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Ukazujem Revíziu 1 vytvorenú 08/05/2020 od Nichole Johnson.

  1. Hi, my name is Andy Imparato and I am the
    Executive Director of Disability Rights California
  2. I can think back to a lot of different
    interactions I had with people with
  3. disabilities growing up,
    But I would say, that the most,
  4. that the thing that had the biggest impact
    on me is when I was starting my career
  5. as a lawyer I ended up being diagnosed
    with bi-polar disorder.
  6. I was working in an organization that was
    advocating for the rights of people with disabilities
  7. and I learned the idea that shows up
    in a lot of federal disability laws
  8. the idea that disability is a natural
    part of the human experience
  9. and I found that statement
    to be very powerful
  10. as I was trying to deal with a
    new diagnosis of bipolar disorder
  11. I think the message I was getting
    from the mental health world
  12. was that my diagnosis was not natural
    and it was kind of a long term problem
  13. that I was going to have to address and
  14. I didn't get any sense that the experience
    of living with bipolar disorder
  15. could actually benefit me and
    could actually help me in my career
  16. and what I got from being around
    disability rights advocates people
  17. with lived experience with lots of
    different kinds of disabilities
  18. I was living in Boston at the time
  19. was the idea that my lived
    experience was a actually
  20. a strength and a source of credibility
    for the work I was doing
  21. and if I wanted to be effective as a
    disability advocate I needed to learn
  22. to see my disability as an
    asset and a strength.
  23. So I kinda feel like the
    American's with Disabilities Act
  24. is reflecting the values of the
    disabilities right movement
  25. and one of those most important values
    is that disability is natural
  26. your life with a disability is a natural
    part of the human experience
  27. and that it should not prevent you from
    doing anything that you want to do
  28. and when you are prevented from
    doing those things
  29. it's discrimination it's not natural
  30. the idea that discrimination is
    unnatural and disabilities are natural
  31. that was a powerful thing for me and
    helped frame my experience
  32. as a person with a long term disability
    that I acquired as an adult
  33. the most important thing that disability
    movement got from the
  34. Americans with Disability Act was the fra ming
    of disability issues as civil rights issues
  35. if you look at kinda the history of
    disability policy in the United States
  36. and in other countries, people often saw
    disability through a social welfare frame,
  37. through a poverty frame,
    through kinda the "worthy" poor frame
  38. and the idea was if you want to address
    problem people with disabilities have
  39. you just need to provide the right services
  40. but there wasn't a concept of discrimination,
    there wasn't a concept of human and civil rights around that
  41. we have earlier laws, the "Rehabilitation
    Act" that had a piece of the law that
  42. tried to deal with disability discrimination
  43. but the ADA was the first law, where the
    whole law was about addressing discrimination
  44. and I think for a lot of us who live with disabilities
  45. the civil rights frame is a very empowering
    frame because it stops if something bad happens
  46. to you as a person with a disability it stops
    being about what did you do wrong
  47. or what services do you need to avoid doing
    that again and it starts being around well maybe
  48. the system was designed to exclude you
    and that's discrimination.
  49. So don't just look at the person as the source
    of the problem but look at the environment
  50. and that concept I think has been a
    really important concept to help us reframe
  51. why bad things happen to people with disabilities,
    why exclusion happens,
  52. why segregation happens,
    why poverty happens
  53. and it helps us have higher expectations for ourselves,
    and higher expectations for the environment around us.
  54. So there are a lot of vary concrete things the ADA has done
  55. like make the buses dramatically more accessible
    for people with a wide range of disabilities
  56. make, the built environment dramatically more accessible
  57. but I think almost spiritually framing our issues
    as civil rights issues, as justice issues
  58. as human rights issues, I think that was as
    important as any specific requirements in the law
  59. so it's hard to pick one issue that would be
    the big thing that I would like to see changed moving forward
  60. as we think about the next 30 years of
    the American's with Disabilities Act.
  61. But I will say the one thing I think is critical
  62. for us to change is what we require people
    to prove in order to get support from the government
  63. through our largest programs.
  64. So if you look at our four biggest programs
    that serve people with disabilities:
  65. Social Security disability insurance,
    supplemental security income, Medicaid, and medicare
  66. those programs require you to prove you have a disability
  67. and the way you prove that is with medical evidence
  68. that shows, that you,
    because of your physical or mental disability
  69. you're unable to engage in substantial gainful activity
  70. most people understand that to mean that
    because of their disability they can't work
  71. and that frame for trying to decide who
    deserves to have support from the government
  72. that frame dates back to 1956
  73. that's when that definition was written
    in the Federal statute originally
  74. and our thinking about what's possible for
    people with disabilities to achieve
  75. in the labor market has
    evolved hugely since 1956
  76. we know people with very significant disabilities
    can achieve success in a competitive labor market
  77. if they have the right supports.
  78. And...but yet we still require people to produce
    medical evidence that their disability prevents
  79. them from working in order to get supports
    to live independently and to work
  80. and it's just a backwards system
  81. We've tried over the years to build work
    incentives into the Social Securities disability programs
  82. we've got a medicaid buy-in program
  83. we've done a lot of things on the margins
    to try and make it easier for people with
  84. disabilities to work and get benefits but
    we haven't dealt with that fundamental
  85. definition of who is eligible for benefits.
  86. So one of the things I'm hoping to see as
    we move forward is to align the definition
  87. of disability in the Social Security and in
    the Disability Benefits laws with the vision
  88. of disability in the American with Disabilities Act.
  89. Instead of asking people to prove that
    their disability prevents them from engaging
  90. in substantial gainful activity, we should
    be asking them what supports do they need
  91. to be able to participate fully in the community
  92. and we can decide if you need a certain level
    of support, then you are eligible for income supports
  93. it could be a whole other thing for health
    care or other long term services and supports
  94. but under no circumstance should we require
    an 18 year old who is just starting out as an adult
  95. to provide medical evidence that their disability
    prevents them from working, and that is our policy
  96. and has been our policy since 1956
    and we spend hundreds of billions of Federal dollars
  97. through programs that require people to make initial showing.
  98. So I feel like that is a very important thing
    for us to change if we really want to realize
  99. the vision of the Americans with Disabilities Act.
  100. We've been thinking a lot at Disabilities
    Rights California about how can we respond
  101. to the three crisis that are playing out
    in our state and around the country.
  102. One is the pandemic, another is the economic downturn
    that is connected to the pandemic
  103. with lots of people losing their jobs,
  104. and the third is this national conversation
    we are having around racial justice.
  105. The pandemic disproportionally affects
    communities of color in California,
  106. the economic downturn disproportionally
    affects communities of color,
  107. and police violence and all of these
    structural barriers which exist in every program
  108. that serves children and adults with disabilities
    again disproportionally affect in a negative way,
  109. black children and adults, LatinX children
    and adults, and others from diverse communities in California.
  110. So when we think about a call to action,
    I feel like one of the most important things
  111. we can do as we celebrate the 30th anniversary of the ADA
  112. is really shine a spotlight on which populations
    in California and around the country have had the
  113. least positive benefit from the
    Americans with Disabilities Act
  114. and what can we do to extend the
    vision and impact of that law to communities
  115. that have not felt the impact to the same degree
  116. as middle class families who have been
    the primary beneficiaries of the law.
  117. So what does that mean?
  118. It means in the school system doing more
    to not have disproportionate discipline
  119. fall on children of color with disabilities
    trying to get police out of the schools
  120. to me is part of that conversation.
  121. In our regional center system across California,
    addressing the disparity
  122. so that families from low income backgrounds
    diverse families have the same access to
  123. services and supports as wealthier familes.
  124. In the context of vocational rehability system,
    again applying equity analysis
  125. and making sure that the population served
    by that system looks like the population of California.
  126. And I feel like this is a national conversation,
    but California can be a leader in the country
  127. Because we are leader in so many other ways.
  128. We are one of the most diverse states
    in the country.
  129. We have a progressive state government
    that cares about diversity, that cares about inclusion,
  130. that cares about equity.
  131. We have a Governor who created
    a task force to rebuild the economy
  132. and included my predecessor Catherine Blakemore
    the former Executive Director of Disabilities Rights California
  133. on that task force along with CEO of Apple.
  134. We have the Tech Industry which has
    kinda changing the world, literally
  135. in terms of how people interact with the world.
  136. And there is a huge opportunity for us to
    make sure that people with disabilities
  137. from diverse backgrounds have
    opportunities to work in the technology industry
  138. and to shape the technology that we all are
    going to be using day-to-day in the future
  139. So I feel like one of the most important messages
    for this anniversary is
  140. Let's make sure the vision of the ADA reaches
    ALL of the populations who could benefit from it
  141. Let's address structural racism,
    let's address disparity
  142. let's address inequities,
    that exist in every system that serves people with disabilities.
  143. So that the vision,
    the inclusive, the radical inclusive vision
  144. of the American's with Disabilities act is one that
  145. can be experienced and that our
    whole community can benefit from.
  146. That was awesome. That was...
    [speechless]
  147. Thank you so much!
    Thank you, thank you, thank you!