WEBVTT 00:00:01.155 --> 00:00:04.219 If could turn back the clock and bring Shalon back, 00:00:04.243 --> 00:00:07.199 I would literally do anything. 00:00:09.078 --> 00:00:11.084 I would happily give everything 00:00:11.108 --> 00:00:13.983 if I could see her smiling face once again. 00:00:14.861 --> 00:00:18.095 But sadly, even if Shalon were here, 00:00:18.119 --> 00:00:19.621 it would not change the fact 00:00:19.645 --> 00:00:26.075 that between 700 to 800 women die each year in America 00:00:26.099 --> 00:00:29.872 from pregnancy- and childbirth-related complications. 00:00:30.682 --> 00:00:35.606 The choice to have a child should never equate to a death sentence. NOTE Paragraph 00:00:38.584 --> 00:00:43.771 The rate of maternal deaths in America is utterly appalling. 00:00:45.197 --> 00:00:49.914 In 2017, NPR and ProPublica reported 00:00:49.938 --> 00:00:56.104 that the United States has the highest rate of maternal mortality 00:00:56.128 --> 00:00:59.413 of any developed country in the world. 00:01:00.347 --> 00:01:05.900 And the United States is the only country where that rate is steadily rising. NOTE Paragraph 00:01:08.029 --> 00:01:12.293 Black mothers like Shalon remain the primary group 00:01:12.317 --> 00:01:14.298 for maternal mortality. 00:01:15.126 --> 00:01:19.010 It is truly reprehensible 00:01:19.034 --> 00:01:20.305 that Black women die 00:01:20.329 --> 00:01:24.728 at a rate of three to four times that of white women. 00:01:25.779 --> 00:01:29.280 It is absolutely shameful 00:01:29.304 --> 00:01:35.339 that 60 percent of those deaths are totally preventable, 00:01:35.363 --> 00:01:37.258 as was my daughter's. 00:01:37.846 --> 00:01:39.981 And here's a shocking fact: 00:01:40.005 --> 00:01:46.133 according to the report by Health Resources and Services Administration, 00:01:46.157 --> 00:01:51.507 the difference in risk has been steadily unchanged 00:01:51.531 --> 00:01:55.198 for the past six decades. 00:01:55.222 --> 00:01:56.643 Six decades. 00:01:57.594 --> 00:02:03.391 Clearly, current efforts to address maternal mortality rates 00:02:03.415 --> 00:02:08.240 and the racial and health disparities in that area 00:02:08.264 --> 00:02:10.512 remain woefully inadequate. 00:02:11.439 --> 00:02:14.357 Only when race stops being the precursor 00:02:14.381 --> 00:02:19.082 to how Black women are treated or not treated in the health care system, 00:02:19.106 --> 00:02:22.059 then outcomes will be drastically different. NOTE Paragraph 00:02:23.644 --> 00:02:26.089 I want to be abundantly clear now. 00:02:27.532 --> 00:02:33.107 The medical community is failing Black mothers in America. 00:02:34.409 --> 00:02:35.853 For decades, 00:02:35.877 --> 00:02:40.488 Black women have been dismissed, ignored, disregarded, 00:02:40.512 --> 00:02:42.358 or at the very least, 00:02:42.382 --> 00:02:46.465 they have been not taken seriously 00:02:46.489 --> 00:02:49.199 in their interactions with the health care system. NOTE Paragraph 00:02:50.041 --> 00:02:54.852 It's not uncommon for Black women to experience racism and discrimination 00:02:54.876 --> 00:02:56.510 by medical providers. 00:02:57.279 --> 00:03:02.858 That racism can be blatantly overt or covertly subtle, 00:03:02.882 --> 00:03:05.469 but make no mistake -- it is there. 00:03:06.422 --> 00:03:10.859 It didn't matter that Shalon had a dual PhD 00:03:10.883 --> 00:03:13.949 in Sociology and Gerontology; 00:03:13.973 --> 00:03:17.313 it didn't even matter that Shalon had two master's degrees, 00:03:17.337 --> 00:03:20.849 one of them a Master's in Public Health from Johns Hopkins. 00:03:21.428 --> 00:03:25.514 It made no difference that Shalon was a lieutenant commander 00:03:25.538 --> 00:03:27.831 in the US Public Health Service, 00:03:27.855 --> 00:03:33.496 an alumnus of the world-renowned Epidemic Intelligence Service, 00:03:33.520 --> 00:03:38.450 a highly respected epidemiologist at the Centers for Disease Control 00:03:38.474 --> 00:03:41.462 and president of her own diversity company. 00:03:42.235 --> 00:03:44.208 She was still a Black woman. 00:03:45.248 --> 00:03:50.732 A Black woman accessing a system that saw her as a stereotype 00:03:50.756 --> 00:03:52.752 and responded to her as such. NOTE Paragraph 00:03:54.375 --> 00:03:57.639 During the three weeks after her child was born, 00:03:57.663 --> 00:04:02.762 Shalon went to her health care providers again and again in distress. 00:04:03.851 --> 00:04:07.057 Obviously, with her education and training, 00:04:07.081 --> 00:04:12.315 she could and she did articulate her concerns very clearly. 00:04:15.021 --> 00:04:20.395 Yet her cries for help were minimized and dismissed 00:04:20.419 --> 00:04:23.608 by the covert bias of her medical provider. 00:04:24.510 --> 00:04:29.726 That very bias, fueled by structural racism, 00:04:29.750 --> 00:04:33.629 is the root cause of disparities in health care. 00:04:34.494 --> 00:04:38.662 That very bias impacted Shalon's outcome. 00:04:39.466 --> 00:04:41.689 That very bias 00:04:41.713 --> 00:04:46.230 caused my daughter to be among the statistics 00:04:46.254 --> 00:04:48.340 for 2017. NOTE Paragraph 00:04:49.713 --> 00:04:54.238 As a result, I lost my beautiful little girl. 00:04:54.262 --> 00:04:55.610 My baby girl. 00:04:56.986 --> 00:04:59.493 I lost my confidant, 00:04:59.517 --> 00:05:02.122 I lost my best friend, 00:05:02.146 --> 00:05:04.099 I lost my whole world. NOTE Paragraph 00:05:05.784 --> 00:05:08.527 Shalon's daughter lost her mother 00:05:08.551 --> 00:05:11.237 and all of the relationship possibilities 00:05:11.261 --> 00:05:14.065 that could have existed between the two of them. 00:05:16.362 --> 00:05:19.273 The society may have suffered the greater loss. 00:05:20.752 --> 00:05:23.030 Who knows how many medical advancements 00:05:23.054 --> 00:05:27.518 or social-justice contributions Shalon may have made 00:05:27.542 --> 00:05:31.707 if only her medical provider had listened to her 00:05:31.731 --> 00:05:33.864 and heeded her cries for help. 00:05:35.128 --> 00:05:36.571 We will never know. NOTE Paragraph 00:05:37.918 --> 00:05:39.666 But this much, we do know. 00:05:40.595 --> 00:05:45.833 Behind every one of those 700 to 800 women who die 00:05:45.857 --> 00:05:47.653 is a family 00:05:47.677 --> 00:05:51.696 and a whole social network of loved ones, 00:05:51.720 --> 00:05:55.756 including the children left behind, like Soleil. 00:05:57.909 --> 00:06:00.978 Shalon's daughter Soleil is three years old now. 00:06:02.114 --> 00:06:03.915 She has a quick smile -- 00:06:03.939 --> 00:06:06.545 every bit as brilliant as her mother's was. 00:06:07.841 --> 00:06:09.676 Soleil is fearless. 00:06:09.700 --> 00:06:13.050 She's determined and she's so opinionated, NOTE Paragraph 00:06:13.074 --> 00:06:14.075 (Laughter) NOTE Paragraph 00:06:14.099 --> 00:06:15.586 so smart. 00:06:16.069 --> 00:06:18.949 Soleil constantly amazes me 00:06:18.973 --> 00:06:22.346 at how confidently she is navigating her world. 00:06:23.703 --> 00:06:28.032 But Soleil only knows her mother through photographs 00:06:28.056 --> 00:06:32.619 and the cherished memories that I have and share with her every day. 00:06:33.500 --> 00:06:36.490 Yet Soleil loves her mommy, 00:06:36.514 --> 00:06:40.460 who was with her for only three short weeks. 00:06:41.826 --> 00:06:43.753 She tells me so each day. 00:06:44.777 --> 00:06:50.853 My heart aches each time Soleil cries for her mommy. 00:06:52.284 --> 00:06:56.326 It is during those times Soleil has said to me, 00:06:56.350 --> 00:07:01.307 "Nana, I want to go to heaven, so I can be with my mommy." 00:07:02.771 --> 00:07:04.439 It should not be that way. 00:07:06.593 --> 00:07:08.843 It doesn't have to be that way. 00:07:09.681 --> 00:07:15.045 It can really no longer continue to be that way. NOTE Paragraph 00:07:16.374 --> 00:07:20.874 When I said earlier that the medical community is failing Black mothers, 00:07:20.898 --> 00:07:24.524 some may have wondered if I'm painting with too broad a brush. 00:07:24.548 --> 00:07:28.030 After all, it's individuals who are to blame here, right? 00:07:28.663 --> 00:07:32.650 Or perhaps we should say that a relative handful of hospitals, 00:07:32.674 --> 00:07:36.585 which happen to be the ones that are largely used by Black women 00:07:36.609 --> 00:07:38.220 and other minorities, 00:07:38.244 --> 00:07:41.879 are at the epicenter of maternal mortality in America. 00:07:43.187 --> 00:07:47.908 But I would argue that focusing on a handful of individuals 00:07:47.932 --> 00:07:50.437 or a handful of hospitals 00:07:50.461 --> 00:07:53.139 is defining the problem way too narrowly. 00:07:54.472 --> 00:07:57.484 The problem behavior isn't about the actions 00:07:57.508 --> 00:08:00.262 of specific individuals or hospitals -- 00:08:00.286 --> 00:08:02.495 it's much more systemic than that. 00:08:03.728 --> 00:08:04.927 What's more, 00:08:04.951 --> 00:08:10.896 the prevalence of the problem is deeply entrenched -- 00:08:10.920 --> 00:08:17.030 embedded in the very foundation of our health care system. NOTE Paragraph 00:08:19.403 --> 00:08:24.200 It is this broad-based failure that continues to allow disparities 00:08:24.224 --> 00:08:26.919 in maternal health and death, 00:08:26.943 --> 00:08:31.384 which result in Black women, just like Shalon, 00:08:31.408 --> 00:08:36.426 dying at rates 300 percent higher than white women. 00:08:37.190 --> 00:08:38.986 It's been well documented, 00:08:39.010 --> 00:08:41.139 year after year, 00:08:41.163 --> 00:08:43.514 decade after decade, 00:08:43.538 --> 00:08:46.412 generation after generation, 00:08:46.436 --> 00:08:50.444 and nothing effective has been done to fix it. NOTE Paragraph 00:08:52.073 --> 00:08:53.594 How do we fix it? 00:08:55.066 --> 00:08:58.218 Is there a definitive answer to eradicating disparities 00:08:58.242 --> 00:08:59.857 in maternal mortality? 00:09:00.271 --> 00:09:04.725 Well, improvements in data accuracy are critical 00:09:04.749 --> 00:09:06.391 but not nearly enough. 00:09:06.944 --> 00:09:09.959 Algorithms, checklists, apps -- 00:09:10.762 --> 00:09:12.453 they all play an important role, 00:09:12.477 --> 00:09:14.349 but they're no panacea either. 00:09:15.564 --> 00:09:19.202 And I really can't emphasize enough 00:09:19.226 --> 00:09:24.229 that implicit bias training without explicit, 00:09:24.253 --> 00:09:27.917 explicit measures of accountability 00:09:27.941 --> 00:09:30.313 will make absolutely no difference at all. 00:09:32.272 --> 00:09:34.478 It is time -- 00:09:34.502 --> 00:09:37.772 it is long past time 00:09:37.796 --> 00:09:43.186 that leaders in the medical community take steps to transform 00:09:43.210 --> 00:09:46.084 the health care system status quo. NOTE Paragraph 00:09:47.917 --> 00:09:49.997 The first step must be acknowledging 00:09:50.021 --> 00:09:53.536 that the inherent problem in the health care system 00:09:53.560 --> 00:09:55.473 is more than a problem; 00:09:55.497 --> 00:09:56.900 it's a failure. 00:09:57.730 --> 00:10:01.215 The next step requires taking responsibility 00:10:01.239 --> 00:10:03.039 and owning that failure. 00:10:03.751 --> 00:10:05.716 But the most important step 00:10:05.740 --> 00:10:09.677 is actively taking the necessary actions 00:10:09.701 --> 00:10:13.136 to right the wrongs created by that failure. NOTE Paragraph 00:10:15.743 --> 00:10:17.553 A wise woman once told me, 00:10:17.577 --> 00:10:19.581 "If you want something different, 00:10:19.605 --> 00:10:22.104 you have to do something different." 00:10:22.596 --> 00:10:26.188 My daughter was committed to doing something different. 00:10:26.860 --> 00:10:29.868 Shalon was known as a woman of great integrity 00:10:29.892 --> 00:10:31.873 and high moral values. 00:10:32.436 --> 00:10:35.346 When asked about her driving principles in life, 00:10:35.370 --> 00:10:36.801 she would respond, 00:10:36.825 --> 00:10:40.113 "I see inequity wherever it exists. 00:10:40.137 --> 00:10:43.029 I'm not afraid to call it by name, 00:10:43.053 --> 00:10:45.223 and I work hard to eliminate it. 00:10:45.659 --> 00:10:48.507 I vow to create a better earth." 00:10:49.870 --> 00:10:54.492 Shalon put those words into action every day of her life. 00:10:55.712 --> 00:10:59.483 Former Surgeon General David Satcher once said, 00:10:59.507 --> 00:11:01.901 "Leaders must care enough, 00:11:01.925 --> 00:11:04.397 leaders must know enough, 00:11:04.421 --> 00:11:07.215 leaders must be willing to do enough 00:11:07.239 --> 00:11:12.042 and leaders must be willing to persist until the work is done." 00:11:12.682 --> 00:11:15.023 Shalon was such a leader. NOTE Paragraph 00:11:16.947 --> 00:11:20.058 Though there will never be another leader like Shalon, 00:11:20.082 --> 00:11:23.748 we can each persist until the work is done. 00:11:24.654 --> 00:11:26.996 Here's what I'm doing to persist 00:11:27.020 --> 00:11:29.969 until the work to save Black mothers is done. 00:11:30.514 --> 00:11:31.964 To get things started, 00:11:31.988 --> 00:11:35.917 I joined forces with several of Shalon's friends 00:11:35.941 --> 00:11:37.773 and CDC colleagues. 00:11:37.797 --> 00:11:39.580 We founded a nonprofit. 00:11:40.191 --> 00:11:44.785 We're working hard to eliminate preventable deaths among Black mothers. 00:11:45.496 --> 00:11:47.143 And here's how we're doing it: 00:11:47.167 --> 00:11:51.243 with action, action and more action. 00:11:52.315 --> 00:11:53.999 We're engaging stakeholders 00:11:54.023 --> 00:11:58.459 at every point of the public health and health care spectrum. 00:11:58.483 --> 00:12:01.488 We're actively working with the legislative office. 00:12:01.512 --> 00:12:05.436 We're promoting accountability measures and postpartum bills, 00:12:05.460 --> 00:12:08.433 and we want them enshrined in the law. 00:12:09.226 --> 00:12:13.071 We're embarking upon a community-based research project 00:12:13.095 --> 00:12:17.694 which will redefine quality of medical care for Black women. 00:12:18.820 --> 00:12:24.050 Ultimately, we will tilt more power into the hands of Black women. 00:12:24.750 --> 00:12:26.612 How are we going to do that? 00:12:26.636 --> 00:12:30.629 By empowering Black women and their birthing partners 00:12:30.653 --> 00:12:35.573 to effectively counteract the bias and racism they experience 00:12:35.597 --> 00:12:41.133 at any given point during pregnancy, childbirth and postpartum. NOTE Paragraph 00:12:42.528 --> 00:12:43.678 Look around you. 00:12:44.851 --> 00:12:48.226 Each one of us in this room has a circle of influence. 00:12:48.754 --> 00:12:55.048 I invite you to consider how powerful an impact we could make 00:12:55.072 --> 00:13:00.384 if we focused that collective influence on this problem, 00:13:00.408 --> 00:13:02.118 on making a difference. 00:13:02.823 --> 00:13:06.544 What if we, like Shalon, acknowledged inequity 00:13:06.568 --> 00:13:09.211 wherever it existed in our communities 00:13:09.235 --> 00:13:11.360 and we weren't afraid to call it by name? 00:13:11.895 --> 00:13:15.524 What if we were each committed and passionate 00:13:15.548 --> 00:13:18.698 about using the full range of our resources 00:13:18.722 --> 00:13:20.615 to eliminate that inequity? 00:13:21.208 --> 00:13:22.742 Could we change things? 00:13:23.057 --> 00:13:27.409 Could we really overturn centuries of prejudice 00:13:27.433 --> 00:13:29.684 and decades of bad practice? 00:13:31.046 --> 00:13:32.478 I know we could. 00:13:33.060 --> 00:13:35.676 I know we could, 00:13:35.700 --> 00:13:39.616 if we were focused on that issue, 00:13:39.640 --> 00:13:42.791 if we focused that collective energy. NOTE Paragraph 00:13:43.866 --> 00:13:45.975 To quote Nelson Mandela, 00:13:45.999 --> 00:13:48.724 "When people are determined 00:13:48.748 --> 00:13:51.431 they can overcome anything." 00:13:52.653 --> 00:13:56.624 But "action without vision -- 00:13:56.648 --> 00:13:58.247 it's only passing time. 00:13:58.572 --> 00:14:02.482 Vision without action is merely daydreaming. 00:14:03.062 --> 00:14:08.648 But vision with action can truly change the world." 00:14:09.540 --> 00:14:14.221 Shalon's life was the perfect embodiment of the vision. 00:14:14.678 --> 00:14:18.091 Shalon's death is our call to action. 00:14:18.757 --> 00:14:23.707 So today, let each of us vow to do whatever we can. 00:14:24.189 --> 00:14:26.847 Let us vow to right this wrong. 00:14:27.329 --> 00:14:30.690 Let us vow to be a part of the solution 00:14:30.714 --> 00:14:35.546 until Black women are no longer marginalized and dying needlessly 00:14:35.570 --> 00:14:37.396 in the health care system. 00:14:38.050 --> 00:14:40.013 And like my daughter, 00:14:40.037 --> 00:14:42.797 (Voice breaking) Dr. Shalon MauRene Irving, 00:14:42.821 --> 00:14:46.571 let us each vow to create a better earth. NOTE Paragraph 00:14:47.150 --> 00:14:48.301 Thank you. 00:14:48.325 --> 00:14:54.238 (Applause)