WEBVTT 00:00:00.640 --> 00:00:01.855 As patients, 00:00:01.880 --> 00:00:05.496 we usually remember the names of our doctors, 00:00:05.520 --> 00:00:08.840 but often we forget the names of our nurses. 00:00:09.600 --> 00:00:10.800 I remember one. 00:00:11.400 --> 00:00:13.616 I had breast cancer a few years ago, 00:00:13.640 --> 00:00:17.096 and somehow I managed to get through the surgeries 00:00:17.120 --> 00:00:19.400 and the beginning of the treatment just fine. 00:00:19.840 --> 00:00:22.096 I could hide what was going on. 00:00:22.120 --> 00:00:24.336 Everybody didn't really have to know. 00:00:24.360 --> 00:00:26.576 I could walk my daughter to school, 00:00:26.600 --> 00:00:28.576 I could go out to dinner with my husband; 00:00:28.600 --> 00:00:29.800 I could fool people. 00:00:30.720 --> 00:00:33.056 But then my chemo was scheduled to begin 00:00:33.080 --> 00:00:34.816 and that terrified me 00:00:34.840 --> 00:00:39.376 because I knew that I was going to lose every single hair on my body 00:00:39.400 --> 00:00:41.960 because of the kind of chemo that I was going to have. 00:00:42.480 --> 00:00:44.776 I wasn't going to be able to pretend anymore 00:00:44.800 --> 00:00:46.600 as though everything was normal. NOTE Paragraph 00:00:47.440 --> 00:00:48.736 I was scared. 00:00:48.760 --> 00:00:52.336 I knew what it felt like to have everybody treating me with kid gloves, 00:00:52.360 --> 00:00:54.736 and I just wanted to feel normal. 00:00:54.760 --> 00:00:56.936 I had a port installed in my chest. 00:00:56.960 --> 00:00:59.736 I went to my first day of chemotherapy, 00:00:59.760 --> 00:01:02.096 and I was an emotional wreck. 00:01:02.120 --> 00:01:05.135 My nurse, Joanne, walked in the door, 00:01:05.160 --> 00:01:09.136 and every bone in my body was telling me to get up out of that chair 00:01:09.160 --> 00:01:10.656 and take for the hills. 00:01:10.680 --> 00:01:14.440 But Joanne looked at me and talked to me like we were old friends. 00:01:15.240 --> 00:01:16.656 And then she asked me, 00:01:16.680 --> 00:01:18.776 "Where'd you get your highlights done?" NOTE Paragraph 00:01:18.800 --> 00:01:19.896 (Laughter) NOTE Paragraph 00:01:19.920 --> 00:01:21.856 And I was like, are you kidding me? 00:01:21.880 --> 00:01:26.736 You're going to talk to me about my hair when I'm on the verge of losing it? 00:01:26.760 --> 00:01:28.496 I was kind of angry, 00:01:28.520 --> 00:01:31.080 and I said, "Really? Hair?" 00:01:31.640 --> 00:01:33.976 And with a shrug of her shoulders she said, 00:01:34.000 --> 00:01:35.360 "It's gonna grow back." 00:01:36.280 --> 00:01:39.536 And in that moment she said the one thing I had overlooked, 00:01:39.560 --> 00:01:43.376 and that was that at some point, my life would get back to normal. 00:01:43.400 --> 00:01:45.096 She really believed that. 00:01:45.120 --> 00:01:46.800 And so I believed it, too. NOTE Paragraph 00:01:47.520 --> 00:01:52.296 Now, worrying about losing your hair when you're fighting cancer 00:01:52.320 --> 00:01:53.936 may seem silly at first, 00:01:53.960 --> 00:01:58.096 but it's not just that you're worried about how you're going to look. 00:01:58.120 --> 00:02:02.040 It's that you're worried that everybody's going to treat you so carefully. 00:02:02.760 --> 00:02:06.296 Joanne made me feel normal for the first time in six months. 00:02:06.320 --> 00:02:08.175 We talked about her boyfriends, 00:02:08.199 --> 00:02:10.936 we talked about looking for apartments in New York City, 00:02:10.960 --> 00:02:13.816 and we talked about my reaction to the chemotherapy -- 00:02:13.840 --> 00:02:15.800 all kind of mixed in together. 00:02:16.360 --> 00:02:18.336 And I always wondered, 00:02:18.360 --> 00:02:23.000 how did she so instinctively know just how to talk to me? NOTE Paragraph 00:02:23.480 --> 00:02:26.896 Joanne Staha and my admiration for her 00:02:26.920 --> 00:02:30.720 marked the beginning of my journey into the world of nurses. 00:02:31.360 --> 00:02:33.776 A few years later, I was asked to do a project 00:02:33.800 --> 00:02:36.480 that would celebrate the work that nurses do. 00:02:37.120 --> 00:02:38.616 I started with Joanne, 00:02:38.640 --> 00:02:41.640 and I met over 100 nurses across the country. 00:02:42.320 --> 00:02:47.376 I spent five years interviewing, photographing and filming nurses 00:02:47.400 --> 00:02:49.560 for a book and a documentary film. 00:02:50.560 --> 00:02:51.776 With my team, 00:02:51.800 --> 00:02:55.136 we mapped a trip across America that would take us to places 00:02:55.160 --> 00:03:00.096 dealing with some of the biggest public health issues facing our nation -- 00:03:00.120 --> 00:03:04.200 aging, war, poverty, prisons. 00:03:04.840 --> 00:03:06.096 And then we went places 00:03:06.120 --> 00:03:09.976 where we would find the largest concentration of patients 00:03:10.000 --> 00:03:11.520 dealing with those issues. 00:03:12.280 --> 00:03:16.336 Then we asked hospitals and facilities to nominate nurses 00:03:16.360 --> 00:03:17.880 who would best represent them. NOTE Paragraph 00:03:18.800 --> 00:03:21.640 One of the first nurses I met was Bridget Kumbella. 00:03:22.200 --> 00:03:23.816 Bridget was born in Cameroon, 00:03:23.840 --> 00:03:25.680 the oldest of four children. 00:03:26.400 --> 00:03:30.256 Her father was at work when he had fallen from the fourth floor 00:03:30.280 --> 00:03:32.256 and really hurt his back. 00:03:32.280 --> 00:03:36.416 And he talked a lot about what it was like to be flat on your back 00:03:36.440 --> 00:03:38.880 and not get the kind of care that you need. 00:03:39.400 --> 00:03:43.160 And that propelled Bridget to go into the profession of nursing. 00:03:44.000 --> 00:03:45.616 Now, as a nurse in the Bronx, 00:03:45.640 --> 00:03:49.056 she has a really diverse group of patients that she cares for, 00:03:49.080 --> 00:03:50.976 from all walks of life, 00:03:51.000 --> 00:03:52.960 and from all different religions. 00:03:53.400 --> 00:03:57.576 And she's devoted her career to understanding the impact 00:03:57.600 --> 00:04:01.200 of our cultural differences when it comes to our health. 00:04:02.280 --> 00:04:03.616 She spoke of a patient -- 00:04:03.640 --> 00:04:06.336 a Native American patient that she had -- 00:04:06.360 --> 00:04:10.080 that wanted to bring a bunch of feathers into the ICU. 00:04:11.080 --> 00:04:14.096 That's how he found spiritual comfort. 00:04:14.120 --> 00:04:16.336 And she spoke of advocating for him 00:04:16.360 --> 00:04:19.136 and said that patients come from all different religions 00:04:19.160 --> 00:04:23.056 and use all different kinds of objects for comfort; 00:04:23.080 --> 00:04:26.336 whether it's a holy rosary or a symbolic feather, 00:04:26.360 --> 00:04:28.120 it all needs to be supported. NOTE Paragraph 00:04:29.200 --> 00:04:31.016 This is Jason Short. 00:04:31.040 --> 00:04:34.096 Jason is a home health nurse in the Appalachian mountains, 00:04:34.120 --> 00:04:38.496 and his dad had a gas station and a repair shop when he was growing up. 00:04:38.520 --> 00:04:42.840 So he worked on cars in the community that he now serves as a nurse. 00:04:43.600 --> 00:04:44.856 When he was in college, 00:04:44.880 --> 00:04:48.536 it was just not macho at all to become a nurse, 00:04:48.560 --> 00:04:50.736 so he avoided it for years. 00:04:50.760 --> 00:04:52.696 He drove trucks for a little while, 00:04:52.720 --> 00:04:56.200 but his life path was always pulling him back to nursing. 00:04:58.240 --> 00:05:00.216 As a nurse in the Appalachian mountains, 00:05:00.240 --> 00:05:04.056 Jason goes places that an ambulance can't even get to. 00:05:04.080 --> 00:05:07.520 In this photograph, he's standing in what used to be a road. 00:05:08.080 --> 00:05:10.896 Top of the mountain mining flooded that road, 00:05:10.920 --> 00:05:14.216 and now the only way for Jason to get to the patient 00:05:14.240 --> 00:05:17.136 living in that house with black lung disease 00:05:17.160 --> 00:05:21.480 is to drive his SUV against the current up that creek. 00:05:22.360 --> 00:05:25.440 The day I was with him, we ripped the front fender off the car. 00:05:26.160 --> 00:05:29.376 The next morning he got up, put the car on the lift, 00:05:29.400 --> 00:05:30.656 fixed the fender, 00:05:30.680 --> 00:05:32.776 and then headed out to meet his next patient. 00:05:33.680 --> 00:05:36.936 I witnessed Jason caring for this gentleman 00:05:36.960 --> 00:05:39.776 with such enormous compassion, 00:05:39.800 --> 00:05:44.800 and I was struck again by how intimate the work of nursing really is. NOTE Paragraph 00:05:46.040 --> 00:05:49.136 When I met Brian McMillion, he was raw. 00:05:49.160 --> 00:05:51.776 He had just come back from a deployment 00:05:51.800 --> 00:05:56.376 and he hadn't really settled back in to life in San Diego yet. 00:05:56.400 --> 00:05:59.936 He talked about his experience of being a nurse in Germany 00:05:59.960 --> 00:06:03.936 and taking care of the soldiers coming right off the battlefield. 00:06:03.960 --> 00:06:07.736 Very often, he would be the first person they would see 00:06:07.760 --> 00:06:09.840 when they opened their eyes in the hospital. 00:06:10.480 --> 00:06:13.056 And they would look at him as they were lying there, 00:06:13.080 --> 00:06:14.736 missing limbs, 00:06:14.760 --> 00:06:17.376 and the first thing they would say is, 00:06:17.400 --> 00:06:21.120 "When can I go back? I left my brothers out there." 00:06:22.080 --> 00:06:23.616 And Brian would have to say, 00:06:23.640 --> 00:06:25.216 "You're not going anywhere. 00:06:25.240 --> 00:06:27.080 You've already given enough, brother." 00:06:28.000 --> 00:06:32.760 Brian is both a nurse and a soldier who's seen combat. 00:06:33.280 --> 00:06:35.336 So that puts him in a unique position 00:06:35.360 --> 00:06:39.720 to be able to relate to and help heal the veterans in his care. NOTE Paragraph 00:06:41.560 --> 00:06:43.056 This is Sister Stephen, 00:06:43.080 --> 00:06:47.296 and she runs a nursing home in Wisconsin called Villa Loretto. 00:06:47.320 --> 00:06:51.776 And the entire circle of life can be found under her roof. 00:06:51.800 --> 00:06:54.256 She grew up wishing they lived on a farm, 00:06:54.280 --> 00:06:58.976 so given the opportunity to adopt local farm animals, 00:06:59.000 --> 00:07:02.056 she enthusiastically brings them in. 00:07:02.080 --> 00:07:05.616 And in the springtime, those animals have babies. 00:07:05.640 --> 00:07:10.816 And Sister Stephen uses those baby ducks, goats and lambs 00:07:10.840 --> 00:07:15.096 as animal therapy for the residents at Villa Loretto 00:07:15.120 --> 00:07:18.456 who sometimes can't remember their own name, 00:07:18.480 --> 00:07:22.040 but they do rejoice in the holding of a baby lamb. 00:07:23.400 --> 00:07:25.216 The day I was with Sister Stephen, 00:07:25.240 --> 00:07:27.336 I needed to take her away from Villa Loretto 00:07:27.360 --> 00:07:29.456 to film part of her story. 00:07:29.480 --> 00:07:30.736 And before we left, 00:07:30.760 --> 00:07:33.240 she went into the room of a dying patient. 00:07:34.000 --> 00:07:36.776 And she leaned over and she said, 00:07:36.800 --> 00:07:38.720 "I have to go away for the day, 00:07:39.520 --> 00:07:41.216 but if Jesus calls you, 00:07:41.240 --> 00:07:42.456 you go. 00:07:42.480 --> 00:07:44.640 You go straight home to Jesus." 00:07:45.280 --> 00:07:47.856 I was standing there and thinking 00:07:47.880 --> 00:07:49.896 it was the first time in my life 00:07:49.920 --> 00:07:54.216 I witnessed that you could show someone you love them completely 00:07:54.240 --> 00:07:55.440 by letting go. 00:07:56.040 --> 00:07:58.360 We don't have to hold on so tightly. 00:07:59.400 --> 00:08:02.976 I saw more life rolled up at Villa Loretto 00:08:03.000 --> 00:08:08.040 than I have ever seen at any other time at any other place in my life. NOTE Paragraph 00:08:09.320 --> 00:08:13.376 We live in a complicated time when it comes to our health care. 00:08:13.400 --> 00:08:17.576 It's easy to lose sight of the need for quality of life, 00:08:17.600 --> 00:08:19.320 not just quantity of life. 00:08:20.120 --> 00:08:23.536 As new life-saving technologies are created, 00:08:23.560 --> 00:08:26.560 we're going to have really complicated decisions to make. 00:08:27.280 --> 00:08:30.136 These technologies often save lives, 00:08:30.160 --> 00:08:34.080 but they can also prolong pain and the dying process. 00:08:35.919 --> 00:08:38.816 How in the world are we supposed to navigate these waters? 00:08:38.840 --> 00:08:40.888 We're going to need all the help we can get. 00:08:41.760 --> 00:08:45.336 Nurses have a really unique relationship with us 00:08:45.360 --> 00:08:47.840 because of the time spent at bedside. 00:08:48.760 --> 00:08:49.976 During that time, 00:08:50.000 --> 00:08:52.520 a kind of emotional intimacy develops. NOTE Paragraph 00:08:54.640 --> 00:08:57.216 This past summer, on August 9, 00:08:57.240 --> 00:08:59.160 my father died of a heart attack. 00:09:00.600 --> 00:09:02.256 My mother was devastated, 00:09:02.280 --> 00:09:06.240 and she couldn't imagine her world without him in it. 00:09:07.360 --> 00:09:09.296 Four days later she fell, 00:09:09.320 --> 00:09:11.176 she broke her hip, 00:09:11.200 --> 00:09:12.696 she needed surgery 00:09:12.720 --> 00:09:15.640 and she found herself fighting for her own life. 00:09:16.880 --> 00:09:18.616 Once again I found myself 00:09:18.640 --> 00:09:21.616 on the receiving end of the care of nurses -- 00:09:21.640 --> 00:09:23.080 this time for my mom. 00:09:24.200 --> 00:09:26.736 My brother and my sister and I stayed by her side 00:09:26.760 --> 00:09:29.200 for the next three days in the ICU. 00:09:29.960 --> 00:09:33.096 And as we tried to make the right decisions 00:09:33.120 --> 00:09:35.496 and follow my mother's wishes, 00:09:35.520 --> 00:09:39.440 we found that we were depending upon the guidance of nurses. 00:09:40.200 --> 00:09:41.656 And once again, 00:09:41.680 --> 00:09:43.200 they didn't let us down. 00:09:44.600 --> 00:09:49.376 They had an amazing insight in terms of how to care for my mom 00:09:49.400 --> 00:09:51.656 in the last four days of her life. 00:09:51.680 --> 00:09:54.840 They brought her comfort and relief from pain. 00:09:56.320 --> 00:10:01.576 They knew to encourage my sister and I to put a pretty nightgown on my mom, 00:10:01.600 --> 00:10:03.496 long after it mattered to her, 00:10:03.520 --> 00:10:05.320 but it sure meant a lot to us. 00:10:07.000 --> 00:10:12.760 And they knew to come and wake me up just in time for my mom's last breath. 00:10:13.600 --> 00:10:16.016 And then they knew how long to leave me in the room 00:10:16.040 --> 00:10:17.720 with my mother after she died. NOTE Paragraph 00:10:18.960 --> 00:10:22.696 I have no idea how they know these things, 00:10:22.720 --> 00:10:25.856 but I do know that I am eternally grateful 00:10:25.880 --> 00:10:27.680 that they've guided me once again. NOTE Paragraph 00:10:28.920 --> 00:10:30.416 Thank you so very much. NOTE Paragraph 00:10:30.440 --> 00:10:35.437 (Applause)