1 00:00:01,155 --> 00:00:04,219 If could turn back the clock and bring Shalon back, 2 00:00:04,243 --> 00:00:07,199 I would literally do anything. 3 00:00:09,078 --> 00:00:11,084 I would happily give everything 4 00:00:11,108 --> 00:00:13,983 if I could see her smiling face once again. 5 00:00:14,861 --> 00:00:18,095 But sadly, even if Shalon were here, 6 00:00:18,119 --> 00:00:19,621 it would not change the fact 7 00:00:19,645 --> 00:00:26,075 that between 700 to 800 women die each year in America 8 00:00:26,099 --> 00:00:29,872 from pregnancy- and childbirth-related complications. 9 00:00:30,682 --> 00:00:35,606 The choice to have a child should never equate to a death sentence. 10 00:00:38,584 --> 00:00:43,771 The rate of maternal deaths in America is utterly appalling. 11 00:00:45,197 --> 00:00:49,914 In 2017, NPR and ProPublica reported 12 00:00:49,938 --> 00:00:56,104 that the United States has the highest rate of maternal mortality 13 00:00:56,128 --> 00:00:59,413 of any developed country in the world. 14 00:01:00,347 --> 00:01:05,900 And the United States is the only country where that rate is steadily rising. 15 00:01:08,029 --> 00:01:12,293 Black mothers like Shalon remain the primary group 16 00:01:12,317 --> 00:01:14,298 for maternal mortality. 17 00:01:15,126 --> 00:01:19,010 It is truly reprehensible 18 00:01:19,034 --> 00:01:20,305 that Black women die 19 00:01:20,329 --> 00:01:24,728 at a rate of three to four times that of white women. 20 00:01:25,779 --> 00:01:29,280 It is absolutely shameful 21 00:01:29,304 --> 00:01:35,339 that 60 percent of those deaths are totally preventable, 22 00:01:35,363 --> 00:01:37,258 as was my daughter's. 23 00:01:37,846 --> 00:01:39,981 And here's a shocking fact: 24 00:01:40,005 --> 00:01:46,133 according to the report by Health Resources and Services Administration, 25 00:01:46,157 --> 00:01:51,507 the difference in risk has been steadily unchanged 26 00:01:51,531 --> 00:01:55,198 for the past six decades. 27 00:01:55,222 --> 00:01:56,643 Six decades. 28 00:01:57,594 --> 00:02:03,391 Clearly, current efforts to address maternal mortality rates 29 00:02:03,415 --> 00:02:08,240 and the racial and health disparities in that area 30 00:02:08,264 --> 00:02:10,512 remain woefully inadequate. 31 00:02:11,439 --> 00:02:14,357 Only when race stops being the precursor 32 00:02:14,381 --> 00:02:19,082 to how Black women are treated or not treated in the health care system, 33 00:02:19,106 --> 00:02:22,059 then outcomes will be drastically different. 34 00:02:23,644 --> 00:02:26,089 I want to be abundantly clear now. 35 00:02:27,532 --> 00:02:33,107 The medical community is failing Black mothers in America. 36 00:02:34,409 --> 00:02:35,853 For decades, 37 00:02:35,877 --> 00:02:40,488 Black women have been dismissed, ignored, disregarded, 38 00:02:40,512 --> 00:02:42,358 or at the very least, 39 00:02:42,382 --> 00:02:46,465 they have been not taken seriously 40 00:02:46,489 --> 00:02:49,199 in their interactions with the health care system. 41 00:02:50,041 --> 00:02:54,852 It's not uncommon for Black women to experience racism and discrimination 42 00:02:54,876 --> 00:02:56,510 by medical providers. 43 00:02:57,279 --> 00:03:02,858 That racism can be blatantly overt or covertly subtle, 44 00:03:02,882 --> 00:03:05,469 but make no mistake -- it is there. 45 00:03:06,422 --> 00:03:10,859 It didn't matter that Shalon had a dual PhD 46 00:03:10,883 --> 00:03:13,949 in Sociology and Gerontology; 47 00:03:13,973 --> 00:03:17,313 it didn't even matter that Shalon had two master's degrees, 48 00:03:17,337 --> 00:03:20,849 one of them a Master's in Public Health from Johns Hopkins. 49 00:03:21,428 --> 00:03:25,514 It made no difference that Shalon was a lieutenant commander 50 00:03:25,538 --> 00:03:27,831 in the US Public Health Service, 51 00:03:27,855 --> 00:03:33,496 an alumnus of the world-renowned Epidemic Intelligence Service, 52 00:03:33,520 --> 00:03:38,450 a highly respected epidemiologist at the Centers for Disease Control 53 00:03:38,474 --> 00:03:41,462 and president of her own diversity company. 54 00:03:42,235 --> 00:03:44,208 She was still a Black woman. 55 00:03:45,248 --> 00:03:50,732 A Black woman accessing a system that saw her as a stereotype 56 00:03:50,756 --> 00:03:52,752 and responded to her as such. 57 00:03:54,375 --> 00:03:57,639 During the three weeks after her child was born, 58 00:03:57,663 --> 00:04:02,762 Shalon went to her health care providers again and again in distress. 59 00:04:03,851 --> 00:04:07,057 Obviously, with her education and training, 60 00:04:07,081 --> 00:04:12,315 she could and she did articulate her concerns very clearly. 61 00:04:15,021 --> 00:04:20,395 Yet her cries for help were minimized and dismissed 62 00:04:20,419 --> 00:04:23,608 by the covert bias of her medical provider. 63 00:04:24,510 --> 00:04:29,726 That very bias, fueled by structural racism, 64 00:04:29,750 --> 00:04:33,629 is the root cause of disparities in health care. 65 00:04:34,494 --> 00:04:38,662 That very bias impacted Shalon's outcome. 66 00:04:39,466 --> 00:04:41,689 That very bias 67 00:04:41,713 --> 00:04:46,230 caused my daughter to be among the statistics 68 00:04:46,254 --> 00:04:48,340 for 2017. 69 00:04:49,713 --> 00:04:54,238 As a result, I lost my beautiful little girl. 70 00:04:54,262 --> 00:04:55,610 My baby girl. 71 00:04:56,986 --> 00:04:59,493 I lost my confidant, 72 00:04:59,517 --> 00:05:02,122 I lost my best friend, 73 00:05:02,146 --> 00:05:04,099 I lost my whole world. 74 00:05:05,784 --> 00:05:08,527 Shalon's daughter lost her mother 75 00:05:08,551 --> 00:05:11,237 and all of the relationship possibilities 76 00:05:11,261 --> 00:05:14,065 that could have existed between the two of them. 77 00:05:16,362 --> 00:05:19,273 The society may have suffered the greater loss. 78 00:05:20,752 --> 00:05:23,030 Who knows how many medical advancements 79 00:05:23,054 --> 00:05:27,518 or social-justice contributions Shalon may have made 80 00:05:27,542 --> 00:05:31,707 if only her medical provider had listened to her 81 00:05:31,731 --> 00:05:33,864 and heeded her cries for help. 82 00:05:35,128 --> 00:05:36,571 We will never know. 83 00:05:37,918 --> 00:05:39,666 But this much, we do know. 84 00:05:40,595 --> 00:05:45,833 Behind every one of those 700 to 800 women who die 85 00:05:45,857 --> 00:05:47,653 is a family 86 00:05:47,677 --> 00:05:51,696 and a whole social network of loved ones, 87 00:05:51,720 --> 00:05:55,756 including the children left behind, like Soleil. 88 00:05:57,909 --> 00:06:00,978 Shalon's daughter Soleil is three years old now. 89 00:06:02,114 --> 00:06:03,915 She has a quick smile -- 90 00:06:03,939 --> 00:06:06,545 every bit as brilliant as her mother's was. 91 00:06:07,841 --> 00:06:09,676 Soleil is fearless. 92 00:06:09,700 --> 00:06:13,050 She's determined and she's so opinionated, 93 00:06:13,074 --> 00:06:14,075 (Laughter) 94 00:06:14,099 --> 00:06:15,586 so smart. 95 00:06:16,069 --> 00:06:18,949 Soleil constantly amazes me 96 00:06:18,973 --> 00:06:22,346 at how confidently she is navigating her world. 97 00:06:23,703 --> 00:06:28,032 But Soleil only knows her mother through photographs 98 00:06:28,056 --> 00:06:32,619 and the cherished memories that I have and share with her every day. 99 00:06:33,500 --> 00:06:36,490 Yet Soleil loves her mommy, 100 00:06:36,514 --> 00:06:40,460 who was with her for only three short weeks. 101 00:06:41,826 --> 00:06:43,753 She tells me so each day. 102 00:06:44,777 --> 00:06:50,853 My heart aches each time Soleil cries for her mommy. 103 00:06:52,284 --> 00:06:56,326 It is during those times Soleil has said to me, 104 00:06:56,350 --> 00:07:01,307 "Nana, I want to go to heaven, so I can be with my mommy." 105 00:07:02,771 --> 00:07:04,439 It should not be that way. 106 00:07:06,593 --> 00:07:08,843 It doesn't have to be that way. 107 00:07:09,681 --> 00:07:15,045 It can really no longer continue to be that way. 108 00:07:16,374 --> 00:07:20,874 When I said earlier that the medical community is failing Black mothers, 109 00:07:20,898 --> 00:07:24,524 some may have wondered if I'm painting with too broad a brush. 110 00:07:24,548 --> 00:07:28,030 After all, it's individuals who are to blame here, right? 111 00:07:28,663 --> 00:07:32,650 Or perhaps we should say that a relative handful of hospitals, 112 00:07:32,674 --> 00:07:36,585 which happen to be the ones that are largely used by Black women 113 00:07:36,609 --> 00:07:38,220 and other minorities, 114 00:07:38,244 --> 00:07:41,879 are at the epicenter of maternal mortality in America. 115 00:07:43,187 --> 00:07:47,908 But I would argue that focusing on a handful of individuals 116 00:07:47,932 --> 00:07:50,437 or a handful of hospitals 117 00:07:50,461 --> 00:07:53,139 is defining the problem way too narrowly. 118 00:07:54,472 --> 00:07:57,484 The problem behavior isn't about the actions 119 00:07:57,508 --> 00:08:00,262 of specific individuals or hospitals -- 120 00:08:00,286 --> 00:08:02,495 it's much more systemic than that. 121 00:08:03,728 --> 00:08:04,927 What's more, 122 00:08:04,951 --> 00:08:10,896 the prevalence of the problem is deeply entrenched -- 123 00:08:10,920 --> 00:08:17,030 embedded in the very foundation of our health care system. 124 00:08:19,403 --> 00:08:24,200 It is this broad-based failure that continues to allow disparities 125 00:08:24,224 --> 00:08:26,919 in maternal health and death, 126 00:08:26,943 --> 00:08:31,384 which result in Black women, just like Shalon, 127 00:08:31,408 --> 00:08:36,426 dying at rates 300 percent higher than white women. 128 00:08:37,190 --> 00:08:38,986 It's been well documented, 129 00:08:39,010 --> 00:08:41,139 year after year, 130 00:08:41,163 --> 00:08:43,514 decade after decade, 131 00:08:43,538 --> 00:08:46,412 generation after generation, 132 00:08:46,436 --> 00:08:50,444 and nothing effective has been done to fix it. 133 00:08:52,073 --> 00:08:53,594 How do we fix it? 134 00:08:55,066 --> 00:08:58,218 Is there a definitive answer to eradicating disparities 135 00:08:58,242 --> 00:08:59,857 in maternal mortality? 136 00:09:00,271 --> 00:09:04,725 Well, improvements in data accuracy are critical 137 00:09:04,749 --> 00:09:06,391 but not nearly enough. 138 00:09:06,944 --> 00:09:09,959 Algorithms, checklists, apps -- 139 00:09:10,762 --> 00:09:12,453 they all play an important role, 140 00:09:12,477 --> 00:09:14,349 but they're no panacea either. 141 00:09:15,564 --> 00:09:19,202 And I really can't emphasize enough 142 00:09:19,226 --> 00:09:24,229 that implicit bias training without explicit, 143 00:09:24,253 --> 00:09:27,917 explicit measures of accountability 144 00:09:27,941 --> 00:09:30,313 will make absolutely no difference at all. 145 00:09:32,272 --> 00:09:34,478 It is time -- 146 00:09:34,502 --> 00:09:37,772 it is long past time 147 00:09:37,796 --> 00:09:43,186 that leaders in the medical community take steps to transform 148 00:09:43,210 --> 00:09:46,084 the health care system status quo. 149 00:09:47,917 --> 00:09:49,997 The first step must be acknowledging 150 00:09:50,021 --> 00:09:53,536 that the inherent problem in the health care system 151 00:09:53,560 --> 00:09:55,473 is more than a problem; 152 00:09:55,497 --> 00:09:56,900 it's a failure. 153 00:09:57,730 --> 00:10:01,215 The next step requires taking responsibility 154 00:10:01,239 --> 00:10:03,039 and owning that failure. 155 00:10:03,751 --> 00:10:05,716 But the most important step 156 00:10:05,740 --> 00:10:09,677 is actively taking the necessary actions 157 00:10:09,701 --> 00:10:13,136 to right the wrongs created by that failure. 158 00:10:15,743 --> 00:10:17,553 A wise woman once told me, 159 00:10:17,577 --> 00:10:19,581 "If you want something different, 160 00:10:19,605 --> 00:10:22,104 you have to do something different." 161 00:10:22,596 --> 00:10:26,188 My daughter was committed to doing something different. 162 00:10:26,860 --> 00:10:29,868 Shalon was known as a woman of great integrity 163 00:10:29,892 --> 00:10:31,873 and high moral values. 164 00:10:32,436 --> 00:10:35,346 When asked about her driving principles in life, 165 00:10:35,370 --> 00:10:36,801 she would respond, 166 00:10:36,825 --> 00:10:40,113 "I see inequity wherever it exists. 167 00:10:40,137 --> 00:10:43,029 I'm not afraid to call it by name, 168 00:10:43,053 --> 00:10:45,223 and I work hard to eliminate it. 169 00:10:45,659 --> 00:10:48,507 I vow to create a better earth." 170 00:10:49,870 --> 00:10:54,492 Shalon put those words into action every day of her life. 171 00:10:55,712 --> 00:10:59,483 Former Surgeon General David Satcher once said, 172 00:10:59,507 --> 00:11:01,901 "Leaders must care enough, 173 00:11:01,925 --> 00:11:04,397 leaders must know enough, 174 00:11:04,421 --> 00:11:07,215 leaders must be willing to do enough 175 00:11:07,239 --> 00:11:12,042 and leaders must be willing to persist until the work is done." 176 00:11:12,682 --> 00:11:15,023 Shalon was such a leader. 177 00:11:16,947 --> 00:11:20,058 Though there will never be another leader like Shalon, 178 00:11:20,082 --> 00:11:23,748 we can each persist until the work is done. 179 00:11:24,654 --> 00:11:26,996 Here's what I'm doing to persist 180 00:11:27,020 --> 00:11:29,969 until the work to save Black mothers is done. 181 00:11:30,514 --> 00:11:31,964 To get things started, 182 00:11:31,988 --> 00:11:35,917 I joined forces with several of Shalon's friends 183 00:11:35,941 --> 00:11:37,773 and CDC colleagues. 184 00:11:37,797 --> 00:11:39,580 We founded a nonprofit. 185 00:11:40,191 --> 00:11:44,785 We're working hard to eliminate preventable deaths among Black mothers. 186 00:11:45,496 --> 00:11:47,143 And here's how we're doing it: 187 00:11:47,167 --> 00:11:51,243 with action, action and more action. 188 00:11:52,315 --> 00:11:53,999 We're engaging stakeholders 189 00:11:54,023 --> 00:11:58,459 at every point of the public health and health care spectrum. 190 00:11:58,483 --> 00:12:01,488 We're actively working with the legislative office. 191 00:12:01,512 --> 00:12:05,436 We're promoting accountability measures and postpartum bills, 192 00:12:05,460 --> 00:12:08,433 and we want them enshrined in the law. 193 00:12:09,226 --> 00:12:13,071 We're embarking upon a community-based research project 194 00:12:13,095 --> 00:12:17,694 which will redefine quality of medical care for Black women. 195 00:12:18,820 --> 00:12:24,050 Ultimately, we will tilt more power into the hands of Black women. 196 00:12:24,750 --> 00:12:26,612 How are we going to do that? 197 00:12:26,636 --> 00:12:30,629 By empowering Black women and their birthing partners 198 00:12:30,653 --> 00:12:35,573 to effectively counteract the bias and racism they experience 199 00:12:35,597 --> 00:12:41,133 at any given point during pregnancy, childbirth and postpartum. 200 00:12:42,528 --> 00:12:43,678 Look around you. 201 00:12:44,851 --> 00:12:48,226 Each one of us in this room has a circle of influence. 202 00:12:48,754 --> 00:12:55,048 I invite you to consider how powerful an impact we could make 203 00:12:55,072 --> 00:13:00,384 if we focused that collective influence on this problem, 204 00:13:00,408 --> 00:13:02,118 on making a difference. 205 00:13:02,823 --> 00:13:06,544 What if we, like Shalon, acknowledged inequity 206 00:13:06,568 --> 00:13:09,211 wherever it existed in our communities 207 00:13:09,235 --> 00:13:11,360 and we weren't afraid to call it by name? 208 00:13:11,895 --> 00:13:15,524 What if we were each committed and passionate 209 00:13:15,548 --> 00:13:18,698 about using the full range of our resources 210 00:13:18,722 --> 00:13:20,615 to eliminate that inequity? 211 00:13:21,208 --> 00:13:22,742 Could we change things? 212 00:13:23,057 --> 00:13:27,409 Could we really overturn centuries of prejudice 213 00:13:27,433 --> 00:13:29,684 and decades of bad practice? 214 00:13:31,046 --> 00:13:32,478 I know we could. 215 00:13:33,060 --> 00:13:35,676 I know we could, 216 00:13:35,700 --> 00:13:39,616 if we were focused on that issue, 217 00:13:39,640 --> 00:13:42,791 if we focused that collective energy. 218 00:13:43,866 --> 00:13:45,975 To quote Nelson Mandela, 219 00:13:45,999 --> 00:13:48,724 "When people are determined 220 00:13:48,748 --> 00:13:51,431 they can overcome anything." 221 00:13:52,653 --> 00:13:56,624 But "action without vision -- 222 00:13:56,648 --> 00:13:58,247 it's only passing time. 223 00:13:58,572 --> 00:14:02,482 Vision without action is merely daydreaming. 224 00:14:03,062 --> 00:14:08,648 But vision with action can truly change the world." 225 00:14:09,540 --> 00:14:14,221 Shalon's life was the perfect embodiment of the vision. 226 00:14:14,678 --> 00:14:18,091 Shalon's death is our call to action. 227 00:14:18,757 --> 00:14:23,707 So today, let each of us vow to do whatever we can. 228 00:14:24,189 --> 00:14:26,847 Let us vow to right this wrong. 229 00:14:27,329 --> 00:14:30,690 Let us vow to be a part of the solution 230 00:14:30,714 --> 00:14:35,546 until Black women are no longer marginalized and dying needlessly 231 00:14:35,570 --> 00:14:37,396 in the health care system. 232 00:14:38,050 --> 00:14:40,013 And like my daughter, 233 00:14:40,037 --> 00:14:42,797 (Voice breaking) Dr. Shalon MauRene Irving, 234 00:14:42,821 --> 00:14:46,571 let us each vow to create a better earth. 235 00:14:47,150 --> 00:14:48,301 Thank you. 236 00:14:48,325 --> 00:14:54,238 (Applause)