[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.86,0:00:04.15,Default,,0000,0000,0000,,You'll see in the corner the record button
Dialogue: 0,0:00:04.15,0:00:06.14,Default,,0000,0000,0000,,So you should see that it's recording now,
Dialogue: 0,0:00:06.14,0:00:07.53,Default,,0000,0000,0000,,and I'm going to mute myself
Dialogue: 0,0:00:07.59,0:00:09.65,Default,,0000,0000,0000,,and you'll go ahead and do your intro.
Dialogue: 0,0:00:09.72,0:00:11.33,Default,,0000,0000,0000,,Thank you Marcie.
Dialogue: 0,0:00:14.23,0:00:16.29,Default,,0000,0000,0000,,Hi there, I'm Marcie Roth
Dialogue: 0,0:00:16.29,0:00:22.14,Default,,0000,0000,0000,,and I have been working\Nin disability rights
Dialogue: 0,0:00:22.14,0:00:26.22,Default,,0000,0000,0000,,for my whole adult life,
Dialogue: 0,0:00:26.22,0:00:31.56,Default,,0000,0000,0000,,and actually, since I was\Na freshman in high school.
Dialogue: 0,0:00:31.56,0:00:42.54,Default,,0000,0000,0000,,I am currently the executive director and\NCEO of the World Institute on Disability,
Dialogue: 0,0:00:42.54,0:00:53.21,Default,,0000,0000,0000,,and I have been working\Nover the years in services
Dialogue: 0,0:00:53.21,0:01:01.86,Default,,0000,0000,0000,,for people living in residential programs \Nearly in my career
Dialogue: 0,0:01:01.86,0:01:05.46,Default,,0000,0000,0000,,with people in,
Dialogue: 0,0:01:05.46,0:01:09.10,Default,,0000,0000,0000,,children in school settings,
Dialogue: 0,0:01:09.10,0:01:15.00,Default,,0000,0000,0000,,people in vocational rehabilitation,
Dialogue: 0,0:01:15.00,0:01:23.41,Default,,0000,0000,0000,,and then people in \Ncommunity living environments,
Dialogue: 0,0:01:23.41,0:01:30.92,Default,,0000,0000,0000,,then along the way, I\Nbecame very involved in disability rights
Dialogue: 0,0:01:30.92,0:01:41.32,Default,,0000,0000,0000,,and very involved in the \Nearly days of advocacy
Dialogue: 0,0:01:41.32,0:01:44.96,Default,,0000,0000,0000,,before the ADA was introduced.
Dialogue: 0,0:01:44.96,0:01:54.85,Default,,0000,0000,0000,,And then I worked for disability advocacy \Norganizations almost ever since.
Dialogue: 0,0:01:54.86,0:01:58.41,Default,,0000,0000,0000,,In addition to my own disability,
Dialogue: 0,0:01:58.41,0:02:02.04,Default,,0000,0000,0000,,I'm also the parent of two
Dialogue: 0,0:02:02.04,0:02:04.87,Default,,0000,0000,0000,,now adults with disabilities.
Dialogue: 0,0:02:04.87,0:02:08.56,Default,,0000,0000,0000,,My Husband also has a disability,
Dialogue: 0,0:02:08.56,0:02:17.44,Default,,0000,0000,0000,,and much of my family also happen \Nto be people with disabilities
Dialogue: 0,0:02:17.44,0:02:23.75,Default,,0000,0000,0000,,so disability rights is just part of
Dialogue: 0,0:02:23.75,0:02:27.38,Default,,0000,0000,0000,,everything I am and most everything I do.
Dialogue: 0,0:02:27.38,0:02:38.80,Default,,0000,0000,0000,,I did spend from 2001 and onward
Dialogue: 0,0:02:38.80,0:02:44.43,Default,,0000,0000,0000,,focusing very much on what happens \Nfor people with disabilities
Dialogue: 0,0:02:44.43,0:02:47.08,Default,,0000,0000,0000,,before, during, and after disasters.
Dialogue: 0,0:02:47.08,0:02:54.24,Default,,0000,0000,0000,,And that's been a real particular \Nlaser focus of mine ever since,
Dialogue: 0,0:02:54.24,0:02:57.50,Default,,0000,0000,0000,,and in fact, I've had the opportunity
Dialogue: 0,0:02:57.50,0:03:01.93,Default,,0000,0000,0000,,as an appointee in the \NObama administration
Dialogue: 0,0:03:01.93,0:03:08.23,Default,,0000,0000,0000,,to spend just about 8 years at FEMA,
Dialogue: 0,0:03:08.23,0:03:14.50,Default,,0000,0000,0000,,establishing FEMA's Office of \NDisability Integration Coordination,
Dialogue: 0,0:03:14.50,0:03:23.26,Default,,0000,0000,0000,,and building a cadre of disability experts
Dialogue: 0,0:03:23.26,0:03:27.48,Default,,0000,0000,0000,,of the same pond, supporting governors
Dialogue: 0,0:03:27.48,0:03:34.84,Default,,0000,0000,0000,,and emergency managers \Nand most particularly
Dialogue: 0,0:03:34.84,0:03:38.40,Default,,0000,0000,0000,,engaging people with disabilities, \Nand disability organizations
Dialogue: 0,0:03:38.40,0:03:42.17,Default,,0000,0000,0000,,in emergency preparedness
Dialogue: 0,0:03:42.17,0:03:46.64,Default,,0000,0000,0000,,and throughout disaster response recovery\Nand mitigation.
Dialogue: 0,0:03:46.64,0:03:54.20,Default,,0000,0000,0000,,So one last piece since I've been with
Dialogue: 0,0:03:54.20,0:03:59.13,Default,,0000,0000,0000,,the World Institute on Disability \Nsince last September,
Dialogue: 0,0:03:59.13,0:04:09.36,Default,,0000,0000,0000,,my ongoing focus on global\Ndisability rights has really been
Dialogue: 0,0:04:09.43,0:04:16.30,Default,,0000,0000,0000,,something that I've had much more\Nopportunity to be actively involved in
Dialogue: 0,0:04:16.30,0:04:26.00,Default,,0000,0000,0000,,and I have spent the time since joining
Dialogue: 0,0:04:26.00,0:04:31.60,Default,,0000,0000,0000,,WID building a strategic planning process
Dialogue: 0,0:04:31.60,0:04:42.84,Default,,0000,0000,0000,,and supporting the organization to\Nestablish new priorities,
Dialogue: 0,0:04:42.84,0:04:47.13,Default,,0000,0000,0000,,taking a look at the \Norganization's mission
Dialogue: 0,0:04:47.13,0:04:53.66,Default,,0000,0000,0000,,and very recently establishing\Nfour particular areas of focus
Dialogue: 0,0:04:53.66,0:04:56.84,Default,,0000,0000,0000,,for the organization as we move forward.
Dialogue: 0,0:04:59.47,0:05:01.97,Default,,0000,0000,0000,,Thank you Marcie. Excellent, okay
Dialogue: 0,0:05:01.97,0:05:06.53,Default,,0000,0000,0000,,I apologize that my neighbor is chipping\Na lot of brush today,
Dialogue: 0,0:05:06.53,0:05:09.18,Default,,0000,0000,0000,,so it's making extra sound\Nwhenever I unmute
Dialogue: 0,0:05:09.18,0:05:12.66,Default,,0000,0000,0000,,but don't worry, it won't interfere \Nwith your recording.
Dialogue: 0,0:05:12.66,0:05:15.96,Default,,0000,0000,0000,,Okay, so the first question is\Nabout the past.
Dialogue: 0,0:05:15.96,0:05:18.93,Default,,0000,0000,0000,,So tell of your first memory\Nrealizing that there were
Dialogue: 0,0:05:18.94,0:05:23.08,Default,,0000,0000,0000,,accessibility issues, discrimination, \Nor lack of inclusion.
Dialogue: 0,0:05:23.08,0:05:25.67,Default,,0000,0000,0000,,What is your personal story\Nor connection
Dialogue: 0,0:05:25.67,0:05:28.83,Default,,0000,0000,0000,,to the American's with Disabilities Act?\NWhat do you remember
Dialogue: 0,0:05:28.83,0:05:31.43,Default,,0000,0000,0000,,about the day that it was signed,\Nif applicable?
Dialogue: 0,0:05:31.43,0:05:34.98,Default,,0000,0000,0000,,And what was the impact on\Nyou and on others?
Dialogue: 0,0:05:34.98,0:05:38.63,Default,,0000,0000,0000,,Remember to tap something\Nso that the camera shifts to you
Dialogue: 0,0:05:38.63,0:05:39.92,Default,,0000,0000,0000,,before you start.
Dialogue: 0,0:05:44.65,0:05:55.44,Default,,0000,0000,0000,,I first became aware of disability \Nat a very young age.
Dialogue: 0,0:05:55.44,0:06:02.13,Default,,0000,0000,0000,,I had a best friend in first grade,\Nhis name was Gregory,
Dialogue: 0,0:06:02.13,0:06:09.69,Default,,0000,0000,0000,,and he and I were\Njust wonderful friends.
Dialogue: 0,0:06:09.69,0:06:12.40,Default,,0000,0000,0000,,We spent a lot of time together,
Dialogue: 0,0:06:12.40,0:06:16.56,Default,,0000,0000,0000,,and then all of the sudden\None day, Gregory was gone,
Dialogue: 0,0:06:16.56,0:06:24.16,Default,,0000,0000,0000,,and I didn't know what happened to him \Nor where he went
Dialogue: 0,0:06:24.16,0:06:26.96,Default,,0000,0000,0000,,and it wasn't until many years later
Dialogue: 0,0:06:26.96,0:06:32.59,Default,,0000,0000,0000,,that I found out that Gregory\Nhad Down Syndrome,
Dialogue: 0,0:06:32.59,0:06:36.99,Default,,0000,0000,0000,,and he had been removed\Nfrom my Kindergarten class,
Dialogue: 0,0:06:36.99,0:06:41.19,Default,,0000,0000,0000,,and first grade I think it was\Nat that point,
Dialogue: 0,0:06:41.19,0:06:46.85,Default,,0000,0000,0000,,and apparently he had been sent \Nto some other school somewhere.
Dialogue: 0,0:06:46.85,0:06:58.05,Default,,0000,0000,0000,,And the loss of his friendship\Nwas pretty surprising
Dialogue: 0,0:06:58.05,0:07:03.94,Default,,0000,0000,0000,,and I didn't understand, you know,\Nwhere he went.
Dialogue: 0,0:07:03.94,0:07:09.24,Default,,0000,0000,0000,,Looking back on it, it's kind of peculiar\Nthat we didn't get to still be friends
Dialogue: 0,0:07:09.24,0:07:14.81,Default,,0000,0000,0000,,'cause he didn't move away, he just\Nstopped going to my school.
Dialogue: 0,0:07:15.89,0:07:18.69,Default,,0000,0000,0000,,But, I...
Dialogue: 0,0:07:20.72,0:07:31.65,Default,,0000,0000,0000,,I remember just being confused and then\Nover the next number of years,
Dialogue: 0,0:07:31.65,0:07:40.15,Default,,0000,0000,0000,,I lived in a town that was also\Nthe home of Save the Children,
Dialogue: 0,0:07:40.15,0:07:49.68,Default,,0000,0000,0000,,and I was always very interested in\Nthe work that Save the Children was doing,
Dialogue: 0,0:07:49.68,0:07:56.97,Default,,0000,0000,0000,,and I am embarrassed to admit\Nmy earliest involvement
Dialogue: 0,0:07:56.97,0:08:06.48,Default,,0000,0000,0000,,in humanitarian work was from a, \Nyou know, very charity-model approach,
Dialogue: 0,0:08:06.48,0:08:16.02,Default,,0000,0000,0000,,and I spent a lot of my childhood\Nraising money for Save the Children,
Dialogue: 0,0:08:16.02,0:08:28.15,Default,,0000,0000,0000,,and getting involved in other activities\Nthat were very much following
Dialogue: 0,0:08:28.16,0:08:39.10,Default,,0000,0000,0000,,the charity-pity model and certainly not\Na model of
Dialogue: 0,0:08:39.10,0:08:50.42,Default,,0000,0000,0000,,making space for and supporting and \Nlifting up other people with disabilities.
Dialogue: 0,0:08:50.42,0:08:58.92,Default,,0000,0000,0000,,the onset of my disability wasn't until \Nmany years later,
Dialogue: 0,0:08:58.92,0:09:07.47,Default,,0000,0000,0000,,but when I was in high school,\NI had a requirement to do
Dialogue: 0,0:09:13.39,0:09:15.77,Default,,0000,0000,0000,,I can't even remember \Nwhat it's called now!
Dialogue: 0,0:09:15.77,0:09:18.04,Default,,0000,0000,0000,,Community service! Sorry.
Dialogue: 0,0:09:18.04,0:09:23.39,Default,,0000,0000,0000,,I had an opportunity to do, or I had\Nan obligation to do community service,
Dialogue: 0,0:09:23.39,0:09:30.53,Default,,0000,0000,0000,,and I started off, this was the year\Nof the first Earth day
Dialogue: 0,0:09:30.53,0:09:36.51,Default,,0000,0000,0000,,and I started off crushing glass\Nat the local recycling center,
Dialogue: 0,0:09:36.51,0:09:40.64,Default,,0000,0000,0000,,and it turned out that\Nthat was really boring,
Dialogue: 0,0:09:40.64,0:09:47.68,Default,,0000,0000,0000,,but lots of my classmates were\Nvolunteering
Dialogue: 0,0:09:47.68,0:09:53.42,Default,,0000,0000,0000,,at a state institution\Nfor people with disabilities,
Dialogue: 0,0:09:53.42,0:10:04.20,Default,,0000,0000,0000,,and I joined them once a week and \Nlooking back on it again,
Dialogue: 0,0:10:04.20,0:10:09.14,Default,,0000,0000,0000,,it was pretty shocking that at\N13 years old,
Dialogue: 0,0:10:09.14,0:10:16.80,Default,,0000,0000,0000,,I was assigned as the teacher\Nof a classroom of 30 adults
Dialogue: 0,0:10:16.80,0:10:23.23,Default,,0000,0000,0000,,who had never had the opportunity \Nto attend school, and they now had
Dialogue: 0,0:10:23.23,0:10:27.49,Default,,0000,0000,0000,,a 13 year old teacher once a week.
Dialogue: 0,0:10:27.49,0:10:33.75,Default,,0000,0000,0000,,Needless to say, I learned way more \Nfrom them than they learned from me,
Dialogue: 0,0:10:33.75,0:10:42.32,Default,,0000,0000,0000,,but we had a lot of fun, and many of them\Nbecame friends
Dialogue: 0,0:10:42.32,0:10:48.49,Default,,0000,0000,0000,,very much along the rest of my path.
Dialogue: 0,0:10:48.49,0:10:52.56,Default,,0000,0000,0000,,Unfortunately, some of them are\Nno longer alive,
Dialogue: 0,0:10:52.56,0:10:59.83,Default,,0000,0000,0000,,but there are a couple of people who\Nare still very much a part of my life
Dialogue: 0,0:10:59.83,0:11:06.68,Default,,0000,0000,0000,,and fortunately, they were successful in
Dialogue: 0,0:11:06.68,0:11:11.56,Default,,0000,0000,0000,,liberating themselves from \Nthat state institution.
Dialogue: 0,0:11:11.56,0:11:17.100,Default,,0000,0000,0000,,And so, they and many others \Ntaught me a lot,
Dialogue: 0,0:11:17.100,0:11:26.01,Default,,0000,0000,0000,,but the real pivotal experience for me, \NI was working back at
Dialogue: 0,0:11:26.01,0:11:35.30,Default,,0000,0000,0000,,that state institution, it was my first\Npaid job in disability services,
Dialogue: 0,0:11:35.30,0:11:40.81,Default,,0000,0000,0000,,and I had been hired to work \Nin what was called a "cottage"
Dialogue: 0,0:11:40.81,0:11:45.34,Default,,0000,0000,0000,,for 40 women with\Nintellectual disabilities,
Dialogue: 0,0:11:45.34,0:11:53.78,Default,,0000,0000,0000,,and this "cottage" was on\Nbeautiful grounds,
Dialogue: 0,0:11:53.78,0:11:58.09,Default,,0000,0000,0000,,but the women lived in a building,\N20 on one side, 20 on the other side,
Dialogue: 0,0:11:58.09,0:12:02.50,Default,,0000,0000,0000,,and my responsibilities included
Dialogue: 0,0:12:02.50,0:12:10.06,Default,,0000,0000,0000,,assisting them in bathing and \Ngetting dressed and in eating.
Dialogue: 0,0:12:10.06,0:12:16.74,Default,,0000,0000,0000,,Many of them were unable\Nto feed themselves.
Dialogue: 0,0:12:16.74,0:12:23.21,Default,,0000,0000,0000,,Some because they just had never been\Ngiven the opportunity,
Dialogue: 0,0:12:23.21,0:12:26.06,Default,,0000,0000,0000,,and others because of their \Nphysical disability
Dialogue: 0,0:12:26.06,0:12:40.28,Default,,0000,0000,0000,,and a lack of any sort of\Nadapted utensils or other equipment.
Dialogue: 0,0:12:40.28,0:12:49.27,Default,,0000,0000,0000,,So as I was feeding people, sort of\Nthe routine was the same every day.
Dialogue: 0,0:12:49.27,0:12:52.36,Default,,0000,0000,0000,,The plate would come out,\Nand there would be
Dialogue: 0,0:12:52.36,0:12:55.84,Default,,0000,0000,0000,,3 mounds of food on the plate.
Dialogue: 0,0:12:55.84,0:12:59.75,Default,,0000,0000,0000,,One mound was always brown, \None mound was always green,
Dialogue: 0,0:12:59.75,0:13:02.56,Default,,0000,0000,0000,,and one mound was always white.
Dialogue: 0,0:13:02.56,0:13:10.61,Default,,0000,0000,0000,,You know the meat, the vegetable, \Nand the starch.
Dialogue: 0,0:13:10.61,0:13:21.59,Default,,0000,0000,0000,,And, you know, I know that people like to\Neat their meal different ways.
Dialogue: 0,0:13:23.67,0:13:26.74,Default,,0000,0000,0000,,There would also be a dessert every day,
Dialogue: 0,0:13:26.74,0:13:30.82,Default,,0000,0000,0000,,jello, or ice cream, or\Nsomething again always in a mound.
Dialogue: 0,0:13:30.82,0:13:38.61,Default,,0000,0000,0000,,And so I would spend time with each of the
Dialogue: 0,0:13:38.61,0:13:42.81,Default,,0000,0000,0000,,individuals who were having their meal
Dialogue: 0,0:13:42.81,0:13:47.69,Default,,0000,0000,0000,,and would sort of be working together,
Dialogue: 0,0:13:47.69,0:13:50.79,Default,,0000,0000,0000,,trying to figure out \Ndid they prefer to have
Dialogue: 0,0:13:50.79,0:13:55.06,Default,,0000,0000,0000,,to eat their dessert first?
Dialogue: 0,0:13:55.06,0:13:57.59,Default,,0000,0000,0000,,Some people liked to do that.
Dialogue: 0,0:13:57.59,0:13:58.59,Default,,0000,0000,0000,,Did they prefer
Dialogue: 0,0:13:58.59,0:14:01.05,Default,,0000,0000,0000,,a little bit of the brown and a little bit
Dialogue: 0,0:14:01.05,0:14:03.88,Default,,0000,0000,0000,,of the white all on the same fork?
Dialogue: 0,0:14:03.88,0:14:06.28,Default,,0000,0000,0000,,Did they not want their food touching?
Dialogue: 0,0:14:06.28,0:14:09.58,Default,,0000,0000,0000,,You know and I would sort of \Nwork back and forth
Dialogue: 0,0:14:09.58,0:14:12.07,Default,,0000,0000,0000,,with them to try and figure out what
Dialogue: 0,0:14:12.07,0:14:16.38,Default,,0000,0000,0000,,their preference was and I got in trouble
Dialogue: 0,0:14:16.38,0:14:19.61,Default,,0000,0000,0000,,because I was spending too much time
Dialogue: 0,0:14:19.61,0:14:26.25,Default,,0000,0000,0000,,and ultimately, I was moved to a different
Dialogue: 0,0:14:26.25,0:14:30.93,Default,,0000,0000,0000,,position because I was taking too much
Dialogue: 0,0:14:30.93,0:14:34.93,Default,,0000,0000,0000,,time giving people an opportunity to make
Dialogue: 0,0:14:34.93,0:14:38.84,Default,,0000,0000,0000,,some choices and express some preferences.
Dialogue: 0,0:14:38.84,0:14:43.77,Default,,0000,0000,0000,,So that was extremely pivotal and in
Dialogue: 0,0:14:43.77,0:14:48.22,Default,,0000,0000,0000,,many ways you know, those early early
Dialogue: 0,0:14:48.22,0:14:55.27,Default,,0000,0000,0000,,experiences have really totally driven
Dialogue: 0,0:14:55.27,0:15:00.68,Default,,0000,0000,0000,,who I am and what I believe \Nall these years later.
Dialogue: 0,0:15:00.68,0:15:06.20,Default,,0000,0000,0000,,In terms of the \NAmericans with Disabilities Act,
Dialogue: 0,0:15:06.20,0:15:12.20,Default,,0000,0000,0000,,I had a very close personal experience
Dialogue: 0,0:15:12.20,0:15:14.86,Default,,0000,0000,0000,,with what was then called
Dialogue: 0,0:15:14.86,0:15:20.70,Default,,0000,0000,0000,,"public law 94142" the Education of
Dialogue: 0,0:15:20.70,0:15:25.66,Default,,0000,0000,0000,,All Handicapped Act, later on renamed
Dialogue: 0,0:15:25.66,0:15:29.59,Default,,0000,0000,0000,,the Individuals with Disabilities Act,\NIDEA
Dialogue: 0,0:15:29.59,0:15:33.37,Default,,0000,0000,0000,,and I had a very personal family
Dialogue: 0,0:15:33.37,0:15:39.36,Default,,0000,0000,0000,,experience with IDEA and became aware of
Dialogue: 0,0:15:39.36,0:15:45.97,Default,,0000,0000,0000,,legislative initiatives and how the IDEA
Dialogue: 0,0:15:45.97,0:15:52.58,Default,,0000,0000,0000,,had just been passed. And then I started
Dialogue: 0,0:15:52.58,0:15:58.29,Default,,0000,0000,0000,,to become more aware of the work being
Dialogue: 0,0:15:58.29,0:16:02.35,Default,,0000,0000,0000,,done. And this was back in the 70s
Dialogue: 0,0:16:02.35,0:16:06.55,Default,,0000,0000,0000,,work being done on some other legislative
Dialogue: 0,0:16:06.55,0:16:12.36,Default,,0000,0000,0000,,initiatives, the 504, the passage of
Dialogue: 0,0:16:12.36,0:16:17.01,Default,,0000,0000,0000,,the Rehabilitation Act, followed by the
Dialogue: 0,0:16:17.01,0:16:24.96,Default,,0000,0000,0000,,504 sit-in in San Francisco to get the
Dialogue: 0,0:16:24.96,0:16:31.27,Default,,0000,0000,0000,,regulations put in place. That really
Dialogue: 0,0:16:31.27,0:16:37.50,Default,,0000,0000,0000,,caught my attention and between the little
Dialogue: 0,0:16:37.50,0:16:41.37,Default,,0000,0000,0000,,bits of information I was getting there
Dialogue: 0,0:16:41.37,0:16:46.82,Default,,0000,0000,0000,,and the work I was doing
Dialogue: 0,0:16:46.82,0:16:51.12,Default,,0000,0000,0000,,and then becoming a full-time advocate
Dialogue: 0,0:16:51.12,0:16:55.20,Default,,0000,0000,0000,,going to work for an\Nindependent living center
Dialogue: 0,0:16:55.20,0:17:00.48,Default,,0000,0000,0000,,in 1982, I then became extremely involved
Dialogue: 0,0:17:00.48,0:17:10.11,Default,,0000,0000,0000,,in systems change and how to develop
Dialogue: 0,0:17:10.11,0:17:14.26,Default,,0000,0000,0000,,policy, how to organize, how to support
Dialogue: 0,0:17:14.26,0:17:20.32,Default,,0000,0000,0000,,the rights and voices and preferences of
Dialogue: 0,0:17:20.32,0:17:25.13,Default,,0000,0000,0000,,other people and because I lived in
Dialogue: 0,0:17:25.13,0:17:32.30,Default,,0000,0000,0000,,Connecticut and the original author of
Dialogue: 0,0:17:32.30,0:17:34.46,Default,,0000,0000,0000,,the Americans with Disability Act,
Dialogue: 0,0:17:34.46,0:17:37.37,Default,,0000,0000,0000,,the first time the bill was introduced was
Dialogue: 0,0:17:37.37,0:17:42.07,Default,,0000,0000,0000,,Senator Weicker of Connecticut, and
Dialogue: 0,0:17:42.07,0:17:48.57,Default,,0000,0000,0000,,Senator Weicker, father of a\Ngreat young man
Dialogue: 0,0:17:48.57,0:17:52.41,Default,,0000,0000,0000,,who had Down Syndrome.
Dialogue: 0,0:17:52.41,0:17:59.32,Default,,0000,0000,0000,,Senator Weicker was very involved with the
Dialogue: 0,0:17:59.32,0:18:03.36,Default,,0000,0000,0000,,disability advocacy community in
Dialogue: 0,0:18:03.36,0:18:08.50,Default,,0000,0000,0000,,Connecticut, and I then had the incredible
Dialogue: 0,0:18:08.50,0:18:13.85,Default,,0000,0000,0000,,opportunity to go to Boston and testify
Dialogue: 0,0:18:13.85,0:18:21.99,Default,,0000,0000,0000,,at one of the Congress major hearings--
Dialogue: 0,0:18:21.99,0:18:24.53,Default,,0000,0000,0000,,field hearings on the Americans with
Dialogue: 0,0:18:24.53,0:18:27.65,Default,,0000,0000,0000,,Disability Act. So you know of course that
Dialogue: 0,0:18:27.65,0:18:31.98,Default,,0000,0000,0000,,first time around, the bill didn't pass
Dialogue: 0,0:18:31.98,0:18:37.07,Default,,0000,0000,0000,,but boy oh boy were we revved up
Dialogue: 0,0:18:37.07,0:18:46.91,Default,,0000,0000,0000,,and in the passage of the ADA, \Nin the period in which
Dialogue: 0,0:18:46.91,0:18:50.77,Default,,0000,0000,0000,,once the bill was re-introduced and votes
Dialogue: 0,0:18:50.77,0:18:55.28,Default,,0000,0000,0000,,were organizing, I remember that we had
Dialogue: 0,0:18:55.28,0:19:00.75,Default,,0000,0000,0000,,stacks and stacks and stacks of bright
Dialogue: 0,0:19:00.75,0:19:05.47,Default,,0000,0000,0000,,pink postcards and we were organizing
Dialogue: 0,0:19:05.47,0:19:12.52,Default,,0000,0000,0000,,folks across the state to develop,
Dialogue: 0,0:19:12.52,0:19:16.89,Default,,0000,0000,0000,,to sign those postcards supporting the
Dialogue: 0,0:19:16.89,0:19:26.49,Default,,0000,0000,0000,,passage of the ADA and then you know this
Dialogue: 0,0:19:26.49,0:19:30.36,Default,,0000,0000,0000,,was sort of a wonderful but maybe a little
Dialogue: 0,0:19:30.36,0:19:36.03,Default,,0000,0000,0000,,bit misleading experience,\Nwe actually were
Dialogue: 0,0:19:36.03,0:19:39.06,Default,,0000,0000,0000,,successful. The bill got passed! And I
Dialogue: 0,0:19:39.06,0:19:43.67,Default,,0000,0000,0000,,remember thinking, \N"Oh, well this wasn't that hard
Dialogue: 0,0:19:43.67,0:19:46.22,Default,,0000,0000,0000,,I mean, you know, \Nwe had to go at it twice
Dialogue: 0,0:19:46.22,0:19:48.61,Default,,0000,0000,0000,,but well this wasn't so hard.
Dialogue: 0,0:19:48.61,0:19:51.08,Default,,0000,0000,0000,,Let's take on some more legislation!"
Dialogue: 0,0:19:51.08,0:19:56.06,Default,,0000,0000,0000,,So it turns out that it wasn't as easy
Dialogue: 0,0:19:56.06,0:19:58.71,Default,,0000,0000,0000,,as it looked to me. It wasn't just about
Dialogue: 0,0:19:58.71,0:20:03.48,Default,,0000,0000,0000,,hot pink postcards and meetings and
Dialogue: 0,0:20:03.48,0:20:09.22,Default,,0000,0000,0000,,marches. That all helped but even that
Dialogue: 0,0:20:09.22,0:20:14.47,Default,,0000,0000,0000,,sometimes these days, it doesn't seem to
Dialogue: 0,0:20:14.47,0:20:18.75,Default,,0000,0000,0000,,be enough to change policy.
Dialogue: 0,0:20:18.75,0:20:27.90,Default,,0000,0000,0000,,So that's my earliest journey to 1990.
Dialogue: 0,0:20:30.52,0:20:33.12,Default,,0000,0000,0000,,Thank you Marcie. Okay we're going to the
Dialogue: 0,0:20:33.12,0:20:37.32,Default,,0000,0000,0000,,present now. So just so you know, I do
Dialogue: 0,0:20:37.32,0:20:41.02,Default,,0000,0000,0000,,have another interview at 2:00, so we're
Dialogue: 0,0:20:41.02,0:20:44.48,Default,,0000,0000,0000,,going to have 3 more sections: the present
Dialogue: 0,0:20:44.48,0:20:46.49,Default,,0000,0000,0000,,the future, and the call to action.
Dialogue: 0,0:20:46.49,0:20:50.20,Default,,0000,0000,0000,,So just to pace yourself within those.\N--thank you
Dialogue: 0,0:20:50.20,0:20:53.13,Default,,0000,0000,0000,,OK so the present, has the ADA
Dialogue: 0,0:20:53.13,0:20:55.16,Default,,0000,0000,0000,,made a difference? Tell us about your
Dialogue: 0,0:20:55.16,0:20:57.78,Default,,0000,0000,0000,,"aha" moment that told you that the ADA is
Dialogue: 0,0:20:57.78,0:20:59.75,Default,,0000,0000,0000,,or is not making a difference and to what
Dialogue: 0,0:20:59.75,0:21:02.92,Default,,0000,0000,0000,,extent based on your passions and areas of
Dialogue: 0,0:21:02.92,0:21:05.58,Default,,0000,0000,0000,,expertise, where do you see or not see the
Dialogue: 0,0:21:05.58,0:21:08.43,Default,,0000,0000,0000,,impact of the ADA?
Dialogue: 0,0:21:08.43,0:21:15.25,Default,,0000,0000,0000,,So the ADA has had a huge
Dialogue: 0,0:21:15.25,0:21:18.10,Default,,0000,0000,0000,,and sweeping impact
Dialogue: 0,0:21:18.10,0:21:23.16,Default,,0000,0000,0000,,and it's important for me
Dialogue: 0,0:21:23.16,0:21:26.58,Default,,0000,0000,0000,,to begin as I talk
Dialogue: 0,0:21:26.58,0:21:30.53,Default,,0000,0000,0000,,about the present day as we're embarking
Dialogue: 0,0:21:30.53,0:21:35.40,Default,,0000,0000,0000,,on ADA 30 it's really important to start
Dialogue: 0,0:21:35.40,0:21:39.86,Default,,0000,0000,0000,,with how much things absolutely have
Dialogue: 0,0:21:39.86,0:21:47.40,Default,,0000,0000,0000,,changed, you know so certainly some of the
Dialogue: 0,0:21:47.40,0:21:50.65,Default,,0000,0000,0000,,architectural barrier removal efforts,
Dialogue: 0,0:21:50.65,0:21:54.86,Default,,0000,0000,0000,,some of the significant improvements
Dialogue: 0,0:21:54.86,0:22:00.54,Default,,0000,0000,0000,,in equally effective communication,
Dialogue: 0,0:22:00.54,0:22:04.90,Default,,0000,0000,0000,,some of the requirements around programs,
Dialogue: 0,0:22:04.90,0:22:13.25,Default,,0000,0000,0000,,you know, all of those have \Nsignificantly changed
Dialogue: 0,0:22:13.25,0:22:18.48,Default,,0000,0000,0000,,most--- can't even say most \Nof the time--often
Dialogue: 0,0:22:18.48,0:22:22.30,Default,,0000,0000,0000,,there have been many \Nreally great initiatives over
Dialogue: 0,0:22:22.30,0:22:30.87,Default,,0000,0000,0000,,the years but we've always had to maintain
Dialogue: 0,0:22:30.87,0:22:37.59,Default,,0000,0000,0000,,a relentless battle to not
Dialogue: 0,0:22:37.59,0:22:41.74,Default,,0000,0000,0000,,let anything slip, to not lose
Dialogue: 0,0:22:41.74,0:22:48.50,Default,,0000,0000,0000,,any sort of momentum\Ntowards accessibility.
Dialogue: 0,0:22:48.50,0:22:53.88,Default,,0000,0000,0000,,If we look away for a minute,
Dialogue: 0,0:22:53.88,0:22:57.92,Default,,0000,0000,0000,,our rights will be swept away from us.
Dialogue: 0,0:22:57.92,0:23:01.64,Default,,0000,0000,0000,,And I can certainly talk about
Dialogue: 0,0:23:01.64,0:23:04.04,Default,,0000,0000,0000,,the very present day,
Dialogue: 0,0:23:04.04,0:23:10.70,Default,,0000,0000,0000,,and what I have to say about where
Dialogue: 0,0:23:10.70,0:23:16.97,Default,,0000,0000,0000,,we are today, is not great
Dialogue: 0,0:23:16.97,0:23:20.46,Default,,0000,0000,0000,,and so I do want to take \Na little more time
Dialogue: 0,0:23:20.46,0:23:27.92,Default,,0000,0000,0000,,to call out the significant progress
Dialogue: 0,0:23:27.92,0:23:36.71,Default,,0000,0000,0000,,in so many aspects of daily life
Dialogue: 0,0:23:36.71,0:23:41.10,Default,,0000,0000,0000,,in which we can
Dialogue: 0,0:23:41.10,0:23:50.73,Default,,0000,0000,0000,,call out failures of ADA compliance,
Dialogue: 0,0:23:50.73,0:23:59.46,Default,,0000,0000,0000,,enforcement of the law,\Nbut it is often times
Dialogue: 0,0:23:59.46,0:24:04.10,Default,,0000,0000,0000,,in comparison to the examples of where
Dialogue: 0,0:24:04.10,0:24:07.11,Default,,0000,0000,0000,,it's working, so when transportation
Dialogue: 0,0:24:07.11,0:24:13.53,Default,,0000,0000,0000,,is not accessible, we're calling it out
Dialogue: 0,0:24:13.53,0:24:19.85,Default,,0000,0000,0000,,because we know the good and
Dialogue: 0,0:24:19.85,0:24:23.62,Default,,0000,0000,0000,,promising practices that\Nhave been in place
Dialogue: 0,0:24:23.62,0:24:28.58,Default,,0000,0000,0000,,for transportation accessibility
Dialogue: 0,0:24:28.58,0:24:34.62,Default,,0000,0000,0000,,make the failures so much more egregious
Dialogue: 0,0:24:34.62,0:24:42.78,Default,,0000,0000,0000,,in housing, in employment, in the kinds of
Dialogue: 0,0:24:42.78,0:24:48.79,Default,,0000,0000,0000,,assistive devices that are available,
Dialogue: 0,0:24:48.79,0:24:55.85,Default,,0000,0000,0000,,the universal design of places and things
Dialogue: 0,0:24:55.85,0:25:09.30,Default,,0000,0000,0000,,all of that points to the \Nexamples of where we
Dialogue: 0,0:25:09.30,0:25:13.36,Default,,0000,0000,0000,,are getting it right and in stark contrast
Dialogue: 0,0:25:13.36,0:25:19.33,Default,,0000,0000,0000,,the areas where we are \Negregiously getting it wrong.
Dialogue: 0,0:25:19.33,0:25:30.80,Default,,0000,0000,0000,,And I have to say that \Njust very recently,
Dialogue: 0,0:25:30.80,0:25:38.29,Default,,0000,0000,0000,,I have led my \Norganization's involvement
Dialogue: 0,0:25:38.29,0:25:46.16,Default,,0000,0000,0000,,in a petition to the US Department of\NHealth and Human Services
Dialogue: 0,0:25:46.16,0:25:50.64,Default,,0000,0000,0000,,demanding that people with disabilities
Dialogue: 0,0:25:50.64,0:25:58.21,Default,,0000,0000,0000,,be immediately relocated out of\Nnursing homes and other
Dialogue: 0,0:25:58.21,0:26:07.79,Default,,0000,0000,0000,,Congregate settings due to the \Nhorrific circumstances
Dialogue: 0,0:26:07.79,0:26:10.96,Default,,0000,0000,0000,,in those congregate settings
Dialogue: 0,0:26:10.96,0:26:16.05,Default,,0000,0000,0000,,due to covid-19 and the failure
Dialogue: 0,0:26:16.05,0:26:23.29,Default,,0000,0000,0000,,to provide appropriate protections
Dialogue: 0,0:26:23.29,0:26:30.39,Default,,0000,0000,0000,,for people with disabilities\Nin institutional settings.
Dialogue: 0,0:26:30.39,0:26:36.46,Default,,0000,0000,0000,,The ADA back in 1990
Dialogue: 0,0:26:36.46,0:26:42.93,Default,,0000,0000,0000,,very clearly gave people with disabilities
Dialogue: 0,0:26:42.93,0:26:48.02,Default,,0000,0000,0000,,significant rights, and...
Dialogue: 0,0:26:51.34,0:27:06.48,Default,,0000,0000,0000,,even when challenged in 1999,\Nthe Olmstead case,
Dialogue: 0,0:27:06.48,0:27:14.25,Default,,0000,0000,0000,,which was a Georgia case, and two women
Dialogue: 0,0:27:14.25,0:27:19.11,Default,,0000,0000,0000,,who.. Lois and Elaine, Lois Curtiss
Dialogue: 0,0:27:19.11,0:27:20.91,Default,,0000,0000,0000,,an incredible woman I've had the
Dialogue: 0,0:27:20.91,0:27:24.97,Default,,0000,0000,0000,,pleasure of being with on a number
Dialogue: 0,0:27:24.97,0:27:30.51,Default,,0000,0000,0000,,of occasions, the two of them
Dialogue: 0,0:27:30.51,0:27:35.97,Default,,0000,0000,0000,,demanded that they had a right to live in
Dialogue: 0,0:27:35.97,0:27:39.59,Default,,0000,0000,0000,,the most integrated setting appropriate \Nto their needs
Dialogue: 0,0:27:39.59,0:27:45.41,Default,,0000,0000,0000,,and the decision, the case went
Dialogue: 0,0:27:45.41,0:27:47.78,Default,,0000,0000,0000,,all the way to the Supreme Court
Dialogue: 0,0:27:47.78,0:27:54.53,Default,,0000,0000,0000,,and I was among those who
Dialogue: 0,0:27:54.53,0:27:58.63,Default,,0000,0000,0000,,slept out on the steps of the \NSupreme Court
Dialogue: 0,0:27:58.63,0:28:02.47,Default,,0000,0000,0000,,on the night before their case was heard
Dialogue: 0,0:28:02.47,0:28:04.08,Default,,0000,0000,0000,,and I was among
Dialogue: 0,0:28:04.08,0:28:07.83,Default,,0000,0000,0000,,the folks who celebrated out in front of
Dialogue: 0,0:28:07.83,0:28:12.03,Default,,0000,0000,0000,,the Supreme Court on the day that \Nthat decision came
Dialogue: 0,0:28:12.03,0:28:15.76,Default,,0000,0000,0000,,down in favor of Lois and Elaine's right,
Dialogue: 0,0:28:15.76,0:28:20.03,Default,,0000,0000,0000,,and the rights of thousands, \Ntens of thousands,
Dialogue: 0,0:28:20.03,0:28:24.03,Default,,0000,0000,0000,,millions of people with disabilities
Dialogue: 0,0:28:24.03,0:28:29.24,Default,,0000,0000,0000,,to live in the most integrated setting
Dialogue: 0,0:28:29.24,0:28:31.38,Default,,0000,0000,0000,,appropriate to their needs.
Dialogue: 0,0:28:32.48,0:28:36.99,Default,,0000,0000,0000,,Given that we are 21 years \Nafter that decision,
Dialogue: 0,0:28:36.99,0:28:43.08,Default,,0000,0000,0000,,yesterday the American Civil \NLiberties Union
Dialogue: 0,0:28:43.08,0:28:47.61,Default,,0000,0000,0000,,submitted a petition, \Nand the World Institute
Dialogue: 0,0:28:47.61,0:28:50.46,Default,,0000,0000,0000,,on Disability joined a number of other
Dialogue: 0,0:28:50.46,0:28:56.86,Default,,0000,0000,0000,,disability organizations in \Nbringing that petition
Dialogue: 0,0:28:56.86,0:29:01.48,Default,,0000,0000,0000,,demanding that people with disabilities
Dialogue: 0,0:29:01.48,0:29:05.24,Default,,0000,0000,0000,,be immediately relocated
Dialogue: 0,0:29:05.24,0:29:09.03,Default,,0000,0000,0000,,out of these congregate settings.
Dialogue: 0,0:29:09.03,0:29:15.46,Default,,0000,0000,0000,,Tens of thousands of people have died in
Dialogue: 0,0:29:15.46,0:29:20.05,Default,,0000,0000,0000,,the last hundred days, the genocide
Dialogue: 0,0:29:20.05,0:29:23.66,Default,,0000,0000,0000,,of people with disabilities because of
Dialogue: 0,0:29:23.66,0:29:28.40,Default,,0000,0000,0000,,the failures of implementation of that
Dialogue: 0,0:29:28.40,0:29:33.95,Default,,0000,0000,0000,,Olmstead decision, and the failures of our
Dialogue: 0,0:29:33.95,0:29:39.86,Default,,0000,0000,0000,,government to provide the kind of supports
Dialogue: 0,0:29:39.86,0:29:42.49,Default,,0000,0000,0000,,and services that enable
Dialogue: 0,0:29:42.49,0:29:44.50,Default,,0000,0000,0000,,people with disabilities
Dialogue: 0,0:29:44.50,0:29:49.01,Default,,0000,0000,0000,,to live safely and with the support they
Dialogue: 0,0:29:49.01,0:29:50.86,Default,,0000,0000,0000,,need in place in the community
Dialogue: 0,0:29:50.86,0:30:01.05,Default,,0000,0000,0000,,and, very infuriatingly our continued
Dialogue: 0,0:30:01.05,0:30:05.20,Default,,0000,0000,0000,,persistent calls for
Dialogue: 0,0:30:05.20,0:30:09.10,Default,,0000,0000,0000,,people with disabilities to be
Dialogue: 0,0:30:09.10,0:30:13.14,Default,,0000,0000,0000,,adequately served in these..
Dialogue: 0,0:30:14.11,0:30:17.86,Default,,0000,0000,0000,,in disasters have been ignored,
Dialogue: 0,0:30:17.86,0:30:23.47,Default,,0000,0000,0000,,and the bottom line has been \Nthat again over the
Dialogue: 0,0:30:23.47,0:30:28.61,Default,,0000,0000,0000,,last hundred days tens of \Nthousands of people with
Dialogue: 0,0:30:28.61,0:30:31.28,Default,,0000,0000,0000,,disabilities have died. And when I was
Dialogue: 0,0:30:31.28,0:30:35.56,Default,,0000,0000,0000,,called on, saying that those were
Dialogue: 0,0:30:35.56,0:30:38.10,Default,,0000,0000,0000,,people with disabilities, I have had
Dialogue: 0,0:30:38.10,0:30:41.36,Default,,0000,0000,0000,,conversations with a number of senior
Dialogue: 0,0:30:41.36,0:30:45.00,Default,,0000,0000,0000,,government officials who, like, why are
Dialogue: 0,0:30:45.00,0:30:48.12,Default,,0000,0000,0000,,you saying people with disabilities?
Dialogue: 0,0:30:50.07,0:30:54.07,Default,,0000,0000,0000,,and you know, these were old people with
Dialogue: 0,0:30:54.09,0:30:58.09,Default,,0000,0000,0000,,underlying conditions living\Nin nursing homes
Dialogue: 0,0:30:58.09,0:31:01.96,Default,,0000,0000,0000,,and in long term care facilities.
Dialogue: 0,0:31:01.96,0:31:04.29,Default,,0000,0000,0000,,Well you don't go to a nursing home
Dialogue: 0,0:31:04.29,0:31:06.90,Default,,0000,0000,0000,,because you're old, you go to a nursing
Dialogue: 0,0:31:06.90,0:31:09.77,Default,,0000,0000,0000,,home because you have a disability and the
Dialogue: 0,0:31:09.77,0:31:12.29,Default,,0000,0000,0000,,supports and services you need to stay in
Dialogue: 0,0:31:12.29,0:31:14.88,Default,,0000,0000,0000,,the community have not been given to you.
Dialogue: 0,0:31:14.88,0:31:22.03,Default,,0000,0000,0000,,And the vast majority, \Nsome would say, all of
Dialogue: 0,0:31:22.03,0:31:25.77,Default,,0000,0000,0000,,those deaths in congregate facilities are
Dialogue: 0,0:31:25.77,0:31:29.04,Default,,0000,0000,0000,,people with disabilities, most of them
Dialogue: 0,0:31:29.06,0:31:34.78,Default,,0000,0000,0000,,black and brown and people living in
Dialogue: 0,0:31:34.78,0:31:41.41,Default,,0000,0000,0000,,poverty. And the failures of Americans
Dialogue: 0,0:31:41.41,0:31:44.32,Default,,0000,0000,0000,,with Disabilities Act, the Olmstead
Dialogue: 0,0:31:44.32,0:31:48.36,Default,,0000,0000,0000,,decision, and our government's
Dialogue: 0,0:31:48.36,0:31:54.28,Default,,0000,0000,0000,,will to monitor and enforce this law
Dialogue: 0,0:31:54.28,0:31:58.29,Default,,0000,0000,0000,,and the Rehabilitation Act have a
Dialogue: 0,0:31:59.33,0:32:03.46,Default,,0000,0000,0000,,devastating impact on where we are today.
Dialogue: 0,0:32:03.46,0:32:07.50,Default,,0000,0000,0000,,And the death of many of our siblings.
Dialogue: 0,0:32:07.50,0:32:11.53,Default,,0000,0000,0000,,Without any end in sight.
Dialogue: 0,0:32:12.78,0:32:17.87,Default,,0000,0000,0000,,Thank you Marcie, Ok. So next on \Nto the future.
Dialogue: 0,0:32:17.87,0:32:20.10,Default,,0000,0000,0000,,With the work you've been doing,
Dialogue: 0,0:32:20.10,0:32:23.19,Default,,0000,0000,0000,,you've seen a lot of terms \Nin progress and barriers.
Dialogue: 0,0:32:23.19,0:32:25.49,Default,,0000,0000,0000,,If you could pick one thing\Nto change
Dialogue: 0,0:32:25.49,0:32:28.64,Default,,0000,0000,0000,,or that needs to occur to have\Naccess and equality
Dialogue: 0,0:32:28.64,0:32:30.26,Default,,0000,0000,0000,,--I know that's hard--
Dialogue: 0,0:32:30.26,0:32:34.64,Default,,0000,0000,0000,,one thing to have access and equality\Npresent in the lives of people
Dialogue: 0,0:32:34.64,0:32:38.76,Default,,0000,0000,0000,,with disabilities what would that be?
Dialogue: 0,0:32:38.76,0:32:44.10,Default,,0000,0000,0000,,The one thing that must happen:
Dialogue: 0,0:32:46.78,0:32:52.91,Default,,0000,0000,0000,,people with disabilities have \Ncivil rights protections by law,
Dialogue: 0,0:32:53.93,0:32:57.88,Default,,0000,0000,0000,,and the one thing that\Nmust happen
Dialogue: 0,0:32:57.88,0:33:03.38,Default,,0000,0000,0000,,is that their rights are monitored
Dialogue: 0,0:33:03.38,0:33:08.39,Default,,0000,0000,0000,,and enforced without exception.
Dialogue: 0,0:33:10.63,0:33:15.79,Default,,0000,0000,0000,,Following the law is not enough, \Nwe need universal
Dialogue: 0,0:33:15.79,0:33:20.13,Default,,0000,0000,0000,,design to be the standard, we need
Dialogue: 0,0:33:20.13,0:33:27.05,Default,,0000,0000,0000,,accessibility and accommodation\Nto be readily available,
Dialogue: 0,0:33:27.05,0:33:31.24,Default,,0000,0000,0000,,but we must have
Dialogue: 0,0:33:31.24,0:33:34.48,Default,,0000,0000,0000,,monitoring and enforcement.
Dialogue: 0,0:33:34.48,0:33:38.79,Default,,0000,0000,0000,,Every federal dollar is supposed \Nto be spent in
Dialogue: 0,0:33:38.79,0:33:41.89,Default,,0000,0000,0000,,compliance with the Rehabilitation Act.
Dialogue: 0,0:33:41.89,0:33:47.49,Default,,0000,0000,0000,,And between what the Rehab Act and \Nthe ADA require
Dialogue: 0,0:33:47.49,0:33:57.08,Default,,0000,0000,0000,,there should be, no rue for\Npeople with civil rights protections
Dialogue: 0,0:33:57.08,0:34:00.98,Default,,0000,0000,0000,,to be repeatedly denied
Dialogue: 0,0:34:00.98,0:34:06.97,Default,,0000,0000,0000,,and unable to fully participate
Dialogue: 0,0:34:06.97,0:34:11.11,Default,,0000,0000,0000,,in home and community life.
Dialogue: 0,0:34:13.06,0:34:21.43,Default,,0000,0000,0000,,Monitoring and enforcement \Nmust be the floor
Dialogue: 0,0:34:21.43,0:34:28.03,Default,,0000,0000,0000,,I have a ceiling, but enforcing\Nthese civil rights laws
Dialogue: 0,0:34:28.03,0:34:31.68,Default,,0000,0000,0000,,is absolutely the floor.
Dialogue: 0,0:34:31.68,0:34:33.97,Default,,0000,0000,0000,,Thank you. So what can we do?
Dialogue: 0,0:34:33.97,0:34:37.53,Default,,0000,0000,0000,,What steps can we as community members\Ntake right now?
Dialogue: 0,0:34:38.78,0:34:44.89,Default,,0000,0000,0000,,So what we can do right now is,\Nyou know,
Dialogue: 0,0:34:44.89,0:34:48.97,Default,,0000,0000,0000,,one of my favorite sayings,\N"never give up, never give in."
Dialogue: 0,0:34:48.97,0:34:53.04,Default,,0000,0000,0000,,Another of my favorites, \N"nothing about us without us."
Dialogue: 0,0:34:54.18,0:35:02.01,Default,,0000,0000,0000,,We as disability community leaders\Nneed to stick together,
Dialogue: 0,0:35:02.01,0:35:10.42,Default,,0000,0000,0000,,we need to center our work\Naround people
Dialogue: 0,0:35:10.42,0:35:14.79,Default,,0000,0000,0000,,who are multiply marginalized, excluded.
Dialogue: 0,0:35:16.23,0:35:21.50,Default,,0000,0000,0000,,We need to be sure that we are not wasting
Dialogue: 0,0:35:21.50,0:35:28.78,Default,,0000,0000,0000,,our time with infighting, and with
Dialogue: 0,0:35:28.78,0:35:36.27,Default,,0000,0000,0000,,a kind of divisive childish behavior that
Dialogue: 0,0:35:36.27,0:35:39.93,Default,,0000,0000,0000,,some folks are still stuck on engaging in,
Dialogue: 0,0:35:39.93,0:35:46.18,Default,,0000,0000,0000,,we absolutely must reach a hand forward,
Dialogue: 0,0:35:46.18,0:35:50.22,Default,,0000,0000,0000,,reach a hand back, stick together
Dialogue: 0,0:35:50.22,0:35:56.10,Default,,0000,0000,0000,,and continue relentlessly
Dialogue: 0,0:35:57.84,0:36:11.88,Default,,0000,0000,0000,,to work towards the realization \Nof the goal
Dialogue: 0,0:36:11.88,0:36:16.70,Default,,0000,0000,0000,,that the ADA was written around and so
Dialogue: 0,0:36:16.70,0:36:22.24,Default,,0000,0000,0000,,many of our siblings have fought so very
Dialogue: 0,0:36:22.24,0:36:27.97,Default,,0000,0000,0000,,hard for. We've lost a bunch of those
Dialogue: 0,0:36:27.97,0:36:37.40,Default,,0000,0000,0000,,hardworking visionary leaders; \Nmany of them
Dialogue: 0,0:36:37.40,0:36:42.65,Default,,0000,0000,0000,,have been lost in recent years, \Nsome of them
Dialogue: 0,0:36:42.65,0:36:49.54,Default,,0000,0000,0000,,have been lost along the way, we have an
Dialogue: 0,0:36:49.54,0:36:55.50,Default,,0000,0000,0000,,incredible legacy to care for, we have
Dialogue: 0,0:36:55.50,0:36:59.70,Default,,0000,0000,0000,,huge opportunities to work towards,
Dialogue: 0,0:36:59.70,0:37:03.93,Default,,0000,0000,0000,,technology has the potential for leveling
Dialogue: 0,0:37:03.93,0:37:07.22,Default,,0000,0000,0000,,the playing field if in fact people have
Dialogue: 0,0:37:07.22,0:37:11.98,Default,,0000,0000,0000,,real access and the World Institute on
Dialogue: 0,0:37:11.98,0:37:15.95,Default,,0000,0000,0000,,Disability and our commitment to
Dialogue: 0,0:37:15.95,0:37:19.41,Default,,0000,0000,0000,,work in partnership with other
Dialogue: 0,0:37:19.41,0:37:22.47,Default,,0000,0000,0000,,disability lead organizations and
Dialogue: 0,0:37:22.47,0:37:28.87,Default,,0000,0000,0000,,our allies to make communities
Dialogue: 0,0:37:28.87,0:37:32.62,Default,,0000,0000,0000,,stronger, more resilient for the whole
Dialogue: 0,0:37:32.62,0:37:36.36,Default,,0000,0000,0000,,community because when we get it right
Dialogue: 0,0:37:36.36,0:37:39.99,Default,,0000,0000,0000,,for people with disabilities, I think
Dialogue: 0,0:37:39.99,0:37:44.13,Default,,0000,0000,0000,,the whole community not only benefits
Dialogue: 0,0:37:44.13,0:37:50.24,Default,,0000,0000,0000,,but is stronger for our leadership,
Dialogue: 0,0:37:50.36,0:37:59.13,Default,,0000,0000,0000,,our contributions, our expertise in
Dialogue: 0,0:37:59.13,0:38:04.83,Default,,0000,0000,0000,,what it takes to make daily life \Nwork for everybody.
Dialogue: 0,0:38:07.81,0:38:09.96,Default,,0000,0000,0000,,Excellent, thank you.