1 00:00:01,436 --> 00:00:04,136 It was June 2014. 2 00:00:04,754 --> 00:00:06,063 I was 30 years old, 3 00:00:07,119 --> 00:00:09,229 and I received a call from my doctor's office 4 00:00:09,253 --> 00:00:11,320 to say my test results were in. 5 00:00:12,460 --> 00:00:16,833 So I walked up to see her in my lunch break, and my doctor said 6 00:00:16,857 --> 00:00:20,512 she was very sorry to tell me that I had breast cancer. 7 00:00:22,442 --> 00:00:26,688 I didn't want to believe her and at first, I didn't. 8 00:00:26,712 --> 00:00:30,497 You see, I'm a lawyer and I needed some evidence. 9 00:00:30,601 --> 00:00:33,204 So I'm very embarrassed to tell you all 10 00:00:33,228 --> 00:00:37,078 that I stood up and I walked around to where she was sitting 11 00:00:37,102 --> 00:00:39,992 so that I could look over her shoulder and verify 12 00:00:40,016 --> 00:00:42,121 what was written on the page in front of her. 13 00:00:42,145 --> 00:00:43,347 (Laughter) 14 00:00:43,371 --> 00:00:44,958 Malignant carcinoma. 15 00:00:45,864 --> 00:00:49,188 But still not wanting to believe it, I said, 16 00:00:49,212 --> 00:00:54,813 "Now, malignant carcinoma, you're sure that means cancer?" 17 00:00:54,837 --> 00:00:56,043 (Laughter) 18 00:00:56,067 --> 00:00:57,734 She told me she was sure. 19 00:00:59,376 --> 00:01:02,876 Back at work, I handed over the urgent things that needed to be done 20 00:01:02,900 --> 00:01:06,196 while I was having more tests to see if my cancer had spread. 21 00:01:06,895 --> 00:01:09,895 But at that moment, work wasn't my priority. 22 00:01:11,046 --> 00:01:14,166 I was thinking about how I was going to tell my family and friends 23 00:01:14,190 --> 00:01:15,390 that I had cancer. 24 00:01:16,165 --> 00:01:18,133 How I was going to answer their questions 25 00:01:18,157 --> 00:01:21,252 about how bad it was and whether I was going to be OK, 26 00:01:21,276 --> 00:01:23,093 when I didn't know that myself. 27 00:01:24,307 --> 00:01:25,998 I was wondering if my partner and I 28 00:01:26,022 --> 00:01:28,339 would ever have an opportunity to start a family. 29 00:01:29,094 --> 00:01:32,538 And I was figuring out how I was going to tell my mother, 30 00:01:32,562 --> 00:01:36,315 who had herself had breast cancer when she was pregnant with me. 31 00:01:37,165 --> 00:01:39,093 She would know how I was feeling 32 00:01:39,117 --> 00:01:41,744 and have an idea of what lay ahead for me. 33 00:01:41,768 --> 00:01:46,356 But I also didn't want her to have to relive her cancer experience. 34 00:01:47,568 --> 00:01:49,862 What I didn't appreciate at the time 35 00:01:49,886 --> 00:01:54,370 was that work was about to play a huge role in my treatment and recovery. 36 00:01:55,402 --> 00:01:58,537 That it would be my coworkers and my job 37 00:01:58,561 --> 00:02:00,569 that would make me feel valuable and human 38 00:02:00,593 --> 00:02:03,388 at times when I would have otherwise felt like a statistic. 39 00:02:04,379 --> 00:02:08,553 That it would be my job that would give me routine and stability 40 00:02:08,577 --> 00:02:11,402 when I was dealing with so many difficult personal decisions 41 00:02:11,426 --> 00:02:12,998 and so much uncertainty. 42 00:02:13,022 --> 00:02:17,155 Like, what sort of breast reconstruction I was going to have. 43 00:02:18,680 --> 00:02:20,299 And at a time like that, 44 00:02:20,323 --> 00:02:23,877 you would think that I would turn to my family and friends for support. 45 00:02:23,901 --> 00:02:26,607 And yes, of course I did that. 46 00:02:27,806 --> 00:02:29,735 But it would ultimately be my colleagues 47 00:02:29,759 --> 00:02:34,132 who would play a huge role in my day-to-day life. 48 00:02:34,625 --> 00:02:37,615 And they would be the ones to make me laugh. 49 00:02:37,639 --> 00:02:40,823 You see, we were a pretty close team, 50 00:02:40,847 --> 00:02:43,410 and we shared a couple of really good in-jokes, 51 00:02:43,434 --> 00:02:47,395 like this time they overheard someone ask me 52 00:02:47,419 --> 00:02:51,174 how I got my hair so shiny and perfect -- 53 00:02:52,002 --> 00:02:54,994 without knowing that it was, of course, a wig, 54 00:02:55,018 --> 00:02:57,145 and you know, it was a very good wig 55 00:02:57,169 --> 00:03:00,325 and it did make getting ready in the mornings very easy. 56 00:03:00,349 --> 00:03:01,696 (Laughter) 57 00:03:01,720 --> 00:03:06,339 But in little moments like this, I appreciated what their support meant, 58 00:03:06,363 --> 00:03:09,537 and I wondered what I would have done without that network. 59 00:03:10,716 --> 00:03:14,874 I've spoken with so many people, women in particular, 60 00:03:14,898 --> 00:03:17,771 who haven't had the chance to have that network 61 00:03:17,795 --> 00:03:21,771 because they haven't been given the opportunity to work through treatment. 62 00:03:23,471 --> 00:03:25,740 And there are several reasons for this. 63 00:03:25,764 --> 00:03:29,585 But I think it mostly comes down to overly paternalistic employers. 64 00:03:30,375 --> 00:03:34,744 These employers want you to go away and focus on yourself. 65 00:03:35,077 --> 00:03:37,323 And come back when you're better. 66 00:03:38,196 --> 00:03:40,596 And they use those kinds of phrases. 67 00:03:41,135 --> 00:03:44,309 And while these responses are well-meaning, 68 00:03:44,333 --> 00:03:46,253 knowing the benefits it brought me, 69 00:03:46,277 --> 00:03:49,269 it makes me incredibly frustrated 70 00:03:49,293 --> 00:03:53,161 when people are told that they couldn’t or shouldn't work, 71 00:03:53,185 --> 00:03:56,450 when it's something that they want to do and physically can do. 72 00:03:57,605 --> 00:04:00,815 So I started to look into what an employer is required to do 73 00:04:00,839 --> 00:04:03,545 when someone presents with a cancer diagnosis. 74 00:04:04,839 --> 00:04:09,243 I discovered that under Australian law, cancer is considered a disability. 75 00:04:09,835 --> 00:04:13,248 So if you are unable to perform your usual work duties, 76 00:04:13,272 --> 00:04:17,192 your employer is obligated by the Disability Discrimination Act 77 00:04:17,216 --> 00:04:20,315 to make reasonable adjustments to your working arrangements, 78 00:04:20,339 --> 00:04:22,783 so that you can continue to work. 79 00:04:24,014 --> 00:04:26,880 What would reasonable adjustments look like for me? 80 00:04:28,579 --> 00:04:32,507 I knew the obvious impacts my diagnosis was going to have on work. 81 00:04:33,000 --> 00:04:36,341 Medical appointments would be scheduled during business hours, 82 00:04:36,365 --> 00:04:40,715 and I knew that I would need time off to recover from surgical procedures. 83 00:04:41,490 --> 00:04:43,919 Again, being a typical lawyer, 84 00:04:43,944 --> 00:04:47,815 I had done my due diligence on what to expect from treatment. 85 00:04:48,371 --> 00:04:50,816 Admittedly, a lot of that was through Doctor Google, 86 00:04:50,840 --> 00:04:53,875 perhaps not my best move and I wouldn't recommend that. 87 00:04:53,895 --> 00:04:55,045 (Laughter) 88 00:04:55,207 --> 00:04:58,349 But while I was ready for all the physical side effects, 89 00:04:58,373 --> 00:05:01,798 what really scared me was this thing called chemo brain. 90 00:05:03,103 --> 00:05:06,234 Chemo brain presents itself through memory loss, 91 00:05:06,258 --> 00:05:08,455 an inability to concentrate 92 00:05:08,479 --> 00:05:10,813 and an inability to solve problems. 93 00:05:11,226 --> 00:05:12,988 And if this happened to me, 94 00:05:13,012 --> 00:05:15,806 I wondered how I was going to do my job as a lawyer. 95 00:05:16,415 --> 00:05:18,209 Would I be forced to leave work? 96 00:05:18,924 --> 00:05:23,273 And how could I possibly have a discussion with my manager 97 00:05:23,297 --> 00:05:26,196 about reasonable adjustments to my working arrangements 98 00:05:26,220 --> 00:05:28,736 when I didn't know how I was going to be impacted? 99 00:05:29,823 --> 00:05:33,045 I was fortunate to have a supportive manager 100 00:05:33,069 --> 00:05:36,887 who was happy to see how things went as we went along, 101 00:05:36,911 --> 00:05:40,008 rather than requiring a concrete plan up front. 102 00:05:41,546 --> 00:05:44,887 I was lucky that while he may not have even known 103 00:05:44,911 --> 00:05:47,641 about this concept of reasonable adjustments, 104 00:05:47,665 --> 00:05:50,363 to him, it was just common sense. 105 00:05:51,220 --> 00:05:54,474 But I've learned that it's not common sense to everyone. 106 00:05:56,625 --> 00:05:59,926 Everyone going through treatment will learn how it impacts them 107 00:05:59,950 --> 00:06:01,743 and what their limitations are. 108 00:06:02,871 --> 00:06:04,934 And they'll learn to adjust for that. 109 00:06:04,958 --> 00:06:09,615 So for me, there were the tips and tricks that I learned about the treatment itself, 110 00:06:09,639 --> 00:06:11,369 like, before you go to chemo, 111 00:06:11,393 --> 00:06:13,702 you need to make sure you're really well hydrated 112 00:06:13,726 --> 00:06:17,107 and that you're warm, because it helps the nurses to find your veins. 113 00:06:17,474 --> 00:06:20,418 And make sure that you don't eat any of your favorite food, 114 00:06:20,442 --> 00:06:22,395 either before or after chemo, 115 00:06:22,419 --> 00:06:24,688 because you're going to be throwing that up 116 00:06:24,712 --> 00:06:26,814 and you won't ever want to look at it again. 117 00:06:26,838 --> 00:06:28,028 (Laughter) 118 00:06:28,052 --> 00:06:29,607 I learned that one the hard way. 119 00:06:30,292 --> 00:06:33,244 And then there were the tricks for managing my workflow. 120 00:06:33,720 --> 00:06:36,477 I scheduled chemo for first thing on a Monday morning. 121 00:06:37,171 --> 00:06:40,243 I knew that from the time I left the cancer care unit, 122 00:06:40,267 --> 00:06:44,696 I had about four hours before this fog screen would come down 123 00:06:44,720 --> 00:06:46,560 and I would start to be sick. 124 00:06:46,863 --> 00:06:51,037 So I would use that time to clean my inbox and make any urgent calls. 125 00:06:52,371 --> 00:06:55,882 The worst of the sickness would be gone within about 48 hours. 126 00:06:56,228 --> 00:06:58,466 And then I would log back into work from home. 127 00:07:00,053 --> 00:07:03,196 This treatment continued and I knew what to expect. 128 00:07:03,220 --> 00:07:06,649 I was able to set reasonable expectations with my business partners 129 00:07:06,673 --> 00:07:08,562 about what I could do 130 00:07:08,586 --> 00:07:10,778 and the time frames that I could do it in. 131 00:07:11,387 --> 00:07:15,418 But I still remember the hesitation in their voices 132 00:07:15,442 --> 00:07:17,649 when it came to asking for things. 133 00:07:17,673 --> 00:07:20,498 And asking me to do things by a certain time. 134 00:07:20,522 --> 00:07:22,516 And trust me, these were people 135 00:07:22,540 --> 00:07:24,807 that were not afraid of setting a good deadline. 136 00:07:24,836 --> 00:07:25,986 (Laughter) 137 00:07:26,569 --> 00:07:30,014 I got the impression they didn't want to put any extra pressure on me 138 00:07:30,038 --> 00:07:31,791 while I was going through treatment. 139 00:07:32,133 --> 00:07:34,522 And while I appreciated the sentiment, 140 00:07:34,546 --> 00:07:36,679 I actually needed the deadlines. 141 00:07:37,085 --> 00:07:39,839 To me, that was something within my control 142 00:07:39,863 --> 00:07:42,807 and something that could stay in my control 143 00:07:42,831 --> 00:07:44,990 when there were so many things that couldn't. 144 00:07:45,720 --> 00:07:48,148 And as I was working from home, 145 00:07:48,172 --> 00:07:51,609 I was thinking about how employers should be applying this concept 146 00:07:51,633 --> 00:07:54,005 of reasonable adjustments in our current age, 147 00:07:54,712 --> 00:07:58,014 where one in two Australian men and women 148 00:07:58,038 --> 00:08:01,204 will be diagnosed with cancer by the age of 85. 149 00:08:01,815 --> 00:08:06,823 So, as we continue to work longer and longer into older age, 150 00:08:06,847 --> 00:08:10,283 the chances of having a serious illness while we're in the workforce 151 00:08:10,307 --> 00:08:11,457 are increasing. 152 00:08:12,584 --> 00:08:17,584 And with technology enabling us to work anywhere, any time, 153 00:08:17,608 --> 00:08:21,401 reasonable adjustments are no longer contingent upon 154 00:08:21,425 --> 00:08:24,318 whether or not you can continue to physically make it 155 00:08:24,342 --> 00:08:26,228 into the physical office. 156 00:08:27,299 --> 00:08:29,522 Reasonable adjustments are also not about 157 00:08:29,546 --> 00:08:33,544 just offering a longer break or a comfier chair to sit in, 158 00:08:33,568 --> 00:08:35,972 although those things might be good, too. 159 00:08:36,854 --> 00:08:38,164 At the very least, 160 00:08:38,188 --> 00:08:41,433 we need to be applying the flexibility policies and strategies 161 00:08:41,457 --> 00:08:43,268 we've developed for other scenarios, 162 00:08:43,292 --> 00:08:46,535 like for people with family responsibilities. 163 00:08:47,831 --> 00:08:52,331 But how can we ensure that people are even having a conversation 164 00:08:52,355 --> 00:08:55,760 about what reasonable adjustments might look like for them 165 00:08:55,784 --> 00:08:58,823 if a manager's first response is to say, 166 00:08:58,847 --> 00:09:02,427 "Oh no, don't come back to work until you're better." 167 00:09:03,435 --> 00:09:05,133 And a light went on for me. 168 00:09:05,903 --> 00:09:07,975 It must be compulsory for managers 169 00:09:07,999 --> 00:09:11,236 to have to have these conversations with their employees. 170 00:09:11,855 --> 00:09:14,133 And lessons from people like me, 171 00:09:14,157 --> 00:09:17,061 that have really benefited from working through treatment, 172 00:09:17,085 --> 00:09:19,085 need to be more widely shared. 173 00:09:19,990 --> 00:09:23,934 And I thought about what could be done to guide these conversations, 174 00:09:23,958 --> 00:09:27,561 and then an amazing colleague of mine, Camilla Gunn, 175 00:09:27,585 --> 00:09:29,958 developed a "Working with Cancer" toolkit. 176 00:09:30,855 --> 00:09:34,482 The toolkit provides a framework for those diagnosed, 177 00:09:34,506 --> 00:09:37,498 their managers, their carers and their coworkers 178 00:09:37,522 --> 00:09:41,358 to have conversations about cancer and the work support available. 179 00:09:42,101 --> 00:09:44,510 Camilla and I have now been to other organizations 180 00:09:44,534 --> 00:09:45,753 to talk about the toolkit 181 00:09:45,777 --> 00:09:48,364 and how it can help to guide through 182 00:09:48,388 --> 00:09:52,124 what, quite frankly, are otherwise some pretty awkward conversations. 183 00:09:52,632 --> 00:09:56,551 And I'm pleased to say that the uptake of the toolkit is increasing. 184 00:09:58,005 --> 00:10:00,545 So what should be a manager's first response 185 00:10:00,569 --> 00:10:02,983 when somebody says that they're sick 186 00:10:03,007 --> 00:10:05,769 and they don't know how it's going to impact their work? 187 00:10:06,450 --> 00:10:08,688 It must be this: 188 00:10:08,712 --> 00:10:12,490 "To the extent that you are able, and want to, 189 00:10:12,514 --> 00:10:14,847 we would love to work out an arrangement for you 190 00:10:14,871 --> 00:10:16,957 to continue to work through treatment." 191 00:10:17,518 --> 00:10:21,446 We need to start positively engaging people with serious illness 192 00:10:21,470 --> 00:10:23,970 to keep them in the workforce, 193 00:10:23,994 --> 00:10:27,127 rather than paternalistically pushing them away. 194 00:10:28,299 --> 00:10:32,344 I've told you my story because I want you to know the benefits 195 00:10:32,368 --> 00:10:34,440 that working through treatment brought me. 196 00:10:34,836 --> 00:10:36,863 And I also want to change your perceptions 197 00:10:36,887 --> 00:10:39,330 if you think that somebody going through treatment 198 00:10:39,354 --> 00:10:42,925 is just bored, frail and vomiting a lot. 199 00:10:43,784 --> 00:10:46,696 And yes, these things were true some of the time, 200 00:10:46,720 --> 00:10:48,966 if not a lot of the time, 201 00:10:48,990 --> 00:10:51,411 but I was also determined to push myself at work 202 00:10:51,435 --> 00:10:53,165 as much as I had always done. 203 00:10:53,625 --> 00:10:58,236 And I was able to do that because my employer gave me the choice. 204 00:10:59,307 --> 00:11:01,552 Most importantly, I'm telling you 205 00:11:01,576 --> 00:11:05,752 because while it's a seemingly obvious choice to give someone, 206 00:11:05,776 --> 00:11:09,134 it's not one that is always offered or encouraged. 207 00:11:09,158 --> 00:11:10,308 And it must be. 208 00:11:11,666 --> 00:11:12,833 Thank you. 209 00:11:12,857 --> 00:11:16,944 (Applause)