1 00:00:04,043 --> 00:00:05,473 Over the past number of weeks, 2 00:00:05,473 --> 00:00:08,328 all of us have had to adapt and change everything that we do: 3 00:00:08,328 --> 00:00:09,994 limiting our contact with people, 4 00:00:09,994 --> 00:00:12,308 being scrupulous about washing our hands, 5 00:00:12,308 --> 00:00:14,883 standing patiently in line to enter a supermarket, 6 00:00:14,883 --> 00:00:16,355 and staying at home. 7 00:00:16,885 --> 00:00:19,493 The word 'home' has become loaded with meaning. 8 00:00:19,493 --> 00:00:22,775 For many of us, home is a place of safety and sanctuary. 9 00:00:22,775 --> 00:00:25,330 But this is not the case for everyone. 10 00:00:25,680 --> 00:00:28,837 What has become very apparent over the past few weeks 11 00:00:28,837 --> 00:00:32,453 is that care homes for older people have not been places of safety 12 00:00:32,453 --> 00:00:34,815 either for staff or for residents. 13 00:00:34,815 --> 00:00:38,799 The care home setting has been the forgotten front line in the UK. 14 00:00:38,799 --> 00:00:42,102 Numbers of cases and deaths in UK care homes were not reported 15 00:00:42,102 --> 00:00:43,813 in the early stages of the pandemic. 16 00:00:43,813 --> 00:00:45,251 And it is only now 17 00:00:45,251 --> 00:00:48,013 that we're beginning to understand the scale and the impact 18 00:00:48,013 --> 00:00:50,969 that the coronavirus has had in this environment. 19 00:00:50,969 --> 00:00:52,254 Many, who like me, 20 00:00:52,254 --> 00:00:56,180 who've conducted research in care homes and are familiar with the sector 21 00:00:56,180 --> 00:00:59,061 are, sadly, not surprised by what has happened. 22 00:00:59,061 --> 00:01:00,817 So why has it happened? 23 00:01:00,817 --> 00:01:03,713 And what lessons can be learned from this tragedy? 24 00:01:04,483 --> 00:01:05,479 Care homes, 25 00:01:05,479 --> 00:01:08,901 which is a term sometimes used to describe nursing or residential homes, 26 00:01:08,901 --> 00:01:10,011 provide care, 27 00:01:10,011 --> 00:01:14,827 usually to older people who are unable to continue to live in their own homes. 28 00:01:14,827 --> 00:01:17,464 The average age of residents is around 80 years. 29 00:01:17,464 --> 00:01:20,977 The population is largely women - about 70 percent. 30 00:01:20,977 --> 00:01:25,032 And most will have two or three medical conditions, including dementia. 31 00:01:25,032 --> 00:01:27,837 This means that they will be taking a number of medications, 32 00:01:27,837 --> 00:01:29,991 and in some cases, more than 10. 33 00:01:30,691 --> 00:01:33,703 Care home residents tend to be more prone to infection. 34 00:01:33,703 --> 00:01:37,222 And research that we did in Northern Ireland in 2011 35 00:01:37,222 --> 00:01:40,130 showed that there were higher levels of antibiotic prescribing 36 00:01:40,130 --> 00:01:43,320 used to treat infections in Northern Ireland nursing homes 37 00:01:43,320 --> 00:01:46,773 compared to homes in other European countries. 38 00:01:46,773 --> 00:01:49,727 Another study, which we published in 2010, 39 00:01:49,727 --> 00:01:52,750 found high levels of a bacteria called MRSA 40 00:01:52,750 --> 00:01:55,137 in both residents and staff. 41 00:01:55,587 --> 00:01:57,040 Further research showed 42 00:01:57,040 --> 00:02:00,135 that controlling infection in care homes was difficult for staff 43 00:02:00,135 --> 00:02:01,719 because of lack of time 44 00:02:01,719 --> 00:02:03,338 and they didn't have the resources 45 00:02:03,338 --> 00:02:06,894 to purchase the necessary equipment to prevent infection. 46 00:02:07,324 --> 00:02:10,123 A survey conducted by Mather LifeWays, 47 00:02:10,123 --> 00:02:15,237 which provides care services to older people in US nursing homes, 48 00:02:15,237 --> 00:02:20,056 found that staff felt ill-prepared to deal with public health emergencies. 49 00:02:20,496 --> 00:02:21,874 In the UK context, 50 00:02:21,874 --> 00:02:24,822 care homes are not seen as part of the National Health Service. 51 00:02:24,822 --> 00:02:26,645 Many of them are privately owned, 52 00:02:26,645 --> 00:02:31,200 and this may affect access to personal protective equipment, PPE. 53 00:02:31,200 --> 00:02:35,194 And, importantly, as the name suggests, care homes are homes. 54 00:02:35,194 --> 00:02:37,678 They are the residents' homes, 55 00:02:37,678 --> 00:02:39,552 albeit on a communal basis, 56 00:02:39,552 --> 00:02:42,637 and staff will try to enhance that homely environment 57 00:02:42,637 --> 00:02:44,635 rather than create a clinical environment, 58 00:02:44,635 --> 00:02:46,843 which would be commonly seen in the hospital. 59 00:02:47,753 --> 00:02:48,947 So all of this background 60 00:02:48,947 --> 00:02:52,364 highlights how a perfect storm has been created in care homes 61 00:02:52,364 --> 00:02:54,124 during this pandemic: 62 00:02:54,124 --> 00:02:55,529 a vulnerable population, 63 00:02:55,529 --> 00:02:57,056 a high-risk environment, 64 00:02:57,056 --> 00:02:59,022 and lack of resources. 65 00:02:59,022 --> 00:03:02,343 But, perhaps, there's also been an intangible factor at play 66 00:03:02,343 --> 00:03:06,241 and something this society may not have been prepared to admit: 67 00:03:06,241 --> 00:03:09,167 do we really care about what happens in care homes? 68 00:03:09,167 --> 00:03:13,244 The residents are old and are probably going to die anyway. 69 00:03:13,244 --> 00:03:14,722 So why bother to test? 70 00:03:14,722 --> 00:03:18,346 And why bother to count the number of cases and deaths? 71 00:03:19,176 --> 00:03:21,996 Prime minister Boris Johnson stated in the UK Parliament 72 00:03:21,996 --> 00:03:24,217 on Wednesday, May the 6th: 73 00:03:24,217 --> 00:03:26,308 'There is an epidemic going on in care homes, 74 00:03:26,308 --> 00:03:29,125 which is something I bitterly regret.' 75 00:03:29,125 --> 00:03:30,650 There's been growing recognition 76 00:03:30,650 --> 00:03:33,832 that care homes were left behind and forgotten in the early stages. 77 00:03:33,832 --> 00:03:37,806 and there's now a concerted effort to play catch-up with testing, 78 00:03:37,806 --> 00:03:39,116 the provision of PPE, 79 00:03:39,116 --> 00:03:41,716 and further support from the NHS, 80 00:03:41,716 --> 00:03:44,217 with hospital nurses now working in care homes 81 00:03:44,217 --> 00:03:47,709 and other staff providing advice on infection control. 82 00:03:48,269 --> 00:03:51,501 Care home staff have worked under the most difficult of circumstances 83 00:03:51,501 --> 00:03:53,358 to provide the best care to residents, 84 00:03:53,358 --> 00:03:56,007 to the extent that many are now living on-site 85 00:03:56,007 --> 00:04:00,085 to maintain lockdown conditions and minimise the risk of transmission. 86 00:04:01,105 --> 00:04:03,077 As we move towards a possible lifting 87 00:04:03,077 --> 00:04:06,267 of some of the more extreme elements of lockdown, 88 00:04:06,267 --> 00:04:08,744 might the experience witnessed in care homes 89 00:04:08,744 --> 00:04:10,990 lead to a more sustained and permanent change 90 00:04:10,990 --> 00:04:13,211 in how society views older people 91 00:04:13,211 --> 00:04:16,159 and particularly those who reside in care homes? 92 00:04:16,159 --> 00:04:17,411 Might care homes be seen 93 00:04:17,411 --> 00:04:20,204 as an important part of health and social care, 94 00:04:20,204 --> 00:04:22,399 not sitting at the periphery of the NHS 95 00:04:22,399 --> 00:04:23,402 and often viewed 96 00:04:23,402 --> 00:04:25,766 as the care provider of last resort? 97 00:04:26,396 --> 00:04:27,863 In 2007, 98 00:04:27,863 --> 00:04:29,652 the British journalist Polly Toynbee 99 00:04:29,652 --> 00:04:32,396 wrote in an opinion piece for The Guardian: 100 00:04:32,396 --> 00:04:34,537 'Schools are hot politics; 101 00:04:34,537 --> 00:04:36,608 old folks' homes aren't.' 102 00:04:36,608 --> 00:04:38,529 13 years later, in 2020, 103 00:04:38,529 --> 00:04:42,140 care homes have become hot politics, but for all the wrong reasons, 104 00:04:42,140 --> 00:04:45,248 and society has been appalled at what has happened. 105 00:04:45,248 --> 00:04:49,686 But perhaps this tragedy will be the catalyst for change in care homes. 106 00:04:49,686 --> 00:04:50,730 On a Thursday night, 107 00:04:50,730 --> 00:04:54,710 we stand on our doorsteps to applaud those working in the NHS 108 00:04:54,710 --> 00:04:56,676 and other front-line workers. 109 00:04:57,126 --> 00:04:59,784 Let us reflect, in particular, about care homes - 110 00:04:59,784 --> 00:05:01,039 the staff, the residents - 111 00:05:01,039 --> 00:05:03,972 and what they have faced over the course of this pandemic. 112 00:05:04,602 --> 00:05:07,552 It is timely that we think about what we value 113 00:05:07,552 --> 00:05:12,998 when it comes to the care and protection of some of the most vulnerable in society. 114 00:05:12,998 --> 00:05:15,721 And we should think about what we would want for ourselves 115 00:05:15,721 --> 00:05:18,971 if, in the future, we become care home residents. 116 00:05:19,791 --> 00:05:21,822 Alan Bennett, the writer and playwright, 117 00:05:21,822 --> 00:05:25,145 has been an advocate for improving care for older people. 118 00:05:25,145 --> 00:05:28,315 He has written movingly about his own mother's time in a care home, 119 00:05:28,315 --> 00:05:30,038 where she eventually died. 120 00:05:30,588 --> 00:05:32,061 In his book 'Telling Tales', 121 00:05:32,061 --> 00:05:36,222 he reminds us that old age will come to many of us despite what we think. 122 00:05:36,222 --> 00:05:37,847 He writes the following: 123 00:05:38,457 --> 00:05:41,119 'And one of the ways the young think they are safeguarded 124 00:05:41,119 --> 00:05:44,511 against the fate and the future of their grandparents is by their names. 125 00:05:44,511 --> 00:05:48,495 Sharons don't suffer from dementia or Damiens from incontinence.' 126 00:05:48,975 --> 00:05:52,775 Alan Bennett goes on to warn us that our names are not enough to save us. 127 00:05:52,775 --> 00:05:53,915 I quote: 128 00:05:53,915 --> 00:05:57,159 'But coming up the road are the Danes and the Darrens and the Waynes, 129 00:05:57,159 --> 00:05:58,875 and they too shall fail. 130 00:05:58,875 --> 00:06:01,465 It won't be long before even Tiffany is a grandmother 131 00:06:01,465 --> 00:06:03,986 and her cot got ready in the corner. 132 00:06:03,986 --> 00:06:06,655 Her children, middle-aged and vaguely resentful, 133 00:06:06,655 --> 00:06:09,301 come and sit with her on Sunday afternoons 134 00:06:09,301 --> 00:06:12,936 while she tries to remember who they are and who she is. 135 00:06:12,936 --> 00:06:14,388 "You're Tiffany, Mother, 136 00:06:14,388 --> 00:06:16,780 and this is your little granddaughter." 137 00:06:16,780 --> 00:06:18,619 And what will her name be?'