This talk was given at a local TEDx event, produced independently of the TED Conferences. Lessons learned from a family’s journey to raise awareness for a devastating disease and a viral campaign that captured our hearts.

Nancy Frates has worked tirelessly for ALS awareness since her son, Pete, was diagnosed in 2012. Pete is the inspiration behind the Ice Bucket Challenge, the viral fundraising phenomenon that has raised more than $140 million for ALS, commonly known as Lou Gehrig's disease. 

About TEDx, x = independently organized event In the spirit of ideas worth spreading, TEDx is a program of local, self-organized events that bring people together to share a TED-like experience. At a TEDx event, TEDTalks video and live speakers combine to spark deep discussion and connection in a small group. These local, self-organized events are branded TEDx, where x = independently organized TED event. The TED Conference provides general guidance for the TEDx program, but individual TEDx events are self-organized.* (*Subject to certain rules and regulations)