1 00:00:06,038 --> 00:00:11,067 My name is Kiran, I am the chair of In Our Own Words 2 00:00:11,067 --> 00:00:14,999 and a health psychologist by background. 3 00:00:15,002 --> 00:00:20,809 And I am Rachel and I have recently come on board with In Our Own words and I am 4 00:00:20,973 --> 00:00:25,243 newly qualified as a clinical psychologist 5 00:00:25,243 --> 00:00:29,644 It’s nice to meet you all by the way. 6 00:00:29,644 --> 00:00:34,074 So just to explain what In Our Own Words is. 7 00:00:34,163 --> 00:00:38,213 It is a wiki essentially, to 8 00:00:38,222 --> 00:00:49,335 build up a knowledge resource around distress, suffering, pain fatigue, those 9 00:00:49,355 --> 00:00:56,290 kind of symptoms or experiences people might struggle with from ethnic minorities 10 00:00:56,474 --> 00:01:03,204 as they may describe them in everyday terms. 11 00:01:03,254 --> 00:01:08,034 So moving away from clinical disorders 12 00:01:08,044 --> 00:01:12,504 and moving away from looking at the Western equivalents of anxiety and 13 00:01:12,536 --> 00:01:18,746 depression, but really looking at how people describe it in an everyday sense 14 00:01:18,783 --> 00:01:23,223 in order to try and help people to get earlier access to support 15 00:01:23,223 --> 00:01:26,253 when they need it from psychological services. 16 00:01:26,406 --> 00:01:30,498 And as part of that we are building a resource section 17 00:01:30,739 --> 00:01:33,989 for different communities under different 18 00:01:33,989 --> 00:01:38,919 languages where we link to papers- sorry, 19 00:01:38,919 --> 00:01:44,039 not papers-research done by different 20 00:01:44,093 --> 00:01:47,863 researchers, you know, trainee 21 00:01:47,909 --> 00:01:51,328 psychologists, early career psychologists, 22 00:01:51,409 --> 00:01:55,869 with ethnic minorities around 23 00:01:55,869 --> 00:02:02,041 some of their sense-making when they have mental and physical health difficulties, 24 00:02:02,041 --> 00:02:05,161 particularly work that might not have been 25 00:02:05,244 --> 00:02:07,424 published before. 26 00:02:08,841 --> 00:02:12,962 [Rachel] This is often called a preprint 27 00:02:13,033 --> 00:02:14,693 [Kiran] That's it, yeah 28 00:02:15,225 --> 00:02:20,595 [Rachel] When I was possibly thinking about publishing my thesis 29 00:02:20,665 --> 00:02:25,015 so yeah it's basically a term in academic publishing which is like a version of 30 00:02:25,165 --> 00:02:29,275 your scientific paper that precedes a formal peer review and actually 31 00:02:29,325 --> 00:02:31,684 it doesn't have to, a formal peer review 32 00:02:31,684 --> 00:02:34,063 doesn't have to follow on. And you can 33 00:02:34,115 --> 00:02:39,398 just complete a dissertation or a piece of work, or a even a service 34 00:02:39,398 --> 00:02:43,236 evaluation for example, and you can- 35 00:02:43,243 --> 00:02:45,953 there's a number of places you can upload 36 00:02:45,968 --> 00:02:49,558 them. Yeah and you, and you make 37 00:02:49,558 --> 00:02:51,527 the pre-print available, how it's 38 00:02:51,568 --> 00:02:55,911 described [the process]. People can view hat, it's searchable, people can download 39 00:02:55,911 --> 00:03:01,047 it. And yeah, others go on to publish it. 40 00:03:02,838 --> 00:03:06,378 Yep. And One of the nice things about it 41 00:03:06,390 --> 00:03:08,890 is you can actually see how many people 42 00:03:08,890 --> 00:03:11,649 download your paper and you can create 43 00:03:11,650 --> 00:03:17,494 citable links of your research paper from 44 00:03:17,508 --> 00:03:20,938 there. Erm so we'll talk a bit about who 45 00:03:20,938 --> 00:03:24,552 might actually benefit from this, and talk 46 00:03:24,552 --> 00:03:27,506 about some of the caveats, like who 47 00:03:27,506 --> 00:03:31,745 might not be so-who might want to think 48 00:03:31,763 --> 00:03:34,853 about it before they share their pre- 49 00:03:34,853 --> 00:03:38,899 prints with us. And so, this is possibly 50 00:03:38,899 --> 00:03:43,359 going to appeal more to people who train 51 00:03:43,371 --> 00:03:48,787 and go in to practicing, erm psychology in 52 00:03:48,787 --> 00:03:52,986 applied settings, clinical settings so for 53 00:03:52,986 --> 00:03:57,101 example, erm clinical psychologists, 54 00:03:57,101 --> 00:04:00,441 counselling psychologists and perhaps some 55 00:04:00,447 --> 00:04:02,997 practitioner health psychologists, you 56 00:04:02,997 --> 00:04:06,291 know, amongst some others. The 57 00:04:06,291 --> 00:04:09,078 reason why we say that is that there's 58 00:04:09,078 --> 00:04:12,864 less pressure to publish in academic 59 00:04:12,864 --> 00:04:17,094 outlets when you are oriented towards 60 00:04:17,094 --> 00:04:23,093 those services because-and that-that is an 61 00:04:23,093 --> 00:04:27,488 advantage because, some journals-a number 62 00:04:27,488 --> 00:04:31,260 of journals don't really accept pre-prints 63 00:04:31,260 --> 00:04:33,799 or you know reviewers may comment that 64 00:04:33,799 --> 00:04:37,517 this-that this has been a pre print else- 65 00:04:37,517 --> 00:04:41,948 where and that can actually impede chances 66 00:04:41,948 --> 00:04:44,957 of success at those journals. On the 67 00:04:44,957 --> 00:04:47,614 other hand some open access journals that 68 00:04:47,614 --> 00:04:50,675 tend to be, you know, higher impact or 69 00:04:50,706 --> 00:04:55,011 you know, harder to get in to as well, 70 00:04:55,011 --> 00:04:59,314 they don’t mind having-accepting 71 00:04:59,314 --> 00:05:01,191 pre-prints, in fact they may 72 00:05:01,191 --> 00:05:06,916 encourage it. Erm so that-We would ask you 73 00:05:06,916 --> 00:05:10,252 to consider that, you know before 74 00:05:10,252 --> 00:05:14,916 uploading your work on a pre print 75 00:05:14,916 --> 00:05:17,985 server because we don’t want to stop you from doing that 76 00:05:17,985 --> 00:05:20,374 if that's-if publishing academically, if 77 00:05:20,374 --> 00:05:23,491 that's what you want to do first. That 78 00:05:23,491 --> 00:05:26,251 said, you know, we know it can be 79 00:05:26,251 --> 00:05:29,866 difficult and a lot of really good work 80 00:05:29,866 --> 00:05:33,517 never gets out there in academic journals 81 00:05:33,517 --> 00:05:36,803 and we want to help people-make that 82 00:05:36,803 --> 00:05:42,062 accessible, and you know get the exposure 83 00:05:42,062 --> 00:05:44,671 and the credit they deserve for doing that 84 00:05:44,671 --> 00:05:47,600 work. And we know that those working with 85 00:05:47,600 --> 00:05:50,526 ethnic minorities can sometimes find it 86 00:05:50,526 --> 00:05:52,755 really difficult to get their work 87 00:05:52,755 --> 00:05:56,375 published in an academic outlet but 88 00:05:56,375 --> 00:06:00,283 we really need to hear about that stuff 89 00:06:00,283 --> 00:06:02,002 [their research]. 90 00:06:02,329 --> 00:06:03,919 [inaudible] 91 00:06:03,990 --> 00:06:06,769 With regards to how it works on our Wiki, 92 00:06:06,769 --> 00:06:09,974 as I say we have a resources section under 93 00:06:09,974 --> 00:06:12,793 each language and the idea is people can 94 00:06:12,793 --> 00:06:16,079 click through and visit and download it 95 00:06:16,079 --> 00:06:19,105 and have a look. The first thing they 96 00:06:19,105 --> 00:06:22,964 see is, like you know a page of terms and 97 00:06:23,800 --> 00:06:26,220 recordings of phrases but 98 00:06:26,220 --> 00:06:28,685 sometimes people might actually want to 99 00:06:28,685 --> 00:06:31,230 understand a particular community more 100 00:06:31,330 --> 00:06:33,713 and understand how they make sense of 101 00:06:33,731 --> 00:06:36,241 you know, struggle, physical and 102 00:06:36,241 --> 00:06:40,076 emotional struggle, and their-you know 103 00:06:40,076 --> 00:06:42,650 when their health needs aren’t being 104 00:06:42,650 --> 00:06:46,565 quite met, so they can either get 105 00:06:46,565 --> 00:06:49,105 more support, you know or they can-or if 106 00:06:49,105 --> 00:06:51,893 they are a professional, figure out how 107 00:06:51,893 --> 00:06:54,693 to support a member of the community 108 00:06:54,693 --> 00:07:00,223 better. Obviously we do welcome work 109 00:07:00,223 --> 00:07:02,710 from any psychologist that has worked with 110 00:07:02,710 --> 00:07:05,866 an ethnic minority but we are particularly 111 00:07:05,866 --> 00:07:08,640 welcoming ethnic minority psychologists, 112 00:07:08,640 --> 00:07:12,303 as that is part of our ethos, it's our 113 00:07:12,303 --> 00:07:15,955 focus to try and help get ethnic minority 114 00:07:15,955 --> 00:07:18,471 psychologists to get their work recognised 115 00:07:18,471 --> 00:07:21,504 to counteract some of the barriers that 116 00:07:21,504 --> 00:07:26,204 we can sometimes face as ethnic minorities 117 00:07:26,464 --> 00:07:30,264 [Kiran] So yeah with regards- 118 00:07:30,285 --> 00:07:32,025 [Rachel] Can I give an example? 119 00:07:32,025 --> 00:07:32,934 [Kiran] Oh go on- 120 00:07:32,934 --> 00:07:36,794 [Rachel] An example might be-you 121 00:07:36,794 --> 00:07:39,317 might be a-a practicing health psychologist 122 00:07:39,317 --> 00:07:42,780 Perhaps you are a few years down the line 123 00:07:42,780 --> 00:07:46,128 after study, but actually like you had 124 00:07:46,128 --> 00:07:48,708 a really incredible dissertation or thesis 125 00:07:48,714 --> 00:07:51,749 that was on, for example the experiences 126 00:07:51,749 --> 00:07:54,939 of barriers to help in the South 127 00:07:54,939 --> 00:07:59,885 Asian community in relation to eating disorders 128 00:07:59,885 --> 00:08:02,524 That-and say it was a qualitative piece 129 00:08:02,527 --> 00:08:04,787 and you interviewed like 8 people 130 00:08:04,787 --> 00:08:07,444 and it's-you might not have had 131 00:08:07,444 --> 00:08:12,034 the support, the time, the energy to- 132 00:08:12,034 --> 00:08:14,594 perhaps or the interest to go down 133 00:08:14,594 --> 00:08:16,944 that peer review process, cos it is - as 134 00:08:16,944 --> 00:08:19,144 Kiran said there are any barriers for 135 00:08:19,144 --> 00:08:22,385 lots of different reasons, perhaps then 136 00:08:22,385 --> 00:08:25,446 a preprint could be really useful cos that 137 00:08:25,446 --> 00:08:28,819 would mean that information-that knowledge 138 00:08:28,819 --> 00:08:33,865 can be picked up and used by practitioners, just by the public, by 139 00:08:33,865 --> 00:08:37,508 people of the South Asian community specifically and that is exactly the 140 00:08:37,508 --> 00:08:40,090 sort of thing we would absolutely love in 141 00:08:40,090 --> 00:08:42,294 the resources section and we can 142 00:08:42,294 --> 00:08:46,114 actually put that in-under the certain 143 00:08:46,114 --> 00:08:49,022 languages that that would be-that that 144 00:08:49,022 --> 00:08:52,282 would be relevant to, so yeah that's just an example. 145 00:08:52,282 --> 00:08:55,906 [Kiran] Yeah thank you, that's always 146 00:08:55,906 --> 00:08:58,982 helpful for people to have that, you know, 147 00:08:58,982 --> 00:09:01,072 cos it can seem a bit abstract. 148 00:09:01,072 --> 00:09:05,137 So when we say we link to it, a popular 149 00:09:05,137 --> 00:09:10,067 repository that we talk about--that accepts a lot of preprints is called 150 00:09:10,082 --> 00:09:13,802 PsyArXiv. We'll go over how to upload 151 00:09:13,802 --> 00:09:16,477 things onto PsyArXiv and one of the 152 00:09:16,477 --> 00:09:18,769 lovely things about that is that you can 153 00:09:18,769 --> 00:09:23,147 create a permanent link which is easy to 154 00:09:23,147 --> 00:09:27,537 publish to-well link to, also should you 155 00:09:27,537 --> 00:09:30,317 then later on publish it, you can create a 156 00:09:30,317 --> 00:09:33,367 link to the final published version-and 157 00:09:33,367 --> 00:09:35,750 you can even choose whether to make it 158 00:09:35,750 --> 00:09:38,708 private or public, update the version 159 00:09:38,708 --> 00:09:43,595 if you choose to re-write it a little bit. You have all these options 160 00:09:43,595 --> 00:09:45,987 And one of these things that we hope 161 00:09:45,987 --> 00:09:49,526 that could happen is if we-this site 162 00:09:49,526 --> 00:09:52,906 builds and you know becomes a real key 163 00:09:52,906 --> 00:09:55,448 -leading resource amongst professionals 164 00:09:55,448 --> 00:09:58,678 and service user groups, we could end up 165 00:09:58,678 --> 00:10:01,051 attracting some editors who would love to 166 00:10:01,051 --> 00:10:03,684 publish your work, who may approach you 167 00:10:03,684 --> 00:10:07,518 as a result. So, that's-kind of the other 168 00:10:07,518 --> 00:10:11,328 hope really by doing it this way, and of 169 00:10:11,328 --> 00:10:13,728 course to make sure we credit people 170 00:10:13,728 --> 00:10:16,986 appropriately for the work that they do. 171 00:10:16,986 --> 00:10:20,742 So what we do particularly welcome 172 00:10:20,742 --> 00:10:23,434 is-in terms of the types of research 173 00:10:23,448 --> 00:10:26,028 we-we are looking for original empirical 174 00:10:26,033 --> 00:10:30,313 research studies, qualitative, indepth 175 00:10:30,313 --> 00:10:32,900 studies with an ethnic minority 176 00:10:32,900 --> 00:10:37,589 participant group and sometimes 177 00:10:37,589 --> 00:10:44,038 quantitative measures, to see where 178 00:10:44,038 --> 00:10:46,317 someone might be struggling with their 179 00:10:46,317 --> 00:10:49,517 physical or mental health as that can help 180 00:10:49,517 --> 00:10:51,758 [to] identify people in clinical practice 181 00:10:51,760 --> 00:10:54,840 who might need some support, so those are 182 00:10:54,840 --> 00:10:57,693 the kind of the studies that we're 183 00:10:57,693 --> 00:11:02,181 looking for. So if that you know sounds 184 00:11:02,181 --> 00:11:04,454 like it might be of relevance to you-I'm 185 00:11:04,454 --> 00:11:06,735 just gonna check that I haven't missed 186 00:11:06,735 --> 00:11:08,862 anything [laughs]- if that sounds like 187 00:11:08,862 --> 00:11:10,847 it could be something you would 188 00:11:10,847 --> 00:11:14,024 be interested in, and you know 189 00:11:14,024 --> 00:11:17,209 you'd like to hear more and see more of 190 00:11:17,209 --> 00:11:19,701 our projects then, you know you're more 191 00:11:19,701 --> 00:11:22,529 than welcome and we'd love to hear 192 00:11:22,529 --> 00:11:23,547 from you. 193 00:11:23,547 --> 00:11:27,454 Thank you-thank you very much for your 194 00:11:27,454 --> 00:11:30,100 attention and we look forward to speaking 195 00:11:30,100 --> 00:11:32,640 to you soon.