WEBVTT 99:59:59.999 --> 99:59:59.999 As patients, we usually remember the names of our doctors, 99:59:59.999 --> 99:59:59.999 but often we forget the names of our nurses. 99:59:59.999 --> 99:59:59.999 I remember one. 99:59:59.999 --> 99:59:59.999 I had breast cancer a few years ago, 99:59:59.999 --> 99:59:59.999 and somehow I managed to get through the surgeries 99:59:59.999 --> 99:59:59.999 and the beginning of the treatment just fine. 99:59:59.999 --> 99:59:59.999 I could hide what was going on. 99:59:59.999 --> 99:59:59.999 Everybody didn't really have to know. 99:59:59.999 --> 99:59:59.999 I could walk my daughter to school, 99:59:59.999 --> 99:59:59.999 I could go out to dinner with my husband, 99:59:59.999 --> 99:59:59.999 I could fool people. 99:59:59.999 --> 99:59:59.999 But then my chemo was scheduled to begin, 99:59:59.999 --> 99:59:59.999 and that terrified me 99:59:59.999 --> 99:59:59.999 because I knew that I was going to lose every single hair on my body 99:59:59.999 --> 99:59:59.999 because of the kind of chemo that I was going to have. 99:59:59.999 --> 99:59:59.999 I wasn't going to be able to pretend anymore 99:59:59.999 --> 99:59:59.999 as though everything was normal. 99:59:59.999 --> 99:59:59.999 I was scared. 99:59:59.999 --> 99:59:59.999 I knew what it felt like to have everybody treating me with kid gloves, 99:59:59.999 --> 99:59:59.999 and I just wanted to feel normal. 99:59:59.999 --> 99:59:59.999 I had a port installed in my chest. 99:59:59.999 --> 99:59:59.999 I went to my first day of chemotherapy, 99:59:59.999 --> 99:59:59.999 and I was an emotional wreck. 99:59:59.999 --> 99:59:59.999 My nurse Joanne walked in the door, 99:59:59.999 --> 99:59:59.999 and every bone in my body was telling me to get up out of that chair 99:59:59.999 --> 99:59:59.999 and take for the hills. 99:59:59.999 --> 99:59:59.999 But Joanne looked at me and talked to me like we were old friends. 99:59:59.999 --> 99:59:59.999 And then she asked me, 99:59:59.999 --> 99:59:59.999 "Where'd you get your highlights done?" 99:59:59.999 --> 99:59:59.999 (Laughter) 99:59:59.999 --> 99:59:59.999 And I was like, 99:59:59.999 --> 99:59:59.999 are you kidding me? 99:59:59.999 --> 99:59:59.999 You're going to talk to me about my hair when I'm on the verge of losing it? 99:59:59.999 --> 99:59:59.999 I was kind of angry, 99:59:59.999 --> 99:59:59.999 and I said, "Really? Hair?" 99:59:59.999 --> 99:59:59.999 And with a shrug of her shoulders she said, 99:59:59.999 --> 99:59:59.999 "It's gonna grow back." 99:59:59.999 --> 99:59:59.999 And in that moment she said the one thing I had overlooked, 99:59:59.999 --> 99:59:59.999 and that was that at some point, 99:59:59.999 --> 99:59:59.999 my life would get back to normal. 99:59:59.999 --> 99:59:59.999 She really believed that. 99:59:59.999 --> 99:59:59.999 And so I believed it, too. 99:59:59.999 --> 99:59:59.999 Now, worrying about losing your hair when you're fighting cancer 99:59:59.999 --> 99:59:59.999 may seem silly at first, 99:59:59.999 --> 99:59:59.999 but it's not just that you're worried about how you're going to look. 99:59:59.999 --> 99:59:59.999 It's that you're worried that everybody's going to treat you so carefully. 99:59:59.999 --> 99:59:59.999 Joanne made me feel normal for first time in six months. 99:59:59.999 --> 99:59:59.999 We talked about her boyfriends, 99:59:59.999 --> 99:59:59.999 we talked about looking for apartments in New York City, 99:59:59.999 --> 99:59:59.999 and we talked about my reaction to the chemotherapy -- 99:59:59.999 --> 99:59:59.999 all kind of mixed in together. 99:59:59.999 --> 99:59:59.999 I always wondered, 99:59:59.999 --> 99:59:59.999 how did she so instinctively know just how to talk to me? 99:59:59.999 --> 99:59:59.999 Joanne Staha and my admiration for her 99:59:59.999 --> 99:59:59.999 marked the beginning of my journey into the world of nurses. 99:59:59.999 --> 99:59:59.999 A few years later, 99:59:59.999 --> 99:59:59.999 I was asked to do a project 99:59:59.999 --> 99:59:59.999 that would celebrate the work that nurses do. 99:59:59.999 --> 99:59:59.999 I started with Joanne, 99:59:59.999 --> 99:59:59.999 and I met over 100 nurses across the country. 99:59:59.999 --> 99:59:59.999 I spent five years interviewing, photographing and filming nurses 99:59:59.999 --> 99:59:59.999 for a book and a documentary film. 99:59:59.999 --> 99:59:59.999 With my team, 99:59:59.999 --> 99:59:59.999 we mapped a trip across America that would take us to places 99:59:59.999 --> 99:59:59.999 dealing with some of the biggest public health issues 99:59:59.999 --> 99:59:59.999 facing our nation -- 99:59:59.999 --> 99:59:59.999 aging, war, poverty, prisons. 99:59:59.999 --> 99:59:59.999 And then we went places 99:59:59.999 --> 99:59:59.999 where we would find the largest concentration of patients 99:59:59.999 --> 99:59:59.999 dealing with those issues. 99:59:59.999 --> 99:59:59.999 Then we asked hospitals and facilities to nominate nurses 99:59:59.999 --> 99:59:59.999 who would best represent them. 99:59:59.999 --> 99:59:59.999 One of the first nurses I met was Bridget Kumbela. 99:59:59.999 --> 99:59:59.999 Bridget was born in Camaroon, 99:59:59.999 --> 99:59:59.999 the oldest of four children. 99:59:59.999 --> 99:59:59.999 Her father was at work when he had fallen from the fourth floor 99:59:59.999 --> 99:59:59.999 and really hurt his back. 99:59:59.999 --> 99:59:59.999 And he talked a lot about what it was like to be flat on your back 99:59:59.999 --> 99:59:59.999 and not get the kind of care that you need. 99:59:59.999 --> 99:59:59.999 That propelled Bridget to go into the profession of nursing. 99:59:59.999 --> 99:59:59.999 Now, as a nurse in the Bronx, 99:59:59.999 --> 99:59:59.999 she has a really diverse group of patients that she cares for, 99:59:59.999 --> 99:59:59.999 from all walks of life, 99:59:59.999 --> 99:59:59.999 and from all different religions. 99:59:59.999 --> 99:59:59.999 She's devoted her career to understanding the impact 99:59:59.999 --> 99:59:59.999 of our cultural differences when it comes to our health. 99:59:59.999 --> 99:59:59.999 She spoke of a patient, 99:59:59.999 --> 99:59:59.999 a Native American patient that she had, 99:59:59.999 --> 99:59:59.999 that wanted to bring a bunch of feathers into the ICU. 99:59:59.999 --> 99:59:59.999 That's how he found spiritual comfort. 99:59:59.999 --> 99:59:59.999 And she spoke of advocating for him, 99:59:59.999 --> 99:59:59.999 and said that patients come from all different religions 99:59:59.999 --> 99:59:59.999 and use all different kinds of objects for comfort, 99:59:59.999 --> 99:59:59.999 whether it's a holy rosary or it's a symbolic feather, 99:59:59.999 --> 99:59:59.999 it all needs to be supported. 99:59:59.999 --> 99:59:59.999 This is Jason Short. 99:59:59.999 --> 99:59:59.999 Jason is a home health nurse in the Appalachian mountains, 99:59:59.999 --> 99:59:59.999 and his dad had a gas station and a repair shop when he was growing up. 99:59:59.999 --> 99:59:59.999 So he worked on cars in the community that he now serves as a nurse. 99:59:59.999 --> 99:59:59.999 When he was in college, 99:59:59.999 --> 99:59:59.999 it was just not macho at all to become a nurse, 99:59:59.999 --> 99:59:59.999 so he avoided it for years. 99:59:59.999 --> 99:59:59.999 He drove trucks for a little while, 99:59:59.999 --> 99:59:59.999 but his life path was always pulling him back to nursing. 99:59:59.999 --> 99:59:59.999 As a nurse in the Appalachian mountains, 99:59:59.999 --> 99:59:59.999 Jason goes places that an ambulance can't even get to. 99:59:59.999 --> 99:59:59.999 In this photograph, 99:59:59.999 --> 99:59:59.999 he's standing in what used to be a road. 99:59:59.999 --> 99:59:59.999 Top of the mountain mining flooded that road, 99:59:59.999 --> 99:59:59.999 and now the only was for Jason to get to the patient 99:59:59.999 --> 99:59:59.999 living in that house 99:59:59.999 --> 99:59:59.999 with black lung disease, 99:59:59.999 --> 99:59:59.999 is to drive his SUV against the current up that creek. 99:59:59.999 --> 99:59:59.999 The day I was with him, 99:59:59.999 --> 99:59:59.999 we ripped the front fender off the car. 99:59:59.999 --> 99:59:59.999 The next morning he got up, 99:59:59.999 --> 99:59:59.999 put the car on the lift, 99:59:59.999 --> 99:59:59.999 fixed the fender, 99:59:59.999 --> 99:59:59.999 and then headed out to meet his next patient. 99:59:59.999 --> 99:59:59.999 I witnessed Jason caring for this gentleman 99:59:59.999 --> 99:59:59.999 with such enormous compassion, 99:59:59.999 --> 99:59:59.999 and I was struck again by how intimate the work of nursing really is. 99:59:59.999 --> 99:59:59.999 When I met Brian McMillian, 99:59:59.999 --> 99:59:59.999 he was raw. 99:59:59.999 --> 99:59:59.999 He had just come back from a deployment, 99:59:59.999 --> 99:59:59.999 and he hadn't really settled back in to life in San Diego yet. 99:59:59.999 --> 99:59:59.999 He talked about his experience of being a nurse in Germany, 99:59:59.999 --> 99:59:59.999 and taking care of the soldiers coming right off the battlefield. 99:59:59.999 --> 99:59:59.999 Very often, he would be the first person they would see 99:59:59.999 --> 99:59:59.999 when they opened their eyes in the hospital. 99:59:59.999 --> 99:59:59.999 And they would look at him as they were lying there, 99:59:59.999 --> 99:59:59.999 missing limbs, 99:59:59.999 --> 99:59:59.999 and the first thing they would say is, "When can I go back? 99:59:59.999 --> 99:59:59.999 I left my brothers our there." 99:59:59.999 --> 99:59:59.999 And Brian would have to say, 99:59:59.999 --> 99:59:59.999 "You're not going anywhere. 99:59:59.999 --> 99:59:59.999 You've already given enough, brother." 99:59:59.999 --> 99:59:59.999 Brian is both a nurse and a soldier whose seen combat. 99:59:59.999 --> 99:59:59.999 So that puts him in a unique position 99:59:59.999 --> 99:59:59.999 to be able to relate to and help heal the veterans in his care. 99:59:59.999 --> 99:59:59.999 This is Sister Stephen, 99:59:59.999 --> 99:59:59.999 and she runs a nursing home in Wisconsin called Villa Loretto. 99:59:59.999 --> 99:59:59.999 The entire circle of life can be found under her roof. 99:59:59.999 --> 99:59:59.999 She grew up wishing they lived on a farm, 99:59:59.999 --> 99:59:59.999 so given the opportunity to adopt local farm animals, 99:59:59.999 --> 99:59:59.999 she enthusiastically brings them in. 99:59:59.999 --> 99:59:59.999 And in the springtime, 99:59:59.999 --> 99:59:59.999 those animals have babies. 99:59:59.999 --> 99:59:59.999 So Sister Stephen uses those baby ducks, goats and lambs 99:59:59.999 --> 99:59:59.999 as animal therapy for the residents at Villa Loretto, 99:59:59.999 --> 99:59:59.999 who sometimes can't remember their own name, 99:59:59.999 --> 99:59:59.999 but they do rejoice in the holding of a baby lamb. 99:59:59.999 --> 99:59:59.999 The day I was with Sister Stephen, 99:59:59.999 --> 99:59:59.999 I needed to take her away from Villa Loretto 99:59:59.999 --> 99:59:59.999 oto film part of her story. 99:59:59.999 --> 99:59:59.999 And before she left, 99:59:59.999 --> 99:59:59.999 she wnt into the room of a dying patient. 99:59:59.999 --> 99:59:59.999 She leaned over and she said, 99:59:59.999 --> 99:59:59.999 "I have to go away for the day, 99:59:59.999 --> 99:59:59.999 but if Jesus calls you, 99:59:59.999 --> 99:59:59.999 you go, 99:59:59.999 --> 99:59:59.999 you go straight home to Jesus." 99:59:59.999 --> 99:59:59.999 I was standing there and thinking, 99:59:59.999 --> 99:59:59.999 this is the first time in my life 99:59:59.999 --> 99:59:59.999 I witnessed that you could show someone you love them completely 99:59:59.999 --> 99:59:59.999 by letting go. 99:59:59.999 --> 99:59:59.999 We don't have to hold on so tightly. 99:59:59.999 --> 99:59:59.999 I saw more life rolled up at Villa Loretto 99:59:59.999 --> 99:59:59.999 than I have ever seen at any other time at any other place in my life. 99:59:59.999 --> 99:59:59.999 We live in a complicated time when it comes to our health care. 99:59:59.999 --> 99:59:59.999 It's easy to lose sight of the need for quality of life, 99:59:59.999 --> 99:59:59.999 not just quantity of life. 99:59:59.999 --> 99:59:59.999 As new life-saving technologies are created, 99:59:59.999 --> 99:59:59.999 we're going to have really complicated decisions to make. 99:59:59.999 --> 99:59:59.999 These technologies often save lives, 99:59:59.999 --> 99:59:59.999 but they can also prolong pain and the dying process. 99:59:59.999 --> 99:59:59.999 How in the world are we supposed to navigate these waters? 99:59:59.999 --> 99:59:59.999 We're going to need all the help we can get. 99:59:59.999 --> 99:59:59.999 Nurses have a really unique relationship with us 99:59:59.999 --> 99:59:59.999 because of the time spent at bedside. 99:59:59.999 --> 99:59:59.999 During that time, 99:59:59.999 --> 99:59:59.999 a kind of emotional intimacy develops. 99:59:59.999 --> 99:59:59.999 This past summer, 99:59:59.999 --> 99:59:59.999 on August ninth, 99:59:59.999 --> 99:59:59.999 my father died of a heart attack. 99:59:59.999 --> 99:59:59.999 My mother was devasted, 99:59:59.999 --> 99:59:59.999 and she couldn't imagine her world without him in it. 99:59:59.999 --> 99:59:59.999 Four days later she fell, 99:59:59.999 --> 99:59:59.999 she broke her hip, 99:59:59.999 --> 99:59:59.999 she needed surgery, 99:59:59.999 --> 99:59:59.999 and she found herself fighting for her own life. 99:59:59.999 --> 99:59:59.999 Once again I found myself on the receiving end 99:59:59.999 --> 99:59:59.999 of the care of nurses -- 99:59:59.999 --> 99:59:59.999 this time for my mom. 99:59:59.999 --> 99:59:59.999 My brother and my sister and I stayed by her side 99:59:59.999 --> 99:59:59.999 for the next three days in the ICU. 99:59:59.999 --> 99:59:59.999 And as we tried to make the right decisions, 99:59:59.999 --> 99:59:59.999 and follow my mother's wishes, 99:59:59.999 --> 99:59:59.999 we found that we were depending upon the guidance of nurses. 99:59:59.999 --> 99:59:59.999 And once again, 99:59:59.999 --> 99:59:59.999 they didn't let us down. 99:59:59.999 --> 99:59:59.999 They had an amazing insight in terms of how to care for my mom 99:59:59.999 --> 99:59:59.999 in the last four days of her life. 99:59:59.999 --> 99:59:59.999 They brought her comfort and relief from pain. 99:59:59.999 --> 99:59:59.999 They knew to encourage my sister and I to put a pretty nightgown on my mom, 99:59:59.999 --> 99:59:59.999 long after it mattered to her, 99:59:59.999 --> 99:59:59.999 but it sure meant a lot to us. 99:59:59.999 --> 99:59:59.999 And they knew to come and wake me up just in time for my mom's last breath. 99:59:59.999 --> 99:59:59.999 Then they knew how long to leave me in the room 99:59:59.999 --> 99:59:59.999 with my mother after she died. 99:59:59.999 --> 99:59:59.999 I have no idea how they know these things, 99:59:59.999 --> 99:59:59.999 but I do know that I am eternally grateful 99:59:59.999 --> 99:59:59.999 that they've guided me once again. 99:59:59.999 --> 99:59:59.999 Thank you so very much. 99:59:59.999 --> 99:59:59.999 (Applause)