[Script Info] Title: [Events] Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text Dialogue: 0,0:00:00.49,0:00:02.31,Default,,0000,0000,0000,,[Hangout Junkie] Welcome to "Inspiring People" Dialogue: 0,0:00:02.31,0:00:07.13,Default,,0000,0000,0000,,Today, we have Chloe Cohen, who is going to tell us an inspiring story Dialogue: 0,0:00:07.13,0:00:13.26,Default,,0000,0000,0000,,of her struggle and how she has been dealing with Multiple Sclerosis for many years, now. Dialogue: 0,0:00:13.76,0:00:15.72,Default,,0000,0000,0000,,Chloe, you are on. Dialogue: 0,0:00:16.28,0:00:19.06,Default,,0000,0000,0000,,[Chloe Cohen] Hi, everybody. My name is Chloe Dialogue: 0,0:00:19.06,0:00:24.62,Default,,0000,0000,0000,,and I've been living with Multiple Sclerosis for about 14 years, now. Dialogue: 0,0:00:25.33,0:00:32.56,Default,,0000,0000,0000,,I was 20 years old when I was diagnosed and for me it was very quick - it was not - Dialogue: 0,0:00:33.19,0:00:39.20,Default,,0000,0000,0000,,Most people generally have symptoms and then slowly, more shit starts happening, Dialogue: 0,0:00:39.20,0:00:40.50,Default,,0000,0000,0000,,and then they are diagnosed. Dialogue: 0,0:00:40.50,0:00:50.01,Default,,0000,0000,0000,,But for me, I hit my head real hard, and that head trauma caused symptoms pretty much instantly. Errh.. Dialogue: 0,0:00:50.80,0:00:52.26,Default,,0000,0000,0000,,[HJ] Oh, it's not genetic? Dialogue: 0,0:00:53.30,0:00:58.73,Default,,0000,0000,0000,,[Cohen] They don't know. They still don't know if it's genetic, environmental or anything. Dialogue: 0,0:00:58.73,0:01:01.18,Default,,0000,0000,0000,,So they're still trying to figure out that out. Dialogue: 0,0:01:01.18,0:01:13.63,Default,,0000,0000,0000,,But - Yeah, nobody in my family has it, but like, one of the girls that I know with MS, her sister has it, Dialogue: 0,0:01:14.12,0:01:16.78,Default,,0000,0000,0000,,and then, this other girl, her father has it. Dialogue: 0,0:01:16.78,0:01:26.53,Default,,0000,0000,0000,,So I don't know. I don't know if it's genetic or not. I don't think they know, but I will say this: Dialogue: 0,0:01:26.53,0:01:34.04,Default,,0000,0000,0000,,when I was diagnosed 14 years ago, there were 3 drugs available to slow down the progression of the disease. Dialogue: 0,0:01:34.04,0:01:38.46,Default,,0000,0000,0000,,Now, I think I should start by explaining what MS is. Dialogue: 0,0:01:38.46,0:01:44.03,Default,,0000,0000,0000,,And that is a neurological disease that affects the central nervous system, Dialogue: 0,0:01:45.58,0:01:52.58,Default,,0000,0000,0000,,with a wide, wide, wide range of symptoms, from numbness and tingling Dialogue: 0,0:01:52.58,0:02:01.36,Default,,0000,0000,0000,,to blindness in an eye, to the loss o use of limbs, to chronic pain. Dialogue: 0,0:02:01.78,0:02:06.66,Default,,0000,0000,0000,,And every single person with the illness is different, and how it affects them. Dialogue: 0,0:02:06.66,0:02:10.64,Default,,0000,0000,0000,,And there is no two people who deal with it in exactly the same way. Dialogue: 0,0:02:11.61,0:02:20.53,Default,,0000,0000,0000,,But before these drugs came out, there was no way to slow the progression of the illness. Dialogue: 0,0:02:20.53,0:02:26.72,Default,,0000,0000,0000,,So that's why there is such an older generation of people with MS in wheelchairs, Dialogue: 0,0:02:26.72,0:02:33.01,Default,,0000,0000,0000,,because they didn't have the benefits of these drugs that slow the progression, Dialogue: 0,0:02:33.01,0:02:42.34,Default,,0000,0000,0000,,because it is constantly flowing, you never know what's going to happen today, you know, Dialogue: 0,0:02:42.34,0:02:46.38,Default,,0000,0000,0000,,I've been now in remission for four years, and it's like a new life, Dialogue: 0,0:02:46.38,0:02:53.26,Default,,0000,0000,0000,,because for 9 years of my life, it was this up and down thing of what's going to happen tomorrow, Dialogue: 0,0:02:53.26,0:02:59.66,Default,,0000,0000,0000,,what - is this symptom not going to be here tomorrow, or what's going to happen tomorrow? Dialogue: 0,0:02:59.66,0:03:04.10,Default,,0000,0000,0000,,So I very much learned how to [coughs] - excuse me - live win the moment. Dialogue: 0,0:03:04.10,0:03:07.48,Default,,0000,0000,0000,,not worry about the future as much. Dialogue: 0,0:03:07.48,0:03:12.99,Default,,0000,0000,0000,,But it's only because I went through all that, that brought me to this point. Dialogue: 0,0:03:13.03,0:03:21.86,Default,,0000,0000,0000,,But I'm definitely a lucky one. I was very disabled initially. Dialogue: 0,0:03:21.86,0:03:29.48,Default,,0000,0000,0000,,When I hit my head, it basically just jarred everything loose that was loose . Dialogue: 0,0:03:29.48,0:03:36.24,Default,,0000,0000,0000,,I probably had, you know, when I look back at my childhood before I even had MS, Dialogue: 0,0:03:36.24,0:03:40.84,Default,,0000,0000,0000,,I can recall things that happened during that, you know, that were like, Dialogue: 0,0:03:40.84,0:03:44.96,Default,,0000,0000,0000,,my feet would go numb in the shower in high school. Dialogue: 0,0:03:44.96,0:03:48.54,Default,,0000,0000,0000,,But I didn't even consider it, because they'd come back to life, you know. Dialogue: 0,0:03:49.41,0:03:55.24,Default,,0000,0000,0000,,Only until I was diagnosed with MS did I go "Huh, maybe that was connected", you know, Dialogue: 0,0:03:55.24,0:03:59.98,Default,,0000,0000,0000,,But, you know, I don't know - I don't know. Dialogue: 0,0:03:59.98,0:04:09.40,Default,,0000,0000,0000,,In my - in my theory, I've probably had this since I was born and it probably came up all through my life. Dialogue: 0,0:04:09.40,0:04:15.31,Default,,0000,0000,0000,,But I didn't get that diagnosis untill I initially hit my head Dialogue: 0,0:04:15.31,0:04:22.28,Default,,0000,0000,0000,,and had this like fast bang: I can't use my left side, it was all - I had that constant tremor, Dialogue: 0,0:04:23.94,0:04:28.22,Default,,0000,0000,0000,,I had vertigo, so it was like being wasted drunk all the time, Dialogue: 0,0:04:28.22,0:04:32.97,Default,,0000,0000,0000,,but you're not drunk, so you didn't get the benefit of the drunkenness [laughs], Dialogue: 0,0:04:32.97,0:04:35.66,Default,,0000,0000,0000,,you just got the bad stuff. Dialogue: 0,0:04:36.89,0:04:40.30,Default,,0000,0000,0000,,[HJ] Did you suffer from ithereally bad, symptoms? Dialogue: 0,0:04:41.94,0:04:48.69,Default,,0000,0000,0000,,[Cohen] Luckily, it was only about, maybe, 6 months to a year, where it was really bad. Dialogue: 0,0:04:49.23,0:04:53.92,Default,,0000,0000,0000,,I was lucky because, you know, as soon as they discovered that it was MS, Dialogue: 0,0:04:53.92,0:05:00.83,Default,,0000,0000,0000,,and I got put on medication and really the only thing that they have, it was steroids and steroids Dialogue: 0,0:05:01.55,0:05:06.33,Default,,0000,0000,0000,,will calm the inflammation or whatever that's happening. Dialogue: 0,0:05:06.58,0:05:14.58,Default,,0000,0000,0000,,So, getting on am oral dose of steroids relieved my tremor relatively Dialogue: 0,0:05:15.26,0:05:21.88,Default,,0000,0000,0000,,and I was on - about some other drugs, there is this drug called antivir, Dialogue: 0,0:05:21.88,0:05:27.35,Default,,0000,0000,0000,,And I don't even know what the heck it is, but it was something like working out, straightening you out. Dialogue: 0,0:05:27.35,0:05:33.66,Default,,0000,0000,0000,,So, I didn't have vertigo anymore. So, I give credits to the medical establishment Dialogue: 0,0:05:33.66,0:05:39.83,Default,,0000,0000,0000,,for having these drugs available, but it never was quite enough. Dialogue: 0,0:05:39.83,0:05:46.16,Default,,0000,0000,0000,,And I found marijuana to be one of the only things that relieved me from these constant annoyances. Dialogue: 0,0:05:47.81,0:05:52.41,Default,,0000,0000,0000,,It - at least, it brought me to a more accepting place, I guess you could say, Dialogue: 0,0:05:52.41,0:05:59.53,Default,,0000,0000,0000,,where it's like "OK, if I have to deal with this 24/7, then I can, you know, Dialogue: 0,0:05:59.53,0:06:06.84,Default,,0000,0000,0000,,as much physically as the marijuana was doing, the cannabis was doing, Dialogue: 0,0:06:06.84,0:06:10.96,Default,,0000,0000,0000,,of calming my tremors and taking away my disconfort. Dialogue: 0,0:06:10.96,0:06:16.90,Default,,0000,0000,0000,,It was also bringing psychological relief that "You know what? I can handle this and deal with this". Dialogue: 0,0:06:16.90,0:06:22.42,Default,,0000,0000,0000,,And this is my life, and I'll move - I'll not worry about the future so much. Dialogue: 0,0:06:23.65,0:06:33.18,Default,,0000,0000,0000,,But my story really is important because, you know, within 20 minutes, my life slipped . Dialogue: 0,0:06:33.84,0:06:38.72,Default,,0000,0000,0000,,I had hit my head and I couldn't use my left side, and I was a cellist. Dialogue: 0,0:06:38.75,0:06:42.35,Default,,0000,0000,0000,,This is what I was going to college for. I was going to study music, Dialogue: 0,0:06:42.35,0:06:47.83,Default,,0000,0000,0000,,I was going to be in, like a rock band, rock n' roll on the cello, you know? Dialogue: 0,0:06:47.85,0:06:57.51,Default,,0000,0000,0000,,That's what I thought. But then what's, you know. Yeah, I had to reramp my life. Dialogue: 0,0:06:57.51,0:07:02.27,Default,,0000,0000,0000,,My life and, you know, and I was very angry for a very long time, Dialogue: 0,0:07:02.27,0:07:06.91,Default,,0000,0000,0000,,because I think anyone who've got their passion worked from (?) that quickly (7:07) Dialogue: 0,0:07:06.91,0:07:15.35,Default,,0000,0000,0000,,Anybody who ha any kind of instant loss knows, appreciates every little thing a little bit more, Dialogue: 0,0:07:15.35,0:07:18.88,Default,,0000,0000,0000,,because you know what it's like to lose it. Dialogue: 0,0:07:18.88,0:07:26.88,Default,,0000,0000,0000,,And i think it took me a lot of, a lot of therapy and a lot of, like, Dialogue: 0,0:07:26.88,0:07:32.58,Default,,0000,0000,0000,,awesome conversations with people who get it, to be able to be at this point. Dialogue: 0,0:07:33.15,0:07:38.34,Default,,0000,0000,0000,,But I did start a support group here, eight years ago, for younger people with MS, Dialogue: 0,0:07:38.34,0:07:43.52,Default,,0000,0000,0000,,because all the support groups were full of old, bitter, angry people Dialogue: 0,0:07:43.52,0:07:51.64,Default,,0000,0000,0000,,because they never got the benefit of the medication until, maybe, you know,15 years into their MS game Dialogue: 0,0:07:51.64,0:07:56.90,Default,,0000,0000,0000,,and it has done - it has taken its toll already, so there is always so much - Dialogue: 0,0:07:58.98,0:08:02.44,Default,,0000,0000,0000,,there is no repair of what 's been taken away. Dialogue: 0,0:08:02.44,0:08:06.67,Default,,0000,0000,0000,,You know, they don't, they haven't - they're working on it, how to, you know, Dialogue: 0,0:08:06.67,0:08:10.06,Default,,0000,0000,0000,,- figuring out ways to repair that myeline that's torn. Dialogue: 0,0:08:10.06,0:08:17.02,Default,,0000,0000,0000,,Because when you have myeline - I left this major point out - you've lesions on your brain. Dialogue: 0,0:08:17.02,0:08:23.91,Default,,0000,0000,0000,,So those lesions then form symptoms in whatever region of the brain they^re covering. Dialogue: 0,0:08:24.72,0:08:34.67,Default,,0000,0000,0000,,Yet - but the disease is the demyelinization of your nerves, Dialogue: 0,0:08:34.67,0:08:39.34,Default,,0000,0000,0000,,and that's what causes them to be set on i(?) mproperly, and things. Dialogue: 0,0:08:39.37,0:08:43.27,Default,,0000,0000,0000,,So when you have a mass of nerves, no myeline now on your nerves (? - 8:43) Dialogue: 0,0:08:43.27,0:08:47.43,Default,,0000,0000,0000,,and the messages get screwed up. Dialogue: 0,0:08:47.94,0:08:54.18,Default,,0000,0000,0000,,But what I have learned after not walking, to be where I am at now, Dialogue: 0,0:08:54.18,0:08:59.58,Default,,0000,0000,0000,,there is no way I could have done that without the concepts of neuroplasticity. Dialogue: 0,0:08:59.58,0:09:07.42,Default,,0000,0000,0000,,And I think that's so important, like, our brains are so powerful and we are capable of anything, Dialogue: 0,0:09:07.42,0:09:13.10,Default,,0000,0000,0000,,anything if you put your mind to it, and what I have proved to myself as well as, Dialogue: 0,0:09:13.93,0:09:19.07,Default,,0000,0000,0000,,I guess, if the medical establishment would have studied me [laughs] Dialogue: 0,0:09:19.07,0:09:21.60,Default,,0000,0000,0000,,But there is no study of me, you know, Dialogue: 0,0:09:21.60,0:09:25.25,Default,,0000,0000,0000,,though what I have done is really carve new pathways in my brain. Dialogue: 0,0:09:25.25,0:09:28.40,Default,,0000,0000,0000,,So now I'm using my left hand and it's never going to be the same, Dialogue: 0,0:09:28.40,0:09:36.57,Default,,0000,0000,0000,,I'm never going to be able to play the cello like I did but at the same time, I can use it now. Dialogue: 0,0:09:36.57,0:09:42.22,Default,,0000,0000,0000,,I mean, in all these 9 years, I didn't use it, and it's only through this, like, persistence I have, Dialogue: 0,0:09:42.22,0:09:49.96,Default,,0000,0000,0000,,of exercising, pushing myself. And I think it helps bcause I was an athlete before I got MS. Dialogue: 0,0:09:49.96,0:09:54.96,Default,,0000,0000,0000,,So I had this like, competitive "I'm hard-ass" kind of thing in me (laughs). Dialogue: 0,0:09:54.96,0:10:01.50,Default,,0000,0000,0000,,Because I played soccer for many years, and we were really good, you know, our team was good, Dialogue: 0,0:10:01.50,0:10:13.15,Default,,0000,0000,0000,,and so I have that - that hard-ass attitude of just like keep pushing, keep pushing. Dialogue: 0,0:10:13.15,0:10:17.91,Default,,0000,0000,0000,,and the hard part with MS is, like, your energy is greatly depleted. Dialogue: 0,0:10:17.91,0:10:23.54,Default,,0000,0000,0000,,And I know for me, an a lot of people, when they are first diagnosed with the illness, Dialogue: 0,0:10:23.54,0:10:27.88,Default,,0000,0000,0000,,they can't do this stuff the same way they did it before, Dialogue: 0,0:10:27.88,0:10:34.93,Default,,0000,0000,0000,,they have to figure out how to adapt to this new world of not being able to do things yourself. Dialogue: 0,0:10:35.35,0:10:41.04,Default,,0000,0000,0000,,And when you are as stubborn and hard-ass that I was, there was no way, Dialogue: 0,0:10:41.04,0:10:44.25,Default,,0000,0000,0000,,and how I was going to have to ask someone to change my light bulb, Dialogue: 0,0:10:44.25,0:10:48.86,Default,,0000,0000,0000,,but it was at a point where I had that, so the light bulb would not get changed Dialogue: 0,0:10:48.86,0:10:51.24,Default,,0000,0000,0000,,if I didn't ask someone to do it for me. Dialogue: 0,0:10:51.24,0:10:57.18,Default,,0000,0000,0000,,And what I also had to realize is that generally, people like helping other people. Dialogue: 0,0:10:57.18,0:11:01.26,Default,,0000,0000,0000,,It gives them a sense of, self-sense of worth, you know? Dialogue: 0,0:11:01.26,0:11:07.65,Default,,0000,0000,0000,,And where I looked at it like, it's a downfall for me that I can't do myself, do it myself, Dialogue: 0,0:11:08.17,0:11:14.45,Default,,0000,0000,0000,,what they're getting from it is like, "We like helping people, I like it, it makes me feel better about myself". Dialogue: 0,0:11:14.50,0:11:19.42,Default,,0000,0000,0000,,And I know, you know, when I can help people with stuff that they don't know anything about, Dialogue: 0,0:11:19.42,0:11:26.10,Default,,0000,0000,0000,,whether being DJing music technology, or MS for that matter, you know, Dialogue: 0,0:11:26.10,0:11:30.42,Default,,0000,0000,0000,,it feels good to know that, like, I have something to give these people Dialogue: 0,0:11:30.42,0:11:37.17,Default,,0000,0000,0000,,and so, like, for many years, I beat myself up being like, "Well, I can't do it myself, grrrr" Dialogue: 0,0:11:37.17,0:11:43.96,Default,,0000,0000,0000,,But that attitude really got in the way of my growth, you know, I think you really have to learn that. Dialogue: 0,0:11:47.09,0:11:54.63,Default,,0000,0000,0000,,I don't even know, I think I am lucky that I was able to adapt successfully. Dialogue: 0,0:11:54.63,0:12:00.21,Default,,0000,0000,0000,,You know, I've reached a point now that the MS isn't ............. life Dialogue: 0,0:12:00.21,0:12:03.90,Default,,0000,0000,0000,,which it was, for many, many years, ten years. Dialogue: 0,0:12:04.48,0:12:09.98,Default,,0000,0000,0000,,And it was like that was every, everything I did, it was about MS. Dialogue: 0,0:12:09.98,0:12:14.72,Default,,0000,0000,0000,,It was about having - First of all, graduating college: I mean I had to - Dialogue: 0,0:12:14.74,0:12:18.18,Default,,0000,0000,0000,,I couldn't be the music major, because I couldn't even play anymore. Dialogue: 0,0:12:18.18,0:12:21.73,Default,,0000,0000,0000,,So I changed into - speech communications major Dialogue: 0,0:12:21.73,0:12:28.98,Default,,0000,0000,0000,,because I wanted to learn how to affect people effectively (laughs) with my words, Dialogue: 0,0:12:28.98,0:12:33.45,Default,,0000,0000,0000,,and let them hear me, and not sign off. Dialogue: 0,0:12:33.45,0:12:38.26,Default,,0000,0000,0000,,So, I thought it was important to learn the art of communication Dialogue: 0,0:12:38.26,0:12:42.52,Default,,0000,0000,0000,,and how to communicate effectively, to affect people. Dialogue: 0,0:12:42.52,0:12:46.86,Default,,0000,0000,0000,,And I think I did that really well, and I know I'm doing it really well, Dialogue: 0,0:12:46.86,0:12:53.25,Default,,0000,0000,0000,,because my story is special and unique in the sense that it happened so quickly. Dialogue: 0,0:12:53.25,0:13:03.08,Default,,0000,0000,0000,,But if you - if there's a will, there's a way. I mean, the fact that I couldn't walk and I went skiing Dialogue: 0,0:13:03.08,0:13:06.91,Default,,0000,0000,0000,,and now I'm riding an elliptical machine. what the hell! Dialogue: 0,0:13:06.91,0:13:11.99,Default,,0000,0000,0000,,Excuse me, but like, it's .............. it's just mind-blowing to me (13:12) Dialogue: 0,0:13:11.99,0:13:16.71,Default,,0000,0000,0000,,Everyday, it's a mind-blowing experience like, brushing my teeth in the morning. Dialogue: 0,0:13:16.71,0:13:19.78,Default,,0000,0000,0000,,I could never do that with two hands, and now I can. Dialogue: 0,0:13:19.78,0:13:24.75,Default,,0000,0000,0000,,And so every morning, when I brush my teeth, I'm like, "Hell yeah, I'm doing this", Dialogue: 0,0:13:24.75,0:13:28.82,Default,,0000,0000,0000,,and that' just a little thing, but it's like, I appreciate that stuff. Dialogue: 0,0:13:28.82,0:13:32.22,Default,,0000,0000,0000,,Tie my shoes? Couldn't tie them for a good nine years. Dialogue: 0,0:13:32.22,0:13:40.02,Default,,0000,0000,0000,,So now, I tie my shoes and I'm proud to tie my shoes, you know, it's appreciating those little things. Dialogue: 0,0:13:40.05,0:13:43.58,Default,,0000,0000,0000,,And I wouldn't have had that perspective, I wouldn't have known this, Dialogue: 0,0:13:43.58,0:13:49.48,Default,,0000,0000,0000,,I wouldn't be inline (?) this much (13:45) without the losses that I've had. Dialogue: 0,0:13:49.48,0:13:52.03,Default,,0000,0000,0000,,And I really say, I thing Ram Dass said it, Dialogue: 0,0:13:52.03,0:13:58.16,Default,,0000,0000,0000,,that, you know, through his strokes, this brought him closer to enlightenment. Dialogue: 0,0:13:58.18,0:14:00.91,Default,,0000,0000,0000,,Because now he had a new perspective, you know, Dialogue: 0,0:14:00.91,0:14:05.01,Default,,0000,0000,0000,,now he saw what it was like, you know, on the other side, or whatever. Dialogue: 0,0:14:05.49,0:14:12.41,Default,,0000,0000,0000,,And I think it's been my duty to kind of let people look through a different lens for a minute Dialogue: 0,0:14:12.41,0:14:15.78,Default,,0000,0000,0000,,and see, you know, look at themselves. Dialogue: 0,0:14:17.70,0:14:24.81,Default,,0000,0000,0000,,In that regard, I mean, most people don't ever think about things like that happening, you know. Dialogue: 0,0:14:24.81,0:14:29.78,Default,,0000,0000,0000,,But the fact is, they do and it could happen to any of us at any moment. Dialogue: 0,0:14:29.78,0:14:37.05,Default,,0000,0000,0000,,Yet we are so concerned about the future, or so stuck on the past, that we're not living in the moment. Dialogue: 0,0:14:37.05,0:14:43.51,Default,,0000,0000,0000,,And like, right now, I'm appreciating this moment, to be able to speak freely Dialogue: 0,0:14:44.40,0:14:49.28,Default,,0000,0000,0000,,and let people know they've just got to appreciate what they have a little more. Dialogue: 0,0:14:49.28,0:14:53.67,Default,,0000,0000,0000,,Because, people, you really don't know what you have until you lose it. Dialogue: 0,0:14:53.67,0:14:58.03,Default,,0000,0000,0000,,And I think it's so important for people to appreciate what they have. Dialogue: 0,0:14:58.03,0:15:03.46,Default,,0000,0000,0000,,And you're never going to - hopefully, you'll never have to go through that, Dialogue: 0,0:15:03.46,0:15:06.82,Default,,0000,0000,0000,,of learning what it's like to lose all that stuff, Dialogue: 0,0:15:06.82,0:15:12.72,Default,,0000,0000,0000,,because it's not easy, and it was only through some intense EMDR therapy Dialogue: 0,0:15:12.72,0:15:19.03,Default,,0000,0000,0000,,which is eye-movement therapy, that I got peace with the fact that I can't play the cello Dialogue: 0,0:15:19.03,0:15:23.25,Default,,0000,0000,0000,,like, you know, a symphony cellist anymore, you know? Dialogue: 0,0:15:23.84,0:15:32.31,Default,,0000,0000,0000,,But it - that is some intense stuff., for anybody ........... trauma (15:29), it's mainly for trauma. Dialogue: 0,0:15:32.31,0:15:38.36,Default,,0000,0000,0000,,But I always thought that I didn't go through war, I didn't have some horrorific incident happen to me. Dialogue: 0,0:15:38.36,0:15:43.50,Default,,0000,0000,0000,,But at the same time, I went there because I was in a car accident, Dialogue: 0,0:15:43.50,0:15:48.21,Default,,0000,0000,0000,,and the car accident was because of this darned tremor (laughs) Dialogue: 0,0:15:48.21,0:15:53.78,Default,,0000,0000,0000,,and I thought for a brief second I could use my other hand to grab something, Dialogue: 0,0:15:53.78,0:15:58.64,Default,,0000,0000,0000,,but in that brief second, my arm jerked and whoof, there went the car and we slipped in. Dialogue: 0,0:15:58.64,0:16:02.60,Default,,0000,0000,0000,,I lost my two dogs in the car accident. It was very traumatic. Dialogue: 0,0:16:03.20,0:16:08.47,Default,,0000,0000,0000,,But, so I was going to go, and I was like; "I'm never driving again." Dialogue: 0,0:16:08.47,0:16:11.58,Default,,0000,0000,0000,,After that happened, I was like: "No: screw the car." Dialogue: 0,0:16:11.58,0:16:17.86,Default,,0000,0000,0000,,So I went into this therapy, thinking I was going to work on my driving. Dialogue: 0,0:16:17.86,0:16:22.42,Default,,0000,0000,0000,,But what I realized was how connected it was to having MS, Dialogue: 0,0:16:22.42,0:16:26.55,Default,,0000,0000,0000,,and the trauma that I went through with my diagnosis. Dialogue: 0,0:16:26.55,0:16:31.90,Default,,0000,0000,0000,,Because, you know, I was only 20 years old, my brain was not yet developped. Dialogue: 0,0:16:31.90,0:16:39.65,Default,,0000,0000,0000,,So it is pretty impactful when all you know is no longer, you know? Dialogue: 0,0:16:39.65,0:16:46.28,Default,,0000,0000,0000,,But I'm also very thankful because I had an amazing family to help me through it all, you know, Dialogue: 0,0:16:46.28,0:16:51.18,Default,,0000,0000,0000,,that's a key piece. But this also why I started my group. Dialogue: 0,0:16:51.18,0:16:56.02,Default,,0000,0000,0000,,Because I don't think that anybody needs to deal with that stuff alone. Dialogue: 0,0:16:56.02,0:17:01.89,Default,,0000,0000,0000,,And fortunately now, there is, what, seven drugs available, Dialogue: 0,0:17:01.89,0:17:08.83,Default,,0000,0000,0000,,First there's these three that were available before, and those three were only injectables. Dialogue: 0,0:17:08.85,0:17:14.58,Default,,0000,0000,0000,,There is no - I think now, only in the last ouple of years, I don't even now, Dialogue: 0,0:17:14.58,0:17:17.11,Default,,0000,0000,0000,,I'm kind of happy to live (?) with the medication Dialogue: 0,0:17:17.11,0:17:22.30,Default,,0000,0000,0000,,because my medication has worked for me the whole time and I^m really lucky. Dialogue: 0,0:17:22.30,0:17:27.11,Default,,0000,0000,0000,,But I know that there's like one or two oral medications out now, Dialogue: 0,0:17:27.11,0:17:34.48,Default,,0000,0000,0000,,all the rest are injectables, and that's a big deal (laughs). Dialogue: 0,0:17:34.48,0:17:40.43,Default,,0000,0000,0000,,That's probably one of the harder things, it was having to know I'd have to get poked in my butt Dialogue: 0,0:17:40.43,0:17:47.21,Default,,0000,0000,0000,,every four days or whatever, and you know, for a lot of these, a lot of people, Dialogue: 0,0:17:47.21,0:17:51.74,Default,,0000,0000,0000,,it's so interesting how everybody is so different with these injections. Dialogue: 0,0:17:51.74,0:17:56.53,Default,,0000,0000,0000,,I have one friend that is like, adamant, like "I'm never letting people do this to me. Dialogue: 0,0:17:56.53,0:18:00.26,Default,,0000,0000,0000,,This is I have to live this for myself, it's my medication". Dialogue: 0,0:18:00.26,0:18:04.38,Default,,0000,0000,0000,,And then there is someone like me that's like, I can't even look at the needle, Dialogue: 0,0:18:04.38,0:18:07.30,Default,,0000,0000,0000,,so I need someone else to do this for me. Dialogue: 0,0:18:07.30,0:18:14.72,Default,,0000,0000,0000,,And, you know, 14 years later, I still have someone else do it for me because I - Dialogue: 0,0:18:14.73,0:18:18.87,Default,,0000,0000,0000,,any way to make it easier for yourself? Dialogue: 0,0:18:19.58,0:18:27.53,Default,,0000,0000,0000,,If I mean I have to do injections in my butt, into muscular leg, I'm talking big needles, Dialogue: 0,0:18:27.53,0:18:30.85,Default,,0000,0000,0000,,I don't want to see the needle, I don't even want to know. Dialogue: 0,0:18:31.63,0:18:36.35,Default,,0000,0000,0000,,But even to this day, I don't do it myself, I have a nurse do it. Dialogue: 0,0:18:36.35,0:18:39.86,Default,,0000,0000,0000,,I'm really good at it at this point, I mean, so much practice, Dialogue: 0,0:18:39.86,0:18:47.15,Default,,0000,0000,0000,,and I think I have enough needles now that we are about equal on the coverage. Dialogue: 0,0:18:47.18,0:18:48.65,Default,,0000,0000,0000,,[HJ] Wow! Dialogue: 0,0:18:48.65,0:18:57.75,Default,,0000,0000,0000,,[Cohen] But I think, you know, you know, I'm going to promote myself and I'm a DJ. Dialogue: 0,0:18:57.75,0:19:06.15,Default,,0000,0000,0000,,And I do - I did transform that classical skill of music into my turntablism. Dialogue: 0,0:19:06.15,0:19:09.62,Default,,0000,0000,0000,,It's vastly different. It's a different sound. Dialogue: 0,0:19:09.62,0:19:17.11,Default,,0000,0000,0000,,And it was a huge loss to me, to not be able to create my own sound, and even turn, you know, Dialogue: 0,0:19:17.11,0:19:20.76,Default,,0000,0000,0000,,being on turntables, it's someone else's music that I'm playing. Dialogue: 0,0:19:20.76,0:19:28.20,Default,,0000,0000,0000,,But what I've learned is that nobody else can make it sound the way I'm making it sound. Dialogue: 0,0:19:28.20,0:19:35.63,Default,,0000,0000,0000,,Because it's the art of the mixer, and it's really about hearing, and the harmony. Dialogue: 0,0:19:35.63,0:19:44.41,Default,,0000,0000,0000,,This tattoo right here represents harmony because - and I have one on the back of my neck, Dialogue: 0,0:19:44.41,0:19:52.40,Default,,0000,0000,0000,,that was initially made out of two base clefs in a - infinity symbol, right? Dialogue: 0,0:19:52.40,0:19:57.82,Default,,0000,0000,0000,,But the tatto artist was not a musician and he put the dots on the wrong side, Dialogue: 0,0:19:57.82,0:20:02.93,Default,,0000,0000,0000,,and I was like, Oh, can we just like... So he just made it in the infinity symbol. Dialogue: 0,0:20:02.93,0:20:08.23,Default,,0000,0000,0000,,But it still has the same meaning to me, and that is that the music is never lost in me, Dialogue: 0,0:20:08.23,0:20:11.41,Default,,0000,0000,0000,,no matter if I can play that or not. Dialogue: 0,0:20:11.41,0:20:14.90,Default,,0000,0000,0000,,I will forever hear it, I will forever feel it. Dialogue: 0,0:20:14.90,0:20:20.21,Default,,0000,0000,0000,,And that's what I put into my turntablism, you know? Dialogue: 0,0:20:20.21,0:20:25.29,Default,,0000,0000,0000,,I'm not a big scratcher. Oh, I must admit, the other day, I was fucking around Dialogue: 0,0:20:25.29,0:20:31.21,Default,,0000,0000,0000,,and I scratched some of this Saudi Arabian music, and made it House: it's pretty hot. Dialogue: 0,0:20:31.22,0:20:34.90,Default,,0000,0000,0000,,Well, you know, that was just like, I don't know if I can do that again, Dialogue: 0,0:20:34.90,0:20:45.43,Default,,0000,0000,0000,,it was kind of in the moment, but I am able to let out my creativity through the turntables now, Dialogue: 0,0:20:45.43,0:20:48.35,Default,,0000,0000,0000,,and it took me a long time to get to this point, Dialogue: 0,0:20:48.35,0:20:54.03,Default,,0000,0000,0000,,but now I know that the sounds I'm creating whether - and it's all other people's music, Dialogue: 0,0:20:54.03,0:20:59.22,Default,,0000,0000,0000,,but the way I'm manipulating their music, it's an art within itself. Dialogue: 0,0:20:59.22,0:21:07.70,Default,,0000,0000,0000,,And I think that there's plenty of DJs these days that just use a stupid program Dialogue: 0,0:21:07.70,0:21:11.89,Default,,0000,0000,0000,,that does it all for them, and they just click in stuff, Dialogue: 0,0:21:12.73,0:21:19.60,Default,,0000,0000,0000,,but they've lost the art form of what it really is, and i think if you go back to, like Dialogue: 0,0:21:20.50,0:21:28.86,Default,,0000,0000,0000,,the original people who were DJs, they were - they were musicians Dialogue: 0,0:21:28.86,0:21:31.27,Default,,0000,0000,0000,,and they were creating their own sound, Dialogue: 0,0:21:31.27,0:21:35.80,Default,,0000,0000,0000,,and unfortunately, technology has kind of moved faster, Dialogue: 0,0:21:35.80,0:21:40.76,Default,,0000,0000,0000,,and so all these kids are trying to be DJs, and it's kind of funny to me, Dialogue: 0,0:21:40.76,0:21:43.20,Default,,0000,0000,0000,,because they don't even know how to match a beat. Dialogue: 0,0:21:43.20,0:21:51.43,Default,,0000,0000,0000,,But you know, to each their own, and I do not judge (laughs) Bullshit, I totally judge. Dialogue: 0,0:21:51.43,0:21:57.09,Default,,0000,0000,0000,,I am - I would be the first to say that. It's like if you don't know how to match a beat, Dialogue: 0,0:21:57.09,0:22:01.87,Default,,0000,0000,0000,,why are you even trying? But, you know, that's a whole nutter (other?) show. Dialogue: 0,0:22:01.87,0:22:03.63,Default,,0000,0000,0000,,[They laugh] Dialogue: 0,0:22:03.63,0:22:12.40,Default,,0000,0000,0000,,[Cohen] But I think that the message I want to leave with, I guess you could say, Dialogue: 0,0:22:12.40,0:22:17.68,Default,,0000,0000,0000,,would be, you know, "Stay positive." That's the only way I got through all this stuff with - Dialogue: 0,0:22:17.68,0:22:21.22,Default,,0000,0000,0000,,by staying positive, then I kept pushing, you know, it was like: Dialogue: 0,0:22:23.79,0:22:28.03,Default,,0000,0000,0000,,"Bring it on!" - now I made a poin, might (?) bring it on, you know? Dialogue: 0,0:22:28.03,0:22:31.80,Default,,0000,0000,0000,,What else are you going to do with me? You know, I don't really - Dialogue: 0,0:22:31.80,0:22:36.23,Default,,0000,0000,0000,,you know, I can beat it, whatever it is, you know, and yes, I may have this illness Dialogue: 0,0:22:36.23,0:22:41.19,Default,,0000,0000,0000,,for the rest of my life, but I'm not going to let it run me, and I'm not going to let it control me, Dialogue: 0,0:22:41.19,0:22:48.31,Default,,0000,0000,0000,,but you know, at the same time, I say that, and there's definitely a lot of restrictions it puts on you. Dialogue: 0,0:22:48.31,0:22:53.93,Default,,0000,0000,0000,,I mean, when you've chronic fatigue and you're sleeping 18 hours a day, you can- Dialogue: 0,0:22:53.93,0:22:59.83,Default,,0000,0000,0000,,it's going to be hard not only to be able to hold on a job, more or less like "relationships", Dialogue: 0,0:22:59.83,0:23:06.96,Default,,0000,0000,0000,,that's whole other ball of game. So it's like, you really have to learn how to adapt. Dialogue: 0,0:23:06.96,0:23:11.20,Default,,0000,0000,0000,,And a lot of it is adapting to other people. Dialogue: 0,0:23:11.20,0:23:17.49,Default,,0000,0000,0000,,Because, especially like now, even now, like, I don't look like I've an illness Dialogue: 0,0:23:17.49,0:23:19.87,Default,,0000,0000,0000,,or anything wrong wrong with me at all. Dialogue: 0,0:23:19.87,0:23:25.61,Default,,0000,0000,0000,,And then, I have a drink, and I look like I'm wasted. Dialogue: 0,0:23:25.61,0:23:32.70,Default,,0000,0000,0000,,And I've been coralled (?) out of bars, even, a few months ago I got caught off at a bar, Dialogue: 0,0:23:32.70,0:23:37.60,Default,,0000,0000,0000,,because the bartender saw me stumbling, and I was like: "But I have MS!" Dialogue: 0,0:23:37.60,0:23:42.75,Default,,0000,0000,0000,,And it's like, I don't have it tattoed - I wear a bracelet now that says "I've MS", Dialogue: 0,0:23:42.75,0:23:48.83,Default,,0000,0000,0000,,because I carried a card that I have MS, but this is much more like, bang! Dialogue: 0,0:23:48.83,0:23:52.47,Default,,0000,0000,0000,,you don't have to, like, struggle, getting it out of your wallet or whatever. Dialogue: 0,0:23:52.47,0:23:58.27,Default,,0000,0000,0000,,But, you know, it's all the invisible symptoms that nobody sees, Dialogue: 0,0:23:58.27,0:24:07.15,Default,,0000,0000,0000,,and that's what I will make visible is that with this illness, you can't see the pain they're in, Dialogue: 0,0:24:07.15,0:24:14.29,Default,,0000,0000,0000,,the struggles they're in, feeling like they have a tight belt around their waist, you know, 24/7, Dialogue: 0,0:24:14.29,0:24:20.30,Default,,0000,0000,0000,,or whatever - you know, for me it was shaky arms, so you know, I - there was always tricks, Dialogue: 0,0:24:20.30,0:24:22.66,Default,,0000,0000,0000,,there were times that I just sat on my arm. Dialogue: 0,0:24:23.26,0:24:26.62,Default,,0000,0000,0000,,Because whenever I'd bring it out, it was like flopping in the wind. Dialogue: 0,0:24:26.62,0:24:30.23,Default,,0000,0000,0000,,So it's - you learn tricks (laughs). Dialogue: 0,0:24:30.23,0:24:37.55,Default,,0000,0000,0000,,But I think that a lot of people - it's - it's really hard for a lot of people, Dialogue: 0,0:24:37.55,0:24:43.36,Default,,0000,0000,0000,,because they don't want to accept it, you know, and what is it? Dialogue: 0,0:24:43.36,0:24:46.45,Default,,0000,0000,0000,,The 5 stages - were you a psych major? Dialogue: 0,0:24:46.45,0:24:47.52,Default,,0000,0000,0000,,[HJ] Yeah. Dialogue: 0,0:24:47.52,0:24:56.39,Default,,0000,0000,0000,,[Cohen] OK: spit them out: denial, anger, I don't know. What are those? All those stages you go through. Dialogue: 0,0:24:56.39,0:25:06.10,Default,,0000,0000,0000,,You go through that stuff with MS. It's like, OK, because like that first year, I drank so much boo- Dialogue: 0,0:25:06.10,0:25:11.63,Default,,0000,0000,0000,,so many beers because it was so much easier to say: "No, I'm just drunk", instead of Dialogue: 0,0:25:11.63,0:25:15.84,Default,,0000,0000,0000,,"I've got this illness that's making me all uncoordinated". Dialogue: 0,0:25:15.84,0:25:24.82,Default,,0000,0000,0000,,Alcohol was awesome for making me deny the fact that this stuff was going on - to a degree, to a degree. Dialogue: 0,0:25:24.82,0:25:29.64,Default,,0000,0000,0000,,And then I was really angry because I was on a college campus, Dialogue: 0,0:25:29.64,0:25:33.33,Default,,0000,0000,0000,,and everybody was so young and stupid and hadn't - Dialogue: 0,0:25:33.33,0:25:35.55,Default,,0000,0000,0000,,.................... angry. Dialogue: 0,0:25:35.55,0:25:37.100,Default,,0000,0000,0000,,I was like, "Everybody is stupid" [laughs]. Dialogue: 0,0:25:37.100,0:25:42.20,Default,,0000,0000,0000,,But then, after i got over the anger, I, you know, became accepting of it Dialogue: 0,0:25:42.20,0:25:48.40,Default,,0000,0000,0000,,and I knew that the anger wasn't getting me anywhere, any of these - Dialogue: 0,0:25:48.40,0:25:56.58,Default,,0000,0000,0000,,or the sadness for that matter, you know, or any of these emotions, wasn't taking me to a place of peace with it.. Dialogue: 0,0:25:56.58,0:26:07.28,Default,,0000,0000,0000,,And I really think that because of that EMDR therapy, I became at peace with it all, Dialogue: 0,0:26:07.28,0:26:10.86,Default,,0000,0000,0000,,and it still sucks. I'm never going to say it doesn't suck, Dialogue: 0,0:26:10.86,0:26:16.12,Default,,0000,0000,0000,,but you know, fortunately for me, the only thing that I have to deal with is injections. Dialogue: 0,0:26:16.12,0:26:22.61,Default,,0000,0000,0000,,You know, I don't have - my tremor is calm enough now, all my symptoms are pretty regulated, Dialogue: 0,0:26:22.61,0:26:28.04,Default,,0000,0000,0000,,I - So it's like a new lease on life, I feel. And so - Dialogue: 0,0:26:28.04,0:26:29.62,Default,,0000,0000,0000,,[HJ] .... of MS? Dialogue: 0,0:26:29.62,0:26:30.52,Default,,0000,0000,0000,,[Cohen] What? Dialogue: 0,0:26:30.52,0:26:32.71,Default,,0000,0000,0000,,[HJ] Are there different types of MS? Dialogue: 0,0:26:32.71,0:26:38.22,Default,,0000,0000,0000,,[Cohen] Yes. Thank you for asking. There are, and that's what a lot of people don't know. Dialogue: 0,0:26:38.22,0:26:43.86,Default,,0000,0000,0000,,And the majority of people with MS have relapsing or remitting MS, Dialogue: 0,0:26:43.86,0:26:48.10,Default,,0000,0000,0000,,which is one that comes and goes as it pleases. Dialogue: 0,0:26:48.10,0:26:57.47,Default,,0000,0000,0000,,But these drugs prevent the quicker going downs and kind of trick the brain into the - Dialogue: 0,0:26:57.47,0:27:00.42,Default,,0000,0000,0000,,thinking the stuff's there that isn't. Dialogue: 0,0:27:00.42,0:27:08.51,Default,,0000,0000,0000,,But then there is the progressive and secondary progressive, which are the really debilitating kind - Dialogue: 0,0:27:08.51,0:27:13.97,Default,,0000,0000,0000,,ah no (?), the kinds with the people in the wheelchairs, and the people that (then ?) get bedridden. Dialogue: 0,0:27:15.15,0:27:17.98,Default,,0000,0000,0000,,And unfortunately, there is no medication for them. Dialogue: 0,0:27:17.98,0:27:21.11,Default,,0000,0000,0000,,So for - this is my biggest concern now, Dialogue: 0,0:27:21.11,0:27:26.87,Default,,0000,0000,0000,,because they've got all of us relapsing or remitting people pretty much under control, Dialogue: 0,0:27:26.87,0:27:32.26,Default,,0000,0000,0000,,but it's these people that just keep getting worse and worse and worse Dialogue: 0,0:27:32.26,0:27:39.46,Default,,0000,0000,0000,,and, you know, that's the hardest part of MS to watch or even talk about. Dialogue: 0,0:27:39.46,0:27:47.22,Default,,0000,0000,0000,,Because, like, when I started this support group 8 years ago, Dialogue: 0,0:27:47.22,0:27:50.98,Default,,0000,0000,0000,,there was a few people in there with progressive MS, Dialogue: 0,0:27:50.98,0:27:55.11,Default,,0000,0000,0000,,and you know, they started coming to the meetings and they were OK, Dialogue: 0,0:27:55.11,0:27:59.65,Default,,0000,0000,0000,,they might have had a little tremor, but we all had tremors at that point. Dialogue: 0,0:27:59.65,0:28:03.86,Default,,0000,0000,0000,,So it was like, "Yeah, I -". But we could relate to each other, Dialogue: 0,0:28:03.86,0:28:12.32,Default,,0000,0000,0000,,and one of these guys I got very close with, and he had progressive. Oh, he still has progressive. Dialogue: 0,0:28:12.32,0:28:14.56,Default,,0000,0000,0000,,I should not speak of him in that way. Dialogue: 0,0:28:14.56,0:28:28.48,Default,,0000,0000,0000,,But just the quick downfall of his system, and how it just fell apart, you know, like, Dialogue: 0,0:28:29.54,0:28:32.22,Default,,0000,0000,0000,,so he comes to this meeting, and maybe he's got the old tremor, Dialogue: 0,0:28:32.22,0:28:38.48,Default,,0000,0000,0000,,the next month he comes and he's got optic neuritis in one eye, one eye is just looking out that way, Dialogue: 0,0:28:38.48,0:28:44.20,Default,,0000,0000,0000,,you know, and then it's like, bad talk (?) is another symptom. Dialogue: 0,0:28:44.20,0:28:49.53,Default,,0000,0000,0000,,Then the next month later, he's not even walking, you know, he's using canes. Dialogue: 0,0:28:49.53,0:28:53.31,Default,,0000,0000,0000,,And then the month after that, he's in a wheelchair. Dialogue: 0,0:28:53.31,0:28:59.16,Default,,0000,0000,0000,,And now this guy is totally bedridden, to where his mom has to feed him and bathe him, Dialogue: 0,0:28:59.16,0:29:04.11,Default,,0000,0000,0000,,and his independence has been taken, and it's really hard. Dialogue: 0,0:29:04.11,0:29:10.82,Default,,0000,0000,0000,,Because then unlike - well how did I get so lucky? Why am I so lucky that I could get better? Dialogue: 0,0:29:10.82,0:29:18.92,Default,,0000,0000,0000,,If I could just have given him half of my recovery or whatever, we'd both be in better places. Dialogue: 0,0:29:18.92,0:29:26.63,Default,,0000,0000,0000,,But it's not how it works. But for me, that's my biggest motivation, you know, Dialogue: 0,0:29:26.63,0:29:34.48,Default,,0000,0000,0000,,for all of these people with MS who really can't do it anymore, like I'm going to keep pushing harder, Dialogue: 0,0:29:34.48,0:29:39.13,Default,,0000,0000,0000,,and I'm going to ride that elliptical machine, because I can, damn it. Dialogue: 0,0:29:39.13,0:29:46.55,Default,,0000,0000,0000,,And you know, for me, that was such a huge thing, because that elliptical machine and I were enemies. Dialogue: 0,0:29:46.55,0:29:55.45,Default,,0000,0000,0000,,We - my left and right body did not work together, that whole piece of my brain was kind of messed up, Dialogue: 0,0:29:55.45,0:30:05.91,Default,,0000,0000,0000,,so an elliptical machine was the utter, the best example of the left and right brain working together Dialogue: 0,0:30:05.91,0:30:10.11,Default,,0000,0000,0000,,at the same - you know, that total coordination right there. And - Dialogue: 0,0:30:10.11,0:30:13.75,Default,,0000,0000,0000,,[HJ] Do you want to talk about what induced you to use the elliptical? Dialogue: 0,0:30:13.75,0:30:15.16,Default,,0000,0000,0000,,[Cohen] What? Dialogue: 0,0:30:15.16,0:30:17.46,Default,,0000,0000,0000,,[HJ] Do you want to talk about who pushed you to do the elliptical? Dialogue: 0,0:30:17.46,0:30:20.73,Default,,0000,0000,0000,,[Cohen] Oh, my trainer! God bless my trainer! Dialogue: 0,0:30:20.73,0:30:24.75,Default,,0000,0000,0000,,Because I met him 5 years ago, Dialogue: 0,0:30:24.75,0:30:25.63,Default,,0000,0000,0000,,[HJ] Ah! Dialogue: 0,0:30:25.63,0:30:35.29,Default,,0000,0000,0000,,[Cohen] and I wasn't using my left arm. I could walk but I had very little coordination and balance. Dialogue: 0,0:30:35.29,0:30:40.91,Default,,0000,0000,0000,,So I always thought I was kind of drunk, which is fun, in public. Dialogue: 0,0:30:40.91,0:30:49.45,Default,,0000,0000,0000,,But he understood right away that this was a neurological disease and that it wasn't about my muscles, Dialogue: 0,0:30:49.45,0:30:53.78,Default,,0000,0000,0000,,because the trainer I had before him was like a total jerk, and he was: Dialogue: 0,0:30:53.78,0:30:58.95,Default,,0000,0000,0000,,"I'm going to whip you into shape" and like - he definitely put some muscle on me Dialogue: 0,0:30:58.95,0:31:03.20,Default,,0000,0000,0000,,but there was no - no pathways being carved [laughs]. Dialogue: 0,0:31:03.20,0:31:09.94,Default,,0000,0000,0000,,So when I got this .... - this trainer, he got it and he was just challenging me Dialogue: 0,0:31:09.94,0:31:19.66,Default,,0000,0000,0000,,with motions I hadn't been doing for 9 years, with, like, using my arm and bringing it out , Dialogue: 0,0:31:19.66,0:31:25.76,Default,,0000,0000,0000,,and acting as if I'm lifting my dog and putting him on a shelf over here, Dialogue: 0,0:31:25.76,0:31:34.42,Default,,0000,0000,0000,,which was a motion I didn't do, but - but from doing this, repetitively, for years, Dialogue: 0,0:31:34.42,0:31:39.96,Default,,0000,0000,0000,,it's like now, I'm throwing medicine balls with my left hand, you know? Dialogue: 0,0:31:40.01,0:31:46.04,Default,,0000,0000,0000,,And it's only because he's kind of a - he's an awesome trainer, because he's like - Dialogue: 0,0:31:46.04,0:31:52.88,Default,,0000,0000,0000,,he's fun: we have fun, that's the best piece of it, you know, he makes games out of everything, Dialogue: 0,0:31:52.88,0:31:58.59,Default,,0000,0000,0000,,and I being the athlete that I was, I wanted to be like, "No, I can do it ." Dialogue: 0,0:31:58.59,0:32:02.34,Default,,0000,0000,0000,,he's like, "You're done, you're done!" I'm like "No! I got to do it one more time, Dialogue: 0,0:32:02.34,0:32:04.52,Default,,0000,0000,0000,,just to prove to myself I can do it". Dialogue: 0,0:32:04.52,0:32:12.75,Default,,0000,0000,0000,,But - so we got this elliptical machine and I just looked at it for months, Dialogue: 0,0:32:12.75,0:32:17.52,Default,,0000,0000,0000,,like it's over there, and that's there for other people. Dialogue: 0,0:32:17.52,0:32:22.64,Default,,0000,0000,0000,,And then finally, one day, he's like "YOu won't even try and ride this?" Dialogue: 0,0:32:22.64,0:32:27.28,Default,,0000,0000,0000,,I was like: "Errh, I don't know, you think I can?" I mean, he has been - Dialogue: 0,0:32:28.17,0:32:36.38,Default,,0000,0000,0000,,he got me to this point (?) and I got on, and I was riding it, and it was the weirdest feeling in the world, Dialogue: 0,0:32:36.38,0:32:41.48,Default,,0000,0000,0000,,because both my left and right were working simultaneously together, Dialogue: 0,0:32:41.48,0:32:47.59,Default,,0000,0000,0000,,which never happened for not in - you know - 14 years [laughs]. Dialogue: 0,0:32:47.62,0:32:56.54,Default,,0000,0000,0000,,So yeah, it was pretty darned amazing. I was just like: "Holy -" I was freaking out. Dialogue: 0,0:32:56.54,0:33:02.05,Default,,0000,0000,0000,,I'm surprised that I didn't start bawling in front of him. But I can - it was also awesome for him Dialogue: 0,0:33:02.05,0:33:07.84,Default,,0000,0000,0000,,because he was like, "I'm doing my job and I'm good at it!" you know, Dialogue: 0,0:33:07.90,0:33:14.12,Default,,0000,0000,0000,,And I have to give him credit because, you know, if I had been working out by myself all this time, Dialogue: 0,0:33:14.12,0:33:17.03,Default,,0000,0000,0000,,I wouldn't have seen any of these improvements. Dialogue: 0,0:33:17.03,0:33:22.12,Default,,0000,0000,0000,,But because I have this guy on my side that's like pushing me and challenging me, Dialogue: 0,0:33:22.12,0:33:24.96,Default,,0000,0000,0000,,and keeping me motivated, Dialogue: 0,0:33:24.96,0:33:30.16,Default,,0000,0000,0000,,that's the biggest thing, like, I've got no motivation to go to the gym, I hate the gym, Dialogue: 0,0:33:30.16,0:33:36.92,Default,,0000,0000,0000,,you know, I don't mind going to look at the sexy men, but there's a lot more unattractive men then sexy Dialogue: 0,0:33:36.92,0:33:39.75,Default,,0000,0000,0000,,men [they giggle], so screw that! Dialogue: 0,0:33:39.75,0:33:46.67,Default,,0000,0000,0000,,But you know, it's really about me and my personal gain (? game?). Dialogue: 0,0:33:46.67,0:33:51.80,Default,,0000,0000,0000,,I just feel very lucky and blessed, and I think everybody needs to kind of take - Dialogue: 0,0:33:51.80,0:33:57.64,Default,,0000,0000,0000,,take a moment and appreciate all the things they have, until you lose it. Dialogue: 0,0:33:57.64,0:34:04.83,Default,,0000,0000,0000,,I wish I would have known, you know. If I would have known that was going to happen to me, Dialogue: 0,0:34:04.83,0:34:10.96,Default,,0000,0000,0000,,I probably would have been playing my cello every day, multiple times a day, and doing all this stuff. Dialogue: 0,0:34:10.96,0:34:16.76,Default,,0000,0000,0000,,But I was just a stupid kid and I didn't realize that anything like that could ever happen. Dialogue: 0,0:34:17.67,0:34:19.35,Default,,0000,0000,0000,,[HJ] Nobody knows, nobody. Dialogue: 0,0:34:19.35,0:34:28.30,Default,,0000,0000,0000,,[Cohen] No, they don't, but they'd - but I - I think that I'm trying to - Dialogue: 0,0:34:28.30,0:34:34.42,Default,,0000,0000,0000,,I'm trying to kind of change the face of MS a bit. I'm trying to show the positive side. Dialogue: 0,0:34:34.42,0:34:42.66,Default,,0000,0000,0000,,Not all these people in wheelchairs and all negative, because that really is the older generation of MS, Dialogue: 0,0:34:42.66,0:34:48.62,Default,,0000,0000,0000,,and it's not like that anymore. I mean, the support group that's still running, Dialogue: 0,0:34:48.62,0:34:54.49,Default,,0000,0000,0000,,I mean there's new people coming in every months, and they are all at different levels Dialogue: 0,0:34:54.49,0:34:56.91,Default,,0000,0000,0000,,in dealing with their illness. Dialogue: 0,0:34:56.91,0:35:03.63,Default,,0000,0000,0000,,Some of them - there was one girl a few months ago, who hadn't even been diagnosed yet, Dialogue: 0,0:35:03.63,0:35:09.15,Default,,0000,0000,0000,,but she knew it, because her father had MS and she - she knew. Dialogue: 0,0:35:09.67,0:35:16.44,Default,,0000,0000,0000,,And, you know, watching her go through that whole process of getting the diagnosis, having to adapt, Dialogue: 0,0:35:16.44,0:35:20.83,Default,,0000,0000,0000,,taking the injections, and being there, knowing that, Dialogue: 0,0:35:20.83,0:35:27.27,Default,,0000,0000,0000,,just being able to connect with other people about it, helps so greatly, Dialogue: 0,0:35:27.27,0:35:34.10,Default,,0000,0000,0000,,like even that - the guy with progressive MS, I think one of our most binding moments Dialogue: 0,0:35:34.10,0:35:38.20,Default,,0000,0000,0000,,was just standing in his kitchen and he fell, and he's like: Dialogue: 0,0:35:38.20,0:35:42.21,Default,,0000,0000,0000,,"Damn! Don't you hate it when the earth moves out from underneath you!" Dialogue: 0,0:35:42.21,0:35:47.33,Default,,0000,0000,0000,,And I go "Oh my God! I love this guy!", like I'd experienced that too. Dialogue: 0,0:35:47.33,0:35:53.14,Default,,0000,0000,0000,,But it's very rare that you're going to meet someone who has experienced that without being drunk, Dialogue: 0,0:35:53.14,0:35:54.55,Default,,0000,0000,0000,,you know what I'm saying? Dialogue: 0,0:35:54.55,0:36:02.23,Default,,0000,0000,0000,,And it's very - I know that guy and I are forever in each other's hearts, Dialogue: 0,0:36:02.24,0:36:06.99,Default,,0000,0000,0000,,because I think we were both like the first people who had the same illness you could relate, Dialogue: 0,0:36:06.99,0:36:12.24,Default,,0000,0000,0000,,and he was like a track star and all this before the MS affected him, Dialogue: 0,0:36:12.24,0:36:21.06,Default,,0000,0000,0000,,So he also lost his passions but we also learned to adapt and you know, Dialogue: 0,0:36:21.06,0:36:25.33,Default,,0000,0000,0000,,whether I was going to be this "rock star cellist)" or not, Dialogue: 0,0:36:25.33,0:36:29.45,Default,,0000,0000,0000,,it's like, life has lead me in this direction and I can only do - Dialogue: 0,0:36:29.45,0:36:36.41,Default,,0000,0000,0000,,go forward and spread the positive stuff, and that's what I'm trying to do, Dialogue: 0,0:36:36.41,0:36:41.28,Default,,0000,0000,0000,,and I'm trying to affect people and let them know, "No, you're not alone. Dialogue: 0,0:36:41.28,0:36:46.14,Default,,0000,0000,0000,,and there isn't a cure for this illness. So it would be nice if there was, you know. Dialogue: 0,0:36:46.14,0:36:49.22,Default,,0000,0000,0000,,So help us get there and help - help" Dialogue: 0,0:36:50.67,0:36:58.48,Default,,0000,0000,0000,,It's interesting because I think more and more, now, if I say I've MS, somebody will say; Dialogue: 0,0:36:58.48,0:37:03.98,Default,,0000,0000,0000,,"Oh, my sister has MS - my aunt has MS". Somebody knows somebody with MS. Dialogue: 0,0:37:03.98,0:37:11.70,Default,,0000,0000,0000,,And I'm glad that's the case, because people, you know, 14 years ago, they didn't even know what it was. Dialogue: 0,0:37:11.73,0:37:19.28,Default,,0000,0000,0000,,And it's nice to know that people actually are getting diagnosed faster, Dialogue: 0,0:37:19.28,0:37:31.09,Default,,0000,0000,0000,,which is helpful because they can get on drugs faster and avoid giant relapses, I guess. Dialogue: 0,0:37:31.09,0:37:33.16,Default,,0000,0000,0000,,... I dont'know (?) Dialogue: 0,0:37:33.17,0:37:37.56,Default,,0000,0000,0000,,[HJ] Did you have to change your diet at all? Dialogue: 0,0:37:37.56,0:37:43.06,Default,,0000,0000,0000,,[Cohen] No [laughs] That was the one thing I was adamant about not doing. Dialogue: 0,0:37:43.06,0:37:47.44,Default,,0000,0000,0000,,I'm like, "You can take away my cello, my bike, my snowboard, Dialogue: 0,0:37:47.44,0:37:51.16,Default,,0000,0000,0000,,you can take away all those things, but I'm still eating cheese". Dialogue: 0,0:37:51.16,0:37:58.66,Default,,0000,0000,0000,,Like, as long as I was healthy, and I eat well, but I never eliminated anything in my diet Dialogue: 0,0:37:58.66,0:38:04.57,Default,,0000,0000,0000,,because, you know, when I was first diagnosed, there were many theories, like she'd just - you know - Dialogue: 0,0:38:04.57,0:38:11.56,Default,,0000,0000,0000,,would go to a vegan diet, she would never have any issues, it would help. Dialogue: 0,0:38:11.56,0:38:19.83,Default,,0000,0000,0000,,Or if she took all the mercury out of her fillings, because they thought that could be related, Dialogue: 0,0:38:19.83,0:38:22.26,Default,,0000,0000,0000,,and so it was like, all these theorisms. Dialogue: 0,0:38:22.26,0:38:31.16,Default,,0000,0000,0000,,After I think being bombarded so young with all these theories of ways to prevent stuff from happening, Dialogue: 0,0:38:31.16,0:38:37.100,Default,,0000,0000,0000,,I was like: "No", you know, like "Whatever I'm doing," like, "it's fine." like, Dialogue: 0,0:38:37.100,0:38:44.72,Default,,0000,0000,0000,,"I can't control this illness so I'm not going to change my diet if it's not really in the way." Dialogue: 0,0:38:44.72,0:38:49.44,Default,,0000,0000,0000,,Like, I never adapted my eating any different things - Dialogue: 0,0:38:49.44,0:38:54.49,Default,,0000,0000,0000,,and although at the same time, you know, a lot of people who - in the MS community - Dialogue: 0,0:38:54.49,0:38:57.61,Default,,0000,0000,0000,,who have, and they said it's made a huge difference. Dialogue: 0,0:38:57.61,0:39:01.64,Default,,0000,0000,0000,,But so, alright, I think everybody is different in that regard. Dialogue: 0,0:39:01.64,0:39:09.08,Default,,0000,0000,0000,,I'm not a person to change their eating habits, just because I like to eat Dialogue: 0,0:39:09.08,0:39:16.61,Default,,0000,0000,0000,,and I know I don't eat really poorly, so that's good. I'm pretty healthy. Dialogue: 0,0:39:16.61,0:39:30.59,Default,,0000,0000,0000,,But I really think that exercise has been the biggest help in my treatment, in my "healing" if you will, Dialogue: 0,0:39:30.59,0:39:38.11,Default,,0000,0000,0000,,you know? I think that's the only way I could get to this point. So... Dialogue: 0,0:39:38.11,0:39:42.94,Default,,0000,0000,0000,,[HJ] How did your family understand the difficulties that you are looking at in the future? Dialogue: 0,0:39:42.94,0:39:50.60,Default,,0000,0000,0000,,[Cohen] Wow! The worst was being - my mom was a therapist for many years Dialogue: 0,0:39:50.60,0:39:56.44,Default,,0000,0000,0000,,and she had had a client who had MS, who was a ballerina, Dialogue: 0,0:39:56.44,0:40:07.07,Default,,0000,0000,0000,,and then all of a sudden couldn't do ballet anymore, and so - so my mother really knew more than anybody Dialogue: 0,0:40:07.07,0:40:10.48,Default,,0000,0000,0000,,(laughs) about the illness and ..... (?) Dialogue: 0,0:40:10.48,0:40:21.90,Default,,0000,0000,0000,,and at this point I think that - I'm trying to think - I think that her client probably had progressive MS Dialogue: 0,0:40:21.90,0:40:32.08,Default,,0000,0000,0000,,and I did not, so that was good, but so my mother knew the horrors of what this could mean Dialogue: 0,0:40:32.08,0:40:40.61,Default,,0000,0000,0000,,and so, for her, it was way worse than for anyone else, because she knew all the bad stuff Dialogue: 0,0:40:40.61,0:40:45.66,Default,,0000,0000,0000,,and she was like "Right, my daughter now has to deal with all this." Dialogue: 0,0:40:45.68,0:40:57.18,Default,,0000,0000,0000,,But I think in that - in those initial couple of years I got so close with them, Dialogue: 0,0:40:57.18,0:41:03.94,Default,,0000,0000,0000,,because they were the only support system I really had, you know, I was sleeping 18 hours a day, Dialogue: 0,0:41:03.94,0:41:10.31,Default,,0000,0000,0000,,I was only up sporadically, and like, my friends were all turning 21 and hitting the bars, Dialogue: 0,0:41:10.33,0:41:15.08,Default,,0000,0000,0000,,and it's like "I can't do that anymore." So I became very close to my parents. Dialogue: 0,0:41:15.08,0:41:19.09,Default,,0000,0000,0000,,And I'm very lucky that I got this opportunity to do it. Dialogue: 0,0:41:19.09,0:41:24.26,Default,,0000,0000,0000,,And that they were cool enough to listen to me bitch as much as I did, Dialogue: 0,0:41:24.26,0:41:29.85,Default,,0000,0000,0000,,because I needed that. I think everybody who gets dealt a hand of cards like that, Dialogue: 0,0:41:29.85,0:41:34.50,Default,,0000,0000,0000,,you know, you got to be able to bitch, and that's mainly why I started the support group. Dialogue: 0,0:41:34.50,0:41:38.29,Default,,0000,0000,0000,,My people need a place to feel safe to bitch. Dialogue: 0,0:41:38.29,0:41:47.10,Default,,0000,0000,0000,,Because, you know, my poor parents got to hear every little crappy thing that I felt about everything, Dialogue: 0,0:41:47.10,0:41:51.65,Default,,0000,0000,0000,,you know, and everything turned negative, and it's all a big spiral of that. Dialogue: 0,0:41:51.65,0:41:53.96,Default,,0000,0000,0000,,When one thing goes wrong, everything [makes sounds suggesting things disintegrating]. Dialogue: 0,0:41:53.96,0:42:00.22,Default,,0000,0000,0000,,And this goes on and on. But luckily, they were kindly enough to just let me bitch. Dialogue: 0,0:42:00.22,0:42:04.72,Default,,0000,0000,0000,,And my mom would smack some sense into me occasionally, like: Dialogue: 0,0:42:04.72,0:42:08.44,Default,,0000,0000,0000,,"Chloe!", you know", like), but at the same time she's a brilliant mom (?). Dialogue: 0,0:42:08.44,0:42:14.89,Default,,0000,0000,0000,,Because, like, this Christmas when I went skiing, with my paralyzed friend, Dialogue: 0,0:42:14.89,0:42:22.12,Default,,0000,0000,0000,,he was like "Hem, I'm getting you on skis." I was like: "What?" He's like: "I can do it, you can do it." Dialogue: 0,0:42:22.12,0:42:27.03,Default,,0000,0000,0000,,I'm like: "Shit! He can't even use his right side, I can do this." Dialogue: 0,0:42:27.03,0:42:30.91,Default,,0000,0000,0000,,So he got me on skis and it was very powerful. Dialogue: 0,0:42:30.91,0:42:44.14,Default,,0000,0000,0000,,But my mother was like, you know: "Well, Chloe?" I was freaking out because I'd just heard bad news Dialogue: 0,0:42:44.14,0:42:49.23,Default,,0000,0000,0000,,about my one friend from the group who had progressive MS, and now he is bedridden and all this Dialogue: 0,0:42:49.23,0:42:56.46,Default,,0000,0000,0000,,and it was really overwhelming for me. And my mother was so awesome, because she was like: Dialogue: 0,0:42:56.46,0:43:02.84,Default,,0000,0000,0000,,"Chloe, you know, you're going to go skiing today. You can go skiing today. Dialogue: 0,0:43:02.84,0:43:08.25,Default,,0000,0000,0000,,So I want you to go skiing and do this for people like him. Because he can't. " Dialogue: 0,0:43:08.25,0:43:13.18,Default,,0000,0000,0000,,And it just pushed me even further and I got out there, and I skied. Dialogue: 0,0:43:13.18,0:43:19.37,Default,,0000,0000,0000,,And I must admit, there was a moment when I was looking up, like "Holy shit, look what the hell I'm doing." Dialogue: 0,0:43:19.40,0:43:25.43,Default,,0000,0000,0000,,Well, I'm like: "God bless you, Mike", you know, "and all of you progressive people", you know, Dialogue: 0,0:43:25.46,0:43:33.46,Default,,0000,0000,0000,,"I'm doing this for you, as much as myself. But, you know, because I can do it, I mean, that's so cool." Dialogue: 0,0:43:33.46,0:43:41.22,Default,,0000,0000,0000,,[laughs] And I just - you don't know what you got until you lose it, Dialogue: 0,0:43:41.22,0:43:45.78,Default,,0000,0000,0000,,and be appreciative of what you got and live in the moments. Dialogue: 0,0:43:45.78,0:43:54.29,Default,,0000,0000,0000,,Those are my two parting [laughs] phrases. Appreciate what you got. And live in the moment. Dialogue: 0,0:43:54.29,0:43:58.47,Default,,0000,0000,0000,,And I think if you go into life with that kind of attitude, you'll be OK. Dialogue: 0,0:43:58.47,0:44:05.69,Default,,0000,0000,0000,,But you also have to know shit is always going to happen, you can't control shit from happening. Dialogue: 0,0:44:05.69,0:44:11.96,Default,,0000,0000,0000,,But you deal with it in the moment. You don't worry about it, you deal with it in the moment. Dialogue: 0,0:44:11.96,0:44:15.64,Default,,0000,0000,0000,,So yeah. [laughs] Dialogue: 0,0:44:15.64,0:44:19.66,Default,,0000,0000,0000,,[HJ] That's awesome that you've made such amazing accomplishments. Dialogue: 0,0:44:19.66,0:44:21.73,Default,,0000,0000,0000,,Thank you. Dialogue: 0,0:44:21.73,0:44:31.17,Default,,0000,0000,0000,,[Cohen] I feel fortunate to be able to have the - the skill, I guess you could say, Dialogue: 0,0:44:31.17,0:44:39.61,Default,,0000,0000,0000,,of communicating about this in an effective way, without judgment. Dialogue: 0,0:44:39.61,0:44:48.30,Default,,0000,0000,0000,,And I know that I've my part in the MS - no: I'll forever do my part in the MS community, Dialogue: 0,0:44:48.30,0:45:00.35,Default,,0000,0000,0000,,of bringing awareness and bringing hope, because I think a lot of people forget that anything's possible, Dialogue: 0,0:45:00.35,0:45:12.73,Default,,0000,0000,0000,,and I am proof of that, and I think, the more you can realize what you have, the better it will be? Dialogue: 0,0:45:12.73,0:45:15.69,Default,,0000,0000,0000,,I don't know. I'm just babbling now [laughs] Dialogue: 0,0:45:15.69,0:45:21.88,Default,,0000,0000,0000,,[HJ] No! I want to share your DJ page. Dialogue: 0,0:45:21.88,0:45:23.85,Default,,0000,0000,0000,,[Cohen] Yeah. Dialogue: 0,0:45:23.85,0:45:31.01,Default,,0000,0000,0000,,[HJ] you can check URL on - .... you can check DJ CC and it'll come up. Dialogue: 0,0:45:31.04,0:45:32.23,Default,,0000,0000,0000,,[Cohen] Ding! Dialogue: 0,0:45:32.23,0:45:43.68,Default,,0000,0000,0000,,[HJ] Ah, that's here. This is Chloe's DJ page. If you go ....... (?) it's like DJ CC and it will come up. Dialogue: 0,0:45:43.68,0:45:50.12,Default,,0000,0000,0000,,And I also - here, your "Face of MS" page. Dialogue: 0,0:45:50.12,0:45:54.04,Default,,0000,0000,0000,,[Cohen] Yes. Thank you. Dialogue: 0,0:45:57.27,0:46:02.17,Default,,0000,0000,0000,,[HJ] Are you starting a support group on Google+ as well? Dialogue: 0,0:46:02.17,0:46:08.39,Default,,0000,0000,0000,,[Cohen] Yes, I have a disability support, which - its range is not just MS. Dialogue: 0,0:46:08.39,0:46:16.38,Default,,0000,0000,0000,,it's deafness, mental issues, ....... (?) and disabilities in general. Dialogue: 0,0:46:16.38,0:46:22.37,Default,,0000,0000,0000,,for all the ones who want to feel, you know, like they have support Dialogue: 0,0:46:22.37,0:46:24.62,Default,,0000,0000,0000,,dealing with some kind of difference, Dialogue: 0,0:46:26.86,0:46:37.29,Default,,0000,0000,0000,,Yeah. but it's really general, for any kind of support, but it is for, mostly, disability Dialogue: 0,0:46:37.29,0:46:43.68,Default,,0000,0000,0000,,and that would be any kind of disability. So... Dialogue: 0,0:46:43.68,0:46:53.73,Default,,0000,0000,0000,,(HJ) Awesome. You can Google Face of MS or DJ CC Boom. And now, she... Dialogue: 0,0:46:53.73,0:47:00.21,Default,,0000,0000,0000,,[Cohen] That's my sign, my deaf sign. Because I've got really deaf friend, he's like: Dialogue: 0,0:47:00.21,0:47:07.97,Default,,0000,0000,0000,,"I got - I got a sign for you, because everybody has got the CC Boom". That's my name sign. Dialogue: 0,0:47:07.97,0:47:16.10,Default,,0000,0000,0000,,[HJ] You're such an amazing DJ, you caught her (?) music. And even though it's not your own music, Dialogue: 0,0:47:16.10,0:47:19.77,Default,,0000,0000,0000,,the way you manipulate those sounds is just awesome. Dialogue: 0,0:47:19.77,0:47:22.25,Default,,0000,0000,0000,,[Cohen] THat's awesome. That's what I like to hear. Dialogue: 0,0:47:22.25,0:47:23.16,Default,,0000,0000,0000,,[HJ laughs] Dialogue: 0,0:47:23.16,0:47:29.04,Default,,0000,0000,0000,,[Cohen] Thank you, Candice. I really want to thank you for doing that's what you're doing. Dialogue: 0,0:47:29.04,0:47:33.98,Default,,0000,0000,0000,,Not just for me, but I like hearing other people's stories too, you know, Dialogue: 0,0:47:33.98,0:47:39.12,Default,,0000,0000,0000,,And I think that's important, because this - this social networking thing, this Google+ thing, Dialogue: 0,0:47:39.12,0:47:44.94,Default,,0000,0000,0000,,is going to be ginormous, and I think that you're starting off with a bang by doing this. Dialogue: 0,0:47:44.94,0:47:48.78,Default,,0000,0000,0000,,You're - yeah - keep it up, keep up the good work. Dialogue: 0,0:47:48.78,0:47:52.59,Default,,0000,0000,0000,,[HJ] Yes, it makes me even appreciate what I have, because you know, Dialogue: 0,0:47:52.59,0:47:56.55,Default,,0000,0000,0000,,people get so caught up in what they don't have, you know - Dialogue: 0,0:47:56.55,0:47:57.36,Default,,0000,0000,0000,,[Cohen] Right. Dialogue: 0,0:47:57.37,0:48:01.33,Default,,0000,0000,0000,,[HJ] They listen (?) to the media and they just want to keep buying Dialogue: 0,0:48:01.33,0:48:07.10,Default,,0000,0000,0000,,and they want you to, you know, just wish you had these things that you don't, Dialogue: 0,0:48:07.10,0:48:12.93,Default,,0000,0000,0000,,and you know, talking with you ad other people, just make me know that I do have a lot Dialogue: 0,0:48:12.93,0:48:19.91,Default,,0000,0000,0000,,and I have to be grateful for what I have - what I don't - and it's really inspiring listening to you Dialogue: 0,0:48:19.94,0:48:20.71,Default,,0000,0000,0000,,and your story Dialogue: 0,0:48:20.71,0:48:21.21,Default,,0000,0000,0000,,[Cohen] Awesome] Dialogue: 0,0:48:21.26,0:48:26.68,Default,,0000,0000,0000,,[HJ] ...overcame that, how you just appreciate everything now. Dialogue: 0,0:48:26.68,0:48:29.68,Default,,0000,0000,0000,,And I think it happens for a reaon. Dialogue: 0,0:48:29.68,0:48:35.52,Default,,0000,0000,0000,,There's a reason for what you have, there's a reason for, what everyone's .....(?) in life. Dialogue: 0,0:48:35.52,0:48:38.29,Default,,0000,0000,0000,,And it just makes you that much stronger. Dialogue: 0,0:48:38.29,0:48:44.98,Default,,0000,0000,0000,,[Cohen] Definitely. No, I wouldn't be who I was if I hadn't gone through all that, you know, Dialogue: 0,0:48:44.98,0:48:51.18,Default,,0000,0000,0000,,I wouldn't be nearly this cool if I hadn't faced that much loss. Dialogue: 0,0:48:51.18,0:48:57.34,Default,,0000,0000,0000,,But it's true, because I got a perspective that most people don't get in their early 20's, you know. Dialogue: 0,0:48:57.34,0:49:03.88,Default,,0000,0000,0000,,Because I felt like I was 80 at 20, and I sort of kept - keep getting younger as I get older: Dialogue: 0,0:49:03.88,0:49:11.25,Default,,0000,0000,0000,,it's kind of cool ]laughs]. But, you know, I could bond with my grandmother Dialogue: 0,0:49:11.25,0:49:17.01,Default,,0000,0000,0000,,and try and get her to use a cane, and have actual evidence of why she should do it Dialogue: 0,0:49:17.01,0:49:26.01,Default,,0000,0000,0000,,and be like - and you know, that's one of the perks to an MS is that you really educate people Dialogue: 0,0:49:26.04,0:49:29.26,Default,,0000,0000,0000,,and make them appreciate what they have. Dialogue: 0,0:49:29.26,0:49:38.03,Default,,0000,0000,0000,,And I think that's what I hope to do and I try to do it as often as I can. Dialogue: 0,0:49:38.03,0:49:43.19,Default,,0000,0000,0000,,So (signs) power to the people! [laughs] Dialogue: 0,0:49:43.19,0:49:47.34,Default,,0000,0000,0000,,[HJ] I hope it gives everything in your story (?) 49:46) everyone's turn and - Dialogue: 0,0:49:47.34,0:49:48.100,Default,,0000,0000,0000,,[Cohen] Awesome. That's what I hope to do. Dialogue: 0,0:49:48.100,0:49:55.52,Default,,0000,0000,0000,,[HJ] Yes, you're truly inspiring and, you know, you have a good support system. Dialogue: 0,0:49:55.52,0:49:57.88,Default,,0000,0000,0000,,I think that's so important for everyone. Dialogue: 0,0:49:57.88,0:49:58.38,Default,,0000,0000,0000,,[Cohen] Yes. Dialogue: 0,0:49:58.44,0:50:03.87,Default,,0000,0000,0000,,[HJ] Whether it's something ........................ (?) that's really something major, Dialogue: 0,0:50:03.87,0:50:07.32,Default,,0000,0000,0000,,you must have a, you know, a support system. Dialogue: 0,0:50:07.32,0:50:14.46,Default,,0000,0000,0000,,It's so importan, I meant. It doesn't have to be family: friends, you have your personal trainer Dialogue: 0,0:50:14.46,0:50:20.71,Default,,0000,0000,0000,,who is - I think he's awesome, how he got you on that elliptical: that alone is just amazing. Dialogue: 0,0:50:20.71,0:50:30.71,Default,,0000,0000,0000,,[Cohen] Yeah. He's awesome. He's like my brother but he's not. He is my, you know, trainer Dialogue: 0,0:50:30.71,0:50:36.87,Default,,0000,0000,0000,,but he know- you know, he's a child of the 90's too, so he's always playing, like, Dialogue: 0,0:50:36.87,0:50:41.52,Default,,0000,0000,0000,,old school 90's music, like ............ hahh Dialogue: 0,0:50:41.52,0:50:45.96,Default,,0000,0000,0000,,[laughs] It's pretty cool, so we can bond over that kind of stuff. Dialogue: 0,0:50:49.13,0:50:53.26,Default,,0000,0000,0000,,[HJ] I want to thank you again for sharing your story and - Dialogue: 0,0:50:53.26,0:50:58.35,Default,,0000,0000,0000,,[Cohen] My pleasure, Candice, thank you for getting my story out there. Dialogue: 0,0:50:58.35,0:51:03.93,Default,,0000,0000,0000,,[HJ] I hope to be broadcasting this tomorrow. If anyone wants to listen, they can check it out Dialogue: 0,0:51:03.93,0:51:13.34,Default,,0000,0000,0000,,and I hope people check your Face of MS page and your DJ page, and see you the way, you know, Dialogue: 0,0:51:13.34,0:51:18.70,Default,,0000,0000,0000,,play those sounds, it's amazing. You have to listen to it to appreciate it. [laughs] Dialogue: 0,0:51:18.70,0:51:21.42,Default,,0000,0000,0000,,[Cohen] That's awesome. Thank you, Candice. Dialogue: 0,0:51:21.44,0:51:25.38,Default,,0000,0000,0000,,[HJ] Thank you, thank you again, we all appreciate- Dialogue: 0,0:51:25.38,0:51:28.17,Default,,0000,0000,0000,,[Cohen] My pleasure.