[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.00,0:00:02.40,Default,,0000,0000,0000,,I know exactly what you're saying when you
Dialogue: 0,0:00:02.55,0:00:04.90,Default,,0000,0000,0000,,say like when you're sitting at home writing
Dialogue: 0,0:00:04.90,0:00:06.95,Default,,0000,0000,0000,,you're not like, I'm deaf, I'm deaf
Dialogue: 0,0:00:06.95,0:00:07.87,Default,,0000,0000,0000,,I'm deaf, I say the same for me
Dialogue: 0,0:00:07.87,0:00:08.78,Default,,0000,0000,0000,,like when I'm
Dialogue: 0,0:00:08.78,0:00:10.20,Default,,0000,0000,0000,,sitting around doing my makeup
Dialogue: 0,0:00:10.20,0:00:13.08,Default,,0000,0000,0000,,I'm not like ooh I'm blind, I'm blind
Dialogue: 0,0:00:13.11,0:00:15.22,Default,,0000,0000,0000,,Like, I'm not thinking about my
Dialogue: 0,0:00:15.22,0:00:17.34,Default,,0000,0000,0000,,blindness, I'm just living my life
Dialogue: 0,0:00:17.34,0:00:19.61,Default,,0000,0000,0000,,because this is our normal
Dialogue: 0,0:00:19.61,0:00:24.96,Default,,0000,0000,0000,,(Music)
Dialogue: 0,0:00:24.96,0:00:27.07,Default,,0000,0000,0000,,Hello everybody, we are back
Dialogue: 0,0:00:27.07,0:00:29.09,Default,,0000,0000,0000,,with my series , where I sit down
Dialogue: 0,0:00:29.09,0:00:30.50,Default,,0000,0000,0000,,with another person
Dialogue: 0,0:00:30.50,0:00:32.04,Default,,0000,0000,0000,,from the disability community
Dialogue: 0,0:00:32.04,0:00:33.86,Default,,0000,0000,0000,,and we disscuss all things
Dialogue: 0,0:00:33.86,0:00:36.02,Default,,0000,0000,0000,,life and disability related
Dialogue: 0,0:00:36.02,0:00:38.44,Default,,0000,0000,0000,,and this one is probably the
Dialogue: 0,0:00:38.44,0:00:41.64,Default,,0000,0000,0000,,most requested that I've seen.
Dialogue: 0,0:00:41.64,0:00:44.65,Default,,0000,0000,0000,,So we finally have Jessica
Dialogue: 0,0:00:44.65,0:00:46.43,Default,,0000,0000,0000,,and I'm gonna let you say your
Dialogue: 0,0:00:46.43,0:00:48.02,Default,,0000,0000,0000,,last name
Dialogue: 0,0:00:48.02,0:00:52.48,Default,,0000,0000,0000,,(Laughs) Jessica Kellgren-Fozard
Dialogue: 0,0:00:52.48,0:00:54.93,Default,,0000,0000,0000,,It's ok, I know, it's a difficult surname
Dialogue: 0,0:00:54.93,0:00:58.31,Default,,0000,0000,0000,,we literally like went over this before
Dialogue: 0,0:00:58.31,0:00:59.61,Default,,0000,0000,0000,,we started filming
Dialogue: 0,0:00:59.61,0:01:00.64,Default,,0000,0000,0000,,We've just been like talking on
Dialogue: 0,0:01:00.64,0:01:01.73,Default,,0000,0000,0000,,Google Meet
Dialogue: 0,0:01:01.73,0:01:04.10,Default,,0000,0000,0000,,And I was like, practicing the name
Dialogue: 0,0:01:04.10,0:01:05.38,Default,,0000,0000,0000,,and I was like no, you know what,
Dialogue: 0,0:01:05.38,0:01:07.23,Default,,0000,0000,0000,,I got here, I was too deep,
Dialogue: 0,0:01:07.23,0:01:08.21,Default,,0000,0000,0000,,I was like, I'm jumping
Dialogue: 0,0:01:08.21,0:01:09.32,Default,,0000,0000,0000,,out of the pool.
Dialogue: 0,0:01:09.32,0:01:11.14,Default,,0000,0000,0000,,She'll take over. So thank you-
Dialogue: 0,0:01:11.14,0:01:13.81,Default,,0000,0000,0000,,It's ok. It's complex.
Dialogue: 0,0:01:13.81,0:01:14.81,Default,,0000,0000,0000,,The Kellgren bit is Swedish,
Dialogue: 0,0:01:14.81,0:01:16.70,Default,,0000,0000,0000,,the Fozard is my wife's surname,
Dialogue: 0,0:01:16.70,0:01:18.66,Default,,0000,0000,0000,,it's from Normandy, smush it together,
Dialogue: 0,0:01:18.66,0:01:20.08,Default,,0000,0000,0000,,it's complicated for everyone.
Dialogue: 0,0:01:20.08,0:01:22.71,Default,,0000,0000,0000,,Or Jessica Out Of The Closet,
Dialogue: 0,0:01:22.71,0:01:25.50,Default,,0000,0000,0000,,which I think is a brilliant name
Dialogue: 0,0:01:25.50,0:01:27.16,Default,,0000,0000,0000,,because not only are you one of
Dialogue: 0,0:01:27.16,0:01:30.36,Default,,0000,0000,0000,,the most fabulous fashionistas
Dialogue: 0,0:01:30.36,0:01:32.13,Default,,0000,0000,0000,,that I follow on social media,
Dialogue: 0,0:01:32.13,0:01:34.61,Default,,0000,0000,0000,,but you are also in fact out of
Dialogue: 0,0:01:34.61,0:01:37.34,Default,,0000,0000,0000,,the closet, and so I think it's just
Dialogue: 0,0:01:37.34,0:01:38.98,Default,,0000,0000,0000,,such a fun username.
Dialogue: 0,0:01:38.98,0:01:41.04,Default,,0000,0000,0000,,(Laughs) Yeah,
Dialogue: 0,0:01:41.04,0:01:42.94,Default,,0000,0000,0000,,out of the closet in many ways.
Dialogue: 0,0:01:42.94,0:01:44.43,Default,,0000,0000,0000,,Out of the gay closet, out of the
Dialogue: 0,0:01:44.43,0:01:46.98,Default,,0000,0000,0000,,disability closet, just living life open.
Dialogue: 0,0:01:46.98,0:01:48.87,Default,,0000,0000,0000,,That's the way to live life.
Dialogue: 0,0:01:48.87,0:01:50.68,Default,,0000,0000,0000,,Being your best, most authentic,
Dialogue: 0,0:01:50.68,0:01:52.96,Default,,0000,0000,0000,,confident queen self. And that is
Dialogue: 0,0:01:52.96,0:01:54.69,Default,,0000,0000,0000,,exactly what you do.
Dialogue: 0,0:01:54.69,0:01:57.01,Default,,0000,0000,0000,,I watch your videos and I
Dialogue: 0,0:01:57.01,0:01:59.03,Default,,0000,0000,0000,,legitimately laugh out loud.
Dialogue: 0,0:01:59.03,0:02:01.36,Default,,0000,0000,0000,,Like you're one of, not only the most
Dialogue: 0,0:02:01.36,0:02:03.19,Default,,0000,0000,0000,,fashionable people I follow but one of
Dialogue: 0,0:02:03.19,0:02:04.89,Default,,0000,0000,0000,,the funniest people I follow,
Dialogue: 0,0:02:04.89,0:02:07.81,Default,,0000,0000,0000,,and I think that you, just by simply
Dialogue: 0,0:02:07.81,0:02:10.76,Default,,0000,0000,0000,,being you, break so many disability
Dialogue: 0,0:02:10.76,0:02:14.20,Default,,0000,0000,0000,,stereotypes and misconceptions,
Dialogue: 0,0:02:14.20,0:02:17.34,Default,,0000,0000,0000,,and I think it's so fabulous for just-
Dialogue: 0,0:02:17.34,0:02:18.58,Default,,0000,0000,0000,,so thank you for just exisiting
Dialogue: 0,0:02:18.58,0:02:19.96,Default,,0000,0000,0000,,on the internet.
Dialogue: 0,0:02:19.96,0:02:22.39,Default,,0000,0000,0000,,(Laughs) I mean, I could say
Dialogue: 0,0:02:22.39,0:02:24.38,Default,,0000,0000,0000,,the same thing about you, Molly.
Dialogue: 0,0:02:24.38,0:02:26.28,Default,,0000,0000,0000,,I woke up this morning and I was like,
Dialogue: 0,0:02:26.28,0:02:28.28,Default,,0000,0000,0000,,OK, Molly, you have to try to look, like,
Dialogue: 0,0:02:28.28,0:02:30.71,Default,,0000,0000,0000,,a little bit half fabulous
Dialogue: 0,0:02:30.71,0:02:32.61,Default,,0000,0000,0000,,because you're going to be sitting next to
Dialogue: 0,0:02:32.61,0:02:34.31,Default,,0000,0000,0000,,Jessica in a video and it's going
Dialogue: 0,0:02:34.31,0:02:35.63,Default,,0000,0000,0000,,to be embarrassing.
Dialogue: 0,0:02:35.63,0:02:38.79,Default,,0000,0000,0000,,Oh no, I think you are incredibly stylish,
Dialogue: 0,0:02:38.79,0:02:40.53,Default,,0000,0000,0000,,I must say. I always enjoy
Dialogue: 0,0:02:40.53,0:02:41.57,Default,,0000,0000,0000,,your Instagram as well.
Dialogue: 0,0:02:41.57,0:02:43.59,Default,,0000,0000,0000,,Thank you, I appreciate it.
Dialogue: 0,0:02:43.59,0:02:46.48,Default,,0000,0000,0000,,So, I know a ton of my audience
Dialogue: 0,0:02:46.48,0:02:48.03,Default,,0000,0000,0000,,knows and loves your content already
Dialogue: 0,0:02:48.03,0:02:50.18,Default,,0000,0000,0000,,but for those who don't, would you like to
Dialogue: 0,0:02:50.18,0:02:52.28,Default,,0000,0000,0000,,kind of give the brief introduction of who
Dialogue: 0,0:02:52.28,0:02:54.06,Default,,0000,0000,0000,,Jessica is in a nutshell.
Dialogue: 0,0:02:54.06,0:02:56.04,Default,,0000,0000,0000,,My goodness, okay, the elevator pitch
Dialogue: 0,0:02:56.04,0:02:58.53,Default,,0000,0000,0000,,of me, then, I guess.
Dialogue: 0,0:02:58.53,0:03:00.58,Default,,0000,0000,0000,,So, I'm Jessica, I'm a YouTuber,
Dialogue: 0,0:03:00.58,0:03:02.61,Default,,0000,0000,0000,,content creator. I make content that is
Dialogue: 0,0:03:02.61,0:03:06.74,Default,,0000,0000,0000,,generally fun, informative, educational,
Dialogue: 0,0:03:06.74,0:03:09.43,Default,,0000,0000,0000,,amusing, around things that are to do with
Dialogue: 0,0:03:09.43,0:03:12.06,Default,,0000,0000,0000,,disability, chronic illness, and LGBTQ+
Dialogue: 0,0:03:12.06,0:03:15.09,Default,,0000,0000,0000,,issues. So I have two genetic conditions,
Dialogue: 0,0:03:15.09,0:03:16.98,Default,,0000,0000,0000,,hereditary neuropathy with liability to pressure
Dialogue: 0,0:03:16.98,0:03:19.33,Default,,0000,0000,0000,,palsies, which means that there are gaps
Dialogue: 0,0:03:19.33,0:03:22.31,Default,,0000,0000,0000,,in the myelin sheaths that surround your nerves.
Dialogue: 0,0:03:22.31,0:03:24.82,Default,,0000,0000,0000,,For me that means that I can paralyze
Dialogue: 0,0:03:24.82,0:03:27.51,Default,,0000,0000,0000,,parts of myself, that my nerves are more
Dialogue: 0,0:03:27.51,0:03:29.94,Default,,0000,0000,0000,,easily damaged, which does things like
Dialogue: 0,0:03:29.94,0:03:32.56,Default,,0000,0000,0000,,affect my hearing and I have loss of
Dialogue: 0,0:03:32.56,0:03:34.96,Default,,0000,0000,0000,,vision in one eye because of it, and it
Dialogue: 0,0:03:34.96,0:03:37.17,Default,,0000,0000,0000,,can do things like my hands don't have
Dialogue: 0,0:03:37.17,0:03:39.82,Default,,0000,0000,0000,,any feeling because I paralyzed both of
Dialogue: 0,0:03:39.82,0:03:41.69,Default,,0000,0000,0000,,my arms for a year and a half when I was
Dialogue: 0,0:03:41.69,0:03:44.08,Default,,0000,0000,0000,,a teenager. And they came back to a
Dialogue: 0,0:03:44.08,0:03:47.41,Default,,0000,0000,0000,,certain degree, but they can't now feel
Dialogue: 0,0:03:47.41,0:03:49.10,Default,,0000,0000,0000,,anything, so it's like wearing gloves
Dialogue: 0,0:03:49.10,0:03:50.91,Default,,0000,0000,0000,,all of the time. And I don't get hot and
Dialogue: 0,0:03:50.91,0:03:53.14,Default,,0000,0000,0000,,cold, any of those kinds of things,
Dialogue: 0,0:03:53.14,0:03:55.44,Default,,0000,0000,0000,,or wet. Which is really annoying when
Dialogue: 0,0:03:55.44,0:03:57.39,Default,,0000,0000,0000,,you're trying to hang up the washing,
Dialogue: 0,0:03:57.39,0:03:58.44,Default,,0000,0000,0000,,'cause you're like, is this wet?
Dialogue: 0,0:03:58.44,0:04:00.99,Default,,0000,0000,0000,,Is this dry? Absolutely no idea.
Dialogue: 0,0:04:00.99,0:04:02.91,Default,,0000,0000,0000,,And I end up having to like, press my face
Dialogue: 0,0:04:02.91,0:04:05.01,Default,,0000,0000,0000,,to all of my laundry to see whether it's
Dialogue: 0,0:04:05.01,0:04:07.79,Default,,0000,0000,0000,,dry or not. Very strange thing.
Dialogue: 0,0:04:07.79,0:04:10.51,Default,,0000,0000,0000,,And then you just get a random cheek stain
Dialogue: 0,0:04:10.51,0:04:12.22,Default,,0000,0000,0000,,or random foundation stain on the side
Dialogue: 0,0:04:12.22,0:04:13.39,Default,,0000,0000,0000,,of your white shirt.
Dialogue: 0,0:04:13.39,0:04:15.47,Default,,0000,0000,0000,,I mean, I should add, I only do this when
Dialogue: 0,0:04:15.47,0:04:17.97,Default,,0000,0000,0000,,I'm not wearing makeup. (Laughs)
Dialogue: 0,0:04:17.97,0:04:19.16,Default,,0000,0000,0000,,Pro tip.
Dialogue: 0,0:04:19.16,0:04:21.62,Default,,0000,0000,0000,,And then I also have Ehlers Danlos
Dialogue: 0,0:04:21.62,0:04:24.47,Default,,0000,0000,0000,,Syndrome, which is about my connective
Dialogue: 0,0:04:24.47,0:04:26.52,Default,,0000,0000,0000,,tissue, and means that not only am I
Dialogue: 0,0:04:26.52,0:04:30.26,Default,,0000,0000,0000,,hyper mobile, and very flexible and bendy,
Dialogue: 0,0:04:30.26,0:04:32.11,Default,,0000,0000,0000,,which most people think is like, whoa,
Dialogue: 0,0:04:32.11,0:04:34.18,Default,,0000,0000,0000,,what a great party trick, and it is,
Dialogue: 0,0:04:34.18,0:04:36.52,Default,,0000,0000,0000,,it's a pretty good party trick that I
Dialogue: 0,0:04:36.52,0:04:39.05,Default,,0000,0000,0000,,perhaps overused when I was a child.
Dialogue: 0,0:04:39.05,0:04:41.52,Default,,0000,0000,0000,,I dislocated various things just to prove
Dialogue: 0,0:04:41.52,0:04:43.63,Default,,0000,0000,0000,,to people that I could. Don't do that.
Dialogue: 0,0:04:43.63,0:04:45.40,Default,,0000,0000,0000,,That's a terrible idea. Don't do that.
Dialogue: 0,0:04:45.40,0:04:48.82,Default,,0000,0000,0000,,But it also affects connective tissue in
Dialogue: 0,0:04:48.82,0:04:51.22,Default,,0000,0000,0000,,things like my internal organs,
Dialogue: 0,0:04:51.22,0:04:53.40,Default,,0000,0000,0000,,so I have some issues with my heart, and
Dialogue: 0,0:04:53.40,0:04:56.14,Default,,0000,0000,0000,,I have postural orthostatic tachycardia
Dialogue: 0,0:04:56.14,0:04:58.24,Default,,0000,0000,0000,,syndrome, which comes from that,
Dialogue: 0,0:04:58.24,0:05:02.08,Default,,0000,0000,0000,,which is just a regulating blood pressure
Dialogue: 0,0:05:02.08,0:05:07.30,Default,,0000,0000,0000,,issue, so I faint a lot. And I can't exert
Dialogue: 0,0:05:07.30,0:05:10.13,Default,,0000,0000,0000,,myself too much, basically I go up two
Dialogue: 0,0:05:10.13,0:05:12.06,Default,,0000,0000,0000,,flights of stairs and I'm like, oh gosh,
Dialogue: 0,0:05:12.06,0:05:13.57,Default,,0000,0000,0000,,there's a heart attack coming.
Dialogue: 0,0:05:13.57,0:05:15.51,Default,,0000,0000,0000,,Ok, wonderful, and then I've got to lie
Dialogue: 0,0:05:15.51,0:05:17.09,Default,,0000,0000,0000,,on the floor for half an hour.
Dialogue: 0,0:05:17.09,0:05:19.56,Default,,0000,0000,0000,,And the vintage fashion is just a layer
Dialogue: 0,0:05:19.56,0:05:21.89,Default,,0000,0000,0000,,over the top, just to make everything look
Dialogue: 0,0:05:21.89,0:05:22.98,Default,,0000,0000,0000,,gorgeous while we're here
Dialogue: 0,0:05:23.02,0:05:24.24,Default,,0000,0000,0000,,I think you should
Dialogue: 0,0:05:24.24,0:05:25.72,Default,,0000,0000,0000,,make more fashion content.
Dialogue: 0,0:05:25.72,0:05:27.41,Default,,0000,0000,0000,,I'm putting the pitch in now,
Dialogue: 0,0:05:27.41,0:05:28.98,Default,,0000,0000,0000,,and I think a lot of people
Dialogue: 0,0:05:28.98,0:05:30.95,Default,,0000,0000,0000,,in the comments will agree
Dialogue: 0,0:05:30.95,0:05:33.01,Default,,0000,0000,0000,,that you should have like a whole segment
Dialogue: 0,0:05:33.01,0:05:34.79,Default,,0000,0000,0000,,of your channel devoted to
Dialogue: 0,0:05:34.79,0:05:37.93,Default,,0000,0000,0000,,fashion content because we need that
Dialogue: 0,0:05:37.93,0:05:39.73,Default,,0000,0000,0000,,vintage inspo that you bring.
Dialogue: 0,0:05:39.73,0:05:42.25,Default,,0000,0000,0000,,We need your vintage wisdom.
Dialogue: 0,0:05:42.25,0:05:44.37,Default,,0000,0000,0000,,I was just, like, as we were talking
Dialogue: 0,0:05:44.38,0:05:46.07,Default,,0000,0000,0000,,before we started filming, I was
Dialogue: 0,0:05:46.07,0:05:47.45,Default,,0000,0000,0000,,peppering her with questions
Dialogue: 0,0:05:47.45,0:05:48.98,Default,,0000,0000,0000,,about the vintage fashion scene
Dialogue: 0,0:05:48.98,0:05:51.36,Default,,0000,0000,0000,,because I am fascinated by it
Dialogue: 0,0:05:51.36,0:05:52.95,Default,,0000,0000,0000,,and whenever I've tried to do it,
Dialogue: 0,0:05:52.95,0:05:55.82,Default,,0000,0000,0000,,it has not necessarily panned out
Dialogue: 0,0:05:55.82,0:05:58.14,Default,,0000,0000,0000,,So, I feel like you should make fashion
Dialogue: 0,0:05:58.14,0:05:59.99,Default,,0000,0000,0000,,videos and you know when I started
Dialogue: 0,0:05:59.99,0:06:01.35,Default,,0000,0000,0000,,doing fashion content
Dialogue: 0,0:06:01.35,0:06:03.12,Default,,0000,0000,0000,,it was kind of like a total mistake
Dialogue: 0,0:06:03.12,0:06:05.52,Default,,0000,0000,0000,,I wanted to make one video about, like,
Dialogue: 0,0:06:05.52,0:06:07.37,Default,,0000,0000,0000,,accessibility of online shopping
Dialogue: 0,0:06:07.37,0:06:08.10,Default,,0000,0000,0000,,and that was
Dialogue: 0,0:06:08.10,0:06:09.05,Default,,0000,0000,0000,,supposed to be it.
Dialogue: 0,0:06:09.05,0:06:10.83,Default,,0000,0000,0000,,But people requested me keep doing it
Dialogue: 0,0:06:10.83,0:06:11.61,Default,,0000,0000,0000,,and I was like
Dialogue: 0,0:06:11.61,0:06:13.68,Default,,0000,0000,0000,,"Well, If you want me to feed my addiction
Dialogue: 0,0:06:13.68,0:06:15.58,Default,,0000,0000,0000,,and talk about something I love,
Dialogue: 0,0:06:15.58,0:06:17.30,Default,,0000,0000,0000,,I am happy to do so"
Dialogue: 0,0:06:17.30,0:06:19.46,Default,,0000,0000,0000,,There is people
Dialogue: 0,0:06:19.46,0:06:21.80,Default,,0000,0000,0000,,in the disability activism community
Dialogue: 0,0:06:21.80,0:06:24.05,Default,,0000,0000,0000,,who have been upset by that.
Dialogue: 0,0:06:24.05,0:06:27.31,Default,,0000,0000,0000,,Like, they want me to kind of dedicate
Dialogue: 0,0:06:27.31,0:06:28.58,Default,,0000,0000,0000,,my channel to disability.
Dialogue: 0,0:06:29.51,0:06:31.99,Default,,0000,0000,0000,,And I can understand that, but
Dialogue: 0,0:06:31.99,0:06:33.66,Default,,0000,0000,0000,,to me, I am a human
Dialogue: 0,0:06:33.66,0:06:35.72,Default,,0000,0000,0000,,and disabilities are a very real,
Dialogue: 0,0:06:35.72,0:06:37.06,Default,,0000,0000,0000,,important topic to me
Dialogue: 0,0:06:37.06,0:06:38.58,Default,,0000,0000,0000,,and it affects my life daily,
Dialogue: 0,0:06:39.28,0:06:40.88,Default,,0000,0000,0000,,but so does fashion
Dialogue: 0,0:06:40.88,0:06:42.91,Default,,0000,0000,0000,,and the confidence that fashion gives me!
Dialogue: 0,0:06:42.91,0:06:43.98,Default,,0000,0000,0000,,So does makeup,
Dialogue: 0,0:06:43.98,0:06:45.07,Default,,0000,0000,0000,,so does my guide dog,
Dialogue: 0,0:06:45.07,0:06:46.06,Default,,0000,0000,0000,,so does dating,
Dialogue: 0,0:06:46.06,0:06:48.12,Default,,0000,0000,0000,,so do all these other aspects
Dialogue: 0,0:06:48.12,0:06:49.67,Default,,0000,0000,0000,,and I think it's very important
Dialogue: 0,0:06:49.67,0:06:51.74,Default,,0000,0000,0000,,for us, as a disability community,
Dialogue: 0,0:06:51.74,0:06:54.39,Default,,0000,0000,0000,,to show society the human side
Dialogue: 0,0:06:54.39,0:06:56.13,Default,,0000,0000,0000,,of our day-to-day life
Dialogue: 0,0:06:56.13,0:06:58.76,Default,,0000,0000,0000,,and the very normal, average
Dialogue: 0,0:06:58.76,0:07:00.88,Default,,0000,0000,0000,,human things that we love
Dialogue: 0,0:07:00.88,0:07:02.12,Default,,0000,0000,0000,,and that we partake in.
Dialogue: 0,0:07:02.12,0:07:03.91,Default,,0000,0000,0000,,Of course, of course
Dialogue: 0,0:07:03.91,0:07:06.42,Default,,0000,0000,0000,,I always link this back to
Dialogue: 0,0:07:06.42,0:07:07.31,Default,,0000,0000,0000,,children's books
Dialogue: 0,0:07:07.31,0:07:09.17,Default,,0000,0000,0000,,because I think it's the easiest way
Dialogue: 0,0:07:09.17,0:07:11.46,Default,,0000,0000,0000,,to understand people learning new concepts
Dialogue: 0,0:07:11.46,0:07:14.25,Default,,0000,0000,0000,,So, there are so many children's books
Dialogue: 0,0:07:14.25,0:07:16.06,Default,,0000,0000,0000,,that are about issues.
Dialogue: 0,0:07:16.06,0:07:17.11,Default,,0000,0000,0000,,It's about
Dialogue: 0,0:07:17.11,0:07:19.09,Default,,0000,0000,0000,,"Some people are in wheelchairs"
Dialogue: 0,0:07:19.09,0:07:21.56,Default,,0000,0000,0000,,or "some people have 2 mums"
Dialogue: 0,0:07:21.56,0:07:24.12,Default,,0000,0000,0000,,and kids don't love them.
Dialogue: 0,0:07:24.12,0:07:26.42,Default,,0000,0000,0000,,They don't want to read those books,
Dialogue: 0,0:07:26.42,0:07:28.07,Default,,0000,0000,0000,,because they're very much
Dialogue: 0,0:07:28.07,0:07:30.57,Default,,0000,0000,0000,,focused on this one object that you need
Dialogue: 0,0:07:30.57,0:07:32.26,Default,,0000,0000,0000,,to learn. It's not fun!
Dialogue: 0,0:07:32.26,0:07:34.51,Default,,0000,0000,0000,,Whereas, when they are reading
Dialogue: 0,0:07:34.51,0:07:36.44,Default,,0000,0000,0000,,like a fun, adventure book
Dialogue: 0,0:07:36.44,0:07:38.13,Default,,0000,0000,0000,,where oh, the main character just
Dialogue: 0,0:07:38.13,0:07:40.27,Default,,0000,0000,0000,,happens to have a disability
Dialogue: 0,0:07:40.27,0:07:42.50,Default,,0000,0000,0000,,or just happens to have a different
Dialogue: 0,0:07:42.50,0:07:45.11,Default,,0000,0000,0000,,family setup to the nuclear family.
Dialogue: 0,0:07:45.11,0:07:47.16,Default,,0000,0000,0000,,Then it's more engaging
Dialogue: 0,0:07:47.16,0:07:49.56,Default,,0000,0000,0000,,and they are more willing to learn things
Dialogue: 0,0:07:49.56,0:07:51.18,Default,,0000,0000,0000,,And I know the great things about
Dialogue: 0,0:07:51.18,0:07:53.39,Default,,0000,0000,0000,,having disabled content creators
Dialogue: 0,0:07:53.39,0:07:54.68,Default,,0000,0000,0000,,who are creating content
Dialogue: 0,0:07:54.68,0:07:56.72,Default,,0000,0000,0000,,that isn't just disability focused
Dialogue: 0,0:07:56.72,0:07:58.91,Default,,0000,0000,0000,,is that you are also bringing in people
Dialogue: 0,0:07:58.91,0:08:00.62,Default,,0000,0000,0000,,who wouldn't have necessarily have
Dialogue: 0,0:08:00.62,0:08:01.65,Default,,0000,0000,0000,,clicked on your video,
Dialogue: 0,0:08:01.65,0:08:03.12,Default,,0000,0000,0000,,being like "Ooh, I don't know,
Dialogue: 0,0:08:03.12,0:08:04.14,Default,,0000,0000,0000,,I don't know want to
Dialogue: 0,0:08:04.14,0:08:05.22,Default,,0000,0000,0000,,watch something about
Dialogue: 0,0:08:05.22,0:08:05.99,Default,,0000,0000,0000,,a blind person
Dialogue: 0,0:08:05.99,0:08:06.84,Default,,0000,0000,0000,,because I've never really
Dialogue: 0,0:08:06.84,0:08:07.57,Default,,0000,0000,0000,,met a blind person
Dialogue: 0,0:08:07.57,0:08:08.88,Default,,0000,0000,0000,,and that could be awkward."
Dialogue: 0,0:08:08.88,0:08:10.25,Default,,0000,0000,0000,,But if it's a video where you are
Dialogue: 0,0:08:10.25,0:08:11.45,Default,,0000,0000,0000,,doing something else
Dialogue: 0,0:08:11.45,0:08:12.17,Default,,0000,0000,0000,,and they click in,
Dialogue: 0,0:08:12.17,0:08:12.79,Default,,0000,0000,0000,,they are like
Dialogue: 0,0:08:12.79,0:08:14.07,Default,,0000,0000,0000,,"Well, you know what,
Dialogue: 0,0:08:14.07,0:08:15.05,Default,,0000,0000,0000,,this is actually really interesting!
Dialogue: 0,0:08:15.05,0:08:15.88,Default,,0000,0000,0000,,I'm gonna keep watching her
Dialogue: 0,0:08:15.88,0:08:17.56,Default,,0000,0000,0000,,other videos as well."
Dialogue: 0,0:08:17.56,0:08:19.34,Default,,0000,0000,0000,,And then, it's just a great way
Dialogue: 0,0:08:19.34,0:08:21.23,Default,,0000,0000,0000,,to lead people in, I think
Dialogue: 0,0:08:21.23,0:08:23.56,Default,,0000,0000,0000,,And they start to really be
Dialogue: 0,0:08:23.56,0:08:25.25,Default,,0000,0000,0000,,more involved in the issues,
Dialogue: 0,0:08:25.25,0:08:27.37,Default,,0000,0000,0000,,it's not something that's far away
Dialogue: 0,0:08:27.37,0:08:28.94,Default,,0000,0000,0000,,Now, it's "oh, my favourite
Dialogue: 0,0:08:28.94,0:08:30.18,Default,,0000,0000,0000,,content creator Molly
Dialogue: 0,0:08:30.18,0:08:31.68,Default,,0000,0000,0000,,also happens to have
Dialogue: 0,0:08:31.68,0:08:32.59,Default,,0000,0000,0000,,a disability and
Dialogue: 0,0:08:32.59,0:08:34.11,Default,,0000,0000,0000,,also happens to talk about that.
Dialogue: 0,0:08:34.11,0:08:36.09,Default,,0000,0000,0000,,And now I've learnt things about it"
Dialogue: 0,0:08:36.09,0:08:38.06,Default,,0000,0000,0000,,So I always think that's the best way,
Dialogue: 0,0:08:38.06,0:08:39.42,Default,,0000,0000,0000,,but, actually, Molly,
Dialogue: 0,0:08:39.42,0:08:41.23,Default,,0000,0000,0000,,two birds, one stone,
Dialogue: 0,0:08:41.23,0:08:43.50,Default,,0000,0000,0000,,to do with this fashion thing,
Dialogue: 0,0:08:43.50,0:08:44.100,Default,,0000,0000,0000,,I think the next time you come
Dialogue: 0,0:08:44.100,0:08:46.88,Default,,0000,0000,0000,,to England, I'm gonna have to give you
Dialogue: 0,0:08:46.88,0:08:47.80,Default,,0000,0000,0000,,a vintage makeover.
Dialogue: 0,0:08:47.80,0:08:48.50,Default,,0000,0000,0000,,Oh my gosh,
Dialogue: 0,0:08:48.50,0:08:49.69,Default,,0000,0000,0000,,absolutely!!
Dialogue: 0,0:08:49.69,0:08:51.37,Default,,0000,0000,0000,,Once this whole madness
Dialogue: 0,0:08:51.37,0:08:52.79,Default,,0000,0000,0000,,in this world is done,
Dialogue: 0,0:08:52.79,0:08:54.76,Default,,0000,0000,0000,,and we're all vaccinated,
Dialogue: 0,0:08:54.76,0:08:56.33,Default,,0000,0000,0000,,I'm coming out to England,
Dialogue: 0,0:08:56.33,0:08:57.90,Default,,0000,0000,0000,,so I can finally see my brother
Dialogue: 0,0:08:57.90,0:08:58.89,Default,,0000,0000,0000,,for the first time
Dialogue: 0,0:08:58.89,0:09:00.34,Default,,0000,0000,0000,,in over a year.
Dialogue: 0,0:09:00.34,0:09:01.80,Default,,0000,0000,0000,,AND I can see you
Dialogue: 0,0:09:01.80,0:09:03.78,Default,,0000,0000,0000,,and we are doing the vintage makeover
Dialogue: 0,0:09:03.78,0:09:05.54,Default,,0000,0000,0000,,I'm absolutely holding you to that.
Dialogue: 0,0:09:05.54,0:09:07.81,Default,,0000,0000,0000,,But I could not agree more with
Dialogue: 0,0:09:07.81,0:09:08.89,Default,,0000,0000,0000,,what you've just said.
Dialogue: 0,0:09:08.89,0:09:11.20,Default,,0000,0000,0000,,My favourite thing about what
Dialogue: 0,0:09:11.20,0:09:12.50,Default,,0000,0000,0000,,I do is that I get to
Dialogue: 0,0:09:12.50,0:09:14.47,Default,,0000,0000,0000,,make learning fun for people.
Dialogue: 0,0:09:14.47,0:09:16.03,Default,,0000,0000,0000,,I get to teach
Dialogue: 0,0:09:16.03,0:09:18.02,Default,,0000,0000,0000,,people in a way that entertains them
Dialogue: 0,0:09:18.02,0:09:19.89,Default,,0000,0000,0000,,that truly is the best way to learn.
Dialogue: 0,0:09:19.89,0:09:21.70,Default,,0000,0000,0000,,That's how I always
Dialogue: 0,0:09:21.70,0:09:23.36,Default,,0000,0000,0000,,learned the most growing up
Dialogue: 0,0:09:23.36,0:09:24.76,Default,,0000,0000,0000,,I was never somebody
Dialogue: 0,0:09:24.76,0:09:26.77,Default,,0000,0000,0000,,who could sit in class
Dialogue: 0,0:09:26.77,0:09:28.84,Default,,0000,0000,0000,,and hear you talk to me about something.
Dialogue: 0,0:09:28.84,0:09:30.47,Default,,0000,0000,0000,,I need to be the one
Dialogue: 0,0:09:30.47,0:09:32.08,Default,,0000,0000,0000,,that was getting up and doing it
Dialogue: 0,0:09:32.08,0:09:33.61,Default,,0000,0000,0000,,I was a very kinesthetic learner
Dialogue: 0,0:09:33.61,0:09:35.42,Default,,0000,0000,0000,,I need to be actually doing the thing
Dialogue: 0,0:09:35.42,0:09:36.52,Default,,0000,0000,0000,,and immersed in it
Dialogue: 0,0:09:36.52,0:09:38.05,Default,,0000,0000,0000,,to be able to understand it
Dialogue: 0,0:09:38.05,0:09:39.52,Default,,0000,0000,0000,,and being able to
Dialogue: 0,0:09:39.52,0:09:41.94,Default,,0000,0000,0000,,hopefully be entertaining to people
Dialogue: 0,0:09:41.94,0:09:44.80,Default,,0000,0000,0000,,um, while they- they learn
Dialogue: 0,0:09:44.80,0:09:46.30,Default,,0000,0000,0000,,and open their minds
Dialogue: 0,0:09:46.30,0:09:47.67,Default,,0000,0000,0000,,to new ways of thinking
Dialogue: 0,0:09:47.67,0:09:49.05,Default,,0000,0000,0000,,is so rewarding
Dialogue: 0,0:09:49.05,0:09:50.80,Default,,0000,0000,0000,,so I completely agree with you
Dialogue: 0,0:09:50.80,0:09:52.21,Default,,0000,0000,0000,,And I always say
Dialogue: 0,0:09:52.21,0:09:54.21,Default,,0000,0000,0000,,we talk a lot in the disability community
Dialogue: 0,0:09:54.21,0:09:55.18,Default,,0000,0000,0000,,about the fact that
Dialogue: 0,0:09:55.18,0:09:56.63,Default,,0000,0000,0000,,y'know that we're quite low
Dialogue: 0,0:09:56.63,0:09:59.42,Default,,0000,0000,0000,,on the totem pole of causes
Dialogue: 0,0:09:59.42,0:10:01.21,Default,,0000,0000,0000,,and of things that people care about
Dialogue: 0,0:10:01.21,0:10:02.72,Default,,0000,0000,0000,,and talk about or know about.
Dialogue: 0,0:10:02.72,0:10:04.40,Default,,0000,0000,0000,,You know, you often see those like
Dialogue: 0,0:10:04.40,0:10:05.92,Default,,0000,0000,0000,,"Diversity panels"
Dialogue: 0,0:10:05.92,0:10:08.19,Default,,0000,0000,0000,,and it's like everything is shown
Dialogue: 0,0:10:09.54,0:10:10.62,Default,,0000,0000,0000,,... except disability.
Dialogue: 0,0:10:10.62,0:10:11.80,Default,,0000,0000,0000,,And we're like "Hey now,
Dialogue: 0,0:10:12.51,0:10:13.21,Default,,0000,0000,0000,,"Hi"
Dialogue: 0,0:10:13.21,0:10:15.21,Default,,0000,0000,0000,,"Where are we at the table"
Dialogue: 0,0:10:15.21,0:10:17.28,Default,,0000,0000,0000,,I think so many different
Dialogue: 0,0:10:17.28,0:10:18.97,Default,,0000,0000,0000,,brands and companies
Dialogue: 0,0:10:18.97,0:10:20.74,Default,,0000,0000,0000,,think that they can kind of get away
Dialogue: 0,0:10:20.74,0:10:22.62,Default,,0000,0000,0000,,doing the absolute least
Dialogue: 0,0:10:22.62,0:10:24.64,Default,,0000,0000,0000,,when it comes to disability representation
Dialogue: 0,0:10:24.64,0:10:26.59,Default,,0000,0000,0000,,Whether that be in adverts
Dialogue: 0,0:10:26.59,0:10:28.99,Default,,0000,0000,0000,,or actually making things accessible.
Dialogue: 0,0:10:28.99,0:10:31.43,Default,,0000,0000,0000,,So many of them think
Dialogue: 0,0:10:31.43,0:10:33.22,Default,,0000,0000,0000,,"Oh, a person in a wheelchair
Dialogue: 0,0:10:33.22,0:10:34.40,Default,,0000,0000,0000,,and we're done.
Dialogue: 0,0:10:34.40,0:10:36.06,Default,,0000,0000,0000,,That's it we've represented every
Dialogue: 0,0:10:36.06,0:10:37.19,Default,,0000,0000,0000,,disabled person,
Dialogue: 0,0:10:37.19,0:10:39.55,Default,,0000,0000,0000,,we've covered everyone's needs, excellent.
Dialogue: 0,0:10:39.55,0:10:41.85,Default,,0000,0000,0000,,Of course our brand is friendly to the
Dialogue: 0,0:10:41.85,0:10:43.82,Default,,0000,0000,0000,,disabled community, we have a ramp!"
Dialogue: 0,0:10:43.82,0:10:46.27,Default,,0000,0000,0000,,And you're like, "Uh-huh, I see.
Dialogue: 0,0:10:46.27,0:10:48.95,Default,,0000,0000,0000,,And how are you helping every other
Dialogue: 0,0:10:48.95,0:10:50.58,Default,,0000,0000,0000,,disabled person?"
Dialogue: 0,0:10:50.58,0:10:51.33,Default,,0000,0000,0000,,Mhm, mhm.
Dialogue: 0,0:10:51.33,0:10:53.69,Default,,0000,0000,0000,,Like, people who use wheelchairs
Dialogue: 0,0:10:53.69,0:10:55.78,Default,,0000,0000,0000,,actually make up quite a small part
Dialogue: 0,0:10:55.78,0:10:58.65,Default,,0000,0000,0000,,of the disability population as a whole.
Dialogue: 0,0:10:58.65,0:11:00.78,Default,,0000,0000,0000,,And, people just cannot get this through
Dialogue: 0,0:11:00.78,0:11:02.49,Default,,0000,0000,0000,,their heads and, of course, having
Dialogue: 0,0:11:02.49,0:11:04.43,Default,,0000,0000,0000,,the disability symbol be a wheelchair,
Dialogue: 0,0:11:04.43,0:11:07.97,Default,,0000,0000,0000,,obviously a very visual way to get that
Dialogue: 0,0:11:07.97,0:11:10.40,Default,,0000,0000,0000,,across very neatly, but it does tend
Dialogue: 0,0:11:10.40,0:11:12.93,Default,,0000,0000,0000,,to make people forget everyone else.
Dialogue: 0,0:11:13.58,0:11:15.58,Default,,0000,0000,0000,,Yes and I- I don't know if this has been
Dialogue: 0,0:11:15.58,0:11:17.60,Default,,0000,0000,0000,,happening in England but over the
Dialogue: 0,0:11:17.60,0:11:19.56,Default,,0000,0000,0000,,last number of years I've been seeing
Dialogue: 0,0:11:19.56,0:11:22.67,Default,,0000,0000,0000,,in North America one change is
Dialogue: 0,0:11:22.67,0:11:24.97,Default,,0000,0000,0000,,certain places are adding other stickers
Dialogue: 0,0:11:24.97,0:11:27.19,Default,,0000,0000,0000,,that represent other disabilities.
Dialogue: 0,0:11:27.19,0:11:29.57,Default,,0000,0000,0000,,Which is nice because for example on
Dialogue: 0,0:11:29.57,0:11:33.15,Default,,0000,0000,0000,,public transit, like a bus, I need to
Dialogue: 0,0:11:33.15,0:11:35.37,Default,,0000,0000,0000,,sit down, it's not a question I need to
Dialogue: 0,0:11:35.37,0:11:37.34,Default,,0000,0000,0000,,be able to sit. Because balance is a
Dialogue: 0,0:11:37.34,0:11:39.18,Default,,0000,0000,0000,,combination, as I'm sure you know as
Dialogue: 0,0:11:39.18,0:11:41.08,Default,,0000,0000,0000,,deaf woman, of ears and eyes.
Dialogue: 0,0:11:41.08,0:11:43.04,Default,,0000,0000,0000,,And so my balance, not being able to see
Dialogue: 0,0:11:43.04,0:11:46.05,Default,,0000,0000,0000,,is quite off. And so standing on a moving
Dialogue: 0,0:11:46.05,0:11:48.63,Default,,0000,0000,0000,,vehicle, even if I'm holding a pole, is
Dialogue: 0,0:11:48.63,0:11:51.14,Default,,0000,0000,0000,,just not really a thing for me. So I need
Dialogue: 0,0:11:51.14,0:11:53.78,Default,,0000,0000,0000,,sit. And so when I get on a bus with my
Dialogue: 0,0:11:53.78,0:11:56.49,Default,,0000,0000,0000,,guide dog, people used to not register
Dialogue: 0,0:11:56.49,0:11:58.35,Default,,0000,0000,0000,,that I was somebody who they needed to
Dialogue: 0,0:11:58.35,0:12:00.20,Default,,0000,0000,0000,,get out of the disability seating for.
Dialogue: 0,0:12:00.20,0:12:02.08,Default,,0000,0000,0000,,Um, so they would just continue to sit
Dialogue: 0,0:12:02.08,0:12:04.02,Default,,0000,0000,0000,,there. But now they've added these
Dialogue: 0,0:12:04.02,0:12:06.44,Default,,0000,0000,0000,,stickers where it's like a man with a cane
Dialogue: 0,0:12:06.44,0:12:09.42,Default,,0000,0000,0000,,a person in a wheelchair and there's
Dialogue: 0,0:12:09.42,0:12:11.27,Default,,0000,0000,0000,,somebody with a walker and I'm like
Dialogue: 0,0:12:11.27,0:12:13.71,Default,,0000,0000,0000,,Thank you for showing multiple visuals
Dialogue: 0,0:12:13.71,0:12:15.74,Default,,0000,0000,0000,,of what somebody who might need to sit in
Dialogue: 0,0:12:15.74,0:12:18.15,Default,,0000,0000,0000,,disability seating could present as.
Dialogue: 0,0:12:18.15,0:12:20.36,Default,,0000,0000,0000,,Yeah, I've definitely seen in the last few
Dialogue: 0,0:12:20.36,0:12:22.34,Default,,0000,0000,0000,,years that kind of not all disabilities
Dialogue: 0,0:12:22.34,0:12:25.81,Default,,0000,0000,0000,,are visible stickers on a lot more things
Dialogue: 0,0:12:25.81,0:12:28.58,Default,,0000,0000,0000,,in public places. And it's so good to see
Dialogue: 0,0:12:28.58,0:12:31.74,Default,,0000,0000,0000,,because I remember when I very first-
Dialogue: 0,0:12:31.74,0:12:34.72,Default,,0000,0000,0000,,so I kind of grew up with a disability
Dialogue: 0,0:12:34.72,0:12:37.16,Default,,0000,0000,0000,,but it wasn't, well I'm not going to say
Dialogue: 0,0:12:37.16,0:12:39.33,Default,,0000,0000,0000,,noticed, but it wasn't diagnosed until
Dialogue: 0,0:12:39.33,0:12:42.36,Default,,0000,0000,0000,,I was 17. And then when I was 17 and I
Dialogue: 0,0:12:42.36,0:12:44.36,Default,,0000,0000,0000,,suddenly had this big health crisis and
Dialogue: 0,0:12:44.36,0:12:47.06,Default,,0000,0000,0000,,very much did need to use, you know,
Dialogue: 0,0:12:47.06,0:12:48.84,Default,,0000,0000,0000,,disabled toilets and I need to have
Dialogue: 0,0:12:48.84,0:12:51.77,Default,,0000,0000,0000,,access to things. I had a lot of issues
Dialogue: 0,0:12:51.77,0:12:54.97,Default,,0000,0000,0000,,with this. Because people were constantly
Dialogue: 0,0:12:54.97,0:12:57.14,Default,,0000,0000,0000,,trying to stop me from using things
Dialogue: 0,0:12:57.14,0:12:59.97,Default,,0000,0000,0000,,saying "Oh that's not for you that's for
Dialogue: 0,0:12:59.97,0:13:02.20,Default,,0000,0000,0000,,disabled people." And I'm like I mean
Dialogue: 0,0:13:02.20,0:13:04.91,Default,,0000,0000,0000,,I am, I don't know what I can do to-
Dialogue: 0,0:13:04.91,0:13:07.78,Default,,0000,0000,0000,,to make this more obvious to people, that
Dialogue: 0,0:13:07.78,0:13:09.60,Default,,0000,0000,0000,,I'm really struggling and things would
Dialogue: 0,0:13:09.60,0:13:11.84,Default,,0000,0000,0000,,help me like this. So it's, it is really
Dialogue: 0,0:13:11.84,0:13:15.04,Default,,0000,0000,0000,,lovely to see now. I worry less about
Dialogue: 0,0:13:15.04,0:13:17.24,Default,,0000,0000,0000,,using disabled toilets in public
Dialogue: 0,0:13:17.24,0:13:19.56,Default,,0000,0000,0000,,when they have a "Not all disabilities
Dialogue: 0,0:13:19.56,0:13:22.02,Default,,0000,0000,0000,,are visible" sticker on them. Because the
Dialogue: 0,0:13:22.02,0:13:24.70,Default,,0000,0000,0000,,dirty jokes I've received coming out of a
Dialogue: 0,0:13:24.70,0:13:27.92,Default,,0000,0000,0000,,disabled toilet on two feet is like, ugh.
Dialogue: 0,0:13:27.92,0:13:29.77,Default,,0000,0000,0000,,Well I think part of the problem with
Dialogue: 0,0:13:29.77,0:13:31.85,Default,,0000,0000,0000,,that too is how many able-bodied people
Dialogue: 0,0:13:31.85,0:13:34.60,Default,,0000,0000,0000,,just do use the toilet for people with a
Dialogue: 0,0:13:34.60,0:13:35.34,Default,,0000,0000,0000,,disability?
Dialogue: 0,0:13:36.94,0:13:39.03,Default,,0000,0000,0000,,Um, so many, so many able bodied people
Dialogue: 0,0:13:39.03,0:13:43.03,Default,,0000,0000,0000,,do use different facilities that are
Dialogue: 0,0:13:43.03,0:13:45.60,Default,,0000,0000,0000,,accessible and designed for people who
Dialogue: 0,0:13:45.60,0:13:47.52,Default,,0000,0000,0000,,actually need them due to a disability.
Dialogue: 0,0:13:47.52,0:13:50.07,Default,,0000,0000,0000,,And, so now I think when people see
Dialogue: 0,0:13:50.07,0:13:52.64,Default,,0000,0000,0000,,somebody presenting as able-bodied, they
Dialogue: 0,0:13:52.64,0:13:54.57,Default,,0000,0000,0000,,just kind of assume they're able-bodied
Dialogue: 0,0:13:54.57,0:13:56.55,Default,,0000,0000,0000,,because of how many able-bodied people do
Dialogue: 0,0:13:56.55,0:13:58.43,Default,,0000,0000,0000,,take advantage of having a little extra
Dialogue: 0,0:13:58.43,0:14:01.06,Default,,0000,0000,0000,,wiggle room in the stall for when they're
Dialogue: 0,0:14:01.06,0:14:03.21,Default,,0000,0000,0000,,pooping and they don't want anyone to hear
Dialogue: 0,0:14:03.21,0:14:05.07,Default,,0000,0000,0000,,it and I'm like that's not what, that's
Dialogue: 0,0:14:05.07,0:14:07.03,Default,,0000,0000,0000,,not what that was for. It's not for all
Dialogue: 0,0:14:07.03,0:14:08.78,Default,,0000,0000,0000,,you extra shopping bags, ma'am.
Dialogue: 0,0:14:08.78,0:14:10.86,Default,,0000,0000,0000,,It's for people who require either the bar
Dialogue: 0,0:14:10.86,0:14:13.69,Default,,0000,0000,0000,,for support, who require the extra room
Dialogue: 0,0:14:13.69,0:14:16.42,Default,,0000,0000,0000,,for a support worker, for a service
Dialogue: 0,0:14:16.42,0:14:18.63,Default,,0000,0000,0000,,animal, for a mobility device. Like
Dialogue: 0,0:14:18.63,0:14:21.62,Default,,0000,0000,0000,,there's many reasons that that exists.
Dialogue: 0,0:14:21.62,0:14:23.45,Default,,0000,0000,0000,,But your extra shopping bags or like
Dialogue: 0,0:14:23.45,0:14:26.36,Default,,0000,0000,0000,,extra room for popping, isn't what it was
Dialogue: 0,0:14:26.36,0:14:27.15,Default,,0000,0000,0000,,for.
Dialogue: 0,0:14:27.15,0:14:29.14,Default,,0000,0000,0000,,The unfortunate thing as well is that
Dialogue: 0,0:14:29.14,0:14:31.20,Default,,0000,0000,0000,,so many places will put their baby
Dialogue: 0,0:14:31.20,0:14:33.79,Default,,0000,0000,0000,,changing facilities into the disabled
Dialogue: 0,0:14:33.79,0:14:37.15,Default,,0000,0000,0000,,toilets. And it's not like a special
Dialogue: 0,0:14:37.15,0:14:40.70,Default,,0000,0000,0000,,um, weighted table it means that you can
Dialogue: 0,0:14:40.70,0:14:44.12,Default,,0000,0000,0000,,anyone larger than a baby. It's literally
Dialogue: 0,0:14:44.12,0:14:46.49,Default,,0000,0000,0000,,just there because they've lumped in
Dialogue: 0,0:14:46.49,0:14:48.96,Default,,0000,0000,0000,,parents, disabled people, sure. You can
Dialogue: 0,0:14:48.96,0:14:50.80,Default,,0000,0000,0000,,use the same facilities, it's fine.
Dialogue: 0,0:14:50.80,0:14:52.95,Default,,0000,0000,0000,,You know, you'll never need more than one
Dialogue: 0,0:14:52.95,0:14:55.27,Default,,0000,0000,0000,,person using it at the same time. And I've
Dialogue: 0,0:14:55.27,0:14:57.94,Default,,0000,0000,0000,,had things where I have walked out of a
Dialogue: 0,0:14:57.94,0:15:01.36,Default,,0000,0000,0000,,disabled toilet and a mother rammed her
Dialogue: 0,0:15:01.36,0:15:04.79,Default,,0000,0000,0000,,buggy into my legs and was like "Oh, not
Dialogue: 0,0:15:04.79,0:15:07.64,Default,,0000,0000,0000,,disabled or with a child then." And I was
Dialogue: 0,0:15:07.64,0:15:09.79,Default,,0000,0000,0000,,like uhhhh... And at the time-
Dialogue: 0,0:15:09.79,0:15:12.03,Default,,0000,0000,0000,,Actually very disabled thank you!
Dialogue: 0,0:15:12.03,0:15:14.86,Default,,0000,0000,0000,,And at the time I mean I was a teenager
Dialogue: 0,0:15:14.86,0:15:18.93,Default,,0000,0000,0000,,and I was too upset to say anything or do
Dialogue: 0,0:15:18.93,0:15:22.04,Default,,0000,0000,0000,,anything. I'd only just been diagnosed
Dialogue: 0,0:15:22.04,0:15:24.64,Default,,0000,0000,0000,,and I was like, oh this label of disabled
Dialogue: 0,0:15:24.64,0:15:26.65,Default,,0000,0000,0000,,do I get to use this? Do I have the right?
Dialogue: 0,0:15:26.65,0:15:28.81,Default,,0000,0000,0000,,Can I stand up to someone and actually
Dialogue: 0,0:15:28.81,0:15:31.13,Default,,0000,0000,0000,,say "Actually I am disabled?" And it
Dialogue: 0,0:15:31.13,0:15:34.96,Default,,0000,0000,0000,,really upset me inside and it was so
Dialogue: 0,0:15:34.96,0:15:36.83,Default,,0000,0000,0000,,heart wrenching. Despite at the time I
Dialogue: 0,0:15:36.83,0:15:39.92,Default,,0000,0000,0000,,had two paralyzed arms. Like, both of my
Dialogue: 0,0:15:39.92,0:15:43.08,Default,,0000,0000,0000,,arms were paralyzed and I needed to use
Dialogue: 0,0:15:43.08,0:15:44.97,Default,,0000,0000,0000,,the disabled toilet because it was the
Dialogue: 0,0:15:44.97,0:15:47.73,Default,,0000,0000,0000,,only way that I could go to the loo.
Dialogue: 0,0:15:47.73,0:15:51.05,Default,,0000,0000,0000,,Um, but for ages after that I would not
Dialogue: 0,0:15:51.05,0:15:52.88,Default,,0000,0000,0000,,without someone else around.
Dialogue: 0,0:15:52.88,0:15:54.95,Default,,0000,0000,0000,,You know, you've mentioned, I've mentioned
Dialogue: 0,0:15:54.95,0:15:57.12,Default,,0000,0000,0000,,that you're deaf, and I think there's a
Dialogue: 0,0:15:57.12,0:15:59.92,Default,,0000,0000,0000,,a lot of stereotypes that come with that.
Dialogue: 0,0:15:59.92,0:16:02.18,Default,,0000,0000,0000,,Just like blindness and people are like
Dialogue: 0,0:16:02.18,0:16:04.70,Default,,0000,0000,0000,,"Blindness, you can't see anything," a lot
Dialogue: 0,0:16:04.70,0:16:06.73,Default,,0000,0000,0000,,of people think being deaf you can't hear
Dialogue: 0,0:16:06.73,0:16:09.51,Default,,0000,0000,0000,,anything. Being deaf you can't speak.
Dialogue: 0,0:16:09.51,0:16:12.12,Default,,0000,0000,0000,,There's a lot of things like that and so
Dialogue: 0,0:16:12.12,0:16:14.50,Default,,0000,0000,0000,,And then you've mentioned you know your
Dialogue: 0,0:16:14.50,0:16:16.46,Default,,0000,0000,0000,,diagnosis or being disabled as a child
Dialogue: 0,0:16:16.46,0:16:18.45,Default,,0000,0000,0000,,and all of these things, but we haven't
Dialogue: 0,0:16:18.45,0:16:20.39,Default,,0000,0000,0000,,actually like dove into it. So for those
Dialogue: 0,0:16:20.39,0:16:22.36,Default,,0000,0000,0000,,of my followers who have never heard your
Dialogue: 0,0:16:22.36,0:16:24.44,Default,,0000,0000,0000,,story could you kind of give a synopsis of
Dialogue: 0,0:16:24.44,0:16:26.33,Default,,0000,0000,0000,,like, if you're comfortable, what your
Dialogue: 0,0:16:26.33,0:16:29.23,Default,,0000,0000,0000,,diagnosis is? I know that uh, things like
Dialogue: 0,0:16:29.23,0:16:31.41,Default,,0000,0000,0000,,EDS can be very hard to diagnose again,
Dialogue: 0,0:16:31.41,0:16:34.14,Default,,0000,0000,0000,,an invisible disability so what was your
Dialogue: 0,0:16:34.14,0:16:36.74,Default,,0000,0000,0000,,diagnosis journey to getting all of- all
Dialogue: 0,0:16:36.74,0:16:38.20,Default,,0000,0000,0000,,of these diagnoses?
Dialogue: 0,0:16:38.20,0:16:41.84,Default,,0000,0000,0000,,Well, with the NHPP, uh, the diagnosis
Dialogue: 0,0:16:41.84,0:16:44.75,Default,,0000,0000,0000,,was sort of straight forward in that it
Dialogue: 0,0:16:44.75,0:16:48.07,Default,,0000,0000,0000,,I'd always struggled with my hands and
Dialogue: 0,0:16:48.07,0:16:51.11,Default,,0000,0000,0000,,feet as a child. And just being kind of
Dialogue: 0,0:16:51.11,0:16:52.90,Default,,0000,0000,0000,,what was called "clumsy" because they
Dialogue: 0,0:16:52.90,0:16:55.31,Default,,0000,0000,0000,,didn't realize that it was because I
Dialogue: 0,0:16:55.31,0:16:58.22,Default,,0000,0000,0000,,couldn't feel what I was touching. And
Dialogue: 0,0:16:58.22,0:17:00.21,Default,,0000,0000,0000,,you don't realize things because you
Dialogue: 0,0:17:00.21,0:17:02.08,Default,,0000,0000,0000,,assume as a child that everyone else is
Dialogue: 0,0:17:02.08,0:17:04.47,Default,,0000,0000,0000,,like this. So I can't feel the front of
Dialogue: 0,0:17:04.47,0:17:08.08,Default,,0000,0000,0000,,my calves because when I was a baby I
Dialogue: 0,0:17:08.08,0:17:10.70,Default,,0000,0000,0000,,crawled around on them and I've never been
Dialogue: 0,0:17:10.70,0:17:13.20,Default,,0000,0000,0000,,able to feel my knees. And I just assumed
Dialogue: 0,0:17:13.20,0:17:15.18,Default,,0000,0000,0000,,no one can feel their knees, right? Like
Dialogue: 0,0:17:15.18,0:17:16.97,Default,,0000,0000,0000,,you can't feel the skin on your knees
Dialogue: 0,0:17:16.97,0:17:19.72,Default,,0000,0000,0000,,that's weird, who can do that? Um, but I
Dialogue: 0,0:17:19.72,0:17:21.78,Default,,0000,0000,0000,,thought this was totally normal til I hit
Dialogue: 0,0:17:21.78,0:17:26.86,Default,,0000,0000,0000,,17 and I was in an exam and I lent on my
Dialogue: 0,0:17:26.86,0:17:29.60,Default,,0000,0000,0000,,elbow for about twenty minutes whilst I
Dialogue: 0,0:17:29.60,0:17:32.38,Default,,0000,0000,0000,,writing. And I got a crick in my neck and
Dialogue: 0,0:17:32.38,0:17:35.62,Default,,0000,0000,0000,,woke up the next morning having paralyzed
Dialogue: 0,0:17:35.62,0:17:38.36,Default,,0000,0000,0000,,my arms. Because this crick in my neck had
Dialogue: 0,0:17:38.36,0:17:41.32,Default,,0000,0000,0000,,been so bad, I'm not helped by the stress
Dialogue: 0,0:17:41.32,0:17:43.30,Default,,0000,0000,0000,,of this exam and the fact I'd been on
Dialogue: 0,0:17:43.30,0:17:45.48,Default,,0000,0000,0000,,crutches for like six months before this
Dialogue: 0,0:17:45.48,0:17:49.64,Default,,0000,0000,0000,,point. Um, and I had paralyzed both of my
Dialogue: 0,0:17:49.64,0:17:52.29,Default,,0000,0000,0000,,arms and they stayed that way for a year
Dialogue: 0,0:17:52.29,0:17:55.19,Default,,0000,0000,0000,,and a half, which was very difficult. And
Dialogue: 0,0:17:55.19,0:17:57.14,Default,,0000,0000,0000,,I got rushed to hospital of course and
Dialogue: 0,0:17:57.14,0:17:58.98,Default,,0000,0000,0000,,they were trying to find out what was
Dialogue: 0,0:17:58.98,0:18:01.06,Default,,0000,0000,0000,,wrong with me, it could have been a stroke
Dialogue: 0,0:18:01.06,0:18:02.98,Default,,0000,0000,0000,,it could have been meningitis. And they
Dialogue: 0,0:18:02.98,0:18:04.90,Default,,0000,0000,0000,,ran all sorts of tests, did all sorts of
Dialogue: 0,0:18:04.90,0:18:06.78,Default,,0000,0000,0000,,things and then ran a genetic screening
Dialogue: 0,0:18:06.78,0:18:09.33,Default,,0000,0000,0000,,and were like "Oh, ah, you're actually
Dialogue: 0,0:18:09.33,0:18:12.67,Default,,0000,0000,0000,,missing a gene." I was like, oh right
Dialogue: 0,0:18:12.67,0:18:16.51,Default,,0000,0000,0000,,goodness. So I'm a mutant, which is great.
Dialogue: 0,0:18:16.51,0:18:18.60,Default,,0000,0000,0000,,Still waiting for my X-men powers.
Dialogue: 0,0:18:18.60,0:18:20.76,Default,,0000,0000,0000,,Fellow mutant here so I'm with you.
Dialogue: 0,0:18:20.76,0:18:22.77,Default,,0000,0000,0000,,There we go, see? Have you got your X-men
Dialogue: 0,0:18:22.77,0:18:25.05,Default,,0000,0000,0000,,powers yet? I'm hoping that mine will kick
Dialogue: 0,0:18:25.05,0:18:26.93,Default,,0000,0000,0000,,in soon. / Not quite yet. / A bit late
Dialogue: 0,0:18:26.93,0:18:28.81,Default,,0000,0000,0000,,you know? / Yeah I think they're in the
Dialogue: 0,0:18:28.81,0:18:30.76,Default,,0000,0000,0000,,mail but you know the mail's been slow lately.
Dialogue: 0,0:18:30.76,0:18:32.97,Default,,0000,0000,0000,,It has. We'll just keep blaming it on the
Dialogue: 0,0:18:32.97,0:18:36.59,Default,,0000,0000,0000,,pandemic. It's fine. It's fine. So that
Dialogue: 0,0:18:36.59,0:18:38.37,Default,,0000,0000,0000,,diagnosis was actually pretty
Dialogue: 0,0:18:38.37,0:18:39.90,Default,,0000,0000,0000,,straightforward because it was
Dialogue: 0,0:18:39.90,0:18:42.44,Default,,0000,0000,0000,,very much, "oh we ran your DNA, cool
Dialogue: 0,0:18:42.44,0:18:44.55,Default,,0000,0000,0000,,you've got this" There we go.
Dialogue: 0,0:18:44.55,0:18:47.67,Default,,0000,0000,0000,,But the EDS was a much harder
Dialogue: 0,0:18:47.67,0:18:50.12,Default,,0000,0000,0000,,diagnosis and funny enough,
Dialogue: 0,0:18:50.12,0:18:51.80,Default,,0000,0000,0000,,actually came from YouTube
Dialogue: 0,0:18:51.80,0:18:53.32,Default,,0000,0000,0000,,and my subscribers.
Dialogue: 0,0:18:53.90,0:18:56.48,Default,,0000,0000,0000,,So I was diagnosed with a thing called
Dialogue: 0,0:18:56.48,0:19:00.16,Default,,0000,0000,0000,,mixed connective tissue disorder. Which
Dialogue: 0,0:19:00.16,0:19:03.02,Default,,0000,0000,0000,,is also about being hyper-mobile
Dialogue: 0,0:19:03.02,0:19:05.35,Default,,0000,0000,0000,,and having collagen that is kind of
Dialogue: 0,0:19:05.35,0:19:06.70,Default,,0000,0000,0000,,too flexible and
Dialogue: 0,0:19:06.70,0:19:10.23,Default,,0000,0000,0000,,it also affects your internal organs, but
Dialogue: 0,0:19:10.53,0:19:12.65,Default,,0000,0000,0000,,there were parts of it that
Dialogue: 0,0:19:12.68,0:19:14.76,Default,,0000,0000,0000,,just didn't- i just didn't fit?
Dialogue: 0,0:19:14.76,0:19:16.82,Default,,0000,0000,0000,,I didn't like tick like all of the boxes?
Dialogue: 0,0:19:16.82,0:19:19.18,Default,,0000,0000,0000,,I ticked quite a few of them and
Dialogue: 0,0:19:19.18,0:19:20.90,Default,,0000,0000,0000,,my doctor was like, "Ah, well.
Dialogue: 0,0:19:20.90,0:19:22.91,Default,,0000,0000,0000,,I don't know, maybe it's cause you've got
Dialogue: 0,0:19:22.91,0:19:24.52,Default,,0000,0000,0000,,that other thing as well.
Dialogue: 0,0:19:24.52,0:19:25.95,Default,,0000,0000,0000,,And you know how doctors don't
Dialogue: 0,0:19:25.95,0:19:27.33,Default,,0000,0000,0000,,really talk to each other
Dialogue: 0,0:19:27.33,0:19:29.02,Default,,0000,0000,0000,,if it's not their specialty.
Dialogue: 0,0:19:29.02,0:19:30.61,Default,,0000,0000,0000,,They're like, "Oh, no, sorry.
Dialogue: 0,0:19:30.61,0:19:32.85,Default,,0000,0000,0000,,I'm very specifically an eye doctor
Dialogue: 0,0:19:32.85,0:19:36.10,Default,,0000,0000,0000,,so I don't talk to the brain doctor."
Dialogue: 0,0:19:36.10,0:19:37.88,Default,,0000,0000,0000,,Like, " Oh, thanks."
Dialogue: 0,0:19:37.88,0:19:39.68,Default,,0000,0000,0000,,But this is all one thing.
Dialogue: 0,0:19:39.68,0:19:41.44,Default,,0000,0000,0000,,It's all in- it's all in my head so
Dialogue: 0,0:19:41.44,0:19:43.40,Default,,0000,0000,0000,,if you could coordinate with each other?
Dialogue: 0,0:19:43.40,0:19:44.93,Default,,0000,0000,0000,,They're like, "Oh, no, no, no."
Dialogue: 0,0:19:44.93,0:19:46.87,Default,,0000,0000,0000,,Not my thing/It's also just one body.
Dialogue: 0,0:19:46.87,0:19:49.26,Default,,0000,0000,0000,,Yeah, yeah. One body. One human.
Dialogue: 0,0:19:49.26,0:19:51.29,Default,,0000,0000,0000,,All works. It's a system.
Dialogue: 0,0:19:51.29,0:19:52.29,Default,,0000,0000,0000,,And they're like,
Dialogue: 0,0:19:52.29,0:19:53.83,Default,,0000,0000,0000,,"No, oh no. Just this one thing"
Dialogue: 0,0:19:53.83,0:19:55.22,Default,,0000,0000,0000,,So they always just kind of
Dialogue: 0,0:19:55.22,0:19:56.75,Default,,0000,0000,0000,,chalked it up to that.
Dialogue: 0,0:19:56.75,0:19:58.27,Default,,0000,0000,0000,,That I had something else and
Dialogue: 0,0:19:58.27,0:20:00.07,Default,,0000,0000,0000,,therefore that's why I didn't really
Dialogue: 0,0:20:00.07,0:20:01.99,Default,,0000,0000,0000,,fit this profile and it was a bit weird
Dialogue: 0,0:20:02.01,0:20:04.68,Default,,0000,0000,0000,,and I talked about it on my YouTube channel
Dialogue: 0,0:20:04.68,0:20:06.06,Default,,0000,0000,0000,,I've got this and this
Dialogue: 0,0:20:06.06,0:20:08.03,Default,,0000,0000,0000,,but then in other videos I'd kind of
Dialogue: 0,0:20:08.03,0:20:09.66,Default,,0000,0000,0000,,talk about what I was struggling with
Dialogue: 0,0:20:09.66,0:20:11.57,Default,,0000,0000,0000,,and then say it's a bit hard because
Dialogue: 0,0:20:11.57,0:20:13.96,Default,,0000,0000,0000,,my doctor says: This doesn't fit the profile.
Dialogue: 0,0:20:13.96,0:20:15.87,Default,,0000,0000,0000,,And people in the comments were like:
Dialogue: 0,0:20:15.87,0:20:17.81,Default,,0000,0000,0000,,"That's probably because you have EDS Jessica."
Dialogue: 0,0:20:17.81,0:20:18.96,Default,,0000,0000,0000,,"Have you got checked?"
Dialogue: 0,0:20:18.96,0:20:20.22,Default,,0000,0000,0000,,"I think you've got EDS Jessica."
Dialogue: 0,0:20:20.22,0:20:21.66,Default,,0000,0000,0000,,"Pretty sure you've got EDS Jessica."
Dialogue: 0,0:20:21.66,0:20:22.72,Default,,0000,0000,0000,,"This is EDS."
Dialogue: 0,0:20:22.72,0:20:24.76,Default,,0000,0000,0000,,And I was like, is it?
Dialogue: 0,0:20:24.76,0:20:25.92,Default,,0000,0000,0000,,My goodness.
Dialogue: 0,0:20:25.92,0:20:28.23,Default,,0000,0000,0000,,So I went to my GP and said
Dialogue: 0,0:20:28.23,0:20:30.36,Default,,0000,0000,0000,,well I didn't say the internet says
Dialogue: 0,0:20:30.36,0:20:32.54,Default,,0000,0000,0000,,I have EDS. I was like:
Dialogue: 0,0:20:32.54,0:20:34.89,Default,,0000,0000,0000,,I just would like to be re-referred
Dialogue: 0,0:20:34.89,0:20:37.61,Default,,0000,0000,0000,,to rheumatology please.
Dialogue: 0,0:20:37.61,0:20:39.81,Default,,0000,0000,0000,,So they could maybe check to see
Dialogue: 0,0:20:39.81,0:20:41.48,Default,,0000,0000,0000,,whether I definitely have this thing
Dialogue: 0,0:20:41.48,0:20:42.73,Default,,0000,0000,0000,,that I was diagnosed with?
Dialogue: 0,0:20:42.73,0:20:44.88,Default,,0000,0000,0000,,Or maybe I have another thing.
Dialogue: 0,0:20:44.88,0:20:47.93,Default,,0000,0000,0000,,Ehlers-Danlos Syndrome? Heard of it?
Dialogue: 0,0:20:47.93,0:20:50.99,Default,,0000,0000,0000,,And my doctor: "Oh well that's not curable,
Dialogue: 0,0:20:50.99,0:20:52.77,Default,,0000,0000,0000,,so I'm not gonna refer you"
Dialogue: 0,0:20:52.77,0:20:53.61,Default,,0000,0000,0000,,What?!
Dialogue: 0,0:20:54.57,0:20:56.97,Default,,0000,0000,0000,,I was like... I'm sorry?
Dialogue: 0,0:20:57.28,0:20:59.39,Default,,0000,0000,0000,,Well we just shouldn't know if we have
Dialogue: 0,0:20:59.39,0:21:00.88,Default,,0000,0000,0000,,uncurable things.Obviously.
Dialogue: 0,0:21:00.88,0:21:02.27,Default,,0000,0000,0000,,What what what?!
Dialogue: 0,0:21:02.27,0:21:04.51,Default,,0000,0000,0000,,And he was like "Yeah they're very busy
Dialogue: 0,0:21:04.51,0:21:08.31,Default,,0000,0000,0000,,So, I'm not gonna refer you for them."
Dialogue: 0,0:21:08.31,0:21:09.99,Default,,0000,0000,0000,,Ok! Right!
Dialogue: 0,0:21:09.99,0:21:12.62,Default,,0000,0000,0000,,So I ended up having to go get a
Dialogue: 0,0:21:12.62,0:21:13.77,Default,,0000,0000,0000,,private diagnosis.
Dialogue: 0,0:21:13.77,0:21:17.07,Default,,0000,0000,0000,,Which, I live in England. We have the NHS.
Dialogue: 0,0:21:17.07,0:21:19.99,Default,,0000,0000,0000,,Doing private healthcare is like
Dialogue: 0,0:21:19.99,0:21:22.62,Default,,0000,0000,0000,,a weirdly out there type of thing.
Dialogue: 0,0:21:22.62,0:21:24.15,Default,,0000,0000,0000,,We don't do that much.
Dialogue: 0,0:21:24.15,0:21:27.07,Default,,0000,0000,0000,,So, I went to get a private diagnosis.
Dialogue: 0,0:21:27.07,0:21:29.32,Default,,0000,0000,0000,,Saw a private rheumatologist who was like:
Dialogue: 0,0:21:29.33,0:21:31.40,Default,,0000,0000,0000,,"Yeah, you've obviously got EDS."
Dialogue: 0,0:21:31.40,0:21:33.33,Default,,0000,0000,0000,,I was like, "Oh!
Dialogue: 0,0:21:33.33,0:21:35.72,Default,,0000,0000,0000,,Ok, well the internet was correct."
Dialogue: 0,0:21:35.72,0:21:38.44,Default,,0000,0000,0000,,See? Sometimes you can listen to the internet.
Dialogue: 0,0:21:38.44,0:21:42.17,Default,,0000,0000,0000,,Ok, that's how my Youtube subscribers
Dialogue: 0,0:21:42.17,0:21:44.61,Default,,0000,0000,0000,,wonderfully diagnosed me.
Dialogue: 0,0:21:44.61,0:21:47.93,Default,,0000,0000,0000,,What a story. I love that for you.
Dialogue: 0,0:21:47.93,0:21:50.48,Default,,0000,0000,0000,,Now do your two diagnoses
Dialogue: 0,0:21:50.48,0:21:51.95,Default,,0000,0000,0000,,often go hand-in-hand
Dialogue: 0,0:21:51.95,0:21:54.83,Default,,0000,0000,0000,,or are they rarely seen together?
Dialogue: 0,0:21:54.83,0:21:58.83,Default,,0000,0000,0000,,According to every doctor I have ever met,
Dialogue: 0,0:21:58.83,0:22:02.56,Default,,0000,0000,0000,,I am the only case of these two things
Dialogue: 0,0:22:02.56,0:22:05.80,Default,,0000,0000,0000,,interracting. Because, HNPP is quite
Dialogue: 0,0:22:05.80,0:22:08.71,Default,,0000,0000,0000,,a rare neurological condition.
Dialogue: 0,0:22:08.71,0:22:11.83,Default,,0000,0000,0000,,And it comes from my father.
Dialogue: 0,0:22:11.83,0:22:14.81,Default,,0000,0000,0000,,And my hyper mobility comes from my mother.
Dialogue: 0,0:22:14.81,0:22:18.81,Default,,0000,0000,0000,,So, I'm just blessed.
Dialogue: 0,0:22:18.81,0:22:20.04,Default,,0000,0000,0000,,What a combo.
Dialogue: 0,0:22:20.04,0:22:21.31,Default,,0000,0000,0000,,What a combo.
Dialogue: 0,0:22:21.31,0:22:23.57,Default,,0000,0000,0000,,Well, it's made quite a wonderful woman.
Dialogue: 0,0:22:23.57,0:22:26.01,Default,,0000,0000,0000,,So, I'm glad we have you.
Dialogue: 0,0:22:26.01,0:22:27.44,Default,,0000,0000,0000,,I'm not glad for your pain.
Dialogue: 0,0:22:27.44,0:22:29.33,Default,,0000,0000,0000,,I'm not glad for what you had to go
Dialogue: 0,0:22:29.33,0:22:30.50,Default,,0000,0000,0000,,through to get here.
Dialogue: 0,0:22:30.50,0:22:32.63,Default,,0000,0000,0000,,But I am glad our community has you,
Dialogue: 0,0:22:32.63,0:22:34.46,Default,,0000,0000,0000,,because we need more people like you.
Dialogue: 0,0:22:34.46,0:22:36.09,Default,,0000,0000,0000,,With such a powerful voice and
Dialogue: 0,0:22:36.09,0:22:36.94,Default,,0000,0000,0000,,a powerful story.
Dialogue: 0,0:22:36.94,0:22:39.11,Default,,0000,0000,0000,,As you've said, you've come out of the
Dialogue: 0,0:22:39.11,0:22:39.83,Default,,0000,0000,0000,,closet twice.
Dialogue: 0,0:22:39.83,0:22:43.83,Default,,0000,0000,0000,,As a disabled woman as well as being gay.
Dialogue: 0,0:22:43.83,0:22:45.93,Default,,0000,0000,0000,,Can you share some of that journey
Dialogue: 0,0:22:45.93,0:22:48.28,Default,,0000,0000,0000,,of intersectionality. Coming to terms
Dialogue: 0,0:22:48.28,0:22:51.00,Default,,0000,0000,0000,,with two different, being apart of two
Dialogue: 0,0:22:51.00,0:22:53.15,Default,,0000,0000,0000,,different minority communities.
Dialogue: 0,0:22:53.15,0:22:55.37,Default,,0000,0000,0000,,So I think I have a very different story
Dialogue: 0,0:22:55.37,0:22:57.53,Default,,0000,0000,0000,,and a very different journey to most
Dialogue: 0,0:22:57.53,0:22:59.17,Default,,0000,0000,0000,,young LGBTQ+ people.
Dialogue: 0,0:22:59.17,0:23:01.76,Default,,0000,0000,0000,,And I think in a way, that my disability
Dialogue: 0,0:23:01.76,0:23:03.46,Default,,0000,0000,0000,,really does play into that.
Dialogue: 0,0:23:03.46,0:23:06.85,Default,,0000,0000,0000,,So, I don't have a coming out story
Dialogue: 0,0:23:06.85,0:23:09.64,Default,,0000,0000,0000,,because I never came out to my parents.
Dialogue: 0,0:23:09.64,0:23:11.53,Default,,0000,0000,0000,,I was just always kind of like:
Dialogue: 0,0:23:11.53,0:23:14.05,Default,,0000,0000,0000,,"This is me. This is who I like.
Dialogue: 0,0:23:14.05,0:23:16.21,Default,,0000,0000,0000,,I really like this girl in the X-Men and
Dialogue: 0,0:23:16.21,0:23:18.22,Default,,0000,0000,0000,,we're going to date and I
Dialogue: 0,0:23:18.22,0:23:19.50,Default,,0000,0000,0000,,will marry her one day."
Dialogue: 0,0:23:19.50,0:23:21.24,Default,,0000,0000,0000,,And my parents were like:
Dialogue: 0,0:23:21.24,0:23:24.07,Default,,0000,0000,0000,,"She's animated but you do you."
Dialogue: 0,0:23:24.07,0:23:25.05,Default,,0000,0000,0000,,I'm like: Yeah!
Dialogue: 0,0:23:25.05,0:23:28.50,Default,,0000,0000,0000,,Um, I think partly my parents
Dialogue: 0,0:23:28.50,0:23:29.24,Default,,0000,0000,0000,,are Quakers.
Dialogue: 0,0:23:29.24,0:23:32.09,Default,,0000,0000,0000,,So they never put any expectation
Dialogue: 0,0:23:32.09,0:23:34.66,Default,,0000,0000,0000,,on me that I had to be a certain way.
Dialogue: 0,0:23:34.66,0:23:36.36,Default,,0000,0000,0000,,They never said, you know,
Dialogue: 0,0:23:36.36,0:23:38.34,Default,,0000,0000,0000,,"When you grow up and get a husband."
Dialogue: 0,0:23:38.34,0:23:39.56,Default,,0000,0000,0000,,It was always just:
Dialogue: 0,0:23:39.56,0:23:41.60,Default,,0000,0000,0000,,"When you grow up and if you choose
Dialogue: 0,0:23:41.60,0:23:42.67,Default,,0000,0000,0000,,to get married."
Dialogue: 0,0:23:42.67,0:23:43.76,Default,,0000,0000,0000,,I'm like, yeah ok.
Dialogue: 0,0:23:43.76,0:23:45.67,Default,,0000,0000,0000,,So it always felt very open and
Dialogue: 0,0:23:45.67,0:23:47.73,Default,,0000,0000,0000,,like I could kinda share that part of me.
Dialogue: 0,0:23:47.73,0:23:52.38,Default,,0000,0000,0000,,But, being disabled and having that with me
Dialogue: 0,0:23:52.38,0:23:54.55,Default,,0000,0000,0000,,as I was growing up.
Dialogue: 0,0:23:54.55,0:23:56.97,Default,,0000,0000,0000,,Not knowing that I was disabled but knowing
Dialogue: 0,0:23:56.97,0:23:58.82,Default,,0000,0000,0000,,that there was something about my body
Dialogue: 0,0:23:58.82,0:24:02.82,Default,,0000,0000,0000,,that was wrong, that other people weren't listening to.
Dialogue: 0,0:24:02.82,0:24:04.08,Default,,0000,0000,0000,,Weren't believing in.
Dialogue: 0,0:24:04.08,0:24:06.42,Default,,0000,0000,0000,,Because, my god, when you're a child
Dialogue: 0,0:24:06.42,0:24:08.28,Default,,0000,0000,0000,,and you try to tell adults things,
Dialogue: 0,0:24:08.28,0:24:10.38,Default,,0000,0000,0000,,it can be very difficult to explain
Dialogue: 0,0:24:10.38,0:24:12.93,Default,,0000,0000,0000,,medical conditions because people don't
Dialogue: 0,0:24:12.93,0:24:15.11,Default,,0000,0000,0000,,tend to believe children about these kinds
Dialogue: 0,0:24:15.11,0:24:16.37,Default,,0000,0000,0000,,of things. When you say
Dialogue: 0,0:24:16.37,0:24:17.77,Default,,0000,0000,0000,,you have a headache, they're like,
Dialogue: 0,0:24:17.77,0:24:20.10,Default,,0000,0000,0000,,"Yeah, but you know. Not really.
Dialogue: 0,0:24:20.10,0:24:21.06,Default,,0000,0000,0000,,Cause you're a kid."
Dialogue: 0,0:24:21.06,0:24:21.76,Default,,0000,0000,0000,,Like, no no.
Dialogue: 0,0:24:21.76,0:24:23.37,Default,,0000,0000,0000,,Genuinely, I'm having a migraine
Dialogue: 0,0:24:23.37,0:24:24.43,Default,,0000,0000,0000,,right now. I realize
Dialogue: 0,0:24:24.43,0:24:26.24,Default,,0000,0000,0000,,I'm a child but I'm having a migraine.
Dialogue: 0,0:24:26.24,0:24:29.98,Default,,0000,0000,0000,,And having that to kinda battle agaisnt
Dialogue: 0,0:24:29.98,0:24:33.17,Default,,0000,0000,0000,,and deal with made my sexuality
Dialogue: 0,0:24:33.17,0:24:36.35,Default,,0000,0000,0000,,almost a...it almost became
Dialogue: 0,0:24:36.35,0:24:38.01,Default,,0000,0000,0000,,something that I, of course,
Dialogue: 0,0:24:38.01,0:24:39.78,Default,,0000,0000,0000,,I would just accept it.
Dialogue: 0,0:24:39.78,0:24:41.73,Default,,0000,0000,0000,,Because I had something that was weighing
Dialogue: 0,0:24:41.73,0:24:43.99,Default,,0000,0000,0000,,quite heavily on me and my
Dialogue: 0,0:24:43.99,0:24:46.46,Default,,0000,0000,0000,,sexuality only brought me joy.
Dialogue: 0,0:24:46.46,0:24:49.11,Default,,0000,0000,0000,,It was only, I mean I'm not saying it
Dialogue: 0,0:24:49.11,0:24:50.44,Default,,0000,0000,0000,,brought me joy in fact like,
Dialogue: 0,0:24:50.44,0:24:51.52,Default,,0000,0000,0000,,I had lots of girlfriends.
Dialogue: 0,0:24:51.52,0:24:54.16,Default,,0000,0000,0000,,Because I really didn't, at all.
Dialogue: 0,0:24:54.16,0:24:56.41,Default,,0000,0000,0000,,But it brought me joy in that,
Dialogue: 0,0:24:56.41,0:24:59.36,Default,,0000,0000,0000,,I would have these beautiful really
Dialogue: 0,0:24:59.36,0:25:02.92,Default,,0000,0000,0000,,close relationships that I would
Dialogue: 0,0:25:02.92,0:25:05.18,Default,,0000,0000,0000,,have this massive crush on an actress
Dialogue: 0,0:25:05.18,0:25:07.90,Default,,0000,0000,0000,,and I get to like, watch her and things.
Dialogue: 0,0:25:07.90,0:25:10.26,Default,,0000,0000,0000,,and feel happy and I was like yeah!
Dialogue: 0,0:25:10.26,0:25:12.14,Default,,0000,0000,0000,,This being gay thing is great!
Dialogue: 0,0:25:12.14,0:25:12.96,Default,,0000,0000,0000,,I love it!
Dialogue: 0,0:25:12.96,0:25:14.88,Default,,0000,0000,0000,,But then the body.
Dialogue: 0,0:25:14.88,0:25:17.70,Default,,0000,0000,0000,,I'm like ugh, my body is useless.
Dialogue: 0,0:25:17.70,0:25:19.12,Default,,0000,0000,0000,,But at least I'm gay.
Dialogue: 0,0:25:19.12,0:25:20.84,Default,,0000,0000,0000,,So I've got that going for me.
Dialogue: 0,0:25:20.84,0:25:22.72,Default,,0000,0000,0000,,Yeah, it became almost a saving grace
Dialogue: 0,0:25:22.72,0:25:24.20,Default,,0000,0000,0000,,throughout my teenage years.
Dialogue: 0,0:25:24.20,0:25:27.20,Default,,0000,0000,0000,,Struggling against a body that didn't work
Dialogue: 0,0:25:27.20,0:25:29.60,Default,,0000,0000,0000,,and being told that it should.
Dialogue: 0,0:25:29.60,0:25:31.76,Default,,0000,0000,0000,,Being told that I was incorrect on something.
Dialogue: 0,0:25:31.76,0:25:33.76,Default,,0000,0000,0000,,And then having this thing that I was
Dialogue: 0,0:25:33.76,0:25:36.29,Default,,0000,0000,0000,,really sure of and really happy with and
Dialogue: 0,0:25:36.29,0:25:37.58,Default,,0000,0000,0000,,quite passionate about.
Dialogue: 0,0:25:37.58,0:25:40.30,Default,,0000,0000,0000,,So, it's definetly a different coming out
Dialogue: 0,0:25:40.30,0:25:42.52,Default,,0000,0000,0000,,to most LGBTQ+ young people
Dialogue: 0,0:25:42.52,0:25:45.87,Default,,0000,0000,0000,,but I, in a way, hope that it's something
Dialogue: 0,0:25:45.87,0:25:48.54,Default,,0000,0000,0000,,that we get more of going forwards.
Dialogue: 0,0:25:48.54,0:25:50.76,Default,,0000,0000,0000,,That it's more accepted.
Dialogue: 0,0:25:50.76,0:25:52.06,Default,,0000,0000,0000,,That children are able to
Dialogue: 0,0:25:52.06,0:25:53.30,Default,,0000,0000,0000,,just speak their mind.
Dialogue: 0,0:25:53.30,0:25:55.27,Default,,0000,0000,0000,,That people can support them.
Dialogue: 0,0:25:55.27,0:25:57.64,Default,,0000,0000,0000,,That's a really beautiful story. Honestly.
Dialogue: 0,0:25:57.64,0:25:59.82,Default,,0000,0000,0000,,You know a lot of my friends growing up
Dialogue: 0,0:25:59.82,0:26:02.79,Default,,0000,0000,0000,,were LGBTQ+ because I was the only
Dialogue: 0,0:26:02.79,0:26:06.35,Default,,0000,0000,0000,,disabled kid and they were the only gay kid,
Dialogue: 0,0:26:06.35,0:26:10.35,Default,,0000,0000,0000,,or the only trans kid, and so you know we
Dialogue: 0,0:26:10.35,0:26:11.84,Default,,0000,0000,0000,,just were like, "Hey!
Dialogue: 0,0:26:11.84,0:26:14.23,Default,,0000,0000,0000,,You're also different and not like the other
Dialogue: 0,0:26:14.23,0:26:16.74,Default,,0000,0000,0000,,kids in class. We should be friends."
Dialogue: 0,0:26:16.74,0:26:20.74,Default,,0000,0000,0000,,And so I really like hearing your story
Dialogue: 0,0:26:20.74,0:26:23.78,Default,,0000,0000,0000,,because it is very different than what
Dialogue: 0,0:26:23.78,0:26:26.33,Default,,0000,0000,0000,,a lot of my LGBTQ+ friends went through.
Dialogue: 0,0:26:26.33,0:26:28.98,Default,,0000,0000,0000,,There's actually a really big crossover
Dialogue: 0,0:26:28.98,0:26:30.26,Default,,0000,0000,0000,,between the disabled community
Dialogue: 0,0:26:30.26,0:26:32.26,Default,,0000,0000,0000,,and the LGBTQ+ community.
Dialogue: 0,0:26:32.69,0:26:35.64,Default,,0000,0000,0000,,I think, correct statistic, is that
Dialogue: 0,0:26:35.64,0:26:38.63,Default,,0000,0000,0000,,one third of people who are LGBTQ+
Dialogue: 0,0:26:38.63,0:26:40.12,Default,,0000,0000,0000,,also have a disability.
Dialogue: 0,0:26:40.12,0:26:43.15,Default,,0000,0000,0000,,And- which is a really interesting statistic.
Dialogue: 0,0:26:43.15,0:26:45.49,Default,,0000,0000,0000,,But I think a lot of it has to do with
Dialogue: 0,0:26:45.49,0:26:47.72,Default,,0000,0000,0000,,the fact that you have to come out
Dialogue: 0,0:26:47.72,0:26:50.52,Default,,0000,0000,0000,,about one thing, so you come out about
Dialogue: 0,0:26:50.52,0:26:51.87,Default,,0000,0000,0000,,something else. Like you're more
Dialogue: 0,0:26:51.87,0:26:54.48,Default,,0000,0000,0000,,comfortable with the other thing and
Dialogue: 0,0:26:54.48,0:26:55.78,Default,,0000,0000,0000,,you're like, "Look, let me just
Dialogue: 0,0:26:55.78,0:26:57.49,Default,,0000,0000,0000,,put this out here. You can all clearly see
Dialogue: 0,0:26:57.49,0:27:00.32,Default,,0000,0000,0000,,that I am disabled, so while I'm here,
Dialogue: 0,0:27:00.32,0:27:01.72,Default,,0000,0000,0000,,I'm gay too."
Dialogue: 0,0:27:01.72,0:27:05.72,Default,,0000,0000,0000,,Well yeah! It's like you already have this
Dialogue: 0,0:27:05.72,0:27:07.52,Default,,0000,0000,0000,,big thing to accept about yourself.
Dialogue: 0,0:27:07.52,0:27:09.64,Default,,0000,0000,0000,,You already have this big target on your
Dialogue: 0,0:27:09.64,0:27:12.16,Default,,0000,0000,0000,,back or you know a community runt
Dialogue: 0,0:27:12.16,0:27:15.21,Default,,0000,0000,0000,,so you're like, ok well, I've got one
Dialogue: 0,0:27:15.21,0:27:16.69,Default,,0000,0000,0000,,thing here's the other.
Dialogue: 0,0:27:16.69,0:27:19.64,Default,,0000,0000,0000,,Now I can see that statistic being true
Dialogue: 0,0:27:19.64,0:27:21.64,Default,,0000,0000,0000,,honestly because, as I said, so many of my
Dialogue: 0,0:27:21.64,0:27:24.21,Default,,0000,0000,0000,,friends are LGBTQ+ and I'm disabled
Dialogue: 0,0:27:24.21,0:27:26.64,Default,,0000,0000,0000,,so I kinda do have a lot of friends in
Dialogue: 0,0:27:26.64,0:27:28.70,Default,,0000,0000,0000,,both worlds and I see a lot of that
Dialogue: 0,0:27:28.70,0:27:30.89,Default,,0000,0000,0000,,crossover. I see that I've- now, at this point
Dialogue: 0,0:27:30.89,0:27:32.57,Default,,0000,0000,0000,,in my life for both communities.
Dialogue: 0,0:27:32.57,0:27:35.04,Default,,0000,0000,0000,,Met many people who do identify as being
Dialogue: 0,0:27:35.04,0:27:35.96,Default,,0000,0000,0000,,a part of both.
Dialogue: 0,0:27:35.96,0:27:38.08,Default,,0000,0000,0000,,When you met your wife did she know
Dialogue: 0,0:27:38.08,0:27:38.92,Default,,0000,0000,0000,,sign language?
Dialogue: 0,0:27:38.92,0:27:40.82,Default,,0000,0000,0000,,No! (laughs)
Dialogue: 0,0:27:40.82,0:27:44.05,Default,,0000,0000,0000,,She didn't. In fact, when I first met my wife,
Dialogue: 0,0:27:44.05,0:27:47.16,Default,,0000,0000,0000,,on our first date, I hadn't told her
Dialogue: 0,0:27:47.16,0:27:50.09,Default,,0000,0000,0000,,anything about my disabilities.
Dialogue: 0,0:27:50.09,0:27:54.09,Default,,0000,0000,0000,,I kind of wanted to see whether she
Dialogue: 0,0:27:54.09,0:27:57.45,Default,,0000,0000,0000,,even liked me because I'd been on so many dates
Dialogue: 0,0:27:57.45,0:27:59.84,Default,,0000,0000,0000,,where you spent so much time explaining
Dialogue: 0,0:27:59.84,0:28:02.66,Default,,0000,0000,0000,,what's up. / Yup! / and then you never hear from
Dialogue: 0,0:28:02.66,0:28:04.86,Default,,0000,0000,0000,,them again and ugh, it's such a waste of
Dialogue: 0,0:28:04.86,0:28:06.60,Default,,0000,0000,0000,,my time!/ Very much agree!
Dialogue: 0,0:28:06.60,0:28:07.79,Default,,0000,0000,0000,,But then you have to balance it with
Dialogue: 0,0:28:07.79,0:28:10.15,Default,,0000,0000,0000,,do I want to go on a number of dates
Dialogue: 0,0:28:10.15,0:28:11.80,Default,,0000,0000,0000,,or do I want to spend a whole month
Dialogue: 0,0:28:11.80,0:28:13.84,Default,,0000,0000,0000,,talking to someone and then I tell them
Dialogue: 0,0:28:13.84,0:28:16.16,Default,,0000,0000,0000,,and they're like, "Oh, I can't redo that?"
Dialogue: 0,0:28:16.16,0:28:18.54,Default,,0000,0000,0000,,And then you're like, "Ugh! Well I
Dialogue: 0,0:28:18.58,0:28:20.45,Default,,0000,0000,0000,,just wasted my month of talking to you.
Dialogue: 0,0:28:20.45,0:28:21.85,Default,,0000,0000,0000,,What a waste of time!"
Dialogue: 0,0:28:21.85,0:28:23.78,Default,,0000,0000,0000,,So when she first came up
Dialogue: 0,0:28:23.78,0:28:25.58,Default,,0000,0000,0000,,she actually thought that I was wearing a
Dialogue: 0,0:28:25.58,0:28:27.71,Default,,0000,0000,0000,,bluetooth device and was working.
Dialogue: 0,0:28:27.71,0:28:29.50,Default,,0000,0000,0000,,Cause she saw my hearing aids and was like
Dialogue: 0,0:28:29.50,0:28:32.28,Default,,0000,0000,0000,,"Oh, she's working hard! Continuing on
Dialogue: 0,0:28:32.28,0:28:33.85,Default,,0000,0000,0000,,with her bluetooth device."
Dialogue: 0,0:28:33.85,0:28:35.54,Default,,0000,0000,0000,,And I think to start with, thought I was
Dialogue: 0,0:28:35.54,0:28:37.92,Default,,0000,0000,0000,,a bit rude that I hadn't removed
Dialogue: 0,0:28:37.92,0:28:39.76,Default,,0000,0000,0000,,my headphones. I was like:
Dialogue: 0,0:28:39.76,0:28:41.57,Default,,0000,0000,0000,,"Umm yeah should probably tell you
Dialogue: 0,0:28:41.57,0:28:43.50,Default,,0000,0000,0000,,that I'm deaf."
Dialogue: 0,0:28:43.50,0:28:45.82,Default,,0000,0000,0000,,And so yeah she didn't know anything.
Dialogue: 0,0:28:45.82,0:28:49.82,Default,,0000,0000,0000,,But she was very blasé on our first date
Dialogue: 0,0:28:49.82,0:28:51.85,Default,,0000,0000,0000,,I didn't tell her, you know,
Dialogue: 0,0:28:51.85,0:28:53.76,Default,,0000,0000,0000,,"This is me. I have this disability.
Dialogue: 0,0:28:53.76,0:28:55.17,Default,,0000,0000,0000,,This is how it affects me."
Dialogue: 0,0:28:55.17,0:28:59.17,Default,,0000,0000,0000,,She was like, "Ok. Mmm. Do you still like
Dialogue: 0,0:28:59.17,0:29:01.22,Default,,0000,0000,0000,,to go for walks in the woods?"
Dialogue: 0,0:29:01.22,0:29:01.76,Default,,0000,0000,0000,,"I do."
Dialogue: 0,0:29:01.76,0:29:04.08,Default,,0000,0000,0000,,"Do you still like national trust properties?"
Dialogue: 0,0:29:04.08,0:29:04.68,Default,,0000,0000,0000,,"I do."
Dialogue: 0,0:29:04.68,0:29:07.93,Default,,0000,0000,0000,,And it was just like the basic things that
Dialogue: 0,0:29:07.93,0:29:09.79,Default,,0000,0000,0000,,she needed to know like, "Are you good
Dialogue: 0,0:29:09.79,0:29:10.51,Default,,0000,0000,0000,,around trees?"
Dialogue: 0,0:29:10.51,0:29:12.78,Default,,0000,0000,0000,,"I love a tree. It's wonderful."
Dialogue: 0,0:29:12.78,0:29:14.88,Default,,0000,0000,0000,,"You good around old properties?"
Dialogue: 0,0:29:14.88,0:29:16.48,Default,,0000,0000,0000,,"Love an old property."
Dialogue: 0,0:29:16.48,0:29:17.14,Default,,0000,0000,0000,,"Excellent"
Dialogue: 0,0:29:17.14,0:29:19.33,Default,,0000,0000,0000,,Basics of our marriage, that.
Dialogue: 0,0:29:19.33,0:29:20.48,Default,,0000,0000,0000,,We're country girls at heart.
Dialogue: 0,0:29:20.48,0:29:23.51,Default,,0000,0000,0000,,That is actually exactly how a first date
Dialogue: 0,0:29:23.51,0:29:25.49,Default,,0000,0000,0000,,with a disabled person should go.
Dialogue: 0,0:29:25.49,0:29:29.18,Default,,0000,0000,0000,,Word to anybody who ever goes on a date
Dialogue: 0,0:29:29.18,0:29:30.92,Default,,0000,0000,0000,,with a disabled person.
Dialogue: 0,0:29:30.92,0:29:33.13,Default,,0000,0000,0000,,That's how you know it's a good match:
Dialogue: 0,0:29:33.13,0:29:34.72,Default,,0000,0000,0000,,If you're able to be blasé and focus on
Dialogue: 0,0:29:34.72,0:29:36.75,Default,,0000,0000,0000,,the actual parts of them that are human
Dialogue: 0,0:29:36.75,0:29:38.31,Default,,0000,0000,0000,,outside of disability. Key!
Dialogue: 0,0:29:38.31,0:29:40.21,Default,,0000,0000,0000,,You will win a lot of points with us.
Dialogue: 0,0:29:40.21,0:29:40.73,Default,,0000,0000,0000,,(giggles)
Dialogue: 0,0:29:40.73,0:29:42.75,Default,,0000,0000,0000,,You mentioned something that like
Dialogue: 0,0:29:42.75,0:29:44.85,Default,,0000,0000,0000,,really hit me and maybe we can talk about
Dialogue: 0,0:29:44.85,0:29:46.57,Default,,0000,0000,0000,,it more on the video that we do on your
Dialogue: 0,0:29:46.57,0:29:48.27,Default,,0000,0000,0000,,channel cause this video is already
Dialogue: 0,0:29:48.27,0:29:51.54,Default,,0000,0000,0000,,forever long but it like almost got me
Dialogue: 0,0:29:51.54,0:29:54.01,Default,,0000,0000,0000,,like choked up because when you said it
Dialogue: 0,0:29:54.01,0:29:55.84,Default,,0000,0000,0000,,it resonated with me so hard.
Dialogue: 0,0:29:55.84,0:29:58.42,Default,,0000,0000,0000,,And that is: You look more capable than
Dialogue: 0,0:29:58.42,0:30:00.04,Default,,0000,0000,0000,,you sometimes are.
Dialogue: 0,0:30:00.04,0:30:01.08,Default,,0000,0000,0000,,Or you present more
Dialogue: 0,0:30:01.08,0:30:02.16,Default,,0000,0000,0000,,able-bodied than you are.
Dialogue: 0,0:30:02.16,0:30:04.00,Default,,0000,0000,0000,,And I think that is something
Dialogue: 0,0:30:04.00,0:30:06.06,Default,,0000,0000,0000,,that I have lived with my whole life.
Dialogue: 0,0:30:06.06,0:30:08.24,Default,,0000,0000,0000,,It is really challenging.
Dialogue: 0,0:30:08.24,0:30:09.100,Default,,0000,0000,0000,,It has its perks,
Dialogue: 0,0:30:09.100,0:30:11.66,Default,,0000,0000,0000,,It has its benefits.
Dialogue: 0,0:30:11.66,0:30:13.20,Default,,0000,0000,0000,,You know there are times when
Dialogue: 0,0:30:13.20,0:30:15.09,Default,,0000,0000,0000,,I can just like seamlessly
Dialogue: 0,0:30:15.09,0:30:16.36,Default,,0000,0000,0000,,fit into a group
Dialogue: 0,0:30:16.36,0:30:18.38,Default,,0000,0000,0000,,and not be discriminated against
Dialogue: 0,0:30:18.38,0:30:19.38,Default,,0000,0000,0000,,for a minute
Dialogue: 0,0:30:19.38,0:30:20.81,Default,,0000,0000,0000,,because nobody knows.
Dialogue: 0,0:30:20.81,0:30:24.35,Default,,0000,0000,0000,,But also, you know I remember being
Dialogue: 0,0:30:24.35,0:30:25.63,Default,,0000,0000,0000,,in middle school
Dialogue: 0,0:30:25.63,0:30:29.63,Default,,0000,0000,0000,,and actively losing most of my sight.
Dialogue: 0,0:30:29.63,0:30:31.80,Default,,0000,0000,0000,,I had another blind student at the school
Dialogue: 0,0:30:31.80,0:30:33.41,Default,,0000,0000,0000,,who was fully blind from birth.
Dialogue: 0,0:30:33.41,0:30:35.88,Default,,0000,0000,0000,,And the teacher turns to me and goes,
Dialogue: 0,0:30:35.88,0:30:36.70,Default,,0000,0000,0000,,"Molly!
Dialogue: 0,0:30:36.70,0:30:38.82,Default,,0000,0000,0000,,Help him. He's blind, he can't see it."
Dialogue: 0,0:30:38.82,0:30:39.92,Default,,0000,0000,0000,,And I was like,
Dialogue: 0,0:30:39.92,0:30:41.76,Default,,0000,0000,0000,,"No, no. I too am blind
Dialogue: 0,0:30:41.76,0:30:43.64,Default,,0000,0000,0000,,with guide dog. I don't know
Dialogue: 0,0:30:43.64,0:30:45.90,Default,,0000,0000,0000,,what you're not getting. I too cannot
Dialogue: 0,0:30:45.90,0:30:46.100,Default,,0000,0000,0000,,see the thing."
Dialogue: 0,0:30:46.100,0:30:48.72,Default,,0000,0000,0000,,And I feel like that's like the
Dialogue: 0,0:30:48.72,0:30:50.97,Default,,0000,0000,0000,,perfect example of something I faced
Dialogue: 0,0:30:50.97,0:30:52.10,Default,,0000,0000,0000,,almost daily.
Dialogue: 0,0:30:52.10,0:30:54.28,Default,,0000,0000,0000,,Is just like and I- I just recently
Dialogue: 0,0:30:54.28,0:30:56.55,Default,,0000,0000,0000,,watched your, you did an ableism
Dialogue: 0,0:30:56.55,0:30:58.23,Default,,0000,0000,0000,,video, which had me laughing
Dialogue: 0,0:30:58.23,0:31:00.61,Default,,0000,0000,0000,,out loud and again one of the ones
Dialogue: 0,0:31:00.61,0:31:02.74,Default,,0000,0000,0000,,you said, well many of the ones
Dialogue: 0,0:31:02.74,0:31:03.72,Default,,0000,0000,0000,,you said resonated
Dialogue: 0,0:31:03.72,0:31:05.61,Default,,0000,0000,0000,,but like, well at least you look good.
Dialogue: 0,0:31:05.61,0:31:07.54,Default,,0000,0000,0000,,And it's like a I get that all the time.
Dialogue: 0,0:31:07.54,0:31:08.67,Default,,0000,0000,0000,,Like, "Ugh I can't see"
Dialogue: 0,0:31:08.67,0:31:10.64,Default,,0000,0000,0000,,"Oh, at least your eyes are beautiful."
Dialogue: 0,0:31:10.64,0:31:11.40,Default,,0000,0000,0000,,And I'm like...
Dialogue: 0,0:31:11.40,0:31:12.54,Default,,0000,0000,0000,,Wonderful, thanks.
Dialogue: 0,0:31:12.74,0:31:13.83,Default,,0000,0000,0000,,Thanks.
Dialogue: 0,0:31:13.87,0:31:15.30,Default,,0000,0000,0000,,That really helps.
Dialogue: 0,0:31:15.30,0:31:16.58,Default,,0000,0000,0000,,And I- yeah
Dialogue: 0,0:31:16.58,0:31:18.70,Default,,0000,0000,0000,,It is, it can be very challenging
Dialogue: 0,0:31:19.84,0:31:22.14,Default,,0000,0000,0000,,and even withing your own
Dialogue: 0,0:31:22.14,0:31:23.65,Default,,0000,0000,0000,,disability community, I don't know
Dialogue: 0,0:31:23.65,0:31:25.38,Default,,0000,0000,0000,,if you find this you know
Dialogue: 0,0:31:25.38,0:31:28.09,Default,,0000,0000,0000,,with a part of- because you identify
Dialogue: 0,0:31:28.09,0:31:29.77,Default,,0000,0000,0000,,with so many different groups
Dialogue: 0,0:31:29.77,0:31:31.42,Default,,0000,0000,0000,,of disability, I don't know if you
Dialogue: 0,0:31:31.42,0:31:33.45,Default,,0000,0000,0000,,find this in any of your kind of subsections
Dialogue: 0,0:31:33.45,0:31:35.15,Default,,0000,0000,0000,,of the community, but
Dialogue: 0,0:31:35.15,0:31:36.35,Default,,0000,0000,0000,,if you don't do things
Dialogue: 0,0:31:36.35,0:31:37.57,Default,,0000,0000,0000,,the way a lot of them do
Dialogue: 0,0:31:37.57,0:31:38.81,Default,,0000,0000,0000,,because you're accommodating
Dialogue: 0,0:31:38.81,0:31:40.70,Default,,0000,0000,0000,,other aspects of your disability
Dialogue: 0,0:31:40.70,0:31:42.04,Default,,0000,0000,0000,,you're judged for it.
Dialogue: 0,0:31:42.04,0:31:44.86,Default,,0000,0000,0000,,And I feel like because
Dialogue: 0,0:31:44.86,0:31:47.75,Default,,0000,0000,0000,,being blind is the part of my disability that
Dialogue: 0,0:31:47.75,0:31:49.36,Default,,0000,0000,0000,,gets focused on the most,
Dialogue: 0,0:31:49.36,0:31:51.11,Default,,0000,0000,0000,,people assume I should accommodate it
Dialogue: 0,0:31:51.11,0:31:52.83,Default,,0000,0000,0000,,the way all blind people do.
Dialogue: 0,0:31:52.83,0:31:54.87,Default,,0000,0000,0000,,Or the way a lot of the community does
Dialogue: 0,0:31:54.87,0:31:56.62,Default,,0000,0000,0000,,And I'm like, "Well,
Dialogue: 0,0:31:56.62,0:31:58.13,Default,,0000,0000,0000,,there's also other layers
Dialogue: 0,0:31:58.13,0:31:59.36,Default,,0000,0000,0000,,to my disability.
Dialogue: 0,0:31:59.36,0:32:01.94,Default,,0000,0000,0000,,Like, living with PTSD
Dialogue: 0,0:32:01.94,0:32:03.95,Default,,0000,0000,0000,,and really bad generalized anxiety
Dialogue: 0,0:32:03.95,0:32:06.03,Default,,0000,0000,0000,,is disabling for me at times.
Dialogue: 0,0:32:06.03,0:32:07.86,Default,,0000,0000,0000,,And so that's a very real
Dialogue: 0,0:32:07.86,0:32:09.75,Default,,0000,0000,0000,,part of my disability that I have to
Dialogue: 0,0:32:09.75,0:32:12.38,Default,,0000,0000,0000,,accommodate separate to my blindness.
Dialogue: 0,0:32:12.38,0:32:15.69,Default,,0000,0000,0000,,Or like I'm just like very sensitive
Dialogue: 0,0:32:15.69,0:32:17.93,Default,,0000,0000,0000,,I have a very sensitive digestive system
Dialogue: 0,0:32:17.93,0:32:19.58,Default,,0000,0000,0000,,I've dealt with irritable bowel syndrome
Dialogue: 0,0:32:19.58,0:32:21.33,Default,,0000,0000,0000,,my whole life, so it's
Dialogue: 0,0:32:21.33,0:32:23.57,Default,,0000,0000,0000,,really hard for me to eat sometimes.
Dialogue: 0,0:32:23.57,0:32:25.05,Default,,0000,0000,0000,,And for me to take-
Dialogue: 0,0:32:25.05,0:32:26.92,Default,,0000,0000,0000,,I'm very sensitive to medications. Those
Dialogue: 0,0:32:26.92,0:32:28.65,Default,,0000,0000,0000,,are other parts of my human body
Dialogue: 0,0:32:28.65,0:32:30.45,Default,,0000,0000,0000,,that I need to accommodate.
Dialogue: 0,0:32:30.45,0:32:32.20,Default,,0000,0000,0000,,And I have other parts of my
Dialogue: 0,0:32:32.20,0:32:35.14,Default,,0000,0000,0000,,disability that I don't talk about on the internet
Dialogue: 0,0:32:35.14,0:32:37.51,Default,,0000,0000,0000,,or that I don't expose to the world.
Dialogue: 0,0:32:37.51,0:32:37.76,Default,,0000,0000,0000,,You know, things that I'm affected by
Dialogue: 0,0:32:37.76,0:32:41.51,Default,,0000,0000,0000,,Or you know, things that I'm affected by
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,that I don't talk about.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,