1 00:00:00,000 --> 00:00:04,000 My name is Natalia Rivera. I'm a doctoral student. 2 00:00:04,000 --> 00:00:08,000 And well, doctoral graduate, actually. And in the Department of Hispanic 3 00:00:08,000 --> 00:00:10,730 Languages and Literature at the University of Pittsburgh. 4 00:00:10,730 --> 00:00:15,790 I'm also a Spanish Instructor and I specialize in Latin American, 5 00:00:15,790 --> 00:00:19,790 Italian literature and critical disabilities studies. 6 00:00:20,202 --> 00:00:24,602 So my interests, my academic interests are intimately tied to my personal 7 00:00:24,602 --> 00:00:29,882 experience as a student and now instructor with 8 00:00:29,901 --> 00:00:33,901 a learning disability and co-occurring anxiety. 9 00:00:33,901 --> 00:00:38,361 So, the first memory that I remember, just on a personal level, 10 00:00:38,361 --> 00:00:42,501 recognizing that there was some access issues or some degree of 11 00:00:44,101 --> 00:00:49,111 especially in the high school level. Some degree of 12 00:00:50,729 --> 00:00:54,619 a lack of knowledge, really, of different types of learning styles 13 00:00:54,759 --> 00:00:58,559 and different types of processing speeds because of my diagnosis of Attention 14 00:00:58,559 --> 00:01:02,519 Deficit Disorder. One of the key components of how that, 15 00:01:02,519 --> 00:01:06,519 you know, how ADD affects me is that I have a slower processing speed. 16 00:01:06,519 --> 00:01:11,256 So while my reading comprehension is strong, 17 00:01:13,002 --> 00:01:16,151 my processing speed affects my writing speed so I'm not always 18 00:01:16,151 --> 00:01:20,151 able to produce a paragraph in a timely manner. So, we often 19 00:01:20,151 --> 00:01:24,151 had problems in English class. This was in tenth grade and 20 00:01:24,151 --> 00:01:28,651 the expectation was that we would be able to write a paragraph in half-hour. 21 00:01:28,802 --> 00:01:32,802 And often times I would need double amount of time. I would need an hour. 22 00:01:32,802 --> 00:01:36,292 And sometimes I wouldn't even be able to finish one simple paragraph 23 00:01:36,292 --> 00:01:37,492 in an hour. 24 00:01:38,263 --> 00:01:42,263 And I remember my English instructor, at the time, 25 00:01:43,023 --> 00:01:45,925 after class when I sort of approached her and said, 26 00:01:45,925 --> 00:01:49,275 "Uhm, hey. Not withstanding the original time. I wasn't 27 00:01:49,275 --> 00:01:52,861 really able to finish my paragraph." And I remember she looked at me 28 00:01:52,861 --> 00:01:57,682 incredulous and said to me, "If you can't even write a paragraph, 29 00:01:57,682 --> 00:02:01,682 a simple paragraph in one hour, I don't know what to tell you. 30 00:02:02,899 --> 00:02:08,449 So, I remember that moment. I also remember later on 31 00:02:08,449 --> 00:02:12,449 when I was preparing for her AP Exams. This also happened in high school. 32 00:02:12,449 --> 00:02:17,899 This was my junior year. I was taking an AP World History class 33 00:02:18,864 --> 00:02:23,464 And I remember that I approached my instructor, already knowing on my own 34 00:02:23,464 --> 00:02:27,334 'cause I had already had plenty of experience advocating for myself since 35 00:02:27,334 --> 00:02:31,684 I was a child. I already knew that all standardized testing 36 00:02:31,738 --> 00:02:35,458 had a process for requesting accommodations. 37 00:02:35,458 --> 00:02:39,458 So, I remember approaching my AP World History Exam and- 38 00:02:39,458 --> 00:02:43,548 I meant, my AP World History teacher and explaining to him 39 00:02:43,548 --> 00:02:49,028 that I was registered with disability resources, that I had a documented 40 00:02:49,028 --> 00:02:53,028 disability and that these were the particular accommodations I needed 41 00:02:53,028 --> 00:02:55,568 time and a half. It was a very common accommodation. 42 00:02:57,074 --> 00:03:01,074 And I remember him telling me, "I don't have a problem providing you 43 00:03:01,074 --> 00:03:05,274 classroom accommodations. I'm just not sure that 44 00:03:06,644 --> 00:03:10,644 that extended time is provided on the AP Exam." And I was just 45 00:03:10,644 --> 00:03:14,644 flabbergasted that an instructor would actively misinform me that way 46 00:03:14,644 --> 00:03:18,644 because even I knew at the tender age of, I don't know, sixteen! 47 00:03:19,340 --> 00:03:23,340 that ATS always provided a process for requesting 48 00:03:23,340 --> 00:03:27,340 accommodation. So, I was stunned that an adult felt that he could 49 00:03:27,340 --> 00:03:31,340 just misinform me that way. And I know 50 00:03:31,340 --> 00:03:35,340 that misinforming me not necessarily with a negative intent, but he 51 00:03:35,354 --> 00:03:39,354 genuinely had no notion of the process. And 52 00:03:40,017 --> 00:03:44,017 yeah. So, it's un-willful misinformation, but 53 00:03:45,123 --> 00:03:49,123 the effect is similar. Because imagine had he said something like that 54 00:03:49,123 --> 00:03:53,123 to a student who had no idea how to request accommodations. 55 00:03:53,337 --> 00:03:58,337 You know, how to attain an evaluation to substantiate 56 00:03:58,337 --> 00:04:02,337 the need for accommodations. So it's just a lot of misinformation 57 00:04:05,736 --> 00:04:09,346 Enabled with ignorance, not so much malice. 58 00:04:09,346 --> 00:04:13,266 But just the complete lack of information out there just really compromises 59 00:04:13,266 --> 00:04:16,376 student's ability to advocate for themselves 60 00:04:18,595 --> 00:04:22,595 In my personal work with the disability rights 61 00:04:22,595 --> 00:04:26,035 community because I worked two and a half years at a disability 62 00:04:26,035 --> 00:04:28,875 rights organization called Autistic Self Advocacy Network 63 00:04:29,417 --> 00:04:33,417 and meeting a lot of people my age 64 00:04:34,693 --> 00:04:38,343 a lot of students don't find out that they have a diagnosis until much later 65 00:04:38,343 --> 00:04:42,343 in life. Once they start noticing, picking up on their own symptoms they seek 66 00:04:42,343 --> 00:04:46,343 out individually supports. So I 67 00:04:46,343 --> 00:04:50,343 certainly, on a personal level, benefited from my 68 00:04:50,343 --> 00:04:53,603 mother's knowledge and from her experiences as a parent advocate. 69 00:04:54,640 --> 00:04:58,955 I think my awareness of a level of discrimination 70 00:04:59,141 --> 00:05:02,971 even if it was kind of on the level of microaggression, 71 00:05:02,971 --> 00:05:06,971 I think I had more awareness of discrimination at the high school level 72 00:05:07,007 --> 00:05:10,831 but, my initial exposure to advocacy really happened when I was young 73 00:05:10,831 --> 00:05:14,831 and I remember going... There were some days off from school 74 00:05:14,831 --> 00:05:18,831 and I remember going to the office with my mom. And I remember meeting 75 00:05:18,831 --> 00:05:22,831 other moms and seeing her work part time at 76 00:05:22,831 --> 00:05:26,831 this parent advocacy group for parents with disabilities 77 00:05:26,831 --> 00:05:30,831 so I thank my mother for, you know, introducing me 78 00:05:30,831 --> 00:05:34,831 to the concept of self advocacy and for empowering me 79 00:05:34,831 --> 00:05:38,831 to use it in every aspect of my life and at a professional level 80 00:05:38,831 --> 00:05:42,831 and an academic level, as well. 81 00:05:42,920 --> 00:05:46,920 So, I don't really remember the day of the Americans with Disabilities Act 82 00:05:46,920 --> 00:05:50,920 'cause I was just a couple of months old. 83 00:05:51,651 --> 00:05:55,651 But, the impact on me, basically I sincerely 84 00:05:55,651 --> 00:05:59,651 doubt had I been born, I don't know, forty years ago 85 00:05:59,651 --> 00:06:03,261 as opposed to thirty years ago, there's a possibility that I would not have 86 00:06:03,261 --> 00:06:06,291 attended college. And even if I had attended college, 87 00:06:06,291 --> 00:06:10,291 I just sort of feel that I would have never considered doing a 88 00:06:10,291 --> 00:06:14,718 PhD, if it hadn't been for the Americans with Disabilities Act. 89 00:06:15,197 --> 00:06:19,197 Because graduate school, the level of support at the undergraduate level 90 00:06:19,197 --> 00:06:22,727 at least at a liberal arts college 91 00:06:22,727 --> 00:06:26,477 that tends to be more supportive is radically different from graduate school 92 00:06:26,477 --> 00:06:30,477 where the level of support is practically non-existent, I feel 93 00:06:30,477 --> 00:06:33,187 and I think a lot of graduate students feel the same way. 94 00:06:33,187 --> 00:06:37,187 So without the ADA, I'm not even sure I would have been fortunate enough 95 00:06:37,187 --> 00:06:41,187 to attend college so I think that it offered me 96 00:06:41,187 --> 00:06:45,187 the protections that I needed to go beyond what my 97 00:06:45,187 --> 00:06:49,187 wildest dreams, right? So I feel like... 98 00:06:50,595 --> 00:06:54,595 I've had a very privileged life and I'm grateful for my academic 99 00:06:54,595 --> 00:06:58,595 opportunities that I know there are so many deserving students 100 00:06:58,595 --> 00:07:02,595 who didn't have the opportunities that I had and I'm not only grateful to my family 101 00:07:02,595 --> 00:07:06,595 for their unyielding dedication 102 00:07:06,595 --> 00:07:10,595 to advocacy and also very 103 00:07:10,595 --> 00:07:14,595 grateful for the ADA as well. I mean, disabilities definitely run in my family 104 00:07:14,595 --> 00:07:18,505 neuro-developmental disabilities, learning disabilities. I do have a cousin who 105 00:07:18,505 --> 00:07:22,505 was on the autism spectrum and 106 00:07:22,505 --> 00:07:26,505 I don't think, by no means, benefited 107 00:07:28,552 --> 00:07:32,552 by the protections offered by the Americans with Disabilities Act in the 108 00:07:32,552 --> 00:07:36,552 same degree that I did. I think unfortunately because I think there 109 00:07:36,552 --> 00:07:38,072 still cultural stigma 110 00:07:38,722 --> 00:07:42,722 particularly if an autism spectrum disorder 111 00:07:42,722 --> 00:07:46,722 co-occurs with a intellectual disability, but he 112 00:07:46,722 --> 00:07:50,722 finished his associate's degree with minimal supports. 113 00:07:50,722 --> 00:07:54,722 I think because the ADA empowered me, I feel like 114 00:07:54,722 --> 00:07:58,722 I'm prepared as an instructor to offer support 115 00:07:58,722 --> 00:08:02,722 to students with other disabilities. I have 116 00:08:02,722 --> 00:08:06,722 students with documented disabilities and I feel that because 117 00:08:06,722 --> 00:08:10,722 of my personal experience as a student 118 00:08:10,722 --> 00:08:14,722 with disability, I feel much more prepared to work with 119 00:08:14,722 --> 00:08:18,722 a wider range of students who need different needs and I'm prepared 120 00:08:18,722 --> 00:08:22,722 to be accommodating, I'm prepared to 121 00:08:23,537 --> 00:08:27,537 at least endeavored to make students feel like they're valuable members of 122 00:08:27,537 --> 00:08:31,537 my classroom. I'm not a perfect instructor. I still have a lot to learn 123 00:08:31,585 --> 00:08:35,585 but, I think that level of 124 00:08:37,047 --> 00:08:41,047 humanity, I think, that speaks to a lot of students and I think that I'm 125 00:08:41,047 --> 00:08:45,047 better able to connect to connect with my students. So, 126 00:08:45,047 --> 00:08:49,047 the ADA allowed me to be useful as an instructor, basically. But, I 127 00:08:49,047 --> 00:08:53,047 remember one interview I did with a student on the 128 00:08:53,047 --> 00:08:57,047 autism spectrum, who was attending a 129 00:08:57,047 --> 00:09:01,047 college specifically for students with learning disabilities. 130 00:09:04,708 --> 00:09:08,708 And she made a very astute observation about 131 00:09:10,749 --> 00:09:14,749 learning disabilities under colleges and sort of their 132 00:09:15,986 --> 00:09:19,986 focus on vocational training as opposed to academic training and 133 00:09:20,174 --> 00:09:24,174 this was a smart girl who wanted to 134 00:09:25,263 --> 00:09:29,263 pursue a degree in humanities and she was doing an interdisciplinary liberal arts 135 00:09:29,263 --> 00:09:33,263 degree, but she couldn't take philosophy, for instance. Or 136 00:09:33,263 --> 00:09:37,263 she couldn't do a major in history. And I think the way 137 00:09:37,263 --> 00:09:41,263 the classes, the course work, the curriculum... 138 00:09:41,263 --> 00:09:45,263 just how all the academic options were structured in this particular college 139 00:09:45,903 --> 00:09:49,903 it sort of reinforced this idea that traditional academic 140 00:09:49,903 --> 00:09:53,903 disciplines are somehow out of reach for a student who 141 00:09:53,903 --> 00:09:57,903 reads as having an intellectual disability or who reads as having 142 00:09:59,485 --> 00:10:03,485 potential learning difficulties and she lamented and I 143 00:10:03,485 --> 00:10:07,485 wholeheartedly agreed with her appraisal. She lamented the fact that she couldn't 144 00:10:07,922 --> 00:10:11,922 pursue a traditional discipline she would have wanted. She wanted to be a historian. 145 00:10:14,640 --> 00:10:18,640 So I think that in a way, people wouldn't really read the legislation 146 00:10:18,640 --> 00:10:22,640 very carefully. I guess in their attempt 147 00:10:22,640 --> 00:10:27,180 to sort of include people, they're inadvertently limiting the options 148 00:10:27,180 --> 00:10:31,180 for a lot of students because there are students who may need to 149 00:10:31,180 --> 00:10:35,180 do- There are students who may want to pursue 150 00:10:35,679 --> 00:10:39,679 physics, right? But they need a longer timeline to complete 151 00:10:39,679 --> 00:10:43,679 their coursework, but it's just in a traditional four-year 152 00:10:44,129 --> 00:10:48,129 college. Those mechanisms just aren't in place to provide 153 00:10:48,129 --> 00:10:52,129 that support system for a student who needs additional support, but 154 00:10:52,129 --> 00:10:55,769 who wants to pursue a traditional academic discipline. So, I think in that 155 00:10:55,769 --> 00:10:59,769 regard, even though the spirit of the ADA, you definitely get the sense 156 00:10:59,769 --> 00:11:03,769 with the wording of the legislation that it's intended to