[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.00,0:00:07.53,Default,,0000,0000,0000,,Hi, my name is Andy Imparato and I am the \NExecutive Director of Disability Rights California
Dialogue: 0,0:00:07.53,0:00:13.23,Default,,0000,0000,0000,,I can think back to a lot of different \Ninteractions I had with people with
Dialogue: 0,0:00:13.29,0:00:17.03,Default,,0000,0000,0000,,disabilities growing up,\NBut I would say, that the most,
Dialogue: 0,0:00:17.11,0:00:21.77,Default,,0000,0000,0000,,that the thing that had the biggest impact\Non me is when I was starting my career
Dialogue: 0,0:00:21.84,0:00:26.72,Default,,0000,0000,0000,,as a lawyer I ended up being diagnosed \Nwith bi-polar disorder.
Dialogue: 0,0:00:26.80,0:00:35.05,Default,,0000,0000,0000,,I was working in an organization that was \Nadvocating for the rights of people with disabilities
Dialogue: 0,0:00:35.05,0:00:41.06,Default,,0000,0000,0000,,and I learned the idea that shows up \Nin a lot of federal disability laws
Dialogue: 0,0:00:41.06,0:00:45.46,Default,,0000,0000,0000,,the idea that disability is a natural \Npart of the human experience
Dialogue: 0,0:00:46.58,0:00:50.20,Default,,0000,0000,0000,,and I found that statement \Nto be very powerful
Dialogue: 0,0:00:50.20,0:00:54.56,Default,,0000,0000,0000,,as I was trying to deal with a \Nnew diagnosis of bipolar disorder
Dialogue: 0,0:00:54.56,0:00:58.58,Default,,0000,0000,0000,,I think the message I was getting \Nfrom the mental health world
Dialogue: 0,0:00:58.58,0:01:04.76,Default,,0000,0000,0000,,was that my diagnosis was not natural \Nand it was kind of a long term problem
Dialogue: 0,0:01:04.88,0:01:07.67,Default,,0000,0000,0000,,that I was going to have to address and
Dialogue: 0,0:01:07.74,0:01:12.64,Default,,0000,0000,0000,,I didn't get any sense that the experience\Nof living with bipolar disorder
Dialogue: 0,0:01:12.64,0:01:19.72,Default,,0000,0000,0000,,could actually benefit me and \Ncould actually help me in my career
Dialogue: 0,0:01:20.00,0:01:24.73,Default,,0000,0000,0000,,and what I got from being around \Ndisability rights advocates people
Dialogue: 0,0:01:24.73,0:01:27.92,Default,,0000,0000,0000,,with lived experience with lots of \Ndifferent kinds of disabilities
Dialogue: 0,0:01:27.92,0:01:30.13,Default,,0000,0000,0000,,I was living in Boston at the time
Dialogue: 0,0:01:30.13,0:01:33.67,Default,,0000,0000,0000,,was the idea that my lived \Nexperience was a actually
Dialogue: 0,0:01:33.67,0:01:37.67,Default,,0000,0000,0000,,a strength and a source of credibility \Nfor the work I was doing
Dialogue: 0,0:01:38.16,0:01:44.55,Default,,0000,0000,0000,,and if I wanted to be effective as a \Ndisability advocate I needed to learn
Dialogue: 0,0:01:44.55,0:01:48.25,Default,,0000,0000,0000,,to see my disability as an\Nasset and a strength.
Dialogue: 0,0:01:48.25,0:01:54.32,Default,,0000,0000,0000,,So I kinda feel like the\NAmerican's with Disabilities Act
Dialogue: 0,0:01:54.32,0:01:59.65,Default,,0000,0000,0000,,is reflecting the values of the \Ndisabilities right movement
Dialogue: 0,0:01:59.71,0:02:04.91,Default,,0000,0000,0000,,and one of those most important values\Nis that disability is natural
Dialogue: 0,0:02:05.46,0:02:10.36,Default,,0000,0000,0000,,your life with a disability is a natural\Npart of the human experience
Dialogue: 0,0:02:10.89,0:02:15.63,Default,,0000,0000,0000,,and that it should not prevent you from \Ndoing anything that you want to do
Dialogue: 0,0:02:15.80,0:02:18.70,Default,,0000,0000,0000,,and when you are prevented from \Ndoing those things
Dialogue: 0,0:02:18.74,0:02:21.44,Default,,0000,0000,0000,,it's discrimination it's not natural
Dialogue: 0,0:02:21.44,0:02:26.65,Default,,0000,0000,0000,,the idea that discrimination is \Nunnatural and disabilities are natural
Dialogue: 0,0:02:26.65,0:02:30.84,Default,,0000,0000,0000,,that was a powerful thing for me and\Nhelped frame my experience
Dialogue: 0,0:02:30.85,0:02:35.39,Default,,0000,0000,0000,,as a person with a long term disability\Nthat I acquired as an adult
Dialogue: 0,0:02:35.48,0:02:41.97,Default,,0000,0000,0000,,the most important thing that disability \Nmovement got from the
Dialogue: 0,0:02:42.00,0:02:50.12,Default,,0000,0000,0000,,Americans with Disability Act was the fra ming \Nof disability issues as civil rights issues
Dialogue: 0,0:02:50.12,0:02:54.19,Default,,0000,0000,0000,,if you look at kinda the history of \Ndisability policy in the United States
Dialogue: 0,0:02:54.26,0:03:00.56,Default,,0000,0000,0000,,and in other countries, people often saw\Ndisability through a social welfare frame,
Dialogue: 0,0:03:00.63,0:03:05.63,Default,,0000,0000,0000,,through a poverty frame, \Nthrough kinda the "worthy" poor frame
Dialogue: 0,0:03:05.76,0:03:10.44,Default,,0000,0000,0000,,and the idea was if you want to address\Nproblem people with disabilities have
Dialogue: 0,0:03:10.44,0:03:13.50,Default,,0000,0000,0000,,you just need to provide the right services
Dialogue: 0,0:03:13.50,0:03:20.03,Default,,0000,0000,0000,,but there wasn't a concept of discrimination, \Nthere wasn't a concept of human and civil rights around that
Dialogue: 0,0:03:20.03,0:03:25.66,Default,,0000,0000,0000,,we have earlier laws, the "Rehabilitation \NAct" that had a piece of the law that
Dialogue: 0,0:03:25.66,0:03:28.52,Default,,0000,0000,0000,,tried to deal with disability discrimination
Dialogue: 0,0:03:28.52,0:03:33.84,Default,,0000,0000,0000,,but the ADA was the first law, where the \Nwhole law was about addressing discrimination
Dialogue: 0,0:03:33.94,0:03:38.61,Default,,0000,0000,0000,,and I think for a lot of us who live with disabilities
Dialogue: 0,0:03:38.90,0:03:44.81,Default,,0000,0000,0000,,the civil rights frame is a very empowering\Nframe because it stops if something bad happens
Dialogue: 0,0:03:44.81,0:03:50.04,Default,,0000,0000,0000,,to you as a person with a disability it stops \Nbeing about what did you do wrong
Dialogue: 0,0:03:50.04,0:03:57.49,Default,,0000,0000,0000,,or what services do you need to avoid doing \Nthat again and it starts being around well maybe
Dialogue: 0,0:03:57.49,0:04:02.66,Default,,0000,0000,0000,,the system was designed to exclude you \Nand that's discrimination.
Dialogue: 0,0:04:02.66,0:04:07.71,Default,,0000,0000,0000,,So don't just look at the person as the source \Nof the problem but look at the environment
Dialogue: 0,0:04:07.71,0:04:12.89,Default,,0000,0000,0000,,and that concept I think has been a \Nreally important concept to help us reframe
Dialogue: 0,0:04:12.95,0:04:17.35,Default,,0000,0000,0000,,why bad things happen to people with disabilities, \Nwhy exclusion happens,
Dialogue: 0,0:04:17.35,0:04:22.34,Default,,0000,0000,0000,,why segregation happens, \Nwhy poverty happens
Dialogue: 0,0:04:22.41,0:04:29.09,Default,,0000,0000,0000,,and it helps us have higher expectations for ourselves, \Nand higher expectations for the environment around us.
Dialogue: 0,0:04:29.09,0:04:33.31,Default,,0000,0000,0000,,So there are a lot of vary concrete things the ADA has done
Dialogue: 0,0:04:33.31,0:04:40.32,Default,,0000,0000,0000,,like make the buses dramatically more accessible\Nfor people with a wide range of disabilities
Dialogue: 0,0:04:40.32,0:04:44.33,Default,,0000,0000,0000,,make, the built environment dramatically more accessible
Dialogue: 0,0:04:44.33,0:04:51.54,Default,,0000,0000,0000,,but I think almost spiritually framing our issues\Nas civil rights issues, as justice issues
Dialogue: 0,0:04:51.67,0:04:59.63,Default,,0000,0000,0000,,as human rights issues, I think that was as \Nimportant as any specific requirements in the law
Dialogue: 0,0:04:59.63,0:05:06.56,Default,,0000,0000,0000,,so it's hard to pick one issue that would be \Nthe big thing that I would like to see changed moving forward
Dialogue: 0,0:05:06.61,0:05:10.68,Default,,0000,0000,0000,,as we think about the next 30 years of \Nthe American's with Disabilities Act.
Dialogue: 0,0:05:10.84,0:05:14.58,Default,,0000,0000,0000,,But I will say the one thing I think is critical
Dialogue: 0,0:05:14.67,0:05:22.51,Default,,0000,0000,0000,,for us to change is what we require people \Nto prove in order to get support from the government
Dialogue: 0,0:05:22.62,0:05:24.57,Default,,0000,0000,0000,,through our largest programs.
Dialogue: 0,0:05:24.57,0:05:28.41,Default,,0000,0000,0000,,So if you look at our four biggest programs \Nthat serve people with disabilities:
Dialogue: 0,0:05:28.48,0:05:33.81,Default,,0000,0000,0000,,Social Security disability insurance, \Nsupplemental security income, Medicaid, and medicare
Dialogue: 0,0:05:33.81,0:05:38.11,Default,,0000,0000,0000,,those programs require you to prove you have a disability
Dialogue: 0,0:05:38.12,0:05:41.22,Default,,0000,0000,0000,,and the way you prove that is with medical evidence
Dialogue: 0,0:05:41.22,0:05:47.02,Default,,0000,0000,0000,,that shows, that you, \Nbecause of your physical or mental disability
Dialogue: 0,0:05:47.03,0:05:51.07,Default,,0000,0000,0000,,you're unable to engage in substantial gainful activity
Dialogue: 0,0:05:51.08,0:05:55.18,Default,,0000,0000,0000,,most people understand that to mean that \Nbecause of their disability they can't work
Dialogue: 0,0:05:56.13,0:06:01.98,Default,,0000,0000,0000,,and that frame for trying to decide who \Ndeserves to have support from the government
Dialogue: 0,0:06:01.98,0:06:04.59,Default,,0000,0000,0000,,that frame dates back to 1956
Dialogue: 0,0:06:04.59,0:06:08.67,Default,,0000,0000,0000,,that's when that definition was written \Nin the Federal statute originally
Dialogue: 0,0:06:09.49,0:06:13.93,Default,,0000,0000,0000,,and our thinking about what's possible for \Npeople with disabilities to achieve
Dialogue: 0,0:06:14.23,0:06:17.76,Default,,0000,0000,0000,,in the labor market has\Nevolved hugely since 1956
Dialogue: 0,0:06:17.90,0:06:25.02,Default,,0000,0000,0000,,we know people with very significant disabilities \Ncan achieve success in a competitive labor market
Dialogue: 0,0:06:25.04,0:06:27.54,Default,,0000,0000,0000,,if they have the right supports.
Dialogue: 0,0:06:27.54,0:06:35.38,Default,,0000,0000,0000,,And...but yet we still require people to produce \Nmedical evidence that their disability prevents
Dialogue: 0,0:06:35.38,0:06:40.88,Default,,0000,0000,0000,,them from working in order to get supports \Nto live independently and to work
Dialogue: 0,0:06:40.88,0:06:44.55,Default,,0000,0000,0000,,and it's just a backwards system
Dialogue: 0,0:06:44.56,0:06:50.51,Default,,0000,0000,0000,,We've tried over the years to build work \Nincentives into the Social Securities disability programs
Dialogue: 0,0:06:50.51,0:06:53.30,Default,,0000,0000,0000,,we've got a medicaid buy-in program
Dialogue: 0,0:06:53.30,0:06:57.40,Default,,0000,0000,0000,,we've done a lot of things on the margins \Nto try and make it easier for people with
Dialogue: 0,0:06:57.40,0:07:02.72,Default,,0000,0000,0000,,disabilities to work and get benefits but \Nwe haven't dealt with that fundamental
Dialogue: 0,0:07:02.72,0:07:05.54,Default,,0000,0000,0000,,definition of who is eligible for benefits.
Dialogue: 0,0:07:05.54,0:07:11.01,Default,,0000,0000,0000,,So one of the things I'm hoping to see as\Nwe move forward is to align the definition
Dialogue: 0,0:07:11.01,0:07:17.02,Default,,0000,0000,0000,,of disability in the Social Security and in \Nthe Disability Benefits laws with the vision
Dialogue: 0,0:07:17.02,0:07:20.97,Default,,0000,0000,0000,,of disability in the American with Disabilities Act.
Dialogue: 0,0:07:20.97,0:07:24.85,Default,,0000,0000,0000,,Instead of asking people to prove that \Ntheir disability prevents them from engaging
Dialogue: 0,0:07:24.85,0:07:30.49,Default,,0000,0000,0000,,in substantial gainful activity, we should \Nbe asking them what supports do they need
Dialogue: 0,0:07:30.49,0:07:34.34,Default,,0000,0000,0000,,to be able to participate fully in the community
Dialogue: 0,0:07:34.34,0:07:39.98,Default,,0000,0000,0000,,and we can decide if you need a certain level \Nof support, then you are eligible for income supports
Dialogue: 0,0:07:39.98,0:07:44.49,Default,,0000,0000,0000,,it could be a whole other thing for health \Ncare or other long term services and supports
Dialogue: 0,0:07:44.49,0:07:51.47,Default,,0000,0000,0000,,but under no circumstance should we require \Nan 18 year old who is just starting out as an adult
Dialogue: 0,0:07:51.47,0:07:57.54,Default,,0000,0000,0000,,to provide medical evidence that their disability \Nprevents them from working, and that is our policy
Dialogue: 0,0:07:57.54,0:08:04.49,Default,,0000,0000,0000,,and has been our policy since 1956 \Nand we spend hundreds of billions of Federal dollars
Dialogue: 0,0:08:04.49,0:08:09.44,Default,,0000,0000,0000,,through programs that require people to make initial showing.
Dialogue: 0,0:08:09.44,0:08:14.62,Default,,0000,0000,0000,,So I feel like that is a very important thing \Nfor us to change if we really want to realize
Dialogue: 0,0:08:14.63,0:08:18.08,Default,,0000,0000,0000,,the vision of the Americans with Disabilities Act.
Dialogue: 0,0:08:18.08,0:08:23.54,Default,,0000,0000,0000,,We've been thinking a lot at Disabilities \NRights California about how can we respond
Dialogue: 0,0:08:23.54,0:08:28.84,Default,,0000,0000,0000,,to the three crisis that are playing out\Nin our state and around the country.
Dialogue: 0,0:08:28.87,0:08:34.53,Default,,0000,0000,0000,,One is the pandemic, another is the economic downturn \Nthat is connected to the pandemic
Dialogue: 0,0:08:34.53,0:08:37.34,Default,,0000,0000,0000,,with lots of people losing their jobs,
Dialogue: 0,0:08:37.34,0:08:41.75,Default,,0000,0000,0000,,and the third is this national conversation \Nwe are having around racial justice.
Dialogue: 0,0:08:41.75,0:08:46.42,Default,,0000,0000,0000,,The pandemic disproportionally affects\Ncommunities of color in California,
Dialogue: 0,0:08:46.42,0:08:50.61,Default,,0000,0000,0000,,the economic downturn disproportionally \Naffects communities of color,
Dialogue: 0,0:08:50.61,0:08:56.44,Default,,0000,0000,0000,,and police violence and all of these \Nstructural barriers which exist in every program
Dialogue: 0,0:08:56.44,0:09:03.58,Default,,0000,0000,0000,,that serves children and adults with disabilities\Nagain disproportionally affect in a negative way,
Dialogue: 0,0:09:03.58,0:09:10.88,Default,,0000,0000,0000,,black children and adults, LatinX children\Nand adults, and others from diverse communities in California.
Dialogue: 0,0:09:10.88,0:09:15.20,Default,,0000,0000,0000,,So when we think about a call to action, \NI feel like one of the most important things
Dialogue: 0,0:09:15.20,0:09:19.33,Default,,0000,0000,0000,,we can do as we celebrate the 30th anniversary of the ADA
Dialogue: 0,0:09:19.33,0:09:25.94,Default,,0000,0000,0000,,is really shine a spotlight on which populations\Nin California and around the country have had the
Dialogue: 0,0:09:25.94,0:09:30.55,Default,,0000,0000,0000,,least positive benefit from the \NAmericans with Disabilities Act
Dialogue: 0,0:09:30.55,0:09:36.22,Default,,0000,0000,0000,,and what can we do to extend the \Nvision and impact of that law to communities
Dialogue: 0,0:09:36.22,0:09:39.54,Default,,0000,0000,0000,,that have not felt the impact to the same degree
Dialogue: 0,0:09:39.54,0:09:45.52,Default,,0000,0000,0000,,as middle class families who have been\Nthe primary beneficiaries of the law.
Dialogue: 0,0:09:45.52,0:09:48.10,Default,,0000,0000,0000,,So what does that mean?
Dialogue: 0,0:09:48.10,0:09:54.47,Default,,0000,0000,0000,,It means in the school system doing more\Nto not have disproportionate discipline
Dialogue: 0,0:09:54.47,0:09:59.38,Default,,0000,0000,0000,,fall on children of color with disabilities \Ntrying to get police out of the schools
Dialogue: 0,0:09:59.38,0:10:02.27,Default,,0000,0000,0000,,to me is part of that conversation.
Dialogue: 0,0:10:02.27,0:10:06.21,Default,,0000,0000,0000,,In our regional center system across California,\Naddressing the disparity
Dialogue: 0,0:10:06.21,0:10:11.55,Default,,0000,0000,0000,,so that families from low income backgrounds\Ndiverse families have the same access to
Dialogue: 0,0:10:11.55,0:10:14.89,Default,,0000,0000,0000,,services and supports as wealthier familes.
Dialogue: 0,0:10:14.89,0:10:20.09,Default,,0000,0000,0000,,In the context of vocational rehability system,\Nagain applying equity analysis
Dialogue: 0,0:10:20.09,0:10:27.14,Default,,0000,0000,0000,,and making sure that the population served\Nby that system looks like the population of California.
Dialogue: 0,0:10:27.14,0:10:32.59,Default,,0000,0000,0000,,And I feel like this is a national conversation, \Nbut California can be a leader in the country
Dialogue: 0,0:10:32.59,0:10:35.61,Default,,0000,0000,0000,,Because we are leader in so many other ways.
Dialogue: 0,0:10:35.61,0:10:39.16,Default,,0000,0000,0000,,We are one of the most diverse states\Nin the country.
Dialogue: 0,0:10:39.16,0:10:44.82,Default,,0000,0000,0000,,We have a progressive state government \Nthat cares about diversity, that cares about inclusion,
Dialogue: 0,0:10:44.82,0:10:46.44,Default,,0000,0000,0000,,that cares about equity.
Dialogue: 0,0:10:46.44,0:10:51.56,Default,,0000,0000,0000,,We have a Governor who created \Na task force to rebuild the economy
Dialogue: 0,0:10:51.56,0:10:58.61,Default,,0000,0000,0000,,and included my predecessor Catherine Blakemore\Nthe former Executive Director of Disabilities Rights California
Dialogue: 0,0:10:58.61,0:11:03.34,Default,,0000,0000,0000,,on that task force along with CEO of Apple.
Dialogue: 0,0:11:03.34,0:11:08.70,Default,,0000,0000,0000,,We have the Tech Industry which has \Nkinda changing the world, literally
Dialogue: 0,0:11:08.70,0:11:11.86,Default,,0000,0000,0000,,in terms of how people interact with the world.
Dialogue: 0,0:11:11.86,0:11:15.56,Default,,0000,0000,0000,,And there is a huge opportunity for us to\Nmake sure that people with disabilities
Dialogue: 0,0:11:15.56,0:11:19.97,Default,,0000,0000,0000,,from diverse backgrounds have \Nopportunities to work in the technology industry
Dialogue: 0,0:11:19.97,0:11:25.22,Default,,0000,0000,0000,,and to shape the technology that we all are \Ngoing to be using day-to-day in the future
Dialogue: 0,0:11:25.22,0:11:30.18,Default,,0000,0000,0000,,So I feel like one of the most important messages\Nfor this anniversary is
Dialogue: 0,0:11:30.18,0:11:37.17,Default,,0000,0000,0000,,Let's make sure the vision of the ADA reaches\NALL of the populations who could benefit from it
Dialogue: 0,0:11:37.17,0:11:40.90,Default,,0000,0000,0000,,Let's address structural racism, \Nlet's address disparity
Dialogue: 0,0:11:40.90,0:11:46.69,Default,,0000,0000,0000,,let's address inequities, \Nthat exist in every system that serves people with disabilities.
Dialogue: 0,0:11:46.69,0:11:51.53,Default,,0000,0000,0000,,So that the vision, \Nthe inclusive, the radical inclusive vision
Dialogue: 0,0:11:51.53,0:11:53.90,Default,,0000,0000,0000,,of the American's with Disabilities act is one that
Dialogue: 0,0:11:53.91,0:11:58.97,Default,,0000,0000,0000,,can be experienced and that our \Nwhole community can benefit from.
Dialogue: 0,0:11:58.97,0:12:02.71,Default,,0000,0000,0000,,That was awesome. That was... \N[speechless]
Dialogue: 0,0:12:02.71,0:12:06.02,Default,,0000,0000,0000,,Thank you so much!\NThank you, thank you, thank you!