[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.89,0:00:15.51,Default,,0000,0000,0000,,[metallic tapping]
Dialogue: 0,0:00:15.51,0:00:23.14,Default,,0000,0000,0000,,[footsteps and a door closes]
Dialogue: 0,0:00:28.63,0:00:30.91,Default,,0000,0000,0000,,It was soon after I had a panic attack at
Dialogue: 0,0:00:30.91,0:00:32.81,Default,,0000,0000,0000,,the complex pain clinic that I knew
Dialogue: 0,0:00:32.81,0:00:34.90,Default,,0000,0000,0000,,I needed to plan for my next emergency
Dialogue: 0,0:00:34.90,0:00:36.45,Default,,0000,0000,0000,,hospital visit.
Dialogue: 0,0:00:37.80,0:00:39.68,Default,,0000,0000,0000,,I was filling out an intake form
Dialogue: 0,0:00:39.68,0:00:41.49,Default,,0000,0000,0000,,and the questions about the
Dialogue: 0,0:00:41.49,0:00:42.92,Default,,0000,0000,0000,,\Neffectiveness of my care
Dialogue: 0,0:00:42.92,0:00:44.46,Default,,0000,0000,0000,,recalled a troubling experience;
Dialogue: 0,0:00:44.46,0:00:46.27,Default,,0000,0000,0000,,the time when an emergency room doctor
Dialogue: 0,0:00:46.27,0:00:48.03,Default,,0000,0000,0000,,refused treatment because he thought
Dialogue: 0,0:00:48.03,0:00:49.41,Default,,0000,0000,0000,,I was seeking drugs.
Dialogue: 0,0:00:51.02,0:00:52.81,Default,,0000,0000,0000,,But it wasn’t the pain–or even
Dialogue: 0,0:00:52.81,0:00:54.47,Default,,0000,0000,0000,,the thought of not being able to
Dialogue: 0,0:00:54.47,0:00:55.96,Default,,0000,0000,0000,,advocate for myself–that
Dialogue: 0,0:00:55.96,0:00:57.36,Default,,0000,0000,0000,,left a pit in my stomach.
Dialogue: 0,0:00:58.51,0:01:00.04,Default,,0000,0000,0000,,It was the failure of trust
Dialogue: 0,0:01:00.04,0:01:01.81,Default,,0000,0000,0000,,in my most desperate moments,
Dialogue: 0,0:01:01.81,0:01:03.63,Default,,0000,0000,0000,,when I had no choice but to trust health
Dialogue: 0,0:01:03.63,0:01:05.29,Default,,0000,0000,0000,,professionals who were more bound
Dialogue: 0,0:01:05.29,0:01:06.83,Default,,0000,0000,0000,,to protocol than care;
Dialogue: 0,0:01:07.91,0:01:09.61,Default,,0000,0000,0000,,From invasive procedures
Dialogue: 0,0:01:09.61,0:01:11.18,Default,,0000,0000,0000,,that weren’t explained to me,
Dialogue: 0,0:01:11.18,0:01:12.94,Default,,0000,0000,0000,,to the times when I had to convince staff
Dialogue: 0,0:01:12.94,0:01:14.53,Default,,0000,0000,0000,,that I was a sickle cell patient
Dialogue: 0,0:01:14.53,0:01:16.48,Default,,0000,0000,0000,,even though I was obviously suffering.
Dialogue: 0,0:01:17.100,0:01:19.93,Default,,0000,0000,0000,,It was the build up of trauma
Dialogue: 0,0:01:19.93,0:01:21.85,Default,,0000,0000,0000,,from these episodes that eventually
Dialogue: 0,0:01:21.85,0:01:23.72,Default,,0000,0000,0000,,convinced me to write five short
Dialogue: 0,0:01:23.72,0:01:25.45,Default,,0000,0000,0000,,paragraphs that articulated
Dialogue: 0,0:01:25.45,0:01:26.97,Default,,0000,0000,0000,,my position on accessibility.
Dialogue: 0,0:01:28.50,0:01:30.26,Default,,0000,0000,0000,,My first vision of Open Access
Dialogue: 0,0:01:30.26,0:01:32.16,Default,,0000,0000,0000,,was a place where I could rest
Dialogue: 0,0:01:32.16,0:01:34.54,Default,,0000,0000,0000,,and find comfort during a health crisis;
Dialogue: 0,0:01:34.54,0:01:36.07,Default,,0000,0000,0000,,but still, it didn’t account
Dialogue: 0,0:01:36.07,0:01:37.70,Default,,0000,0000,0000,,for my entire experience.
Dialogue: 0,0:01:39.30,0:01:41.29,Default,,0000,0000,0000,,From the time I started practicing as an
Dialogue: 0,0:01:41.29,0:01:43.10,Default,,0000,0000,0000,,artist I struggled with the fact that
Dialogue: 0,0:01:43.10,0:01:45.18,Default,,0000,0000,0000,,vision wasn’t my central reference point.
Dialogue: 0,0:01:46.52,0:01:48.12,Default,,0000,0000,0000,,I held space for myself by
Dialogue: 0,0:01:48.12,0:01:50.53,Default,,0000,0000,0000,,resisting language like “blind” when
Dialogue: 0,0:01:50.53,0:01:52.87,Default,,0000,0000,0000,,what I really wanted was a community
Dialogue: 0,0:01:52.87,0:01:55.05,Default,,0000,0000,0000,,that valued non-visual perception.
Dialogue: 0,0:01:56.49,0:01:58.22,Default,,0000,0000,0000,,\NI needed the same supportive,
Dialogue: 0,0:01:58.22,0:02:00.06,Default,,0000,0000,0000,,pain-informed environment as
Dialogue: 0,0:02:00.06,0:02:01.60,Default,,0000,0000,0000,,a grad student but I wasn’t
Dialogue: 0,0:02:01.60,0:02:03.82,Default,,0000,0000,0000,,open about my pain condition at the time.
Dialogue: 0,0:02:05.55,0:02:07.52,Default,,0000,0000,0000,,This meant that I could focus on the
Dialogue: 0,0:02:07.52,0:02:09.90,Default,,0000,0000,0000,,relationships between object, audience,
Dialogue: 0,0:02:09.90,0:02:11.89,Default,,0000,0000,0000,,and place that were available through
Dialogue: 0,0:02:11.89,0:02:13.85,Default,,0000,0000,0000,,my non-visual senses without
Dialogue: 0,0:02:13.85,0:02:15.88,Default,,0000,0000,0000,,addressing my times in hospital.
Dialogue: 0,0:02:16.53,0:02:18.42,Default,,0000,0000,0000,,It wasn’t long before I was waiting to
Dialogue: 0,0:02:18.42,0:02:20.56,Default,,0000,0000,0000,,cross a busy street at the front of a
Dialogue: 0,0:02:20.56,0:02:22.36,Default,,0000,0000,0000,,daisy chain of participants
Dialogue: 0,0:02:22.36,0:02:24.25,Default,,0000,0000,0000,,who were shutting their eyes.
Dialogue: 0,0:02:24.73,0:02:27.44,Default,,0000,0000,0000,,\NStill, I didn’t realize the full impact
Dialogue: 0,0:02:27.44,0:02:29.97,Default,,0000,0000,0000,,of ocularcentrism until I told my friends
Dialogue: 0,0:02:29.97,0:02:32.38,Default,,0000,0000,0000,,who identified as “blind” about my work.
Dialogue: 0,0:02:33.74,0:02:35.96,Default,,0000,0000,0000,,Many of them had never been to a
Dialogue: 0,0:02:35.96,0:02:37.85,Default,,0000,0000,0000,,museum, let alone considered
Dialogue: 0,0:02:37.85,0:02:39.45,Default,,0000,0000,0000,,pursuing art practice.
Dialogue: 0,0:02:40.71,0:02:42.83,Default,,0000,0000,0000,,The contemporary art landscape wasn't
Dialogue: 0,0:02:42.83,0:02:44.98,Default,,0000,0000,0000,,organized so people like them could
Dialogue: 0,0:02:44.98,0:02:46.69,Default,,0000,0000,0000,,represent themselves or share
Dialogue: 0,0:02:46.69,0:02:48.51,Default,,0000,0000,0000,,their stories with the wider public.
Dialogue: 0,0:02:49.54,0:02:51.62,Default,,0000,0000,0000,,Instead, the entire field
Dialogue: 0,0:02:51.62,0:02:52.90,Default,,0000,0000,0000,,privileged visuality;
Dialogue: 0,0:02:52.90,0:02:55.16,Default,,0000,0000,0000,,a tradition that not only repressed
Dialogue: 0,0:02:55.16,0:02:56.98,Default,,0000,0000,0000,,unseen bodies of knowledge,
Dialogue: 0,0:02:56.98,0:02:59.12,Default,,0000,0000,0000,,but excluded a non-visual culture
Dialogue: 0,0:02:59.12,0:03:01.40,Default,,0000,0000,0000,,with its own history from participating.
Dialogue: 0,0:03:02.50,0:03:05.11,Default,,0000,0000,0000,,In the 60s, activists in the disability
Dialogue: 0,0:03:05.11,0:03:07.22,Default,,0000,0000,0000,,community characterized their plight
Dialogue: 0,0:03:07.22,0:03:08.98,Default,,0000,0000,0000,,in a new way that got to
Dialogue: 0,0:03:08.98,0:03:10.96,Default,,0000,0000,0000,,the heart of their circumstance.
Dialogue: 0,0:03:11.27,0:03:13.59,Default,,0000,0000,0000,,Their actions gave voice to an embodied
Dialogue: 0,0:03:13.59,0:03:15.59,Default,,0000,0000,0000,,experience that they knew intimately;
Dialogue: 0,0:03:15.59,0:03:17.18,Default,,0000,0000,0000,,the feeling of being disabled,
Dialogue: 0,0:03:17.18,0:03:19.02,Default,,0000,0000,0000,,not by their bodies, but by the
Dialogue: 0,0:03:19.02,0:03:21.07,Default,,0000,0000,0000,,disabling attitudes and institutions
Dialogue: 0,0:03:21.07,0:03:23.50,Default,,0000,0000,0000,,that restrained their agency.
Dialogue: 0,0:03:24.50,0:03:27.27,Default,,0000,0000,0000,,Some went on to chain themselves to busses
Dialogue: 0,0:03:27.27,0:03:28.77,Default,,0000,0000,0000,,others crawled up
Dialogue: 0,0:03:28.77,0:03:30.77,Default,,0000,0000,0000,,government steps in protest.
Dialogue: 0,0:03:31.51,0:03:33.49,Default,,0000,0000,0000,,When they fought for legislation
Dialogue: 0,0:03:33.49,0:03:35.84,Default,,0000,0000,0000,,for increased access to public space, they
Dialogue: 0,0:03:35.84,0:03:38.51,Default,,0000,0000,0000,,shouted “nothing about us without us!”.
Dialogue: 0,0:03:39.48,0:03:41.98,Default,,0000,0000,0000,,This wasn’t a matter of accommodation.
Dialogue: 0,0:03:41.98,0:03:44.49,Default,,0000,0000,0000,,It was a matter of survival.
Dialogue: 0,0:03:45.51,0:03:47.98,Default,,0000,0000,0000,,Their limited presence in public life
Dialogue: 0,0:03:47.98,0:03:49.53,Default,,0000,0000,0000,,went hand-in-hand with
Dialogue: 0,0:03:49.53,0:03:51.18,Default,,0000,0000,0000,,limited influence and power;
Dialogue: 0,0:03:51.18,0:03:52.71,Default,,0000,0000,0000,,resulting in policy that
Dialogue: 0,0:03:52.71,0:03:55.14,Default,,0000,0000,0000,,positioned them as subjects rather than
Dialogue: 0,0:03:55.14,0:03:57.78,Default,,0000,0000,0000,,agents with opinions about their needs.
Dialogue: 0,0:03:58.77,0:04:00.35,Default,,0000,0000,0000,,They knew that it was an
Dialogue: 0,0:04:00.35,0:04:01.99,Default,,0000,0000,0000,,underlying system of control
Dialogue: 0,0:04:01.99,0:04:03.34,Default,,0000,0000,0000,,that enforced this order;
Dialogue: 0,0:04:03.34,0:04:04.86,Default,,0000,0000,0000,,a system that measured their
Dialogue: 0,0:04:04.86,0:04:07.11,Default,,0000,0000,0000,,bodies, minds, and behavior against
Dialogue: 0,0:04:07.11,0:04:09.13,Default,,0000,0000,0000,,concepts of normalcy and standards
Dialogue: 0,0:04:09.13,0:04:11.22,Default,,0000,0000,0000,,rooted in Western medical tradition.
Dialogue: 0,0:04:11.76,0:04:13.53,Default,,0000,0000,0000,,It was the same system that was
Dialogue: 0,0:04:13.53,0:04:15.42,Default,,0000,0000,0000,,responsible for forced sterilization
Dialogue: 0,0:04:15.42,0:04:17.23,Default,,0000,0000,0000,,programs and the wholesale
Dialogue: 0,0:04:17.23,0:04:19.14,Default,,0000,0000,0000,,institutionalization of their peers.
Dialogue: 0,0:04:22.85,0:04:25.82,Default,,0000,0000,0000,,Open Access is radically different than;
Dialogue: 0,0:04:25.82,0:04:28.07,Default,,0000,0000,0000,,a policy that temporarily removes
Dialogue: 0,0:04:28.07,0:04:30.52,Default,,0000,0000,0000,,a barrier to participation for a group
Dialogue: 0,0:04:30.52,0:04:31.79,Default,,0000,0000,0000,,with definite needs.
Dialogue: 0,0:04:32.54,0:04:34.30,Default,,0000,0000,0000,,It acknowledges that everyone
Dialogue: 0,0:04:34.30,0:04:36.27,Default,,0000,0000,0000,,carries a body of local knowledge
Dialogue: 0,0:04:36.27,0:04:38.41,Default,,0000,0000,0000,,and is an expert in their own right.
Dialogue: 0,0:04:42.41,0:04:44.69,Default,,0000,0000,0000,,Open Access relies on those present
Dialogue: 0,0:04:44.69,0:04:46.46,Default,,0000,0000,0000,,what their needs are and how they
Dialogue: 0,0:04:46.46,0:04:48.01,Default,,0000,0000,0000,,can find support with each other
Dialogue: 0,0:04:48.01,0:04:49.02,Default,,0000,0000,0000,,and in their communities.
Dialogue: 0,0:04:49.34,0:04:51.43,Default,,0000,0000,0000,,It is a perpetual negotiation of
Dialogue: 0,0:04:51.43,0:04:52.87,Default,,0000,0000,0000,,trust between those who practice
Dialogue: 0,0:04:52.87,0:04:55.78,Default,,0000,0000,0000,,support as a mutual exchange.
Dialogue: 0,0:04:59.11,0:05:01.23,Default,,0000,0000,0000,,Open Access is the root system
Dialogue: 0,0:05:01.23,0:05:03.22,Default,,0000,0000,0000,,of embodied learning.
Dialogue: 0,0:05:03.22,0:05:06.32,Default,,0000,0000,0000,,It cultivates trust among those involved
Dialogue: 0,0:05:06.32,0:05:08.29,Default,,0000,0000,0000,,and enables each member to self-identify
Dialogue: 0,0:05:08.29,0:05:10.49,Default,,0000,0000,0000,,and occupy a point of orientation
Dialogue: 0,0:05:10.49,0:05:12.87,Default,,0000,0000,0000,,that centers complex embodiment.
Dialogue: 0,0:05:16.83,0:05:19.24,Default,,0000,0000,0000,,Open Access disrupts the disabling
Dialogue: 0,0:05:19.24,0:05:21.39,Default,,0000,0000,0000,,conditions that limit ones agency
Dialogue: 0,0:05:21.39,0:05:22.74,Default,,0000,0000,0000,,and potential to thrive.
Dialogue: 0,0:05:22.74,0:05:25.60,Default,,0000,0000,0000,,It reimagines normalcy as a continuum
Dialogue: 0,0:05:25.60,0:05:28.38,Default,,0000,0000,0000,,of embodiments, identities, realities,
Dialogue: 0,0:05:28.38,0:05:30.70,Default,,0000,0000,0000,,and learning styles, and operates under
Dialogue: 0,0:05:30.70,0:05:33.04,Default,,0000,0000,0000,,the tenet that interdependence is central
Dialogue: 0,0:05:33.04,0:05:35.36,Default,,0000,0000,0000,,to a radical restructuring of power.
Dialogue: 0,0:05:39.79,0:05:42.14,Default,,0000,0000,0000,,Open Access is a temporary,
Dialogue: 0,0:05:42.14,0:05:44.44,Default,,0000,0000,0000,,collectively-held space where participants
Dialogue: 0,0:05:44.44,0:05:46.49,Default,,0000,0000,0000,,can find comfort in disclosing their
Dialogue: 0,0:05:46.49,0:05:48.93,Default,,0000,0000,0000,,needs and preferences with one another.
Dialogue: 0,0:05:50.05,0:05:52.04,Default,,0000,0000,0000,,It is a responsive support network
Dialogue: 0,0:05:52.04,0:05:53.31,Default,,0000,0000,0000,,that adapts as needs
Dialogue: 0,0:05:53.31,0:05:55.48,Default,,0000,0000,0000,,and available resources change.
Dialogue: 0,0:05:59.96,0:06:14.89,Default,,0000,0000,0000,,[metallic tapping fades]