1 00:00:00,640 --> 00:00:01,855 As patients, 2 00:00:01,880 --> 00:00:05,496 we usually remember the names of our doctors, 3 00:00:05,520 --> 00:00:08,840 but often we forget the names of our nurses. 4 00:00:09,600 --> 00:00:10,800 I remember one. 5 00:00:11,400 --> 00:00:13,616 I had breast cancer a few years ago, 6 00:00:13,640 --> 00:00:17,096 and somehow I managed to get through the surgeries 7 00:00:17,120 --> 00:00:19,400 and the beginning of the treatment just fine. 8 00:00:19,840 --> 00:00:22,096 I could hide what was going on. 9 00:00:22,120 --> 00:00:24,336 Everybody didn't really have to know. 10 00:00:24,360 --> 00:00:26,576 I could walk my daughter to school, 11 00:00:26,600 --> 00:00:28,576 I could go out to dinner with my husband; 12 00:00:28,600 --> 00:00:29,800 I could fool people. 13 00:00:30,720 --> 00:00:33,056 But then my chemo was scheduled to begin 14 00:00:33,080 --> 00:00:34,816 and that terrified me 15 00:00:34,840 --> 00:00:39,376 because I knew that I was going to lose every single hair on my body 16 00:00:39,400 --> 00:00:41,960 because of the kind of chemo that I was going to have. 17 00:00:42,480 --> 00:00:44,776 I wasn't going to be able to pretend anymore 18 00:00:44,800 --> 00:00:46,600 as though everything was normal. 19 00:00:47,440 --> 00:00:48,736 I was scared. 20 00:00:48,760 --> 00:00:52,336 I knew what it felt like to have everybody treating me with kid gloves, 21 00:00:52,360 --> 00:00:54,736 and I just wanted to feel normal. 22 00:00:54,760 --> 00:00:56,936 I had a port installed in my chest. 23 00:00:56,960 --> 00:00:59,736 I went to my first day of chemotherapy, 24 00:00:59,760 --> 00:01:02,096 and I was an emotional wreck. 25 00:01:02,120 --> 00:01:05,135 My nurse, Joanne, walked in the door, 26 00:01:05,160 --> 00:01:09,136 and every bone in my body was telling me to get up out of that chair 27 00:01:09,160 --> 00:01:10,656 and take for the hills. 28 00:01:10,680 --> 00:01:14,440 But Joanne looked at me and talked to me like we were old friends. 29 00:01:15,240 --> 00:01:16,656 And then she asked me, 30 00:01:16,680 --> 00:01:18,776 "Where'd you get your highlights done?" 31 00:01:18,800 --> 00:01:19,896 (Laughter) 32 00:01:19,920 --> 00:01:21,856 And I was like, are you kidding me? 33 00:01:21,880 --> 00:01:26,736 You're going to talk to me about my hair when I'm on the verge of losing it? 34 00:01:26,760 --> 00:01:28,496 I was kind of angry, 35 00:01:28,520 --> 00:01:31,080 and I said, "Really? Hair?" 36 00:01:31,640 --> 00:01:33,976 And with a shrug of her shoulders she said, 37 00:01:34,000 --> 00:01:35,360 "It's gonna grow back." 38 00:01:36,280 --> 00:01:39,536 And in that moment she said the one thing I had overlooked, 39 00:01:39,560 --> 00:01:43,376 and that was that at some point, my life would get back to normal. 40 00:01:43,400 --> 00:01:45,096 She really believed that. 41 00:01:45,120 --> 00:01:46,800 And so I believed it, too. 42 00:01:47,520 --> 00:01:52,296 Now, worrying about losing your hair when you're fighting cancer 43 00:01:52,320 --> 00:01:53,936 may seem silly at first, 44 00:01:53,960 --> 00:01:58,096 but it's not just that you're worried about how you're going to look. 45 00:01:58,120 --> 00:02:02,040 It's that you're worried that everybody's going to treat you so carefully. 46 00:02:02,760 --> 00:02:06,296 Joanne made me feel normal for the first time in six months. 47 00:02:06,320 --> 00:02:08,175 We talked about her boyfriends, 48 00:02:08,199 --> 00:02:10,936 we talked about looking for apartments in New York City, 49 00:02:10,960 --> 00:02:13,816 and we talked about my reaction to the chemotherapy -- 50 00:02:13,840 --> 00:02:15,800 all kind of mixed in together. 51 00:02:16,360 --> 00:02:18,336 And I always wondered, 52 00:02:18,360 --> 00:02:23,000 how did she so instinctively know just how to talk to me? 53 00:02:23,480 --> 00:02:26,896 Joanne Staha and my admiration for her 54 00:02:26,920 --> 00:02:30,720 marked the beginning of my journey into the world of nurses. 55 00:02:31,360 --> 00:02:33,776 A few years later, I was asked to do a project 56 00:02:33,800 --> 00:02:36,480 that would celebrate the work that nurses do. 57 00:02:37,120 --> 00:02:38,616 I started with Joanne, 58 00:02:38,640 --> 00:02:41,640 and I met over 100 nurses across the country. 59 00:02:42,320 --> 00:02:47,376 I spent five years interviewing, photographing and filming nurses 60 00:02:47,400 --> 00:02:49,560 for a book and a documentary film. 61 00:02:50,560 --> 00:02:51,776 With my team, 62 00:02:51,800 --> 00:02:55,136 we mapped a trip across America that would take us to places 63 00:02:55,160 --> 00:03:00,096 dealing with some of the biggest public health issues facing our nation -- 64 00:03:00,120 --> 00:03:04,200 aging, war, poverty, prisons. 65 00:03:04,840 --> 00:03:06,096 And then we went places 66 00:03:06,120 --> 00:03:09,976 where we would find the largest concentration of patients 67 00:03:10,000 --> 00:03:11,520 dealing with those issues. 68 00:03:12,280 --> 00:03:16,336 Then we asked hospitals and facilities to nominate nurses 69 00:03:16,360 --> 00:03:17,880 who would best represent them. 70 00:03:18,800 --> 00:03:21,640 One of the first nurses I met was Bridget Kumbella. 71 00:03:22,200 --> 00:03:23,816 Bridget was born in Cameroon, 72 00:03:23,840 --> 00:03:25,680 the oldest of four children. 73 00:03:26,400 --> 00:03:30,256 Her father was at work when he had fallen from the fourth floor 74 00:03:30,280 --> 00:03:32,256 and really hurt his back. 75 00:03:32,280 --> 00:03:36,416 And he talked a lot about what it was like to be flat on your back 76 00:03:36,440 --> 00:03:38,880 and not get the kind of care that you need. 77 00:03:39,400 --> 00:03:43,160 And that propelled Bridget to go into the profession of nursing. 78 00:03:44,000 --> 00:03:45,616 Now, as a nurse in the Bronx, 79 00:03:45,640 --> 00:03:49,056 she has a really diverse group of patients that she cares for, 80 00:03:49,080 --> 00:03:50,976 from all walks of life, 81 00:03:51,000 --> 00:03:52,960 and from all different religions. 82 00:03:53,400 --> 00:03:57,576 And she's devoted her career to understanding the impact 83 00:03:57,600 --> 00:04:01,200 of our cultural differences when it comes to our health. 84 00:04:02,280 --> 00:04:03,616 She spoke of a patient -- 85 00:04:03,640 --> 00:04:06,336 a Native American patient that she had -- 86 00:04:06,360 --> 00:04:10,080 that wanted to bring a bunch of feathers into the ICU. 87 00:04:11,080 --> 00:04:14,096 That's how he found spiritual comfort. 88 00:04:14,120 --> 00:04:16,336 And she spoke of advocating for him 89 00:04:16,360 --> 00:04:19,136 and said that patients come from all different religions 90 00:04:19,160 --> 00:04:23,056 and use all different kinds of objects for comfort; 91 00:04:23,080 --> 00:04:26,336 whether it's a holy rosary or a symbolic feather, 92 00:04:26,360 --> 00:04:28,120 it all needs to be supported. 93 00:04:29,200 --> 00:04:31,016 This is Jason Short. 94 00:04:31,040 --> 00:04:34,096 Jason is a home health nurse in the Appalachian mountains, 95 00:04:34,120 --> 00:04:38,496 and his dad had a gas station and a repair shop when he was growing up. 96 00:04:38,520 --> 00:04:42,840 So he worked on cars in the community that he now serves as a nurse. 97 00:04:43,600 --> 00:04:44,856 When he was in college, 98 00:04:44,880 --> 00:04:48,536 it was just not macho at all to become a nurse, 99 00:04:48,560 --> 00:04:50,736 so he avoided it for years. 100 00:04:50,760 --> 00:04:52,696 He drove trucks for a little while, 101 00:04:52,720 --> 00:04:56,200 but his life path was always pulling him back to nursing. 102 00:04:58,240 --> 00:05:00,216 As a nurse in the Appalachian mountains, 103 00:05:00,240 --> 00:05:04,056 Jason goes places that an ambulance can't even get to. 104 00:05:04,080 --> 00:05:07,520 In this photograph, he's standing in what used to be a road. 105 00:05:08,080 --> 00:05:10,896 Top of the mountain mining flooded that road, 106 00:05:10,920 --> 00:05:14,216 and now the only way for Jason to get to the patient 107 00:05:14,240 --> 00:05:17,136 living in that house with black lung disease 108 00:05:17,160 --> 00:05:21,480 is to drive his SUV against the current up that creek. 109 00:05:22,360 --> 00:05:25,440 The day I was with him, we ripped the front fender off the car. 110 00:05:26,160 --> 00:05:29,376 The next morning he got up, put the car on the lift, 111 00:05:29,400 --> 00:05:30,656 fixed the fender, 112 00:05:30,680 --> 00:05:32,776 and then headed out to meet his next patient. 113 00:05:33,680 --> 00:05:36,936 I witnessed Jason caring for this gentleman 114 00:05:36,960 --> 00:05:39,776 with such enormous compassion, 115 00:05:39,800 --> 00:05:44,800 and I was struck again by how intimate the work of nursing really is. 116 00:05:46,040 --> 00:05:49,136 When I met Brian McMillion, he was raw. 117 00:05:49,160 --> 00:05:51,776 He had just come back from a deployment 118 00:05:51,800 --> 00:05:56,376 and he hadn't really settled back in to life in San Diego yet. 119 00:05:56,400 --> 00:05:59,936 He talked about his experience of being a nurse in Germany 120 00:05:59,960 --> 00:06:03,936 and taking care of the soldiers coming right off the battlefield. 121 00:06:03,960 --> 00:06:07,736 Very often, he would be the first person they would see 122 00:06:07,760 --> 00:06:09,840 when they opened their eyes in the hospital. 123 00:06:10,480 --> 00:06:13,056 And they would look at him as they were lying there, 124 00:06:13,080 --> 00:06:14,736 missing limbs, 125 00:06:14,760 --> 00:06:17,376 and the first thing they would say is, 126 00:06:17,400 --> 00:06:21,120 "When can I go back? I left my brothers out there." 127 00:06:22,080 --> 00:06:23,616 And Brian would have to say, 128 00:06:23,640 --> 00:06:25,216 "You're not going anywhere. 129 00:06:25,240 --> 00:06:27,080 You've already given enough, brother." 130 00:06:28,000 --> 00:06:32,760 Brian is both a nurse and a soldier who's seen combat. 131 00:06:33,280 --> 00:06:35,336 So that puts him in a unique position 132 00:06:35,360 --> 00:06:39,720 to be able to relate to and help heal the veterans in his care. 133 00:06:41,560 --> 00:06:43,056 This is Sister Stephen, 134 00:06:43,080 --> 00:06:47,296 and she runs a nursing home in Wisconsin called Villa Loretto. 135 00:06:47,320 --> 00:06:51,776 And the entire circle of life can be found under her roof. 136 00:06:51,800 --> 00:06:54,256 She grew up wishing they lived on a farm, 137 00:06:54,280 --> 00:06:58,976 so given the opportunity to adopt local farm animals, 138 00:06:59,000 --> 00:07:02,056 she enthusiastically brings them in. 139 00:07:02,080 --> 00:07:05,616 And in the springtime, those animals have babies. 140 00:07:05,640 --> 00:07:10,816 And Sister Stephen uses those baby ducks, goats and lambs 141 00:07:10,840 --> 00:07:15,096 as animal therapy for the residents at Villa Loretto 142 00:07:15,120 --> 00:07:18,456 who sometimes can't remember their own name, 143 00:07:18,480 --> 00:07:22,040 but they do rejoice in the holding of a baby lamb. 144 00:07:23,400 --> 00:07:25,216 The day I was with Sister Stephen, 145 00:07:25,240 --> 00:07:27,336 I needed to take her away from Villa Loretto 146 00:07:27,360 --> 00:07:29,456 to film part of her story. 147 00:07:29,480 --> 00:07:30,736 And before we left, 148 00:07:30,760 --> 00:07:33,240 she went into the room of a dying patient. 149 00:07:34,000 --> 00:07:36,776 And she leaned over and she said, 150 00:07:36,800 --> 00:07:38,720 "I have to go away for the day, 151 00:07:39,520 --> 00:07:41,216 but if Jesus calls you, 152 00:07:41,240 --> 00:07:42,456 you go. 153 00:07:42,480 --> 00:07:44,640 You go straight home to Jesus." 154 00:07:45,280 --> 00:07:47,856 I was standing there and thinking 155 00:07:47,880 --> 00:07:49,896 it was the first time in my life 156 00:07:49,920 --> 00:07:54,216 I witnessed that you could show someone you love them completely 157 00:07:54,240 --> 00:07:55,440 by letting go. 158 00:07:56,040 --> 00:07:58,360 We don't have to hold on so tightly. 159 00:07:59,400 --> 00:08:02,976 I saw more life rolled up at Villa Loretto 160 00:08:03,000 --> 00:08:08,040 than I have ever seen at any other time at any other place in my life. 161 00:08:09,320 --> 00:08:13,376 We live in a complicated time when it comes to our health care. 162 00:08:13,400 --> 00:08:17,576 It's easy to lose sight of the need for quality of life, 163 00:08:17,600 --> 00:08:19,320 not just quantity of life. 164 00:08:20,120 --> 00:08:23,536 As new life-saving technologies are created, 165 00:08:23,560 --> 00:08:26,560 we're going to have really complicated decisions to make. 166 00:08:27,280 --> 00:08:30,136 These technologies often save lives, 167 00:08:30,160 --> 00:08:34,080 but they can also prolong pain and the dying process. 168 00:08:35,919 --> 00:08:38,816 How in the world are we supposed to navigate these waters? 169 00:08:38,840 --> 00:08:40,888 We're going to need all the help we can get. 170 00:08:41,760 --> 00:08:45,336 Nurses have a really unique relationship with us 171 00:08:45,360 --> 00:08:47,840 because of the time spent at bedside. 172 00:08:48,760 --> 00:08:49,976 During that time, 173 00:08:50,000 --> 00:08:52,520 a kind of emotional intimacy develops. 174 00:08:54,640 --> 00:08:57,216 This past summer, on August 9, 175 00:08:57,240 --> 00:08:59,160 my father died of a heart attack. 176 00:09:00,600 --> 00:09:02,256 My mother was devastated, 177 00:09:02,280 --> 00:09:06,240 and she couldn't imagine her world without him in it. 178 00:09:07,360 --> 00:09:09,296 Four days later she fell, 179 00:09:09,320 --> 00:09:11,176 she broke her hip, 180 00:09:11,200 --> 00:09:12,696 she needed surgery 181 00:09:12,720 --> 00:09:15,640 and she found herself fighting for her own life. 182 00:09:16,880 --> 00:09:18,616 Once again I found myself 183 00:09:18,640 --> 00:09:21,616 on the receiving end of the care of nurses -- 184 00:09:21,640 --> 00:09:23,080 this time for my mom. 185 00:09:24,200 --> 00:09:26,736 My brother and my sister and I stayed by her side 186 00:09:26,760 --> 00:09:29,200 for the next three days in the ICU. 187 00:09:29,960 --> 00:09:33,096 And as we tried to make the right decisions 188 00:09:33,120 --> 00:09:35,496 and follow my mother's wishes, 189 00:09:35,520 --> 00:09:39,440 we found that we were depending upon the guidance of nurses. 190 00:09:40,200 --> 00:09:41,656 And once again, 191 00:09:41,680 --> 00:09:43,200 they didn't let us down. 192 00:09:44,600 --> 00:09:49,376 They had an amazing insight in terms of how to care for my mom 193 00:09:49,400 --> 00:09:51,656 in the last four days of her life. 194 00:09:51,680 --> 00:09:54,840 They brought her comfort and relief from pain. 195 00:09:56,320 --> 00:10:01,576 They knew to encourage my sister and I to put a pretty nightgown on my mom, 196 00:10:01,600 --> 00:10:03,496 long after it mattered to her, 197 00:10:03,520 --> 00:10:05,320 but it sure meant a lot to us. 198 00:10:07,000 --> 00:10:12,760 And they knew to come and wake me up just in time for my mom's last breath. 199 00:10:13,600 --> 00:10:16,016 And then they knew how long to leave me in the room 200 00:10:16,040 --> 00:10:17,720 with my mother after she died. 201 00:10:18,960 --> 00:10:22,696 I have no idea how they know these things, 202 00:10:22,720 --> 00:10:25,856 but I do know that I am eternally grateful 203 00:10:25,880 --> 00:10:27,680 that they've guided me once again. 204 00:10:28,920 --> 00:10:30,416 Thank you so very much. 205 00:10:30,440 --> 00:10:35,437 (Applause)