Dialogue: 0,0:15:07.27,0:15:09.18,Default,,0000,0000,0000,,you know, just give one of us a shout."
Dialogue: 0,0:15:09.47,0:15:12.55,Default,,0000,0000,0000,,But I sort of felt it wasn't\Ntaken seriously,
Dialogue: 0,0:15:12.99,0:15:17.46,Default,,0000,0000,0000,,that it, and I thought it was something,\Nthat she did need to know, you know,
Dialogue: 0,0:15:17.46,0:15:20.67,Default,,0000,0000,0000,,I thought it was something that\Nshe had needed to take note of
Dialogue: 0,0:15:20.67,0:15:26.50,Default,,0000,0000,0000,,and to be aware of and, you know,\Nas I say, I just sort of felt
Dialogue: 0,0:15:26.50,0:15:30.77,Default,,0000,0000,0000,,a bit more unsafe than if\Nhad have been given a wee bit of time
Dialogue: 0,0:15:30.77,0:15:33.17,Default,,0000,0000,0000,,cuz I sort of thought if I need\Nto go to the toilet
Dialogue: 0,0:15:33.17,0:15:36.16,Default,,0000,0000,0000,,or I need, you know, who do I say to, \NI didn't feel after that
Dialogue: 0,0:15:36.16,0:15:38.74,Default,,0000,0000,0000,,I could say to any other nurse\Nwho came in to to me:
Dialogue: 0,0:15:39.07,0:15:41.50,Default,,0000,0000,0000,,"By the way, I have a dementia diagnosis"
Dialogue: 0,0:15:41.80,0:15:43.86,Default,,0000,0000,0000,,because of the way she had treated me.
Dialogue: 0,0:15:45.12,0:15:48.74,Default,,0000,0000,0000,,S? I learned more about dementia
Dialogue: 0,0:15:51.19,0:16:02.28,Default,,0000,0000,0000,,I worked with people who were\Ntrue professionals,
Dialogue: 0,0:16:04.91,0:16:11.46,Default,,0000,0000,0000,,who were truly impressive\Nin their approaches
Dialogue: 0,0:16:14.61,0:16:30.65,Default,,0000,0000,0000,,and who helped me so much\Nto identify what I could do
Dialogue: 0,0:16:31.30,0:16:36.72,Default,,0000,0000,0000,,as opposed to all the all these things\Nthat I couldn't do.
Dialogue: 0,0:16:39.04,0:16:42.40,Default,,0000,0000,0000,,S? Notes help us to remember.
Dialogue: 0,0:16:43.23,0:16:48.14,Default,,0000,0000,0000,,Provide written information\Nusing jargon-free language
Dialogue: 0,0:16:48.14,0:16:50.67,Default,,0000,0000,0000,,to help us to understand.
Dialogue: 0,0:16:51.16,0:16:56.86,Default,,0000,0000,0000,,Help us to keep notes so that\Nwe can keep track of what is happening.
Dialogue: 0,0:16:57.56,0:17:00.68,Default,,0000,0000,0000,,S? For example when I attended a hospital,
Dialogue: 0,0:17:00.68,0:17:08.23,Default,,0000,0000,0000,,I needed to meet an individual staff\Nmember who was fairly aware of dementia
Dialogue: 0,0:17:08.61,0:17:10.57,Default,,0000,0000,0000,,and helped me support
Dialogue: 0,0:17:11.16,0:17:16.71,Default,,0000,0000,0000,,on a regular basis throughout my stay\Nespecially with regards to
Dialogue: 0,0:17:16.71,0:17:20.75,Default,,0000,0000,0000,,explaining and noting the key aspects\Nof my appointment
Dialogue: 0,0:17:20.75,0:17:24.98,Default,,0000,0000,0000,,and how to cope well in the ward itself
Dialogue: 0,0:17:29.00,0:17:33.16,Default,,0000,0000,0000,,S? So if you have someone who has dementia
Dialogue: 0,0:17:39.28,0:17:52.71,Default,,0000,0000,0000,,ensure that you are making clear\Nto the individual what is being discussed,
Dialogue: 0,0:17:54.27,0:17:58.55,Default,,0000,0000,0000,,what is being agreed,
Dialogue: 0,0:18:00.52,0:18:12.66,Default,,0000,0000,0000,,and that there is someone with them\Nthat can either take notes for them
Dialogue: 0,0:18:14.84,0:18:23.19,Default,,0000,0000,0000,,if they do not have the ability\Nto make clear
Dialogue: 0,0:18:28.48,0:18:31.78,Default,,0000,0000,0000,,any decisions that are taken,
Dialogue: 0,0:18:34.84,0:18:47.82,Default,,0000,0000,0000,,to make clear anything that has been,\Nthat has been discussed
Dialogue: 0,0:18:49.32,0:18:54.58,Default,,0000,0000,0000,,S? Environment may affect us more than you
Dialogue: 0,0:18:55.71,0:19:01.42,Default,,0000,0000,0000,,The environment we are in\Naffects us more than you.
Dialogue: 0,0:19:02.19,0:19:07.52,Default,,0000,0000,0000,,Provide a calming environment\Nand opportunities to engage
Dialogue: 0,0:19:07.52,0:19:10.82,Default,,0000,0000,0000,,in activities that mean something to us.
Dialogue: 0,0:19:12.82,0:19:20.59,Default,,0000,0000,0000,,Use person_centered tools like \N"This is me" to find out more about me,
Dialogue: 0,0:19:20.59,0:19:24.59,Default,,0000,0000,0000,,to tailor activities to meet my needs,
Dialogue: 0,0:19:25.52,0:19:30.40,Default,,0000,0000,0000,,specifically designed quiet places\Nand murals can help.
Dialogue: 0,0:19:31.54,0:19:35.91,Default,,0000,0000,0000,,S? There are also important issues\Nregarding how the building itself looks.
Dialogue: 0,0:19:36.50,0:19:43.67,Default,,0000,0000,0000,,unfamiliar surroundings, noises and\Nbusy unclear spaces can be challenging
Dialogue: 0,0:19:44.16,0:19:47.02,Default,,0000,0000,0000,,and lead the agitation and confusion.
Dialogue: 0,0:19:47.54,0:19:51.16,Default,,0000,0000,0000,,it's important for a dementia person\Nto have an individual space
Dialogue: 0,0:19:51.53,0:19:53.48,Default,,0000,0000,0000,,away from others, I think.
Dialogue: 0,0:19:54.14,0:19:57.78,Default,,0000,0000,0000,,Navigation and way finding\Nis also important
Dialogue: 0,0:19:57.78,0:20:00.91,Default,,0000,0000,0000,,and it is helpful to have\Nappropriate signs.
Dialogue: 0,0:20:01.39,0:20:04.42,Default,,0000,0000,0000,,Ideally they should be slightly large,
Dialogue: 0,0:20:04.42,0:20:10.15,Default,,0000,0000,0000,,with clear words placed\Nat face level and not too high
Dialogue: 0,0:20:10.71,0:20:14.10,Default,,0000,0000,0000,,Murals and painting can also be helpful,
Dialogue: 0,0:20:14.35,0:20:18.98,Default,,0000,0000,0000,,ideally colors that aren't too dark,\Nsuch as red and green
Dialogue: 0,0:20:20.32,0:20:27.42,Default,,0000,0000,0000,,I recently found it difficult to find\Ntight uh, toilet near my bed
Dialogue: 0,0:20:27.72,0:20:32.92,Default,,0000,0000,0000,,until the Staff member helped me find it\Nas it didn't have a sign.
Dialogue: 0,0:20:32.92,0:20:40.20,Default,,0000,0000,0000,,S? But the biggest thing would be\Ndisorientation and confusion, you know,
Dialogue: 0,0:20:40.20,0:20:43.94,Default,,0000,0000,0000,,of coming out of a room and knowing\Nwhich way to turn and what way to go
Dialogue: 0,0:20:43.94,0:20:48.43,Default,,0000,0000,0000,,and that's why for me signage is vital,\Nyou know, in all situations
Dialogue: 0,0:20:48.43,0:20:50.93,Default,,0000,0000,0000,,and if there's good signage\NI'm much more confident
Dialogue: 0,0:20:50.93,0:20:53.32,Default,,0000,0000,0000,,and I can live much more independently
Dialogue: 0,0:20:53.32,0:20:55.44,Default,,0000,0000,0000,,but I would describe my head
Dialogue: 0,0:20:55.44,0:20:57.28,Default,,0000,0000,0000,,as like a washing machine you know of so\Nmuch can trying
Dialogue: 0,0:20:59.32,0:21:04.70,Default,,0000,0000,0000,,to process things, you know, that would be\Nthe biggest challenge.
Dialogue: 0,0:21:05.52,0:21:08.87,Default,,0000,0000,0000,,It's even more confusing,\Ncuz you're already not well, you know,
Dialogue: 0,0:21:09.28,0:21:12.20,Default,,0000,0000,0000,,you're already worried\Nabout what's going on, why you're there
Dialogue: 0,0:21:12.78,0:21:18.10,Default,,0000,0000,0000,,and the noise and you know yourself\Nanybody is sort of affected,
Dialogue: 0,0:21:18.10,0:21:19.24,Default,,0000,0000,0000,,in an E&A Department.
Dialogue: 0,0:21:19.24,0:21:23.19,Default,,0000,0000,0000,,There's so much banging and cluttering\Nand there's noise going
Dialogue: 0,0:21:23.19,0:21:24.95,Default,,0000,0000,0000,,on either side of you in front of you
Dialogue: 0,0:21:24.95,0:21:27.87,Default,,0000,0000,0000,,behind you, you know,\Nthere's so many conversations going on,
Dialogue: 0,0:21:28.52,0:21:32.86,Default,,0000,0000,0000,,you know, quite often you're planted\Nquite close to the nursery station
Dialogue: 0,0:21:32.86,0:21:36.97,Default,,0000,0000,0000,,because there's no cubicles, you know,\Nand there's all the noise
Dialogue: 0,0:21:36.97,0:21:39.03,Default,,0000,0000,0000,,and all the movements\Nsort of going on that
Dialogue: 0,0:21:39.03,0:21:41.89,Default,,0000,0000,0000,,and it it can become very very confusing
Dialogue: 0,0:21:41.89,0:21:46.80,Default,,0000,0000,0000,,and you know, it's a hard thing\Nto process any information
Dialogue: 0,0:21:46.80,0:21:48.63,Default,,0000,0000,0000,,and then when they come\Nto speak to you
Dialogue: 0,0:21:49.68,0:21:51.56,Default,,0000,0000,0000,,you know there's so much noise going on
Dialogue: 0,0:21:51.56,0:21:56.76,Default,,0000,0000,0000,,there's so much background noise\Nand conversations going on around you
Dialogue: 0,0:21:56.76,0:22:00.02,Default,,0000,0000,0000,,that is hard to process\Nwhat's actually being said to you
Dialogue: 0,0:22:00.02,0:22:03.73,Default,,0000,0000,0000,,whereas again a very simple thing\Nwould be to have somewhere
Dialogue: 0,0:22:03.73,0:22:08.00,Default,,0000,0000,0000,,that, once they know you have\Na dementia diagnosis
Dialogue: 0,0:22:08.00,0:22:10.78,Default,,0000,0000,0000,,and to ask the person, you know,\N"What can we do to help?"
Dialogue: 0,0:22:10.78,0:22:13.01,Default,,0000,0000,0000,,and I think most people would say:
Dialogue: 0,0:22:13.01,0:22:17.06,Default,,0000,0000,0000,,"If I could have a quiet room to have\Nwhenever the doctor's talking to me."
Dialogue: 0,0:22:17.96,0:22:21.90,Default,,0000,0000,0000,,I think that would make a big difference,\Nyou know,
Dialogue: 0,0:22:21.90,0:22:24.48,Default,,0000,0000,0000,,you would sort of know that\Nduring that important time
Dialogue: 0,0:22:24.48,0:22:27.03,Default,,0000,0000,0000,,when you're meant to be able to take\Ninformation in,
Dialogue: 0,0:22:27.82,0:22:30.58,Default,,0000,0000,0000,,you know, that they would\Ntake you somewhere that,
Dialogue: 0,0:22:30.58,0:22:36.50,Default,,0000,0000,0000,,that could happen easier\Nthan it does in the busy A&E Department
Dialogue: 0,0:22:36.72,0:22:40.08,Default,,0000,0000,0000,,It was a game which I mentioned\Nin our pause (?)
Dialogue: 0,0:22:40.08,0:22:46.87,Default,,0000,0000,0000,,It was a new hospital absolutely\Nbeautiful like an into a NDFI 20 (?) hotel
Dialogue: 0,0:22:46.87,0:22:49.58,Default,,0000,0000,0000,,but you go in there\Nyou're not coming back out
Dialogue: 0,0:22:49.58,0:22:55.82,Default,,0000,0000,0000,,there is no signage anywhere and\Nevery corridor looks exactly the same
Dialogue: 0,0:22:55.82,0:22:59.96,Default,,0000,0000,0000,,and you sort of have to go up in the lift\Nand go along a bit then
Dialogue: 0,0:22:59.96,0:23:01.88,Default,,0000,0000,0000,,go down in a lift and go along a bit and
Dialogue: 0,0:23:01.88,0:23:07.25,Default,,0000,0000,0000,,then come back up again, you know,\Nbecause of the way they're intertwined
Dialogue: 0,0:23:07.25,0:23:11.30,Default,,0000,0000,0000,,and as I say, you come out of a lift but\Nthere's no signage to tell you
Dialogue: 0,0:23:11.30,0:23:14.76,Default,,0000,0000,0000,,to turn left, turn right\Nor what way to go,
Dialogue: 0,0:23:14.76,0:23:18.60,Default,,0000,0000,0000,,you know, and that was\Na horrible experience
Dialogue: 0,0:23:18.60,0:23:25.78,Default,,0000,0000,0000,,S? Well, I have had the experience\Nof going into hospital
Dialogue: 0,0:23:26.32,0:23:30.11,Default,,0000,0000,0000,,under an am.. with an ambulance\Nduring the times of Covid
Dialogue: 0,0:23:30.88,0:23:36.08,Default,,0000,0000,0000,,and the ambulance team were fantastic
Dialogue: 0,0:23:36.08,0:23:38.73,Default,,0000,0000,0000,,because they were aware of my challenges.
Dialogue: 0,0:23:39.04,0:23:45.83,Default,,0000,0000,0000,,They thought I had a triple A but it\Nactually turned out to be kidney stones
Dialogue: 0,0:23:46.24,0:23:49.12,Default,,0000,0000,0000,,but when they took me into the hospital,\Nrather than just sitting there
Dialogue: 0,0:23:51.48,0:23:55.12,Default,,0000,0000,0000,,in the general area, they accelerated\Nmy Passage through
Dialogue: 0,0:23:58.00,0:24:01.16,Default,,0000,0000,0000,,to being on a a bed in one of the cubicles
Dialogue: 0,0:24:01.16,0:24:09.22,Default,,0000,0000,0000,,because they knew that with my behavioural\Nvariant of the dementia, of the FTD,
Dialogue: 0,0:24:09.22,0:24:14.16,Default,,0000,0000,0000,,the frontal temporal dementia,\Nthat my filters had disappeared:
Dialogue: 0,0:24:14.16,0:24:19.89,Default,,0000,0000,0000,,I would say things as I felt about them,\NI would swear,
Dialogue: 0,0:24:20.26,0:24:24.54,Default,,0000,0000,0000,,which I wouldn't have done in the past,\Nbut frustration,
Dialogue: 0,0:24:24.54,0:24:30.08,Default,,0000,0000,0000,,the feeling of not being able\Nto express yourself as as I once did,
Dialogue: 0,0:24:30.08,0:24:33.63,Default,,0000,0000,0000,,these things lead to\Njust filterless behaviours.
Dialogue: 0,0:24:34.04,0:24:38.17,Default,,0000,0000,0000,,And it's not that you're being unkind\Nor nasty to the staff,
Dialogue: 0,0:24:38.48,0:24:40.78,Default,,0000,0000,0000,,it's just how things come across.
Dialogue: 0,0:24:40.89,0:24:44.02,Default,,0000,0000,0000,,So it's important that the staff\Nin that environment
Dialogue: 0,0:24:44.02,0:24:49.92,Default,,0000,0000,0000,,build a rapport with the patient,\Nbuild the trust and the confidence
Dialogue: 0,0:24:49.92,0:24:54.10,Default,,0000,0000,0000,,where they can exchange\Nfreely and happily.
Dialogue: 0,0:24:54.10,0:24:59.01,Default,,0000,0000,0000,,S? And the second time I developed\Nscintillitis (?) in my eye
Dialogue: 0,0:24:59.42,0:25:02.50,Default,,0000,0000,0000,,and I went to the patient portal (?)\Nlate in the evening
Dialogue: 0,0:25:02.50,0:25:06.28,Default,,0000,0000,0000,,and he rang the casualty to say\Nthey should expect me,
Dialogue: 0,0:25:06.28,0:25:09.54,Default,,0000,0000,0000,,so, they were expecting them and again\Nthey knew at that time
Dialogue: 0,0:25:09.54,0:25:13.13,Default,,0000,0000,0000,,I was living with dementia,\Nso the consultant actually saw me
Dialogue: 0,0:25:13.13,0:25:15.78,Default,,0000,0000,0000,,and the emergency department\Nwas very busy.
Dialogue: 0,0:25:15.78,0:25:18.23,Default,,0000,0000,0000,,So she actually took me\Nto a very quiet place,
Dialogue: 0,0:25:18.23,0:25:20.94,Default,,0000,0000,0000,,away from the the emergency department
Dialogue: 0,0:25:20.94,0:25:24.40,Default,,0000,0000,0000,,and they did all they had to do\Nat that time.
Dialogue: 0,0:25:25.00,0:25:29.67,Default,,0000,0000,0000,,And her care and even the nursing care\Nwas first class at that time.
Dialogue: 0,0:25:30.41,0:25:36.15,Default,,0000,0000,0000,,With really noise and a lot of people,\Nyeah I find people's faces just blur
Dialogue: 0,0:25:36.69,0:25:40.09,Default,,0000,0000,0000,,and the noise just, it really\Nscrambles my brain.
Dialogue: 0,0:25:40.09,0:25:43.27,Default,,0000,0000,0000,,I can't think or focus on anything\Nwith noise.
Dialogue: 0,0:25:43.27,0:25:45.67,Default,,0000,0000,0000,,A quiet place would be ideal yeah, yeah
Dialogue: 0,0:25:46.24,0:25:50.20,Default,,0000,0000,0000,,Assume we have capacity.
Dialogue: 0,0:25:50.20,0:25:54.02,Default,,0000,0000,0000,,Don't make assumptions\Nabout our level of capacity
Dialogue: 0,0:25:54.02,0:25:59.90,Default,,0000,0000,0000,,or ability to engage in our care-planning\Nand decision-making
Dialogue: 0,0:26:00.16,0:26:04.70,Default,,0000,0000,0000,,I may not have capacity\Nto make every decision
Dialogue: 0,0:26:05.11,0:26:11.74,Default,,0000,0000,0000,,but there will be some decisions\NI can still make and want to make.
Dialogue: 0,0:26:13.14,0:26:17.62,Default,,0000,0000,0000,,Don't speak to our family members\Nand ignore us,
Dialogue: 0,0:26:17.62,0:26:21.20,Default,,0000,0000,0000,,speak directly to us first
Dialogue: 0,0:26:21.20,0:26:26.59,Default,,0000,0000,0000,,and allow us to defer to our support\Nperson if we need to
Dialogue: 0,0:26:28.76,0:26:31.88,Default,,0000,0000,0000,,S? Ask me what you need,
Dialogue: 0,0:26:31.88,0:26:37.94,Default,,0000,0000,0000,,what -- sorry -- I would want them\Nto ask me, what I needed or wanted ,
Dialogue: 0,0:26:37.94,0:26:39.46,Default,,0000,0000,0000,,not to presume they know
Dialogue: 0,0:26:39.46,0:26:43.48,Default,,0000,0000,0000,,because they might have had\Nsomebody in earlier that day
Dialogue: 0,0:26:43.48,0:26:46.64,Default,,0000,0000,0000,,or the day before or the week before\Nwith the dementia diagnosis:
Dialogue: 0,0:26:46.64,0:26:49.91,Default,,0000,0000,0000,,he needs something different\Nto what I would need, you know,
Dialogue: 0,0:26:49.91,0:26:55.22,Default,,0000,0000,0000,,so I would always say, you know,\Ntreat that person as an individual
Dialogue: 0,0:26:55.22,0:26:59.87,Default,,0000,0000,0000,,and find out what you can do that will\Nmake them them more comfortable
Dialogue: 0,0:26:59.87,0:27:01.20,Default,,0000,0000,0000,,feel safer,
Dialogue: 0,0:27:01.98,0:27:05.90,Default,,0000,0000,0000,,and and in the turn\Nthat will ease your workload
Dialogue: 0,0:27:05.90,0:27:10.12,Default,,0000,0000,0000,,because if the person with\Nthe demenia diagnosis feels relaxed
Dialogue: 0,0:27:10.12,0:27:15.45,Default,,0000,0000,0000,,and feels at ease, they're less likely\Nto be giving hustle
Dialogue: 0,0:27:15.45,0:27:18.91,Default,,0000,0000,0000,,or be kicking off about something
Dialogue: 0,0:27:19.63,0:27:21.88,Default,,0000,0000,0000,,S? I'm a sitting in the outside\Nthe waiting-room
Dialogue: 0,0:27:22.49,0:27:26.08,Default,,0000,0000,0000,,when she asked me could come\Ninto the room and I'll speak to you
Dialogue: 0,0:27:26.08,0:27:28.24,Default,,0000,0000,0000,,if you want your son to come in,\Nhe can come.
Dialogue: 0,0:27:28.24,0:27:30.06,Default,,0000,0000,0000,,And I says no I'll just go in myself.
Dialogue: 0,0:27:30.06,0:27:33.22,Default,,0000,0000,0000,,And when I went into the room\Nshe was going, she shook my hand
Dialogue: 0,0:27:33.22,0:27:35.99,Default,,0000,0000,0000,,and says to me: \N"Martin I'm sorry to tell you
Dialogue: 0,0:27:36.39,0:27:39.82,Default,,0000,0000,0000,,I'm not sure the exact words\Nbut you have Alzheimer's dementia"
Dialogue: 0,0:27:40.72,0:27:44.18,Default,,0000,0000,0000,,Well, you're you're taken aback,\Nyou're just in shock.
Dialogue: 0,0:27:44.42,0:27:47.42,Default,,0000,0000,0000,,She says "Do you want me to get your son,\Nbring him in?"
Dialogue: 0,0:27:47.91,0:27:51.91,Default,,0000,0000,0000,,And I say "No, not definitely\Nnot to my son:
Dialogue: 0,0:27:51.91,0:27:53.77,Default,,0000,0000,0000,,I'll get my sons together\Nwhen I go home
Dialogue: 0,0:27:53.77,0:27:57.31,Default,,0000,0000,0000,,and I'll tell them when I go home,\NI'll get them settled down and I think
Dialogue: 0,0:27:57.31,0:28:00.24,Default,,0000,0000,0000,,that I'll say 'Look, I feel great,\NI still feel the same thing
Dialogue: 0,0:28:00.24,0:28:03.59,Default,,0000,0000,0000,,I'm still your daddy I'm still the thing\Nand I'll still get carrying on'."
Dialogue: 0,0:28:03.59,0:28:07.95,Default,,0000,0000,0000,,And two of my sons are ... (?) twin (?
Dialogue: 0,0:28:07.95,0:28:09.93,Default,,0000,0000,0000,,and they were going like\Noh God(?)
Dialogue: 0,0:28:09.93,0:28:11.86,Default,,0000,0000,0000,,not be able to tell him\Nanything now (?)
Dialogue: 0,0:28:11.86,0:28:14.19,Default,,0000,0000,0000,,like not keep a secret\Nhe can't keep anything
Dialogue: 0,0:28:14.19,0:28:16.92,Default,,0000,0000,0000,,but it was it was good,\Nthe experience was good.
Dialogue: 0,0:28:16.92,0:28:19.94,Default,,0000,0000,0000,,S? Be aware of our details
Dialogue: 0,0:28:20.48,0:28:24.27,Default,,0000,0000,0000,,Don't make us repeat our story\Nmultiple times.
Dialogue: 0,0:28:24.70,0:28:28.29,Default,,0000,0000,0000,,It makes us feel like we are being tested
Dialogue: 0,0:28:30.17,0:28:32.64,Default,,0000,0000,0000,,Read your colleagues assessments;
Dialogue: 0,0:28:32.64,0:28:38.14,Default,,0000,0000,0000,,Repeating information is exhausting\Nfor us
Dialogue: 0,0:28:38.14,0:28:41.63,Default,,0000,0000,0000,,S? Yeah again I think that's it,\Nthe nurse comes in,
Dialogue: 0,0:28:41.64,0:28:44.20,Default,,0000,0000,0000,,you see the nursing triage,\Nyou tell them the story.
Dialogue: 0,0:28:44.62,0:28:47.83,Default,,0000,0000,0000,,You then see whoever you move to\Ninto the cubicles
Dialogue: 0,0:28:47.83,0:28:51.53,Default,,0000,0000,0000,,or into the back set of things (?)\Nand you tell them your story.
Dialogue: 0,0:28:51.53,0:28:54.51,Default,,0000,0000,0000,,The doctor then comes in\Nor a doctor comes in
Dialogue: 0,0:28:54.51,0:28:59.33,Default,,0000,0000,0000,,and you tell them it but they maybe not\Nthe particular doctor you need to see
Dialogue: 0,0:28:59.33,0:29:01.67,Default,,0000,0000,0000,,if it's something specific\Nyou're there for,
Dialogue: 0,0:29:01.67,0:29:05.23,Default,,0000,0000,0000,,if it was for example something to do\Nwith your heart, you know,
Dialogue: 0,0:29:05.54,0:29:07.81,Default,,0000,0000,0000,,you would get a general doctor\Ncome and talk:
Dialogue: 0,0:29:07.81,0:29:11.74,Default,,0000,0000,0000,,"Oh you need to get something done\Nfrom Cardiology" or whatever.
Dialogue: 0,0:29:11.89,0:29:14.70,Default,,0000,0000,0000,,They call down and you have to repeat\Nthe whole thing again
Dialogue: 0,0:29:14.70,0:29:18.63,Default,,0000,0000,0000,,And that can become quite frustrating\Nand you sort of think:
Dialogue: 0,0:29:18.63,0:29:22.55,Default,,0000,0000,0000,,"Can you not read, can you not actually\Nlook at the notes
Dialogue: 0,0:29:22.55,0:29:25.51,Default,,0000,0000,0000,,that have been taken\Numpteen times beforehand?"
Dialogue: 0,0:29:26.17,0:29:29.06,Default,,0000,0000,0000,,And you sort of "Are they're trying\Nto trick you right here,
Dialogue: 0,0:29:29.14,0:29:31.26,Default,,0000,0000,0000,,trying to get you to say\Nsomething different
Dialogue: 0,0:29:31.40,0:29:33.01,Default,,0000,0000,0000,,to what you had said before?"
Dialogue: 0,0:29:33.01,0:29:38.96,Default,,0000,0000,0000,,I think it is, I think it's a challenge,\Nyou know because as I say, by
Dialogue: 0,0:29:38.96,0:29:42.45,Default,,0000,0000,0000,,you're at that stage you're already\Nin a real state of confusion and panic
Dialogue: 0,0:29:42.45,0:29:47.18,Default,,0000,0000,0000,,and a bit more unsettled.
Dialogue: 0,0:29:47.46,0:29:49.71,Default,,0000,0000,0000,,So to be asked the same story over again
Dialogue: 0,0:29:50.06,0:29:53.20,Default,,0000,0000,0000,,can become very frustrating\Nand I think at times
Dialogue: 0,0:29:53.20,0:29:56.86,Default,,0000,0000,0000,,you can become a bit sharper than maybe\Nthat what you would normally be
Dialogue: 0,0:29:56.86,0:30:00.90,Default,,0000,0000,0000,,but it's because you sort of,\Nyou're fed up with the length of time
Dialogue: 0,0:30:00.90,0:30:03.43,Default,,0000,0000,0000,,you have sitting there\Nprobably waiting anyway
Dialogue: 0,0:30:03.43,0:30:04.92,Default,,0000,0000,0000,,and you haven't seen anybody.
Dialogue: 0,0:30:04.92,0:30:08.34,Default,,0000,0000,0000,,And then the next person comes in\Nto ask exactly the same question again
Dialogue: 0,0:30:08.34,0:30:10.40,Default,,0000,0000,0000,,you think like\N"This has moved on nowhere!
Dialogue: 0,0:30:11.01,0:30:14.08,Default,,0000,0000,0000,,You know you haven't, you're asking me
Dialogue: 0,0:30:14.08,0:30:18.21,Default,,0000,0000,0000,,what the person asked me two hours ago\Nbut you're doing nothing different!"
Dialogue: 0,0:30:18.21,0:30:21.35,Default,,0000,0000,0000,,but yes, I think it is a challenge,\Nyou know with --
Dialogue: 0,0:30:21.35,0:30:23.24,Default,,0000,0000,0000,,I think it's a challenge for anybody,
Dialogue: 0,0:30:23.24,0:30:25.43,Default,,0000,0000,0000,,I think for somebody with a dementia\Ndiagnosis,
Dialogue: 0,0:30:25.43,0:30:27.54,Default,,0000,0000,0000,,yes, it is more of a challenge
Dialogue: 0,0:30:27.54,0:30:29.73,Default,,0000,0000,0000,,S? Use clear language.
Dialogue: 0,0:30:30.43,0:30:36.77,Default,,0000,0000,0000,,If you are going to perform\Nan intervention, talk to us beforehand
Dialogue: 0,0:30:37.30,0:30:43.30,Default,,0000,0000,0000,,and explain each step in clear words\Nor with gestures
Dialogue: 0,0:30:43.60,0:30:46.72,Default,,0000,0000,0000,,if our understanding is very limited.
Dialogue: 0,0:30:47.35,0:30:48.88,Default,,0000,0000,0000,,Give us time, explaining the procedure\Nwill help us to participate.
Dialogue: 0,0:30:54.96,0:30:59.40,Default,,0000,0000,0000,,If I need reassurance, reassure me
Dialogue: 0,0:31:00.30,0:31:03.79,Default,,0000,0000,0000,,S? I'm not saying you have to have\Ndementia to understand it
Dialogue: 0,0:31:04.16,0:31:07.79,Default,,0000,0000,0000,,What I'm saying is\Nwhat I said to students, is:
Dialogue: 0,0:31:08.24,0:31:13.34,Default,,0000,0000,0000,,"Take it easy at the beginning,\Ndon't bombard them
Dialogue: 0,0:31:13.34,0:31:20.48,Default,,0000,0000,0000,,with a rapid release of questions\Nand don't link questions together.
Dialogue: 0,0:31:20.90,0:31:25.30,Default,,0000,0000,0000,,Make the subject, if it is driving,\Nsomething like that:
Dialogue: 0,0:31:26.61,0:31:28.97,Default,,0000,0000,0000,,say: "Are you driving your car?"
Dialogue: 0,0:31:30.15,0:31:31.55,Default,,0000,0000,0000,,Wait for the answer,
Dialogue: 0,0:31:31.89,0:31:36.81,Default,,0000,0000,0000,,and then if they say: "no, I'm not"\Nthen you can discuss it with them.
Dialogue: 0,0:31:37.30,0:31:42.43,Default,,0000,0000,0000,,But I think if you go into something\Nyou know, it only makes them:
Dialogue: 0,0:31:42.93,0:31:47.42,Default,,0000,0000,0000,,"I can't interrupt this \Nbut I don't agree with her".
Dialogue: 0,0:31:47.94,0:31:53.22,Default,,0000,0000,0000,,So, very gently say, l thank you very much\Nfor coming to talk to me
Dialogue: 0,0:31:53.86,0:31:59.72,Default,,0000,0000,0000,,and I know very little about\Nhow you're feeling at the moment.
Dialogue: 0,0:32:00.34,0:32:05.60,Default,,0000,0000,0000,,So can you tell me how you felt\Nwhen you got your diagnosis?
Dialogue: 0,0:32:05.95,0:32:07.36,Default,,0000,0000,0000,,What went before?
Dialogue: 0,0:32:07.83,0:32:10.32,Default,,0000,0000,0000,,Did you think you had dementia?
Dialogue: 0,0:32:10.61,0:32:16.35,Default,,0000,0000,0000,,And how you felt when you actually\Nwere told you have dementia?"
Dialogue: 0,0:32:17.32,0:32:20.44,Default,,0000,0000,0000,,It makes a difference.
Dialogue: 0,0:32:20.44,0:32:29.06,Default,,0000,0000,0000,,S? Health and Social Care staff working\Nwith any form of dementia
Dialogue: 0,0:32:31.38,0:32:38.46,Default,,0000,0000,0000,,need to communicate clearly
Dialogue: 0,0:32:40.02,0:32:46.80,Default,,0000,0000,0000,,with any individual\Nwith any form of dementia.
Dialogue: 0,0:32:48.01,0:32:54.26,Default,,0000,0000,0000,,They need to give clear instructions.
Dialogue: 0,0:32:56.76,0:33:04.75,Default,,0000,0000,0000,,They need to ensure that people\Nwith whom they are working
Dialogue: 0,0:33:06.48,0:33:17.15,Default,,0000,0000,0000,,have a clear understanding\Nof what is being discussed.
Dialogue: 0,0:33:19.94,0:33:28.21,Default,,0000,0000,0000,,And that they have made clear
Dialogue: 0,0:33:29.100,0:33:40.27,Default,,0000,0000,0000,,exactly what is being shared\Nwhat is being said.
Dialogue: 0,0:33:42.74,0:33:46.39,Default,,0000,0000,0000,,S? Maintain our confidentiality\Nand dignity.
Dialogue: 0,0:33:47.10,0:33:51.54,Default,,0000,0000,0000,,Share information with us sensitively
Dialogue: 0,0:33:51.80,0:33:57.19,Default,,0000,0000,0000,,and take into consideration\Nour confidentiality.
Dialogue: 0,0:33:58.72,0:34:02.08,Default,,0000,0000,0000,,Privacy and dignity are important.
Dialogue: 0,0:34:02.76,0:34:09.23,Default,,0000,0000,0000,,We may not want other patients/visitors\Nto know we have dementia
Dialogue: 0,0:34:09.80,0:34:16.95,Default,,0000,0000,0000,,Yeah, within the hold of dementia,\NI find myself falling apart,
Dialogue: 0,0:34:17.36,0:34:27.51,Default,,0000,0000,0000,,I find myself unable to be\Nthe person I was
Dialogue: 0,0:34:29.48,0:34:39.42,Default,,0000,0000,0000,,to communicate the way\NI should be able to communicate.
Dialogue: 0,0:34:44.08,0:34:54.71,Default,,0000,0000,0000,,I lost my skills, I lost a lot of\Nwhat was,
Dialogue: 0,0:34:59.70,0:35:06.74,Default,,0000,0000,0000,,what being me as a person was.
Dialogue: 0,0:35:14.85,0:35:19.87,Default,,0000,0000,0000,,I was, I was lost.
Dialogue: 0,0:35:23.75,0:35:28.87,Default,,0000,0000,0000,,(S?) Well, for myself or anybody,\Nthey just treat us like hard of hearing (?)
Dialogue: 0,0:35:28.98,0:35:33.24,Default,,0000,0000,0000,,But if I come in as a patient,\Nthey don't know I've got dementia
Dialogue: 0,0:35:33.24,0:35:35.26,Default,,0000,0000,0000,,unless I tell them I've got dementia
Dialogue: 0,0:35:37.75,0:35:43.00,Default,,0000,0000,0000,,Don't, don't have me to have to say\Nthat I've got dementia,
Dialogue: 0,0:35:43.00,0:35:46.20,Default,,0000,0000,0000,,just treat me with courtesy of, I think
Dialogue: 0,0:35:46.20,0:35:50.76,Default,,0000,0000,0000,,most, most sitting rooms in the hospital,\Nyou know are like they're havoc.
Dialogue: 0,0:35:51.57,0:35:54.80,Default,,0000,0000,0000,,If it comes to a thing, many such places\Nwhere I've been in,
Dialogue: 0,0:35:54.80,0:35:58.22,Default,,0000,0000,0000,,I've turned around and says: "Look I'm\Nin the early stages of dementia,
Dialogue: 0,0:35:58.22,0:36:00.31,Default,,0000,0000,0000,,could you give me a we bit of time, here?"
Dialogue: 0,0:36:00.48,0:36:05.29,Default,,0000,0000,0000,,and just things get mixed up for --\NI think if just,
Dialogue: 0,0:36:05.86,0:36:11.08,Default,,0000,0000,0000,,if my name would come up\Nin that computer without me having to say
Dialogue: 0,0:36:11.37,0:36:14.96,Default,,0000,0000,0000,,and 200 people or 100 people behind me\Nlistening:
Dialogue: 0,0:36:14.96,0:36:19.29,Default,,0000,0000,0000,,"He's got dementia listen, he's different\N.........(?)"
Dialogue: 0,0:36:19.72,0:36:23.38,Default,,0000,0000,0000,,it's different just just come up\Non the computer
Dialogue: 0,0:36:23.38,0:36:25.51,Default,,0000,0000,0000,,they made a way they know\NI've got dementia;
Dialogue: 0,0:36:25.64,0:36:29.28,Default,,0000,0000,0000,,well we're just talking about a blue heart\Nor purple or something like that
Dialogue: 0,0:36:29.74,0:36:32.00,Default,,0000,0000,0000,,and see what, where the attitude\Nchanges,
Dialogue: 0,0:36:32.00,0:36:35.72,Default,,0000,0000,0000,,that those changes have used are have used our
Dialogue: 0,0:36:35.72,0:36:38.32,Default,,0000,0000,0000,,we th card or we IDE I've used to be
Dialogue: 0,0:36:38.32,0:36:42.52,Default,,0000,0000,0000,,smart card not the smart card uh JN card\NI've used the JN card
Dialogue: 0,0:36:42.52,0:36:48.39,Default,,0000,0000,0000,,the difference those things make\Nand change people's attitude,
Dialogue: 0,0:36:48.39,0:36:50.47,Default,,0000,0000,0000,,it's wonderful wonderful
Dialogue: 0,0:36:50.92,0:36:52.92,Default,,0000,0000,0000,,S? Provide a support person.
Dialogue: 0,0:36:53.79,0:37:00.90,Default,,0000,0000,0000,,Having a designated support person can\Nhelp to keep us calm and reassured.
Dialogue: 0,0:37:01.54,0:37:04.96,Default,,0000,0000,0000,,One key person who supports us\Nthrough our stay makes a huge difference
Dialogue: 0,0:37:09.08,0:37:11.31,Default,,0000,0000,0000,,to our Hospital experience
Dialogue: 0,0:37:11.82,0:37:16.91,Default,,0000,0000,0000,,S? I had to go and get an operation\Nto take out a tumor on my leg
Dialogue: 0,0:37:17.91,0:37:19.68,Default,,0000,0000,0000,,and it was quite difficult
Dialogue: 0,0:37:19.68,0:37:24.90,Default,,0000,0000,0000,,because the specialist, even though\Nshe was taking the the tumor out,
Dialogue: 0,0:37:25.36,0:37:29.00,Default,,0000,0000,0000,,she was quite --\Na lot of words that she was using
Dialogue: 0,0:37:29.48,0:37:33.27,Default,,0000,0000,0000,,was very difficult for me to understand\Nbecause they were quite technical
Dialogue: 0,0:37:33.96,0:37:40.71,Default,,0000,0000,0000,,and she then got a young nurse\Nto come in and help me because
Dialogue: 0,0:37:40.71,0:37:46.12,Default,,0000,0000,0000,,she also knocked me out for six hours,\Nshe put me asleep for 6 hours
Dialogue: 0,0:37:46.12,0:37:47.04,Default,,0000,0000,0000,,where she was --
Dialogue: 0,0:37:47.04,0:37:51.39,Default,,0000,0000,0000,,and a lot of things she was help,\Nthe other lady was helping me,
Dialogue: 0,0:37:51.39,0:37:52.68,Default,,0000,0000,0000,,she met me.
Dialogue: 0,0:37:52.68,0:37:57.35,Default,,0000,0000,0000,,I was there for about a full day overnight
Dialogue: 0,0:37:57.74,0:38:02.31,Default,,0000,0000,0000,,and that young lady was a major help\Nto me in the hospital
Dialogue: 0,0:38:02.31,0:38:06.38,Default,,0000,0000,0000,,because she helped me even\Nwrite down my words,
Dialogue: 0,0:38:06.68,0:38:11.07,Default,,0000,0000,0000,,she helped me even find places\Nand she also said:
Dialogue: 0,0:38:11.44,0:38:15.11,Default,,0000,0000,0000,,"Even tomorrow when you go home\Nnow that you've been operated,
Dialogue: 0,0:38:15.11,0:38:16.74,Default,,0000,0000,0000,,this is what you do."
Dialogue: 0,0:38:17.01,0:38:21.12,Default,,0000,0000,0000,,So even though the specialist\Noperated me well,
Dialogue: 0,0:38:21.74,0:38:24.15,Default,,0000,0000,0000,,that lady was a massive helper.
Dialogue: 0,0:38:24.15,0:38:28.70,Default,,0000,0000,0000,,She made the difference and I -- because\NI spoke to the specialist
Dialogue: 0,0:38:28.70,0:38:32.97,Default,,0000,0000,0000,,and you even used my card and I said\NI know you're going to help me
Dialogue: 0,0:38:33.31,0:38:39.13,Default,,0000,0000,0000,,but I've got Alzheimer's and I need\Nsomeone to talk to me, that give me advice
Dialogue: 0,0:38:39.59,0:38:42.85,Default,,0000,0000,0000,,and because some of the things\Nyou've said you're going to do
Dialogue: 0,0:38:43.28,0:38:47.27,Default,,0000,0000,0000,,I haven't really understood fully\Nwhat's going to happen
Dialogue: 0,0:38:47.27,0:38:49.15,Default,,0000,0000,0000,,or even how I help myself.
Dialogue: 0,0:38:49.15,0:38:53.43,Default,,0000,0000,0000,,So, when that other lady came in,\Nshe was massively helpful to me.
Dialogue: 0,0:38:53.68,0:38:55.70,Default,,0000,0000,0000,,Possibly like other people with Dementia
Dialogue: 0,0:38:55.70,0:38:58.79,Default,,0000,0000,0000,,I find that some things\Nare difficult to understand
Dialogue: 0,0:38:59.00,0:39:01.74,Default,,0000,0000,0000,,if I haven't heard about things\Nfor a while.
Dialogue: 0,0:39:02.03,0:39:06.69,Default,,0000,0000,0000,,So that other lady was a bit\Nmore explaining
Dialogue: 0,0:39:07.11,0:39:11.12,Default,,0000,0000,0000,,and also helped me make notes\Nto write down:
Dialogue: 0,0:39:11.12,0:39:14.06,Default,,0000,0000,0000,,a great understanding\Nof what was going to happen to me
Dialogue: 0,0:39:14.06,0:39:17.87,Default,,0000,0000,0000,,and particularly how I dealt with myself\Nthe next few days when I got home
Dialogue: 0,0:39:18.14,0:39:21.02,Default,,0000,0000,0000,,S? Having that interface between\Nthe consultant
Dialogue: 0,0:39:21.41,0:39:30.30,Default,,0000,0000,0000,,and also the patient\Nwith that specialist nurse was invaluable.
Dialogue: 0,0:39:30.30,0:39:36.35,Default,,0000,0000,0000,,And that, I think, is something which\Ncan be really helpful to other people.
Dialogue: 0,0:39:36.68,0:39:47.23,Default,,0000,0000,0000,,S? One thing that I would insist on\Nwould be that I had
Dialogue: 0,0:39:50.16,0:40:08.58,Default,,0000,0000,0000,,someone with me that I trust,\Nsomeone with me that could be there,
Dialogue: 0,0:40:10.04,0:40:18.54,Default,,0000,0000,0000,,to like, say, (?) I would either be taking\Nmy own notes.
Dialogue: 0,0:40:20.09,0:40:25.28,Default,,0000,0000,0000,,That's another thing I'd lost\Nmy writing skills
Dialogue: 0,0:40:25.28,0:40:27.52,Default,,0000,0000,0000,,I'd lost, I mean,
Dialogue: 0,0:40:28.40,0:40:38.67,Default,,0000,0000,0000,,as well as losing my verbosity I had lost\Nmy ability to write
Dialogue: 0,0:40:40.98,0:40:44.64,Default,,0000,0000,0000,,and I have been practicing writing
Dialogue: 0,0:40:46.16,0:40:49.15,Default,,0000,0000,0000,,just to get myself back off to speed,
Dialogue: 0,0:40:50.01,0:40:56.29,Default,,0000,0000,0000,,to be able to communicate effectively
Dialogue: 0,0:40:59.48,0:41:12.07,Default,,0000,0000,0000,,I've also been reading a lot\Nto try and ensure
Dialogue: 0,0:41:12.07,0:41:18.15,Default,,0000,0000,0000,,that my communication is\Nas it should be,
Dialogue: 0,0:41:18.81,0:41:23.37,Default,,0000,0000,0000,,as I consider it should be,
Dialogue: 0,0:41:26.76,0:41:29.60,Default,,0000,0000,0000,,because I'm a hard taskmaster.
Dialogue: 0,0:41:32.99,0:41:35.68,Default,,0000,0000,0000,,The following scene is based
Dialogue: 0,0:41:35.68,0:41:37.84,Default,,0000,0000,0000,,on our real life
Dialogue: 0,0:41:37.84,0:41:41.60,Default,,0000,0000,0000,,experiences of poor health care
Dialogue: 0,0:41:41.60,0:41:42.83,Default,,0000,0000,0000,,interactions
Dialogue: 0,0:41:42.83,0:42:02.38,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:42:02.76,0:42:08.12,Default,,0000,0000,0000,,S? Without a clear introduction,\Nwe may feel rushed or panicked,
Dialogue: 0,0:42:08.82,0:42:15.54,Default,,0000,0000,0000,,unsure of what is happening, which may\Nunnecessarily increase our anxiety
Dialogue: 0,0:42:16.32,0:42:19.80,Default,,0000,0000,0000,,and generate unexpected reactions.
Dialogue: 0,0:42:21.31,0:42:29.31,Default,,0000,0000,0000,,Insufficient support with wayfinding\Ncould leave us disorientated and confused,
Dialogue: 0,0:42:29.96,0:42:34.07,Default,,0000,0000,0000,,ultimately reducing our \Npowers of concentration
Dialogue: 0,0:42:34.07,0:42:36.61,Default,,0000,0000,0000,,for the following appointment.
Dialogue: 0,0:42:37.63,0:42:46.33,Default,,0000,0000,0000,,Disorganized and chaotic clinical space\Nmay be distracting or overwhelming for us,
Dialogue: 0,0:42:46.33,0:42:50.79,Default,,0000,0000,0000,,reducing ability to focus and communicate
Dialogue: 0,0:42:52.54,0:42:58.04,Default,,0000,0000,0000,,Not explaining procedures or interventions\Nclearly in advance
Dialogue: 0,0:42:58.04,0:43:04.92,Default,,0000,0000,0000,,can cause us upset or distress,\Nespecially as our dementia advances.
Dialogue: 0,0:43:06.66,0:43:14.95,Default,,0000,0000,0000,,Not explaining next steps in advance\Nincreases our anxiety and confusion.
Dialogue: 0,0:43:20.76,0:43:23.75,Default,,0000,0000,0000,,S? Hazel and David, is that right?
Dialogue: 0,0:43:23.75,0:43:24.58,Default,,0000,0000,0000,,S? Yeah.
Dialogue: 0,0:43:24.58,0:43:27.78,Default,,0000,0000,0000,,S? I'm Dr ..... (?) [background voices]
Dialogue: 0,0:43:27.78,0:43:33.49,Default,,0000,0000,0000,,S? Without a clear and full introduction,\Nwe may not realize
Dialogue: 0,0:43:33.76,0:43:35.93,Default,,0000,0000,0000,,the purpose of the appointment.
Dialogue: 0,0:43:39.21,0:43:41.80,Default,,0000,0000,0000,,S? No I'm not I'm not really\Nseeing anything,
Dialogue: 0,0:43:41.80,0:43:43.64,Default,,0000,0000,0000,,there there's no results back just yet
Dialogue: 0,0:43:45.24,0:43:50.62,Default,,0000,0000,0000,,S? Poor positioning can hinder\Neffective communication with us
Dialogue: 0,0:43:50.81,0:43:56.19,Default,,0000,0000,0000,,(Indistinct background voices)\N... Not to good we'll maybe ...
Dialogue: 0,0:43:56.29,0:44:04.38,Default,,0000,0000,0000,,S? Asking us repetitive questions\Nwithout context can make us feel
Dialogue: 0,0:44:04.38,0:44:07.23,Default,,0000,0000,0000,,like we are being tested.
Dialogue: 0,0:44:09.11,0:44:13.70,Default,,0000,0000,0000,,Speaking to a carer instead of\Ndirectly to us
Dialogue: 0,0:44:14.46,0:44:18.08,Default,,0000,0000,0000,,shows a presumption\Nabout our capacity.
Dialogue: 0,0:44:18.97,0:44:23.98,Default,,0000,0000,0000,,S? The following scene is based on\Nour real life experiences
Dialogue: 0,0:44:23.98,0:44:27.97,Default,,0000,0000,0000,,of {\b1}positive{\b0} healthcare interactions
Dialogue: 0,0:44:28.01,0:44:40.02,Default,,0000,0000,0000,,[Indistinct voices]
Dialogue: 0,0:44:40.37,0:45:03.16,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:45:03.30,0:45:05.46,Default,,0000,0000,0000,,S? The consultant comes\Nto see about things (?)
Dialogue: 0,0:45:05.46,0:45:09.68,Default,,0000,0000,0000,,And I'll fix this across the H\NS? yeah S? all right? (?)
Dialogue: 0,0:45:12.45,0:45:15.36,Default,,0000,0000,0000,,there we go like the wait the
Dialogue: 0,0:45:15.36,0:45:16.96,Default,,0000,0000,0000,,consultant will be right in through the
Dialogue: 0,0:45:16.96,0:45:21.08,Default,,0000,0000,0000,,door thank you
Dialogue: 0,0:45:28.04,0:45:30.40,Default,,0000,0000,0000,,how are you I'm Dr sville I'm one of the
Dialogue: 0,0:45:30.40,0:45:33.12,Default,,0000,0000,0000,,Consultants it's nice to meet you it's
Dialogue: 0,0:45:33.12,0:45:35.24,Default,,0000,0000,0000,,Davey is that right Dave yeah Davey I I
Dialogue: 0,0:45:35.24,0:45:37.44,Default,,0000,0000,0000,,haven't met you before um I understand
Dialogue: 0,0:45:37.44,0:45:39.04,Default,,0000,0000,0000,,that you're you're here to talk about
Dialogue: 0,0:45:39.04,0:45:40.64,Default,,0000,0000,0000,,some results that's right is that
Dialogue: 0,0:45:40.64,0:45:43.60,Default,,0000,0000,0000,,correct be okay yeah sure I I haven't
Dialogue: 0,0:45:43.60,0:45:46.16,Default,,0000,0000,0000,,been to doing too bad been keeping busy
Dialogue: 0,0:45:46.16,0:45:47.56,Default,,0000,0000,0000,,and very
Dialogue: 0,0:45:47.56,0:45:52.08,Default,,0000,0000,0000,,active so I do and uh yeah just keep
Dialogue: 0,0:45:52.08,0:45:54.36,Default,,0000,0000,0000,,keep busy okay okay how have you been
Dialogue: 0,0:45:54.36,0:45:57.12,Default,,0000,0000,0000,,sleeping recently sleep's been a bit on
Dialogue: 0,0:45:57.12,0:46:01.20,Default,,0000,0000,0000,,off um but uh I always get caught up
Dialogue: 0,0:46:01.20,0:46:03.16,Default,,0000,0000,0000,,sometimes away quite early right but uh
Dialogue: 0,0:46:03.16,0:46:05.76,Default,,0000,0000,0000,,I can get caught up the next night okay
Dialogue: 0,0:46:05.76,0:46:07.80,Default,,0000,0000,0000,,and what time would you go to bed at
Dialogue: 0,0:46:07.80,0:46:11.44,Default,,0000,0000,0000,,roughly normally try half time 11:00 um
Dialogue: 0,0:46:11.44,0:46:13.84,Default,,0000,0000,0000,,probably a bit overeen of anything right
Dialogue: 0,0:46:13.84,0:46:16.24,Default,,0000,0000,0000,,I started sweet stuff I Can't Get Enough
Dialogue: 0,0:46:16.24,0:46:19.20,Default,,0000,0000,0000,,at the whatever's uh going on you know
Dialogue: 0,0:46:19.20,0:46:21.96,Default,,0000,0000,0000,,right okay and then just about some of
Dialogue: 0,0:46:21.96,0:46:24.76,Default,,0000,0000,0000,,your medications um has anything changed
Dialogue: 0,0:46:24.76,0:46:27.44,Default,,0000,0000,0000,,recently at all no they've kept it
Dialogue: 0,0:46:27.44,0:46:30.28,Default,,0000,0000,0000,,they kept the medication as it is right
Dialogue: 0,0:46:30.28,0:46:32.00,Default,,0000,0000,0000,,we can maybe spend a bit more time
Dialogue: 0,0:46:32.00,0:46:34.24,Default,,0000,0000,0000,,looking at well really not not too bad
Dialogue: 0,0:46:34.24,0:46:36.60,Default,,0000,0000,0000,,just how how how do you see things
Dialogue: 0,0:46:36.60,0:46:40.20,Default,,0000,0000,0000,,progressing for for myself okay okay so
Dialogue: 0,0:46:40.20,0:46:42.68,Default,,0000,0000,0000,,if you've got that Rapport it makes a
Dialogue: 0,0:46:42.68,0:46:45.92,Default,,0000,0000,0000,,real difference and show appreciation
Dialogue: 0,0:46:45.92,0:46:49.76,Default,,0000,0000,0000,,cuz the staff do an amazing thing and in
Dialogue: 0,0:46:49.76,0:46:52.52,Default,,0000,0000,0000,,very difficult environment and I have to
Dialogue: 0,0:46:52.52,0:46:55.76,Default,,0000,0000,0000,,say thank you to the nursing staff and
Dialogue: 0,0:46:55.76,0:46:58.44,Default,,0000,0000,0000,,to the medics who do take such good care
Dialogue: 0,0:46:58.44,0:46:59.32,Default,,0000,0000,0000,,of
Dialogue: 0,0:46:59.32,0:47:02.40,Default,,0000,0000,0000,,us thank you for staying with us
Dialogue: 0,0:47:02.40,0:47:04.20,Default,,0000,0000,0000,,throughout this
Dialogue: 0,0:47:04.20,0:47:07.08,Default,,0000,0000,0000,,documentary we hope it has provided you
Dialogue: 0,0:47:07.08,0:47:10.12,Default,,0000,0000,0000,,with a deeper understanding of what it
Dialogue: 0,0:47:10.12,0:47:13.56,Default,,0000,0000,0000,,is like to live with dementia and has
Dialogue: 0,0:47:13.56,0:47:17.16,Default,,0000,0000,0000,,offered practical tips that you can now
Dialogue: 0,0:47:17.16,0:47:18.68,Default,,0000,0000,0000,,put into
Dialogue: 0,0:47:18.68,0:47:22.72,Default,,0000,0000,0000,,practice finally a big thank you from
Dialogue: 0,0:47:22.72,0:47:25.88,Default,,0000,0000,0000,,all the members at dementa ni for the
Dialogue: 0,0:47:25.88,0:47:27.56,Default,,0000,0000,0000,,work that you do
Dialogue: 0,0:47:27.56,0:47:30.88,Default,,0000,0000,0000,,that has a positive impact on the daily
Dialogue: 0,0:47:30.88,0:47:33.88,Default,,0000,0000,0000,,lives of real people like
Dialogue: 0,0:47:33.88,0:47:37.16,Default,,0000,0000,0000,,us matter have to assume we have
Dialogue: 0,0:47:37.16,0:47:40.48,Default,,0000,0000,0000,,capacity mhm is that the size of my
Dialogue: 0,0:47:40.48,0:47:44.36,Default,,0000,0000,0000,,bladder the size of my
Dialogue: 0,0:47:50.16,0:47:54.20,Default,,0000,0000,0000,,nose those words my feet went from
Dialogue: 0,0:47:54.20,0:47:58.84,Default,,0000,0000,0000,,beneath me could not believe what I
Dialogue: 0,0:47:59.18,0:48:00.80,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:48:00.80,0:48:03.36,Default,,0000,0000,0000,,I I
Dialogue: 0,0:48:03.36,0:48:06.72,Default,,0000,0000,0000,,saw I
Dialogue: 0,0:48:09.56,0:48:15.40,Default,,0000,0000,0000,,give it's a slippy R but I keep my feet
Dialogue: 0,0:48:15.40,0:48:19.36,Default,,0000,0000,0000,,bled I have the strength to hold the C
Dialogue: 0,0:48:19.36,0:48:21.56,Default,,0000,0000,0000,,I've been
Dialogue: 0,0:48:21.56,0:48:25.80,Default,,0000,0000,0000,,handed If I Stumble if my feet fall or
Dialogue: 0,0:48:25.80,0:48:27.68,Default,,0000,0000,0000,,if I need
Dialogue: 0,0:48:27.68,0:48:31.88,Default,,0000,0000,0000,,assistance I know the journey is long
Dialogue: 0,0:48:31.88,0:48:36.04,Default,,0000,0000,0000,,but it's so wor
Dialogue: 0,0:48:36.04,0:48:39.88,Default,,0000,0000,0000,,that my voice is mind I don't need
Dialogue: 0,0:48:39.88,0:48:43.80,Default,,0000,0000,0000,,someone to say what's on my mind though
Dialogue: 0,0:48:43.80,0:48:47.48,Default,,0000,0000,0000,,the love I have to help me is the best
Dialogue: 0,0:48:47.48,0:48:51.40,Default,,0000,0000,0000,,that you could find and I worry for my
Dialogue: 0,0:48:51.40,0:48:55.56,Default,,0000,0000,0000,,loved ones cuz the future is so wonder I
Dialogue: 0,0:48:55.56,0:48:58.72,Default,,0000,0000,0000,,stay strong
Dialogue: 0,0:49:01.52,0:49:02.20,Default,,0000,0000,0000,,it's
Dialogue: 0,0:49:02.20,0:49:06.24,Default,,0000,0000,0000,,ay but I keep
Dialogue: 0,0:49:06.40,0:49:10.36,Default,,0000,0000,0000,,my I have the strength to hold the C
Dialogue: 0,0:49:10.36,0:49:12.56,Default,,0000,0000,0000,,I've been
Dialogue: 0,0:49:12.56,0:49:17.40,Default,,0000,0000,0000,,handed If I Stumble my feet fall or if I
Dialogue: 0,0:49:17.40,0:49:21.48,Default,,0000,0000,0000,,need some assistance I know the journey
Dialogue: 0,0:49:21.48,0:49:23.04,Default,,0000,0000,0000,,long
Dialogue: 0,0:49:23.04,0:49:28.00,Default,,0000,0000,0000,,but it's the wor that distance
Dialogue: 0,0:49:28.00,0:49:33.08,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:49:35.88,0:49:39.56,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:49:39.56,0:49:41.20,Default,,0000,0000,0000,,I found my
Dialogue: 0,0:49:41.20,0:49:44.24,Default,,0000,0000,0000,,place surrounded by
Dialogue: 0,0:49:44.24,0:49:49.40,Default,,0000,0000,0000,,faces who understand
Dialogue: 0,0:49:50.04,0:49:53.20,Default,,0000,0000,0000,,me our worries and
Dialogue: 0,0:49:53.20,0:49:58.64,Default,,0000,0000,0000,,fears so disappear after
Dialogue: 0,0:49:59.14,0:50:02.08,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:50:02.08,0:50:07.56,Default,,0000,0000,0000,,Aver and a warm cup of tea