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← COVID-19 Response - YAI, New York - COVID Database for people with IDD.

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Zeige Revision 2 erzeugt am 06/18/2020 von Marti Berg.

  1. Do you wanna start by giving me
    a little overview of
  2. what your job is and
    what you do overall?
  3. I work as the coordinator for the
    LINK department at YAI.
  4. LINK stands for linking individuals to
    necessary knowledge.
  5. So what we do is information referral
    resource for the entire YAI network.
  6. Typically what we do is respond to
    inquiries from families, professionals,
  7. and the people we support in regard to a
    whole range of different things.
  8. What services they might be in need of,
    general information, explaining the
    OPWDD system.
  9. So explaining what the office for people
    with developmental disabilities does.
  10. How to get eligibility with them.
  11. We review evaluations for people.
  12. Typicallly we get about 400
    inquiries a week.
  13. That's kind of the main part of my job.
  14. In addition to that we also run some
    programs out of my department including,
  15. independent living skills program.
  16. Which is for adults 18 and up
    who are interested in learning a wide
  17. variety of different topics.
  18. We also have some social
    skills groups, a ballet yoga program
  19. that we provide in Brooklyn, as well as
    some programs for 17 to 21 year olds
  20. here in Manhattan.
  21. Oh wow that's a lot. So now you've
    created this database with information
  22. about COVID-19 so who came up with
    that idea?
  23. It really started from getting a lot of
    information from a lot of really good
  24. meaning people who were sending us
    resources directly related to COVID.
  25. Typically, on a normal day in LINK we have
    our IDD resource library.
  26. Which is where we keep information that's
    just general knowledge that would help
  27. someone that has an intellectual or
    developmental disability.
  28. Things like links to different resources
    at libraries, different benefits packages.
  29. Things like that so they can research
    and understand different resources
  30. that are out there.
  31. Once COVID began, we started getting
    a lot information where people asked,
  32. "Can you add this to
    your resource library?"
  33. And what we realized is, adding it
    to the resource library
  34. is going to make it really difficult
    for families to find it.
  35. So we started adding it to a page,
    but the page became really bogged down.
  36. The page was huge and it became
    again, tedious to look through.
  37. So the wonderful Cathy Bechler, who works
    partially in my department and partially
  38. in communications. She actually went
    ahead and created a database where we
  39. could enter all this information
    that we were getting.
  40. And it's been growing from there.
  41. Pretty much everyday we're getting at
    least 1-2 resources to add to that page.
  42. So linksters who work in my department
    will go through these resources,
  43. determine if they're going to be
    useful to the people we support.
  44. How to categorize them so they're easy
    to search for the people that are
  45. looking at the database.
  46. Who decided which resources to include?
    And can you give me an overview of what
  47. kind of resources you have in this
    database?
  48. We have a lot of different ones. There are
    a couple different categories.
  49. We have everything from entertainment,
    information on different zoos and
  50. aquariums that are doing
    online viewing of their animals.
  51. All the way to these are emergency
    resources for accessing food, these are
  52. emergency resources for accessing
    financial help.
  53. Information on updates that the
    government is giving that are
  54. specific to people with IDD as well as
    just to the general population.
  55. In terms of who came up with the idea.
    It was really the brainchild of a couple
  56. different people. Cathy definitely did the
    infrastructure work.
  57. In terms of determining what goes up there
    a lot of times it's people sending us the
  58. information, but then a linkster, someone
    who is an information specialist or
  59. supervisor in the LINK department is
    reading through it and deciding.
  60. What does this mean to somebody?
    Is this something that's useful for our
  61. population, should this resource
    replace another one?
  62. Maybe there's outdated information
    and this is an update.
  63. So every single day the linksters are
    reading through the new information
  64. that comes in and determining
    how it should be categorized.
  65. How to put it up there, what age group it
    applies to. What kind of category.
  66. Is it an entertainment resource?
    Is it an app?
  67. Is it a mental health resource?
  68. Categorizing it so that it's easy for
    families and professionals to really
  69. look though it and find it quickly.
  70. And are these resources tailored to people
    with specific disabilities?
  71. Or are they for everyone,
    disabled on non-disabled?
  72. A lot of the resources could be used
    by anybody.
  73. We do try to highlight those that are
    specific to the IDD community.
  74. There are some resources that specifically
    say this is for somebody diagnosed with
  75. autism., but in reality, a mindfullness
    app is useful for anyone who is able
  76. to get into the app. A lot of social
    stories could be used with any age
  77. of child or any diagnosis.
    Although it might say specifically
  78. that it's for someone with autism,
    it doesn't mean that somebody that
  79. doesn't have autism won't
    find it helpful.
  80. And how about accessibility?
    Did you have a specific concept in mind so
  81. this database is accessible for everyone?
  82. So we're trying to keep the language to
    typically around the second grade level.
  83. When we're describing the information,
    we want to keep it pretty basic.
  84. We do have an entire category that is
    only Espanol.
  85. Those are all resources that are either
    in Spanish or that we've been able to
  86. translate into Spanish.
  87. So one of my colleagues, Mara
    Henriquez, she is our Spanish linkster.
  88. So she has been doing a lot of work
    translating this is what this means.
  89. Reading through those resources that are
    specifically in Spanish to make sure that
  90. we're catering to that population.
    That they have the same access
  91. as an English speaker would have.
  92. There was a lot of criticism around
    government efforts that didn't
  93. quite include people with disabilities.
  94. So was this somehow a motivation for
    you to create this database?
  95. I mean definitely. We really want to make
    sure people with IDD and their families
  96. are supported in this.
  97. There is so much going on right now and
    it's really overwhelming. And when you add
  98. in the fact that somebody is either a
    person with a developmental disability
  99. or supporting someone with a
    developmental disability, it compounds
  100. upon that and makes those stressors
    more difficult.
  101. It makes explaining COVID more difficult.
    So trying to find those resources
  102. that help break it down into language
    somebody's going to understand,
  103. and helping those parents and caregivers
    stay mindful and help reduce their stress
  104. and anxiety, and of course always helps
    the people that we support.
  105. We want to give them all the resources
    we can so they stay calm and therefore
  106. are better able to serve the people that
    we are helping to support.