[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:07.42,0:00:09.14,Default,,0000,0000,0000,,Well, good afternoon.
Dialogue: 0,0:00:09.14,0:00:10.97,Default,,0000,0000,0000,,How many of you
Dialogue: 0,0:00:10.97,0:00:13.68,Default,,0000,0000,0000,,took the ALS Ice Bucket Challenge?
Dialogue: 0,0:00:13.68,0:00:14.90,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:00:14.90,0:00:16.14,Default,,0000,0000,0000,,Woo hoo!
Dialogue: 0,0:00:17.34,0:00:20.48,Default,,0000,0000,0000,,Well, I have to tell you,\Nfrom the bottom of our hearts,
Dialogue: 0,0:00:20.48,0:00:23.03,Default,,0000,0000,0000,,thank you so very, very much.
Dialogue: 0,0:00:23.03,0:00:26.22,Default,,0000,0000,0000,,Do you know to date the ALS Association
Dialogue: 0,0:00:26.22,0:00:29.28,Default,,0000,0000,0000,,has raised 125 million dollars?
Dialogue: 0,0:00:31.35,0:00:34.13,Default,,0000,0000,0000,,Woo hoo! (Applause)
Dialogue: 0,0:00:37.80,0:00:40.63,Default,,0000,0000,0000,,It takes me back to the summer of 2011.
Dialogue: 0,0:00:40.63,0:00:43.10,Default,,0000,0000,0000,,My family, my kids had all grown up.
Dialogue: 0,0:00:43.10,0:00:45.09,Default,,0000,0000,0000,,We were officially empty nesters,
Dialogue: 0,0:00:45.09,0:00:47.95,Default,,0000,0000,0000,,and we decided,\Nlet's go on a family vacation.
Dialogue: 0,0:00:47.95,0:00:50.01,Default,,0000,0000,0000,,Jenn, my daughter, and my son-in-law
Dialogue: 0,0:00:50.01,0:00:51.61,Default,,0000,0000,0000,,came down from New York.
Dialogue: 0,0:00:51.61,0:00:53.09,Default,,0000,0000,0000,,My youngest, Andrew,
Dialogue: 0,0:00:53.09,0:00:55.53,Default,,0000,0000,0000,,he came down from his home in Charlestown
Dialogue: 0,0:00:55.53,0:00:57.36,Default,,0000,0000,0000,,where he was working in Boston,
Dialogue: 0,0:00:57.36,0:00:58.48,Default,,0000,0000,0000,,and my son Pete,
Dialogue: 0,0:00:58.48,0:01:01.39,Default,,0000,0000,0000,,who had played at Boston College,\Nbaseball,
Dialogue: 0,0:01:01.39,0:01:04.18,Default,,0000,0000,0000,,had played baseball professionally\Nin Europe,
Dialogue: 0,0:01:04.18,0:01:09.56,Default,,0000,0000,0000,,and had now come home and was selling\Ngroup insurance, he also joined us.
Dialogue: 0,0:01:09.56,0:01:10.96,Default,,0000,0000,0000,,And one night, I found myself
Dialogue: 0,0:01:10.96,0:01:12.43,Default,,0000,0000,0000,,having a beer with Pete,
Dialogue: 0,0:01:12.43,0:01:14.77,Default,,0000,0000,0000,,and Pete was looking at me\Nand he just said,
Dialogue: 0,0:01:14.77,0:01:16.100,Default,,0000,0000,0000,,"You know, Mom, I don't know,
Dialogue: 0,0:01:16.100,0:01:20.96,Default,,0000,0000,0000,,selling group insurance\Nis just not my passion."
Dialogue: 0,0:01:20.96,0:01:26.51,Default,,0000,0000,0000,,He said, "I just don't feel\NI'm living up to my potential.
Dialogue: 0,0:01:26.51,0:01:29.69,Default,,0000,0000,0000,,I don't feel this is my mission in life."
Dialogue: 0,0:01:29.97,0:01:33.21,Default,,0000,0000,0000,,And he said, "You know,\Noh by the way, Mom,
Dialogue: 0,0:01:33.21,0:01:35.93,Default,,0000,0000,0000,,I have to leave early from vacation
Dialogue: 0,0:01:35.93,0:01:40.72,Default,,0000,0000,0000,,because my inter-city league team\Nthat I play for made the playoffs,
Dialogue: 0,0:01:40.72,0:01:45.07,Default,,0000,0000,0000,,and I have to get back to Boston\Nbecause I can't let my team down.
Dialogue: 0,0:01:45.07,0:01:47.78,Default,,0000,0000,0000,,I'm just not as passionate about my job
Dialogue: 0,0:01:47.78,0:01:50.47,Default,,0000,0000,0000,,as I am about baseball."
Dialogue: 0,0:01:50.47,0:01:53.68,Default,,0000,0000,0000,,So off Pete went,\Nand left the family vacation -
Dialogue: 0,0:01:53.68,0:01:55.56,Default,,0000,0000,0000,,break a mother's heart -
Dialogue: 0,0:01:55.56,0:01:59.84,Default,,0000,0000,0000,,and he went,\Nand we followed four days later
Dialogue: 0,0:01:59.84,0:02:02.40,Default,,0000,0000,0000,,to see the next playoff game.
Dialogue: 0,0:02:02.40,0:02:05.39,Default,,0000,0000,0000,,We're at the playoff game,\NPete's at the plate,
Dialogue: 0,0:02:05.39,0:02:07.73,Default,,0000,0000,0000,,and a fastball's coming in,
Dialogue: 0,0:02:07.73,0:02:09.81,Default,,0000,0000,0000,,and it hits him on the wrist.
Dialogue: 0,0:02:09.81,0:02:11.45,Default,,0000,0000,0000,,Oh, Pete.
Dialogue: 0,0:02:11.45,0:02:14.70,Default,,0000,0000,0000,,His wrist went completely limp, like this.
Dialogue: 0,0:02:14.70,0:02:16.86,Default,,0000,0000,0000,,So for the next six months,
Dialogue: 0,0:02:16.86,0:02:19.17,Default,,0000,0000,0000,,Pete went back to his home in Southie,
Dialogue: 0,0:02:19.17,0:02:21.86,Default,,0000,0000,0000,,kept working that unpassionate job,
Dialogue: 0,0:02:21.86,0:02:23.50,Default,,0000,0000,0000,,and was going to doctors
Dialogue: 0,0:02:23.50,0:02:25.40,Default,,0000,0000,0000,,to see what was wrong with this wrist
Dialogue: 0,0:02:25.40,0:02:27.31,Default,,0000,0000,0000,,that never came back.
Dialogue: 0,0:02:27.31,0:02:29.38,Default,,0000,0000,0000,,Six months later, in March,
Dialogue: 0,0:02:29.38,0:02:31.63,Default,,0000,0000,0000,,he called my husband and me, and he said,
Dialogue: 0,0:02:31.63,0:02:33.36,Default,,0000,0000,0000,,"Oh, Mom and Dad, we have a doctor
Dialogue: 0,0:02:33.36,0:02:36.00,Default,,0000,0000,0000,,that found a diagnosis for that wrist.
Dialogue: 0,0:02:36.00,0:02:39.41,Default,,0000,0000,0000,,Do you want to come\Nwith the doctor's appointment with me?"
Dialogue: 0,0:02:39.41,0:02:41.55,Default,,0000,0000,0000,,I said, "Sure, we'll come in."
Dialogue: 0,0:02:41.55,0:02:44.18,Default,,0000,0000,0000,,That morning, Pete, John and I
Dialogue: 0,0:02:44.18,0:02:46.85,Default,,0000,0000,0000,,all got up, got dressed, got in our cars -
Dialogue: 0,0:02:46.85,0:02:48.30,Default,,0000,0000,0000,,three separate cars
Dialogue: 0,0:02:48.30,0:02:50.09,Default,,0000,0000,0000,,because we were going to go to work
Dialogue: 0,0:02:50.09,0:02:53.48,Default,,0000,0000,0000,,after the doctor's appointment to find out\Nwhat happened to the wrist.
Dialogue: 0,0:02:53.48,0:02:55.87,Default,,0000,0000,0000,,We walked into the neurologist's office,\Nsat down,
Dialogue: 0,0:02:55.87,0:02:57.51,Default,,0000,0000,0000,,four doctors walk in,
Dialogue: 0,0:02:57.51,0:02:59.74,Default,,0000,0000,0000,,and the head neurologist sits down.
Dialogue: 0,0:02:59.74,0:03:02.72,Default,,0000,0000,0000,,And he says, "Well, Pete,\Nwe've been looking at all the tests,
Dialogue: 0,0:03:02.72,0:03:05.82,Default,,0000,0000,0000,,and I have to tell you,\Nit's not a sprained wrist,
Dialogue: 0,0:03:05.84,0:03:08.20,Default,,0000,0000,0000,,it's not a broken wrist,
Dialogue: 0,0:03:08.41,0:03:10.35,Default,,0000,0000,0000,,it's not nerve damage in the wrist,
Dialogue: 0,0:03:10.35,0:03:12.30,Default,,0000,0000,0000,,it's not an infection,
Dialogue: 0,0:03:12.30,0:03:14.82,Default,,0000,0000,0000,,it's not Lyme disease."
Dialogue: 0,0:03:15.67,0:03:19.82,Default,,0000,0000,0000,,And there was this\Ndeliberate elimination going up,
Dialogue: 0,0:03:19.82,0:03:21.45,Default,,0000,0000,0000,,and I was thinking to myself,
Dialogue: 0,0:03:21.45,0:03:24.10,Default,,0000,0000,0000,,where is he going with this?
Dialogue: 0,0:03:24.10,0:03:26.67,Default,,0000,0000,0000,,Then he put his hands on his knees,
Dialogue: 0,0:03:26.67,0:03:29.52,Default,,0000,0000,0000,,he looked right at my 27-year-old kid,\Nand said,
Dialogue: 0,0:03:29.52,0:03:32.57,Default,,0000,0000,0000,,"I don't know how to tell\Na 27-year-old this:
Dialogue: 0,0:03:32.57,0:03:35.40,Default,,0000,0000,0000,,Pete, you have ALS."
Dialogue: 0,0:03:37.22,0:03:38.87,Default,,0000,0000,0000,,ALS?
Dialogue: 0,0:03:38.87,0:03:42.91,Default,,0000,0000,0000,,I had had a friend\Nwhose 80-year-old father had ALS.
Dialogue: 0,0:03:44.30,0:03:46.24,Default,,0000,0000,0000,,I looked at my husband, he looked at me,
Dialogue: 0,0:03:46.24,0:03:48.79,Default,,0000,0000,0000,,and then we looked at the doctor,\Nand we said, "ALS?
Dialogue: 0,0:03:48.79,0:03:50.85,Default,,0000,0000,0000,,Okay, what treatment? Let's go.
Dialogue: 0,0:03:50.85,0:03:53.51,Default,,0000,0000,0000,,What do we do? Let's go."
Dialogue: 0,0:03:53.51,0:03:56.94,Default,,0000,0000,0000,,And he looked at us, and he said,\N"Mr. and Mrs. Frates,
Dialogue: 0,0:03:56.94,0:03:58.86,Default,,0000,0000,0000,,I'm sorry to tell you this,
Dialogue: 0,0:03:58.86,0:04:02.63,Default,,0000,0000,0000,,but there's no treatment\Nand there's no cure."
Dialogue: 0,0:04:03.67,0:04:06.08,Default,,0000,0000,0000,,We were the worst culprits.
Dialogue: 0,0:04:06.08,0:04:08.56,Default,,0000,0000,0000,,We didn't even understand
Dialogue: 0,0:04:08.56,0:04:10.97,Default,,0000,0000,0000,,that it had been 75 years since Lou Gehrig
Dialogue: 0,0:04:10.97,0:04:15.59,Default,,0000,0000,0000,,and nothing had been done\Nin the progress against ALS.
Dialogue: 0,0:04:15.94,0:04:19.54,Default,,0000,0000,0000,,So we all went home, and Jenn and Dan
Dialogue: 0,0:04:19.54,0:04:21.70,Default,,0000,0000,0000,,flew home from Wall Street,
Dialogue: 0,0:04:21.70,0:04:24.28,Default,,0000,0000,0000,,Andrew came home from Charlestown,
Dialogue: 0,0:04:24.28,0:04:26.79,Default,,0000,0000,0000,,and Pete went to B.C. to pick up
Dialogue: 0,0:04:26.79,0:04:29.80,Default,,0000,0000,0000,,his then-girlfriend Julie\Nand brought her home,
Dialogue: 0,0:04:29.80,0:04:32.00,Default,,0000,0000,0000,,and six hours later after diagnosis,
Dialogue: 0,0:04:32.00,0:04:34.80,Default,,0000,0000,0000,,we're sitting around\Nhaving a family dinner,
Dialogue: 0,0:04:34.80,0:04:36.86,Default,,0000,0000,0000,,and we're having small chat.
Dialogue: 0,0:04:36.86,0:04:40.12,Default,,0000,0000,0000,,I don't even remember\Ncooking dinner that night.
Dialogue: 0,0:04:40.12,0:04:45.07,Default,,0000,0000,0000,,But then our leader, Pete, set the vision,
Dialogue: 0,0:04:45.07,0:04:48.98,Default,,0000,0000,0000,,and talked to us\Njust like we were his new team.
Dialogue: 0,0:04:48.98,0:04:52.95,Default,,0000,0000,0000,,He said,\N"There will be no wallowing, people."
Dialogue: 0,0:04:52.95,0:04:55.30,Default,,0000,0000,0000,,He goes, "We're not looking back,
Dialogue: 0,0:04:55.30,0:04:57.53,Default,,0000,0000,0000,,we're looking forward.
Dialogue: 0,0:04:57.53,0:05:02.54,Default,,0000,0000,0000,,What an amazing opportunity we have\Nto change the world.
Dialogue: 0,0:05:03.17,0:05:05.35,Default,,0000,0000,0000,,I'm going to change the face
Dialogue: 0,0:05:05.35,0:05:08.50,Default,,0000,0000,0000,,of this unacceptable situation of ALS.
Dialogue: 0,0:05:08.97,0:05:10.55,Default,,0000,0000,0000,,We're going to move the needle,
Dialogue: 0,0:05:10.55,0:05:14.22,Default,,0000,0000,0000,,and I'm going to get it in front\Nof philanthropists like Bill Gates."
Dialogue: 0,0:05:14.87,0:05:17.71,Default,,0000,0000,0000,,And that was it.\NWe were given our directive.
Dialogue: 0,0:05:18.25,0:05:20.61,Default,,0000,0000,0000,,So in the days and months that followed,
Dialogue: 0,0:05:20.61,0:05:24.07,Default,,0000,0000,0000,,within a week,\Nwe had our brothers and sisters
Dialogue: 0,0:05:24.07,0:05:26.12,Default,,0000,0000,0000,,and our family come to us,
Dialogue: 0,0:05:26.12,0:05:29.02,Default,,0000,0000,0000,,that they were already creating\NTeam Frate Train.
Dialogue: 0,0:05:29.02,0:05:31.46,Default,,0000,0000,0000,,Uncle Dave, he was the webmaster;
Dialogue: 0,0:05:31.46,0:05:33.85,Default,,0000,0000,0000,,Uncle Artie, he was the accountant;
Dialogue: 0,0:05:33.85,0:05:36.93,Default,,0000,0000,0000,,Auntie Dana, she was the graphic artist;
Dialogue: 0,0:05:36.93,0:05:38.100,Default,,0000,0000,0000,,and my youngest son, Andrew,
Dialogue: 0,0:05:38.100,0:05:42.17,Default,,0000,0000,0000,,quit his job, left his apartment\Nin Charlestown
Dialogue: 0,0:05:42.17,0:05:46.25,Default,,0000,0000,0000,,and says, "I'm going to take care\Nof Pete and be his caregiver."
Dialogue: 0,0:05:46.25,0:05:49.54,Default,,0000,0000,0000,,Then all those people,\Nclassmates, teammates,
Dialogue: 0,0:05:49.54,0:05:52.10,Default,,0000,0000,0000,,coworkers that Pete had inspired
Dialogue: 0,0:05:52.10,0:05:54.21,Default,,0000,0000,0000,,throughout his whole life,
Dialogue: 0,0:05:54.21,0:05:58.07,Default,,0000,0000,0000,,the circles of Pete all started\Nintersecting with one another,
Dialogue: 0,0:05:58.07,0:06:00.85,Default,,0000,0000,0000,,and made Team Frate Train.
Dialogue: 0,0:06:02.61,0:06:04.66,Default,,0000,0000,0000,,Six months after diagnosis,
Dialogue: 0,0:06:04.66,0:06:09.51,Default,,0000,0000,0000,,Pete was given an award\Nat a research summit for advocacy.
Dialogue: 0,0:06:09.99,0:06:12.47,Default,,0000,0000,0000,,He got up and gave a very eloquent speech,
Dialogue: 0,0:06:12.47,0:06:15.19,Default,,0000,0000,0000,,and at the end of the speech,\Nthere was a panel,
Dialogue: 0,0:06:15.19,0:06:18.01,Default,,0000,0000,0000,,and on the panel were these\Npharmaceutical executives
Dialogue: 0,0:06:18.01,0:06:20.64,Default,,0000,0000,0000,,and biochemists and clinicians
Dialogue: 0,0:06:20.64,0:06:22.84,Default,,0000,0000,0000,,and I'm sitting there\Nand I'm listening to them
Dialogue: 0,0:06:22.84,0:06:25.90,Default,,0000,0000,0000,,and most of the content\Nwent straight over my head.
Dialogue: 0,0:06:25.90,0:06:28.50,Default,,0000,0000,0000,,I avoided every science class\NI ever could.
Dialogue: 0,0:06:28.50,0:06:31.40,Default,,0000,0000,0000,,But I was watching these people,\Nand I was listening to them,
Dialogue: 0,0:06:31.40,0:06:34.13,Default,,0000,0000,0000,,and they were saying,\N"I, I do this, I do that,"
Dialogue: 0,0:06:34.13,0:06:38.16,Default,,0000,0000,0000,,and there was a real unfamiliarity\Nbetween them.
Dialogue: 0,0:06:38.16,0:06:41.30,Default,,0000,0000,0000,,So at the end of their talk, the panel,
Dialogue: 0,0:06:41.30,0:06:43.19,Default,,0000,0000,0000,,they had questions and answers,
Dialogue: 0,0:06:43.19,0:06:45.28,Default,,0000,0000,0000,,and boom, my hand went right up,
Dialogue: 0,0:06:45.28,0:06:46.78,Default,,0000,0000,0000,,and I get the microphone,
Dialogue: 0,0:06:46.78,0:06:48.74,Default,,0000,0000,0000,,and I look at them and I say, "Thank you.
Dialogue: 0,0:06:48.74,0:06:50.82,Default,,0000,0000,0000,,Thank you so much for working in ALS.
Dialogue: 0,0:06:50.82,0:06:52.62,Default,,0000,0000,0000,,It means so very much to us."
Dialogue: 0,0:06:52.62,0:06:54.42,Default,,0000,0000,0000,,I said, "But I do have to tell you
Dialogue: 0,0:06:54.42,0:06:56.50,Default,,0000,0000,0000,,that I'm watching your body language
Dialogue: 0,0:06:56.50,0:06:58.60,Default,,0000,0000,0000,,and I'm listening to what you're saying.
Dialogue: 0,0:06:58.60,0:07:03.26,Default,,0000,0000,0000,,It just doesn't seem like there's a whole\Nlot of collaboration going on here.
Dialogue: 0,0:07:04.21,0:07:07.19,Default,,0000,0000,0000,,And not only that, where's the flip chart
Dialogue: 0,0:07:07.19,0:07:11.62,Default,,0000,0000,0000,,with the action items and the follow-up\Nand the accountability?
Dialogue: 0,0:07:11.62,0:07:14.63,Default,,0000,0000,0000,,What are you going to do\Nafter you leave this room?"
Dialogue: 0,0:07:15.70,0:07:18.01,Default,,0000,0000,0000,,And then I turned around
Dialogue: 0,0:07:18.01,0:07:23.22,Default,,0000,0000,0000,,and there was about 200 pairs of eyes\Njust staring at me.
Dialogue: 0,0:07:25.20,0:07:28.14,Default,,0000,0000,0000,,And it was that point that I realized
Dialogue: 0,0:07:29.28,0:07:32.94,Default,,0000,0000,0000,,that I had talked about\Nthe elephant in the room.
Dialogue: 0,0:07:32.94,0:07:35.66,Default,,0000,0000,0000,,Thus my mission had begun.
Dialogue: 0,0:07:36.14,0:07:38.65,Default,,0000,0000,0000,,So over the next couple of years,
Dialogue: 0,0:07:38.65,0:07:41.64,Default,,0000,0000,0000,,Pete - we've had our highs and our lows.
Dialogue: 0,0:07:41.64,0:07:44.53,Default,,0000,0000,0000,,Pete was put on a compassionate use drug.
Dialogue: 0,0:07:44.53,0:07:47.84,Default,,0000,0000,0000,,It was hope in a bottle\Nfor the whole ALS community.
Dialogue: 0,0:07:47.84,0:07:50.08,Default,,0000,0000,0000,,It was in a phase III trial.
Dialogue: 0,0:07:50.08,0:07:54.16,Default,,0000,0000,0000,,Then six months later,\Nthe data comes back: no efficacy.
Dialogue: 0,0:07:54.16,0:07:57.03,Default,,0000,0000,0000,,We were supposed\Nto have therapies overseas,
Dialogue: 0,0:07:57.03,0:07:59.59,Default,,0000,0000,0000,,and the rug was pulled out from under us.
Dialogue: 0,0:07:59.59,0:08:01.33,Default,,0000,0000,0000,,So for the next two years,
Dialogue: 0,0:08:01.33,0:08:05.08,Default,,0000,0000,0000,,we just watched my son\Nbe taken away from me,
Dialogue: 0,0:08:05.08,0:08:07.81,Default,,0000,0000,0000,,little by little every day.
Dialogue: 0,0:08:08.81,0:08:11.16,Default,,0000,0000,0000,,Two and a half years ago,
Dialogue: 0,0:08:11.16,0:08:14.40,Default,,0000,0000,0000,,Pete was hitting home runs\Nat baseball fields.
Dialogue: 0,0:08:14.40,0:08:18.11,Default,,0000,0000,0000,,Today, Pete's completely paralyzed.
Dialogue: 0,0:08:18.67,0:08:20.84,Default,,0000,0000,0000,,He can't hold his head up any longer.
Dialogue: 0,0:08:20.84,0:08:23.44,Default,,0000,0000,0000,,He's confined to a motorized wheelchair.
Dialogue: 0,0:08:23.44,0:08:25.67,Default,,0000,0000,0000,,He can no longer swallow or eat.
Dialogue: 0,0:08:25.67,0:08:27.62,Default,,0000,0000,0000,,He has a feeding tube.
Dialogue: 0,0:08:27.62,0:08:29.49,Default,,0000,0000,0000,,He can't speak.
Dialogue: 0,0:08:31.61,0:08:34.82,Default,,0000,0000,0000,,He talks with eye gaze technology
Dialogue: 0,0:08:34.82,0:08:37.33,Default,,0000,0000,0000,,and a speech generating device,
Dialogue: 0,0:08:37.33,0:08:38.74,Default,,0000,0000,0000,,and we're watching his lungs,
Dialogue: 0,0:08:38.74,0:08:41.72,Default,,0000,0000,0000,,because his diaphragm\Neventually is going to give out
Dialogue: 0,0:08:41.72,0:08:45.80,Default,,0000,0000,0000,,and then the decision will be made\Nto put him on a ventilator or not.
Dialogue: 0,0:08:46.44,0:08:51.31,Default,,0000,0000,0000,,ALS robs the human\Nof all their physical parts,
Dialogue: 0,0:08:52.17,0:08:54.93,Default,,0000,0000,0000,,but the brain stays intact.
Dialogue: 0,0:08:56.70,0:08:59.24,Default,,0000,0000,0000,,So July 4th, 2014,
Dialogue: 0,0:09:00.78,0:09:04.79,Default,,0000,0000,0000,,75th year of Lou Gehrig's\Ninspirational speech comes,
Dialogue: 0,0:09:05.24,0:09:09.86,Default,,0000,0000,0000,,and Pete is asked by MLB.com to write\Nan article in the Bleacher Report.
Dialogue: 0,0:09:10.95,0:09:16.81,Default,,0000,0000,0000,,And it was very significant, because\Nhe wrote it using his eye gaze technology.
Dialogue: 0,0:09:18.15,0:09:22.26,Default,,0000,0000,0000,,Twenty days later,\Nthe ice started to fall.
Dialogue: 0,0:09:23.81,0:09:28.40,Default,,0000,0000,0000,,On July 27th, Pete's roommate\Nin New York City,
Dialogue: 0,0:09:28.40,0:09:31.44,Default,,0000,0000,0000,,wearing a Quinn For The Win shirt,
Dialogue: 0,0:09:31.44,0:09:34.78,Default,,0000,0000,0000,,signifying Pat Quinn, another ALS patient\Nknown in New York,
Dialogue: 0,0:09:34.78,0:09:36.92,Default,,0000,0000,0000,,and B.C. shorts
Dialogue: 0,0:09:36.92,0:09:41.76,Default,,0000,0000,0000,,said, "I'm taking the ALS\NIce Bucket Challenge,"
Dialogue: 0,0:09:41.89,0:09:44.67,Default,,0000,0000,0000,,picked up the ice, put it over his head.
Dialogue: 0,0:09:44.67,0:09:48.52,Default,,0000,0000,0000,,"And I'm nominating ..."\NAnd he sent it up to Boston.
Dialogue: 0,0:09:48.52,0:09:51.40,Default,,0000,0000,0000,,And that was on July 27th.
Dialogue: 0,0:09:52.40,0:09:54.82,Default,,0000,0000,0000,,Over the next couple of days,\Nour news feed
Dialogue: 0,0:09:54.82,0:09:57.23,Default,,0000,0000,0000,,was full of family and friends.
Dialogue: 0,0:09:57.23,0:10:00.34,Default,,0000,0000,0000,,If you haven't gone back,\Nthe nice thing about Facebook
Dialogue: 0,0:10:00.34,0:10:02.57,Default,,0000,0000,0000,,is that you have the dates,\Nyou can go back.
Dialogue: 0,0:10:02.57,0:10:05.92,Default,,0000,0000,0000,,You've got to see Uncle Artie's\Nhuman Bloody Mary.
Dialogue: 0,0:10:05.92,0:10:09.24,Default,,0000,0000,0000,,I'm telling you,\Nit's one of the best ones,
Dialogue: 0,0:10:09.24,0:10:11.67,Default,,0000,0000,0000,,and that was probably in day two.
Dialogue: 0,0:10:12.16,0:10:15.70,Default,,0000,0000,0000,,By about day four, Uncle Dave,\Nthe webmaster,
Dialogue: 0,0:10:15.70,0:10:18.02,Default,,0000,0000,0000,,he isn't on Facebook,
Dialogue: 0,0:10:18.02,0:10:20.74,Default,,0000,0000,0000,,and I get a text from him,\Nand it says, "Nancy,
Dialogue: 0,0:10:20.74,0:10:23.48,Default,,0000,0000,0000,,what the hell is going on?"
Dialogue: 0,0:10:24.17,0:10:27.28,Default,,0000,0000,0000,,Uncle Dave gets a hit\Nevery time Pete's website
Dialogue: 0,0:10:27.28,0:10:30.45,Default,,0000,0000,0000,,is gone onto,\Nand his phone was blowing up.
Dialogue: 0,0:10:30.45,0:10:32.53,Default,,0000,0000,0000,,So we all sat down and we realized,
Dialogue: 0,0:10:32.53,0:10:36.24,Default,,0000,0000,0000,,money is coming in - how amazing.
Dialogue: 0,0:10:36.24,0:10:38.88,Default,,0000,0000,0000,,So we knew awareness\Nwould lead to funding,
Dialogue: 0,0:10:38.88,0:10:41.96,Default,,0000,0000,0000,,we just didn't know it would\Nonly take a couple of days.
Dialogue: 0,0:10:41.96,0:10:47.19,Default,,0000,0000,0000,,So we got together, put our best\N501(c)(3)s on Pete's website,
Dialogue: 0,0:10:47.19,0:10:49.13,Default,,0000,0000,0000,,and off we went.
Dialogue: 0,0:10:49.13,0:10:51.57,Default,,0000,0000,0000,,So week one, Boston media.
Dialogue: 0,0:10:51.97,0:10:54.58,Default,,0000,0000,0000,,Week two, national media.
Dialogue: 0,0:10:55.02,0:10:57.40,Default,,0000,0000,0000,,It was during week two\Nthat our neighbor next door
Dialogue: 0,0:10:57.40,0:10:59.62,Default,,0000,0000,0000,,opened up our door and threw a pizza
Dialogue: 0,0:10:59.62,0:11:01.45,Default,,0000,0000,0000,,across the kitchen floor, saying,
Dialogue: 0,0:11:01.45,0:11:04.31,Default,,0000,0000,0000,,"I think you people\Nmight need food in there."
Dialogue: 0,0:11:04.31,0:11:07.15,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:11:07.15,0:11:11.14,Default,,0000,0000,0000,,Week three, celebrities -\NEntertainment Tonight,
Dialogue: 0,0:11:11.14,0:11:13.26,Default,,0000,0000,0000,,Access Hollywood.
Dialogue: 0,0:11:13.26,0:11:17.41,Default,,0000,0000,0000,,Week four, global -\NBBC, Irish Radio.
Dialogue: 0,0:11:18.76,0:11:22.06,Default,,0000,0000,0000,,Did anyone see "Lost In Translation"?
Dialogue: 0,0:11:22.34,0:11:24.61,Default,,0000,0000,0000,,My husband did Japanese television.
Dialogue: 0,0:11:24.61,0:11:25.94,Default,,0000,0000,0000,,It was interesting.
Dialogue: 0,0:11:25.94,0:11:28.02,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:11:28.02,0:11:31.41,Default,,0000,0000,0000,,And those videos, the popular ones.
Dialogue: 0,0:11:35.32,0:11:38.64,Default,,0000,0000,0000,,Paul Bissonnette's glacier video,\Nincredible.
Dialogue: 0,0:11:38.64,0:11:41.28,Default,,0000,0000,0000,,How about the redemption nuns of Dublin?
Dialogue: 0,0:11:41.28,0:11:42.96,Default,,0000,0000,0000,,Who's seen that one?
Dialogue: 0,0:11:42.96,0:11:45.56,Default,,0000,0000,0000,,It's absolutely fantastic.
Dialogue: 0,0:11:45.56,0:11:47.78,Default,,0000,0000,0000,,J.T., Justin Timberlake.
Dialogue: 0,0:11:47.78,0:11:51.34,Default,,0000,0000,0000,,That's when we knew,\Nthat was a real A-list celebrity.
Dialogue: 0,0:11:51.34,0:11:54.33,Default,,0000,0000,0000,,I go back on my texts, and I can see
Dialogue: 0,0:11:54.33,0:11:57.74,Default,,0000,0000,0000,,"JT! JT!" My sister texting me.
Dialogue: 0,0:11:59.30,0:12:02.07,Default,,0000,0000,0000,,Angela Merkel, the chancellor of Germany.
Dialogue: 0,0:12:02.07,0:12:04.46,Default,,0000,0000,0000,,Incredible.
Dialogue: 0,0:12:04.90,0:12:06.89,Default,,0000,0000,0000,,And the ALS patients,
Dialogue: 0,0:12:06.89,0:12:09.92,Default,,0000,0000,0000,,you know what their favorite ones are,\Nand their families'?
Dialogue: 0,0:12:09.92,0:12:11.57,Default,,0000,0000,0000,,All of them.
Dialogue: 0,0:12:11.57,0:12:16.37,Default,,0000,0000,0000,,Because this misunderstood\Nand underfunded "rare" disease,
Dialogue: 0,0:12:16.37,0:12:22.11,Default,,0000,0000,0000,,they just sat and watched people\Nsaying it over and over: "ALS, ALS."
Dialogue: 0,0:12:23.45,0:12:25.76,Default,,0000,0000,0000,,It was unbelievable.
Dialogue: 0,0:12:26.41,0:12:28.27,Default,,0000,0000,0000,,And those naysayers,
Dialogue: 0,0:12:28.27,0:12:30.87,Default,,0000,0000,0000,,let's just talk a couple of stats,\Nshall we?
Dialogue: 0,0:12:30.87,0:12:33.46,Default,,0000,0000,0000,,Okay, so the ALS Association,
Dialogue: 0,0:12:33.46,0:12:37.60,Default,,0000,0000,0000,,they think by year end,\Nit'll be 160 million dollars.
Dialogue: 0,0:12:37.98,0:12:40.28,Default,,0000,0000,0000,,ALS TDI in Cambridge,
Dialogue: 0,0:12:40.28,0:12:42.31,Default,,0000,0000,0000,,they raised three million dollars.
Dialogue: 0,0:12:42.31,0:12:43.43,Default,,0000,0000,0000,,Well, guess what?
Dialogue: 0,0:12:43.43,0:12:47.25,Default,,0000,0000,0000,,They had a clinical trial for a drug\Nthat they've been developing.
Dialogue: 0,0:12:47.25,0:12:49.87,Default,,0000,0000,0000,,It was on a three-year track for funding.
Dialogue: 0,0:12:49.87,0:12:51.57,Default,,0000,0000,0000,,Two months.
Dialogue: 0,0:12:51.57,0:12:53.64,Default,,0000,0000,0000,,It's coming out starting in two months.
Dialogue: 0,0:12:53.64,0:12:56.46,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:13:03.16,0:13:05.48,Default,,0000,0000,0000,,And YouTube has reported
Dialogue: 0,0:13:05.48,0:13:11.39,Default,,0000,0000,0000,,that over 150 countries have posted\NIce Bucket Challenges for ALS.
Dialogue: 0,0:13:12.38,0:13:16.54,Default,,0000,0000,0000,,And Facebook, 2.5 million videos,
Dialogue: 0,0:13:18.97,0:13:21.87,Default,,0000,0000,0000,,and I had the awesome adventure
Dialogue: 0,0:13:21.87,0:13:25.14,Default,,0000,0000,0000,,visiting the Facebook campus last week,
Dialogue: 0,0:13:25.14,0:13:27.83,Default,,0000,0000,0000,,and I said to them, "I know\Nwhat it was like in my house.
Dialogue: 0,0:13:27.83,0:13:30.54,Default,,0000,0000,0000,,I can't imagine what it was like\Naround here."
Dialogue: 0,0:13:30.54,0:13:33.73,Default,,0000,0000,0000,,All she said was, "Jaw-dropping."
Dialogue: 0,0:13:34.77,0:13:37.49,Default,,0000,0000,0000,,And my family's favorite video?
Dialogue: 0,0:13:39.86,0:13:41.84,Default,,0000,0000,0000,,Bill Gates.
Dialogue: 0,0:13:43.35,0:13:46.02,Default,,0000,0000,0000,,Because the night Pete was diagnosed,
Dialogue: 0,0:13:46.02,0:13:49.26,Default,,0000,0000,0000,,he told us that he was going to get ALS
Dialogue: 0,0:13:49.26,0:13:52.56,Default,,0000,0000,0000,,in front of philanthropists\Nlike Bill Gates,
Dialogue: 0,0:13:53.55,0:13:55.44,Default,,0000,0000,0000,,and he did it.
Dialogue: 0,0:13:55.44,0:13:57.93,Default,,0000,0000,0000,,Goal number one, check.
Dialogue: 0,0:13:57.93,0:14:00.04,Default,,0000,0000,0000,,Now on to the treatment and cure.
Dialogue: 0,0:14:00.04,0:14:03.24,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:14:09.54,0:14:12.14,Default,,0000,0000,0000,,So okay, after all of this ice,
Dialogue: 0,0:14:12.14,0:14:14.44,Default,,0000,0000,0000,,we know that it was much more
Dialogue: 0,0:14:14.44,0:14:17.41,Default,,0000,0000,0000,,than just pouring buckets of ice water\Nover your head,
Dialogue: 0,0:14:17.41,0:14:19.16,Default,,0000,0000,0000,,and I really would like to leave you
Dialogue: 0,0:14:19.16,0:14:21.70,Default,,0000,0000,0000,,with a couple of things\Nthat I'd like you to remember.
Dialogue: 0,0:14:21.70,0:14:23.62,Default,,0000,0000,0000,,The first thing is,
Dialogue: 0,0:14:23.62,0:14:25.86,Default,,0000,0000,0000,,every morning when you wake up,
Dialogue: 0,0:14:25.86,0:14:29.57,Default,,0000,0000,0000,,you can choose to live your day\Nin positivity.
Dialogue: 0,0:14:30.97,0:14:33.12,Default,,0000,0000,0000,,Would any of you blame me
Dialogue: 0,0:14:33.12,0:14:35.48,Default,,0000,0000,0000,,if I just was in the fetal position
Dialogue: 0,0:14:35.48,0:14:38.78,Default,,0000,0000,0000,,and pulled the covers over my head\Nevery day?
Dialogue: 0,0:14:38.78,0:14:41.00,Default,,0000,0000,0000,,No, I don't think anybody would blame me,
Dialogue: 0,0:14:41.00,0:14:43.66,Default,,0000,0000,0000,,but Pete has inspired us to wake up
Dialogue: 0,0:14:43.66,0:14:46.94,Default,,0000,0000,0000,,every morning\Nand be positive and proactive.
Dialogue: 0,0:14:46.94,0:14:49.59,Default,,0000,0000,0000,,I actually had to ditch support groups
Dialogue: 0,0:14:49.59,0:14:52.24,Default,,0000,0000,0000,,because everybody was in there saying
Dialogue: 0,0:14:52.24,0:14:54.44,Default,,0000,0000,0000,,that spraying their lawns with chemicals,
Dialogue: 0,0:14:54.44,0:14:56.28,Default,,0000,0000,0000,,that's why they got ALS,
Dialogue: 0,0:14:56.28,0:14:58.23,Default,,0000,0000,0000,,and I was like, "I don't think so,"
Dialogue: 0,0:14:58.23,0:15:01.30,Default,,0000,0000,0000,,but I had to get away from the negativity.
Dialogue: 0,0:15:03.24,0:15:05.26,Default,,0000,0000,0000,,The second thing I want to leave you with
Dialogue: 0,0:15:05.26,0:15:07.75,Default,,0000,0000,0000,,is the person at the middle\Nof the challenge
Dialogue: 0,0:15:07.75,0:15:10.82,Default,,0000,0000,0000,,has to be willing to have\Nthe mental toughness
Dialogue: 0,0:15:10.82,0:15:13.32,Default,,0000,0000,0000,,to put themselves out there.
Dialogue: 0,0:15:14.15,0:15:16.64,Default,,0000,0000,0000,,Pete still goes to baseball games
Dialogue: 0,0:15:16.64,0:15:19.45,Default,,0000,0000,0000,,and he still sits with his teammates\Nin the dugout,
Dialogue: 0,0:15:19.45,0:15:22.72,Default,,0000,0000,0000,,and he hangs his gravity feed bag
Dialogue: 0,0:15:22.72,0:15:24.10,Default,,0000,0000,0000,,right on the cages.
Dialogue: 0,0:15:24.10,0:15:26.53,Default,,0000,0000,0000,,You'll see the kids,\Nthey're up there hanging it up.
Dialogue: 0,0:15:26.53,0:15:27.99,Default,,0000,0000,0000,,"Pete, is that okay?" "Yup."
Dialogue: 0,0:15:27.99,0:15:30.32,Default,,0000,0000,0000,,And then they put it\Nright into his stomach.
Dialogue: 0,0:15:30.86,0:15:34.16,Default,,0000,0000,0000,,Because he wants them to see\Nwhat the reality of this is,
Dialogue: 0,0:15:34.16,0:15:37.28,Default,,0000,0000,0000,,and how he's never,\Never going to give up.
Dialogue: 0,0:15:37.89,0:15:40.06,Default,,0000,0000,0000,,And the third thing\NI want to leave you with:
Dialogue: 0,0:15:40.06,0:15:43.05,Default,,0000,0000,0000,,If you ever come across a situation
Dialogue: 0,0:15:43.05,0:15:46.22,Default,,0000,0000,0000,,that you see as so unacceptable,
Dialogue: 0,0:15:46.22,0:15:49.83,Default,,0000,0000,0000,,I want you to dig down as deep as you can
Dialogue: 0,0:15:49.83,0:15:52.84,Default,,0000,0000,0000,,and find your best mother bear
Dialogue: 0,0:15:52.84,0:15:54.85,Default,,0000,0000,0000,,and go after it.
Dialogue: 0,0:15:54.85,0:15:59.53,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:16:29.33,0:16:30.89,Default,,0000,0000,0000,,Thank you.
Dialogue: 0,0:16:33.88,0:16:35.58,Default,,0000,0000,0000,,(Applause ends)
Dialogue: 0,0:16:35.80,0:16:37.28,Default,,0000,0000,0000,,I know that I'm running over,
Dialogue: 0,0:16:37.28,0:16:39.28,Default,,0000,0000,0000,,but I've got to leave you with this:
Dialogue: 0,0:16:39.28,0:16:41.78,Default,,0000,0000,0000,,the gifts that my son has given me.
Dialogue: 0,0:16:41.78,0:16:44.50,Default,,0000,0000,0000,,I have had 29 years
Dialogue: 0,0:16:44.50,0:16:48.56,Default,,0000,0000,0000,,of having the honor of being the mother
Dialogue: 0,0:16:48.56,0:16:50.42,Default,,0000,0000,0000,,of Pete Frates.
Dialogue: 0,0:16:50.42,0:16:55.65,Default,,0000,0000,0000,,Pete Frates has been inspiring\Nand leading his whole life.
Dialogue: 0,0:16:55.65,0:16:57.76,Default,,0000,0000,0000,,He's thrown out kindness,
Dialogue: 0,0:16:57.76,0:17:00.75,Default,,0000,0000,0000,,and all that kindness\Nhas come back to him.
Dialogue: 0,0:17:01.84,0:17:07.25,Default,,0000,0000,0000,,He walks the face of the Earth\Nright now and knows why he's here.
Dialogue: 0,0:17:07.93,0:17:09.94,Default,,0000,0000,0000,,What a gift.
Dialogue: 0,0:17:10.47,0:17:13.27,Default,,0000,0000,0000,,The second thing that my son has given me
Dialogue: 0,0:17:13.27,0:17:15.88,Default,,0000,0000,0000,,is he's given me my mission in life.
Dialogue: 0,0:17:16.73,0:17:18.71,Default,,0000,0000,0000,,Now I know why I'm here.
Dialogue: 0,0:17:18.71,0:17:21.03,Default,,0000,0000,0000,,I'm going to save my son,
Dialogue: 0,0:17:21.03,0:17:24.14,Default,,0000,0000,0000,,and if it doesn't happen in time for him,
Dialogue: 0,0:17:24.14,0:17:26.78,Default,,0000,0000,0000,,I'm going to work so that no other mother
Dialogue: 0,0:17:26.78,0:17:29.47,Default,,0000,0000,0000,,has to go through what I'm going through.
Dialogue: 0,0:17:30.87,0:17:33.33,Default,,0000,0000,0000,,And the third thing,\Nand last but not least
Dialogue: 0,0:17:33.33,0:17:35.82,Default,,0000,0000,0000,,gift that my son has given me,
Dialogue: 0,0:17:35.82,0:17:38.10,Default,,0000,0000,0000,,as an exclamation point
Dialogue: 0,0:17:38.10,0:17:39.65,Default,,0000,0000,0000,,to the miraculous month
Dialogue: 0,0:17:39.65,0:17:41.87,Default,,0000,0000,0000,,of August 2014:
Dialogue: 0,0:17:43.51,0:17:48.74,Default,,0000,0000,0000,,That girlfriend that he went to get\Non the night of diagnosis is now his wife,
Dialogue: 0,0:17:49.90,0:17:55.78,Default,,0000,0000,0000,,and Pete and Julie have given me\Nmy granddaughter, Lucy Fitzgerald Frates.
Dialogue: 0,0:17:58.01,0:18:02.23,Default,,0000,0000,0000,,Lucy Fitzgerald Frates\Ncame two weeks early
Dialogue: 0,0:18:03.35,0:18:05.58,Default,,0000,0000,0000,,as the exclamation point
Dialogue: 0,0:18:05.58,0:18:08.25,Default,,0000,0000,0000,,on August 31st, 2014.
Dialogue: 0,0:18:10.14,0:18:11.46,Default,,0000,0000,0000,,And so -
Dialogue: 0,0:18:11.46,0:18:14.58,Default,,0000,0000,0000,,(Applause) -
Dialogue: 0,0:18:20.21,0:18:24.44,Default,,0000,0000,0000,,And so let me leave you\Nwith Pete's words of inspiration
Dialogue: 0,0:18:24.44,0:18:28.73,Default,,0000,0000,0000,,that he would use to classmates,\Ncoworkers and teammates.
Dialogue: 0,0:18:31.01,0:18:33.18,Default,,0000,0000,0000,,Be passionate.
Dialogue: 0,0:18:34.97,0:18:36.80,Default,,0000,0000,0000,,Be genuine.
Dialogue: 0,0:18:36.80,0:18:38.98,Default,,0000,0000,0000,,Be hardworking.
Dialogue: 0,0:18:40.19,0:18:43.56,Default,,0000,0000,0000,,And don't forget to be great.
Dialogue: 0,0:18:44.38,0:18:48.06,Default,,0000,0000,0000,,Thank you. (Applause)