[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:05.09,0:00:08.13,Default,,0000,0000,0000,,Affects one million people in the United States.
Dialogue: 0,0:00:08.13,0:00:11.28,Default,,0000,0000,0000,,Less than half the doctors in this country know the name of this illness.
Dialogue: 0,0:00:11.28,0:00:13.20,Default,,0000,0000,0000,,I don't know of another illness like that.
Dialogue: 0,0:00:13.71,0:00:18.12,Default,,0000,0000,0000,,This is probably the craziest story I have ever heard of in my life.
Dialogue: 0,0:00:18.12,0:00:23.78,Default,,0000,0000,0000,,It was what should have been the happiest moment of my life. I was engaged to the love of my life.
Dialogue: 0,0:00:23.78,0:00:30.72,Default,,0000,0000,0000,,I was a PhD student at Harvard. And then...WHAM! I had a hundred-and-five-degree-fever that lasted for 10 days.
Dialogue: 0,0:00:30.72,0:00:34.24,Default,,0000,0000,0000,,The doctor had said to me, "Everything you're feeling is in your head."
Dialogue: 0,0:00:34.24,0:00:36.58,Default,,0000,0000,0000,,I had a blackout. When I came to I couldn't read a word.
Dialogue: 0,0:00:38.92,0:00:41.25,Default,,0000,0000,0000,,I disappeared entirely and no one knew why.
Dialogue: 0,0:00:41.25,0:00:44.46,Default,,0000,0000,0000,,Among the people who hadn't a clue was me.
Dialogue: 0,0:00:44.46,0:00:47.84,Default,,0000,0000,0000,,Except for the doctors, nobody doubted I was really sick.
Dialogue: 0,0:00:47.84,0:00:50.67,Default,,0000,0000,0000,,It's a story that you need to see to believe.
Dialogue: 0,0:00:50.67,0:00:54.81,Default,,0000,0000,0000,,Are you tired all the time? Tired. Tired all the time. I just slept all the time.
Dialogue: 0,0:00:54.81,0:00:56.09,Default,,0000,0000,0000,,Why am I so darn tired all the time?
Dialogue: 0,0:00:56.09,0:00:58.25,Default,,0000,0000,0000,,Chronic Fatigue Sundrome.
Dialogue: 0,0:00:58.25,0:01:00.16,Default,,0000,0000,0000,,Chronic Fatigue Syndrome. Chronic Fatigue Syndrome.
Dialogue: 0,0:01:00.16,0:01:02.47,Default,,0000,0000,0000,,La Fatigue Chronique. Chronic Fatigue Syndrome?
Dialogue: 0,0:01:02.47,0:01:05.01,Default,,0000,0000,0000,,No, that can't be right. You're too sick.
Dialogue: 0,0:01:05.01,0:01:08.54,Default,,0000,0000,0000,,Hi. I'm Jennifer Brea. I'm Kiran Chitanvis.
Dialogue: 0,0:01:08.54,0:01:11.70,Default,,0000,0000,0000,,And this is our Kickstarter Campaign for Canary In A Coal Mine,
Dialogue: 0,0:01:11.70,0:01:15.88,Default,,0000,0000,0000,,a film that takes a look into the lives of people living with one of the world's
Dialogue: 0,0:01:15.88,0:01:19.79,Default,,0000,0000,0000,,most misunderstood diseases - Myalgic Encephalomyelitis.
Dialogue: 0,0:01:19.79,0:01:23.74,Default,,0000,0000,0000,,It's a disease suffered by a subset of people diagnosed each year with Chronic Fatigue Syndrome.
Dialogue: 0,0:01:23.74,0:01:29.21,Default,,0000,0000,0000,,Had I not become ill with M.E. three years ago, I would have never believed the story
Dialogue: 0,0:01:29.21,0:01:33.03,Default,,0000,0000,0000,,was possible. In order to make this film, we need your help. Take a look.
Dialogue: 0,0:01:33.03,0:01:38.43,Default,,0000,0000,0000,,I was at a Chinese restaurant with some friends and when the check came
Dialogue: 0,0:01:38.43,0:01:44.93,Default,,0000,0000,0000,,I couldn't sign my name. My brain was burning.
Dialogue: 0,0:01:44.93,0:01:50.35,Default,,0000,0000,0000,,He said maybe I was stressed or depressed or sad or
Dialogue: 0,0:01:50.35,0:01:55.07,Default,,0000,0000,0000,,most implausibly that I wanted to be sick.
Dialogue: 0,0:01:55.07,0:01:59.68,Default,,0000,0000,0000,,We doctors are the most arrogant of professionals.
Dialogue: 0,0:01:59.68,0:02:03.16,Default,,0000,0000,0000,,I've got the answer right here, ladies and gentlemen.
Dialogue: 0,0:02:03.16,0:02:04.86,Default,,0000,0000,0000,,To everything that ails you!
Dialogue: 0,0:02:04.86,0:02:09.95,Default,,0000,0000,0000,,We just don't have doctors going to guys and saying if you would change the color of your hair, you would feel better.
Dialogue: 0,0:02:09.95,0:02:13.01,Default,,0000,0000,0000,,If you could, you know, get a younger wife, you would feel better.
Dialogue: 0,0:02:13.01,0:02:19.14,Default,,0000,0000,0000,,Ones gotta insist that this is a physical disease, that this is not a psychiatric disease.
Dialogue: 0,0:02:19.14,0:02:21.47,Default,,0000,0000,0000,,It's an acquired form of an immunodeficiency disorder.
Dialogue: 0,0:02:21.47,0:02:25.92,Default,,0000,0000,0000,,If you go back historically, you can see illnesses very similar to this called
Dialogue: 0,0:02:25.92,0:02:32.09,Default,,0000,0000,0000,,many different things. Toxins can insidiously creep in to every aspect of our
Dialogue: 0,0:02:32.09,0:02:36.05,Default,,0000,0000,0000,,lives, flipping certain individuals who've might otherwise be resistant to an
Dialogue: 0,0:02:36.05,0:02:40.90,Default,,0000,0000,0000,,infection. The severity of the illness is equivalent to
Dialogue: 0,0:02:40.90,0:02:45.57,Default,,0000,0000,0000,,congestive heart failure. We think that there is very very likely to be some
Dialogue: 0,0:02:45.57,0:02:48.28,Default,,0000,0000,0000,,sort of infectious culprit. It was just a
Dialogue: 0,0:02:48.28,0:02:53.58,Default,,0000,0000,0000,,group of people, a committee that happened to be pulled together by the CDC that came up with this perfectly
Dialogue: 0,0:02:53.58,0:02:55.83,Default,,0000,0000,0000,,horrid name, Chronic Fatigue Syndrome.
Dialogue: 0,0:02:55.83,0:03:00.52,Default,,0000,0000,0000,,I was frustrated and normally I would write
Dialogue: 0,0:03:00.52,0:03:03.17,Default,,0000,0000,0000,,in a journal to process my experience but I
Dialogue: 0,0:03:03.17,0:03:08.41,Default,,0000,0000,0000,,had lost the ability to write, and so that's why I started filming these video
Dialogue: 0,0:03:08.41,0:03:13.18,Default,,0000,0000,0000,,diaries, and it was really just a personal space to process what I was feeling
Dialogue: 0,0:03:13.18,0:03:17.46,Default,,0000,0000,0000,,and to sort of deal with some of that anger
Dialogue: 0,0:03:17.46,0:03:19.82,Default,,0000,0000,0000,,of no one knows what's wrong with me,
Dialogue: 0,0:03:19.82,0:03:20.73,Default,,0000,0000,0000,,no one has a treatment for me
Dialogue: 0,0:03:20.73,0:03:23.61,Default,,0000,0000,0000,,and everything that I love and care about
Dialogue: 0,0:03:23.61,0:03:25.74,Default,,0000,0000,0000,,is slipping away.
Dialogue: 0,0:03:25.74,0:03:27.70,Default,,0000,0000,0000,,You might saying to yourself, if I really couldn't
Dialogue: 0,0:03:27.70,0:03:34.74,Default,,0000,0000,0000,,stand up, why would I be filming it? Well, I kind of
Dialogue: 0,0:03:34.74,0:03:40.91,Default,,0000,0000,0000,,think that someone should see this.
Dialogue: 0,0:03:40.91,0:03:51.16,Default,,0000,0000,0000,,As I dug deeper, I realized that my symptoms
Dialogue: 0,0:03:51.16,0:03:54.10,Default,,0000,0000,0000,,followed a pattern and that there were millions
Dialogue: 0,0:03:54.10,0:03:56.49,Default,,0000,0000,0000,,of people around the world who had my disease
Dialogue: 0,0:03:56.49,0:03:59.90,Default,,0000,0000,0000,,As I shared my story on facebook, old friends
Dialogue: 0,0:03:59.90,0:04:02.40,Default,,0000,0000,0000,,from college and high school sort of coming
Dialogue: 0,0:04:02.40,0:04:03.82,Default,,0000,0000,0000,,out of the woodwork to share their stories.
Dialogue: 0,0:04:03.82,0:04:05.72,Default,,0000,0000,0000,,They didn't have M.E. but they had other
Dialogue: 0,0:04:05.72,0:04:09.74,Default,,0000,0000,0000,,chronic illnesses, auto immune diseases and
Dialogue: 0,0:04:09.74,0:04:14.54,Default,,0000,0000,0000,,I started to realize that, you know, this is actually
Dialogue: 0,0:04:14.54,0:04:16.66,Default,,0000,0000,0000,,a universal story. Our approach in making
Dialogue: 0,0:04:16.66,0:04:19.17,Default,,0000,0000,0000,,this film is to give the audience a really
Dialogue: 0,0:04:19.17,0:04:21.41,Default,,0000,0000,0000,,subjective view into the lives of people
Dialogue: 0,0:04:21.41,0:04:23.07,Default,,0000,0000,0000,,with this disease. What we really want to do
Dialogue: 0,0:04:23.07,0:04:25.66,Default,,0000,0000,0000,,is to bring the audience in and to make people
Dialogue: 0,0:04:25.66,0:04:28.92,Default,,0000,0000,0000,,feel for the first time what it's like to
Dialogue: 0,0:04:28.92,0:04:33.33,Default,,0000,0000,0000,,live with this devastating illness. It's just beyond any words.
Dialogue: 0,0:04:33.33,0:04:35.50,Default,,0000,0000,0000,,The participants in the film are doing a lot
Dialogue: 0,0:04:35.50,0:04:38.21,Default,,0000,0000,0000,,of self-filmed footage and it really gives
Dialogue: 0,0:04:38.21,0:04:40.35,Default,,0000,0000,0000,,you a visceral view into their lives in a
Dialogue: 0,0:04:40.35,0:04:42.32,Default,,0000,0000,0000,,way that you would never get by bringing a
Dialogue: 0,0:04:42.32,0:04:43.96,Default,,0000,0000,0000,,film crew into somebody else's house.
Dialogue: 0,0:04:43.96,0:04:47.21,Default,,0000,0000,0000,,Taking on a project like this is completely insane.
Dialogue: 0,0:04:47.21,0:04:50.83,Default,,0000,0000,0000,,It's difficult to travel everytime we go,
Dialogue: 0,0:04:50.83,0:04:54.42,Default,,0000,0000,0000,,you know, one hour from Princeton to New York, we
Dialogue: 0,0:04:54.42,0:04:56.60,Default,,0000,0000,0000,,have to pack all of my own food. It's like
Dialogue: 0,0:04:56.62,0:04:59.48,Default,,0000,0000,0000,,there's more gear for to take care of me than
Dialogue: 0,0:04:59.48,0:05:02.44,Default,,0000,0000,0000,,there is like camera gear we're packing in the car
Dialogue: 0,0:05:02.44,0:05:05.05,Default,,0000,0000,0000,,for the shoot. She conducts the interviews for most of the shoots
Dialogue: 0,0:05:05.19,0:05:07.97,Default,,0000,0000,0000,,from a different room and conducts them over skype
Dialogue: 0,0:05:07.97,0:05:09.64,Default,,0000,0000,0000,,through a teleprompter.
Dialogue: 0,0:05:09.72,0:05:14.96,Default,,0000,0000,0000,,I can interview people whether I'm in the next room or at home in bed and, you know,
Dialogue: 0,0:05:15.13,0:05:17.88,Default,,0000,0000,0000,,there's a crew halfway around the world shooting.
Dialogue: 0,0:05:17.88,0:05:22.46,Default,,0000,0000,0000,,In addition to a few, new technological things we're gonna be trying out.
Dialogue: 0,0:05:22.46,0:05:25.05,Default,,0000,0000,0000,,Some tricks up our sleeves. Got a few tricks.
Dialogue: 0,0:05:25.05,0:05:28.83,Default,,0000,0000,0000,,The diagnosis of M.E. is really in a place
Dialogue: 0,0:05:28.83,0:05:32.28,Default,,0000,0000,0000,,where something like epilepsy or multiple
Dialogue: 0,0:05:32.28,0:05:34.95,Default,,0000,0000,0000,,sclerosis was a hundred to even thirty years ago.
Dialogue: 0,0:05:34.95,0:05:40.13,Default,,0000,0000,0000,,And how many more diseases will this happen to unless our approach changes.
Dialogue: 0,0:05:40.13,0:05:44.65,Default,,0000,0000,0000,,There's $16 million dollars in male-pattern baldness
Dialogue: 0,0:05:44.65,0:05:47.74,Default,,0000,0000,0000,,and we got $3 million bucks going to Chronic Fatigue Syndrome.
Dialogue: 0,0:05:47.74,0:05:53.84,Default,,0000,0000,0000,,My husband has asked me, you know, "Jen, what do you care more about, your health or this film?"
Dialogue: 0,0:05:53.84,0:05:57.69,Default,,0000,0000,0000,,There's no way we're gonna go into the mall and show our numbers.
Dialogue: 0,0:05:57.69,0:06:00.74,Default,,0000,0000,0000,,We can't even walk to the mailbox." (laughing)
Dialogue: 0,0:06:00.74,0:06:06.34,Default,,0000,0000,0000,,Even though we often feel like, whatever it is that we are grappling with, no one
Dialogue: 0,0:06:06.34,0:06:10.04,Default,,0000,0000,0000,,else can understand the fact is that we will
Dialogue: 0,0:06:10.04,0:06:12.07,Default,,0000,0000,0000,,all have that experience of coming across an
Dialogue: 0,0:06:12.07,0:06:13.87,Default,,0000,0000,0000,,obstacle that feels insurmountable.
Dialogue: 0,0:06:13.87,0:06:16.41,Default,,0000,0000,0000,,There was a future you take for granted everyday
Dialogue: 0,0:06:16.41,0:06:19.08,Default,,0000,0000,0000,,and never articulate to yourself and yet
Dialogue: 0,0:06:19.08,0:06:21.46,Default,,0000,0000,0000,,it's always there and when you come down
Dialogue: 0,0:06:21.46,0:06:23.96,Default,,0000,0000,0000,,with an illness that has no end, it strips
Dialogue: 0,0:06:23.96,0:06:27.12,Default,,0000,0000,0000,,away that idea of a future.
Dialogue: 0,0:06:27.12,0:06:29.62,Default,,0000,0000,0000,,When we're in that moment that everything
Dialogue: 0,0:06:29.62,0:06:32.28,Default,,0000,0000,0000,,changes, how do we react?
Dialogue: 0,0:06:32.28,0:06:34.62,Default,,0000,0000,0000,,When I got sick, he took care of me.
Dialogue: 0,0:06:34.62,0:06:38.98,Default,,0000,0000,0000,,But I'd rather carry you around all my life than have anything happen to you.
Dialogue: 0,0:06:38.98,0:06:42.86,Default,,0000,0000,0000,,We kept saying, you know, don't get discouraged, you never know what's around
Dialogue: 0,0:06:42.86,0:06:44.70,Default,,0000,0000,0000,,the corner. Things can change.
Dialogue: 0,0:06:44.70,0:06:49.40,Default,,0000,0000,0000,,I have this belief that if I can read a lot of science
Dialogue: 0,0:06:49.40,0:06:57.42,Default,,0000,0000,0000,,and do a lot of self-experimentation that I can turn this
Dialogue: 0,0:06:57.42,0:06:59.48,Default,,0000,0000,0000,,thing around. We believe in this story and
Dialogue: 0,0:06:59.48,0:07:02.17,Default,,0000,0000,0000,,we're gonna do everything we can to see this
Dialogue: 0,0:07:02.17,0:07:06.61,Default,,0000,0000,0000,,film happen. Yes, we would hope to be taken as seriously as male-pattern baldness
Dialogue: 0,0:07:06.61,0:07:09.77,Default,,0000,0000,0000,,but I am not looking for any miracles here.
Dialogue: 0,0:07:09.77,0:07:13.76,Default,,0000,0000,0000,,No one can promise a cure but one very important step towards that goal is
Dialogue: 0,0:07:13.76,0:07:15.81,Default,,0000,0000,0000,,visibility. There are things that could be
Dialogue: 0,0:07:15.81,0:07:18.20,Default,,0000,0000,0000,,happening today that would improve the lives
Dialogue: 0,0:07:18.20,0:07:21.06,Default,,0000,0000,0000,,of patients with living with M.E. Visibility means more
Dialogue: 0,0:07:21.06,0:07:22.85,Default,,0000,0000,0000,,research. It means not having to wait 5
Dialogue: 0,0:07:22.85,0:07:28.32,Default,,0000,0000,0000,,years for a diagnosis. Visibility means not having doctors give you advice that
Dialogue: 0,0:07:28.32,0:07:30.55,Default,,0000,0000,0000,,can cause you harm. Visibility means that people with
Dialogue: 0,0:07:30.55,0:07:34.38,Default,,0000,0000,0000,,M.E. would no longer be forcibly institutionalized because
Dialogue: 0,0:07:34.38,0:07:36.87,Default,,0000,0000,0000,,their doctor that has never heard of their disease.
Dialogue: 0,0:07:36.87,0:07:40.20,Default,,0000,0000,0000,,Right now, to most of the world, we are invisible.
Dialogue: 0,0:07:40.20,0:07:42.60,Default,,0000,0000,0000,,Fifty Thousand dollars is what we need to
Dialogue: 0,0:07:42.60,0:07:47.58,Default,,0000,0000,0000,,make it through the completion of production and have a film that we're really proud of but to make the
Dialogue: 0,0:07:47.58,0:07:49.63,Default,,0000,0000,0000,,film that we dream of, that's just the beginning.
Dialogue: 0,0:07:49.63,0:07:51.82,Default,,0000,0000,0000,,And we're going to need a lot of help to get there.
Dialogue: 0,0:07:51.82,0:07:53.86,Default,,0000,0000,0000,,Kickstarter is an all-or-nothing campaign
Dialogue: 0,0:07:53.86,0:07:56.80,Default,,0000,0000,0000,,and if we don't reach our funding goal, then
Dialogue: 0,0:07:56.80,0:07:59.80,Default,,0000,0000,0000,,we don't get to keep any of what we have raised.
Dialogue: 0,0:07:59.80,0:08:02.31,Default,,0000,0000,0000,,Up to this point, we've shot about a week's
Dialogue: 0,0:08:02.31,0:08:05.03,Default,,0000,0000,0000,,worth of footage and just imagine what we
Dialogue: 0,0:08:05.03,0:08:10.19,Default,,0000,0000,0000,,could do with the funds to shoot four weeks, six weeks, and to do it not just
Dialogue: 0,0:08:10.19,0:08:13.76,Default,,0000,0000,0000,,in the New Jersey-New York area but around the world.
Dialogue: 0,0:08:13.76,0:08:18.95,Default,,0000,0000,0000,,We want this film to have such an impact that I could walk up to anyone on the street
Dialogue: 0,0:08:18.95,0:08:22.53,Default,,0000,0000,0000,,and say, "Hi! I'm Jen and I have Myalgic Encephalomyelitis"
Dialogue: 0,0:08:22.53,0:08:25.83,Default,,0000,0000,0000,,and they would actually know what the f@#$ that was.
Dialogue: 0,0:08:25.93,0:08:29.77,Default,,0000,0000,0000,,Go to our Kickstarter page, check out the link and make a donation to the film.
Dialogue: 0,0:08:30.38,0:08:33.80,Default,,0000,0000,0000,,You can also follow us on Twitter or Facebook
Dialogue: 0,0:08:33.80,0:08:33.81,Default,,0000,0000,0000,,
Dialogue: 0,0:08:33.81,0:08:40.41,Default,,0000,0000,0000,,or even just pass along either the Kickstarter link, the Facebook Page or the Twitter handle
Dialogue: 0,0:08:40.41,0:08:43.25,Default,,0000,0000,0000,,or preferably all of the above. Or all the above!!!
Dialogue: 0,0:08:43.25,0:08:46.55,Default,,0000,0000,0000,,The biggest way you can help us is by
Dialogue: 0,0:08:46.55,0:08:46.55,Default,,0000,0000,0000,,
Dialogue: 0,0:08:46.55,0:08:48.38,Default,,0000,0000,0000,,spreading the word and then scroll down
Dialogue: 0,0:08:48.48,0:08:51.26,Default,,0000,0000,0000,,and check out some of our other video
Dialogue: 0,0:08:51.31,0:08:54.44,Default,,0000,0000,0000,,as well as the awesome rewards by writers and
Dialogue: 0,0:08:54.44,0:08:57.58,Default,,0000,0000,0000,,artists who are also living with M.E.
Dialogue: 0,0:08:57.58,0:09:01.20,Default,,0000,0000,0000,,Join us on our mission to give a true face
Dialogue: 0,0:09:01.20,0:09:03.03,Default,,0000,0000,0000,,to this disease that's so misunderstood.
Dialogue: 0,0:09:03.03,0:09:06.94,Default,,0000,0000,0000,,Most of us look at what's around us and see
Dialogue: 0,0:09:06.94,0:09:08.93,Default,,0000,0000,0000,,very little and yet we have the capacity to
Dialogue: 0,0:09:08.93,0:09:11.41,Default,,0000,0000,0000,,see infinity in the smallest of things.
Dialogue: 0,0:09:11.41,0:09:17.18,Default,,0000,0000,0000,,This is our life and everyday we're just so grateful for it.
Dialogue: 0,0:09:17.18,0:09:21.18,Default,,0000,0000,0000,,Plus you learn from everything you survive.